Uchongwe njengomntwana, u-Ashley Boynes-Shuck ngoku uChitha amandla akhe ekuXhobiseni abanye abaphila ne-RA

Umxholo

• Ifowuni yokunceda abanye
• Ukudibanisa nge-RA Healthline app

Ummeli we-rheumatoid arthritis u-Ashley Boynes-Shuck wabambisana nathi ukuba sithethe ngohambo lwakhe kunye ne-app yeHealthline entsha kulabo abahlala ne-RA.

Ifowuni yokunceda abanye

Ngo-2009, uBoynes-Shuck waqala ukusebenza njengomlawuli wophuhliso loluntu kunye nommeli woontanga kunye neArthritis Foundation.

"Ndifumanise ukuba kuluncedo ukuba nento elungileyo nenemveliso ekugxilwe kuyo, kwaye ndafumana uvuyo kunye nombulelo ngokunceda kunye nokunceda abanye, ukusasaza ulwazi, uqeqesho kwezempilo, kunye nokukhuthaza," utshilo.

"Ezi zizinto endiziva ukuba mandizenze, ngalo lonke elixesha ndiguqula imeko yam embi ukuba ibe yinto eluncedo neqinisekileyo."

Uye wasungula nebhlog yakhe Arthritis Ashley kwaye wapapasha iincwadi ezimbini ngohambo lwakhe noRA.

Ukudibanisa nge-RA Healthline app

Inzame kaBoynes-Shuck yamva nje kukudibana neHealthline njengesikhokelo soluntu kwi-RA Healthline yayo yasimahla.

Insiza idibanisa abo baneRA ngokusekwe kwiminqweno yabo yokuphila. Abasebenzisi banokukhangela iiprofayili zelungu kwaye bacele ukuthelekisa naliphi na ilungu eluntwini.

Yonke imihla, iapps ifanisa amalungu asuka eluntwini, ebavumela ukuba banxibelelane kwangoko. UBoynes-Shuck uthi inqaku lomdlalo luhlobo oluthile.

"Ifana nesifumanisi se'RA-Buddy ', utshilo.

Njengesikhokelo soluntu, u-Boynes-Shuck kunye nabanye oonozakuzaku be-RA abameli baya kukhokelela kwingxoxo ephilayo ebanjwa mihla le. Abasebenzisi banokuzibandakanya ekuthatheni inxaxheba kwiingxoxo ezinje ngezihloko ezinje ngokutya kunye nesondlo, umthambo, ukhathalelo lwempilo, izinto ezibangela ukulawulwa kwentlungu, unyango, ezinye iindlela zonyango, iingxaki, ubudlelwane, uhambo, impilo yengqondo, kunye nokunye.

“Ndonwabile ukuba sisikhokelo soluntu kwiRA Healthline. Ndiziva ndinomdla kwizigulana zamathambo ezinendawo ekhuselekileyo kwaye ndingaziva ndindedwa, kwaye kuyandikhuthaza ukuba ndisebenzise ilizwi lam kakuhle kwaye ndincede nabanye abakwimeko efanayo nam, ”utshilo. "Kwakhona, imalunga nokwenza okona kulungileyo ezandleni endandiphethwe kuzo."

Ngelixa asebenzise u-Facebook, u-Twitter, kunye nezinye iiwebhusayithi kunye namaqonga eendaba ezentlalo ukufuna ulwazi nge-RA, uthi i-RA Healthline kuphela kwesixhobo sedijithali asisebenzisileyo esinikezelwe kuphela kubantu abaphila ne-RA.

"Yindawo eyamkelekileyo neqinisekileyo kubantu abacinga ngokufanayo nabaphila neRA," utshilo.

Kubasebenzisi abafuna ukufunda ulwazi olunxulumene neRA, iapps inikezela ngecandelo lokuFumanisa, elibandakanya indlela yokuphila kunye namanqaku eendaba aqwalaselwe ziingcali zonyango zeHealthline malunga nezihloko ezinxulumene nokuxilongwa, unyango, uphando, isondlo, ukuzikhathalela, impilo yengqondo, kunye nokunye . Unokufunda amabali obuqu kwabo bahlala neRA.

Icandelo lokufumanisa yeyona ndlela ilungileyo yokufumana ulwazi oluluncedo kwindawo enye. Kudala ndiyikhangela, "utshilo uBoynes-Shuck.

Ukwafumana ulwazi kunye nokuqonda kumalungu oluntu.

"Ngokunyanisekileyo, wonke umntu uthi ndiyabakhuthaza, kodwa ndiziva ngokulinganayo ndikhuthazekile kwaye ndinombulelo kwizigulana endikunye nazo zeRA. Ndifunde kakhulu kwaye ndikhuthazwe kakhulu ngoontanga bam, ”utshilo. "Bekunomvuzo ngokwenyani kwaye kubuchwephesha, kodwa ikwangumthombo omkhulu wenkxaso kum ukuba ndifunde kwaye ndithembele kwezinye izigulana."

Khuphela usetyenziso apha.

UCathy Cassata ngumbhali ozimeleyo ojolise kumabali ngempilo, impilo yengqondo kunye nokuziphatha komntu. Unobuchule bokubhala ngeemvakalelo kunye nokunxibelelana nabafundi ngendlela enengqiqo nenomdla. Funda ngakumbi ngomsebenzi wakhe Apha.