Kwakunjani Ukukhula ngePsoriasis

Umxholo

• Ukujikeleza isazisi sokufikisa
• Ukuhlangabezana nokuqonda koluntu
• Ukwamkela ulusu endikulo
• Ukuthatha

Ngenye intsasa ngo-Epreli 1998, ndavuka ndigutyungelwe yimpawu zokuqala kwam ukhwekhwe. Ndandineminyaka eli-15 kuphela ubudala yaye ndandisesikolweni kwisikolo samabanga aphakamileyo. Nangona umakhulu wam wayenayo i-psoriasis, amabala avele ngequbuliso kangangokuba ndacinga ukuba yinto engavumiyo.

Kwakungekho nto ibangela ukuba kubekho, njengemeko yoxinzelelo, ukugula, okanye umcimbi otshintsha ubomi. Ndisandul 'ukuvuka ndimbozwe ngamabala abomvu, anamaxolo athabatha ngokupheleleyo umzimba wam, endibangela ukuba ndingonwabi kakhulu, ndisoyika kwaye ndibuhlungu.

Ukutyelela ugqirha wesikhumba kuqinisekisile ukuxilongwa kwe-psoriasis kwaye wandiqala kuhambo lokuzama amayeza amatsha nokwazi isifo sam. Kuthathe ixesha elide ukuba ndiqonde ukuba esi sisifo endiza kuhlala naso ngonaphakade. Kwakungekho nonyango-akukho pilisi yomlingo okanye into yokuthambisa eya kwenza amabala ahambe.

Kuthathe iminyaka ukuzama yonke imixholo phantsi kwelanga. Ndizamile iikhrimu, into yokuthambisa, iigels, amagwebu, kunye neashampoos, ndada ndazisongela ngesongelo seplastiki ukugcina ii-meds zivuliwe. Ke yayiye kunyango olulula kathathu ngeveki, kwaye konke oku ngaphambi kokuba ndiyenze ku-Driver's Ed.

Ukujikeleza isazisi sokufikisa

Xa ndixelela abahlobo bam esikolweni, bandixhasa kakhulu ukuxilongwa kwam, kwaye babuza imibuzo emininzi ukunceda ukuqinisekisa ukuba ndiziva ndikhululekile. Ubukhulu becala, abantu endandifunda nabo babenobubele ngayo. Ndicinga ukuba eyona nto inzima ngayo yayikukusabela kwabanye abazali nakubantu abadala.

Ndadlala kwiqela le-lacrosse kwaye bekukho iinkxalabo ezivela kwamanye amaqela aphikisayo endidlala ngawo nento eyosulelayo. Umqeqeshi wam uthathe inyathelo lokuthetha nomqeqeshi ophikisayo malunga nayo kwaye ihlala ihlala ngokukhawuleza ngoncumo. Okwangoku, ndabona ukujonga kunye nokusebeza kwaye ndifuna ukuncipha emva kwenduku yam.

Ulusu lwam luhlala luziva lincinci emzimbeni wam. Nokuba ndinxibe ntoni, bendihleli njani okanye ndiyaxoka, andiziva mnandi emzimbeni wam. Ukuba ngumntwana okwishumi elivisayo kunzima kakhulu ngaphandle kokugqunywa ngamabala abomvu. Ndizabalaze ngokuzithemba kwisikolo samabanga aphakamileyo nakwikholeji.

Ndandinomhle ngokufihla amabala am phantsi kwempahla kunye nokwenza, kodwa bendihlala eLong Island. Ehlotyeni kwakushushu kwaye kufumile kwaye ulwandle lwaluyi-20 yemizuzu yokuhamba ngemoto.

Ukuhlangabezana nokuqonda koluntu

Ndikhumbula ngokucacileyo ixesha endathi ngalo okokuqala ndadibana esidlangalaleni nomntu endingamaziyo ngesikhumba sam. Ihlobo phambi konyaka wam omncinane wesikolo samabanga aphakamileyo, ndaya nabanye abahlobo elwandle. Ndisajongana ne-flare yam yokuqala kwaye ulusu lwam lwalubomvu krwe kwaye lunamachaphaza, kodwa bendijonge ukufumana ilanga kwiindawo zam kwaye ndibambe nabahlobo bam.

Ngokukhawuleza nje ukuba ndithathe indawo yokuzifihla elunxwemeni, abafazi abarhabaxa ngokumosha bachitha usuku lwam ngokumatsha ukuya kubuza ukuba ingaba ndinerhashalala okanye "enye into eyosulelayo."

Ndavela ndema bhunxe, ndaphambi kokuba ndithethe nantoni na, waye waqhubeka nokundinika intetho eyayingxolayo ngendlela endandingenankathalo ngayo, nendlela endandibeka ngayo wonke umntu osengozini yokufumana isifo sam - ngakumbi abantwana bakhe abancinci. Ndatshitshiswa. Ndizibambe ngeenkophe iinyembezi, bekungafane kuphume amagama ngaphandle kokusebeza okuthe-tho “ndinayo nje ukhwekhwe.”

Ndiphinda ndiphinde ngalo mzuzu ngamanye amaxesha kwaye ndicinge ngazo zonke izinto ebekufanele ukuba ndizithethile kuye, kodwa andikhange ndikhululeke kwisifo sam ngelo xesha njengoko ndinjalo ngoku. Ndisafunda nje indlela yokuphila nayo.

Ukwamkela ulusu endikulo

Njengoko ixesha lihamba kwaye ubomi buqhubeka, ndafunda ngakumbi ukuba ndingubani kwaye ndifuna ukuba ngubani. Ndabona ukuba i-psoriasis yam yayiyinxalenye yento endiyiyo kwaye ukufunda ukuhlala nayo kuya kundinika ulawulo.

Ndiye ndafunda ukungahoyi abantu abangaqhelananga nabo, abantu endibaziyo okanye endisebenza nabo. Ndifundile ukuba uninzi lwabantu alufundanga malunga nokuba yintoni i-psoriasis kwaye abantu abangabazi abenza intetho ekrwada abanaxesha lam okanye amandla am. Ndifunde indlela yokutshintsha indlela endiphila ngayo ukuze ndiphile namafutha kunye nendlela yokunxiba macala onke ukuze ndizive ndizithembile.

Ndibe nethamsanqa lokuba kubekho iminyaka apho ndinokuhlala ngolusu olucacileyo kwaye ngoku ndilawula iimpawu zam nge-biologic. Nokuba ulusu lucacile, i-psoriasis isesengqondweni yam yonke imihla kuba inokutshintsha ngokukhawuleza. Ndiye ndafunda ukuxabisa iintsuku ezintle kwaye ndaqala iblogi ukuba ndibelane ngamava am namanye amabhinqa amancinci afunda ukuhlala kunye nokuxilongwa kwe-psoriasis.

Ukuthatha

Uninzi lweziganeko zam eziphambili zobomi kunye nezinto endizenzileyo zenziwe nge-psoriasis kunye nohambo-izidanga, ii-prom, ukwakha ikhondo lomsebenzi, ukuthandana, ukutshata kunye nokuba neentombi ezimbini ezintle. Kuthathe ixesha ukwakha ukuzithemba kwam nge-psoriasis, kodwa ndikhule ngayo kwaye ndikholelwa ekubeni ukuxilongwa ngokuyinxalenye kundenze ukuba ndinguye namhlanje.

UJoni Kazantzis ngumyili kunye nebhlog ye-Justagirlwithspots.com, ibhlogi ephumelele ibhaso ye-psoriasis ezinikele ekwenzeni ulwazi, ukufundisa ngesi sifo, kunye nokwabelana ngamabali ohambo lwakhe lwe-19 + lonyaka kunye ne-psoriasis. Umsebenzi wakhe kukudala imeko yoluntu kunye nokwabelana ngolwazi olunokunceda abafundi bakhe bahlangabezane nemiceli mngeni yemihla ngemihla yokuphila ne-psoriasis. Ukholelwa ekubeni ngolwazi oluninzi ngangokunokwenzeka, abantu abane-psoriasis banokuxhotyiswa ukuze baphile obona bomi babo bulungileyo kwaye benze ukhetho olufanelekileyo lonyango ebomini babo.