Ukwenza umahluko xa une-MS: Ungabandakanyeka njani

Umxholo

• Amavolontiya kumbutho ongenzi nzuzo okanye iqela loluntu
• Nceda ukuqhuba iqela lenkxaso
• Yenza njengomcebisi woontanga
• Nyusa imali ngesizathu esihle
• Bandakanyeka kuphando
• Ukuthatha

Ushwankathelo

Ngaba ujonge iindlela zokunceda abanye abane-MS? Kuninzi onokunikela ngako. Nokuba lixesha lakho namandla, ukuqonda kunye namava, okanye ukuzibophelela ekwenzeni utshintsho, igalelo lakho lingenza umahluko omuhle kubomi babanye abahlangabezana nale meko.

Ukuvolontiya kunokuba neziphumo ezilungileyo kubomi bakho. Ngokutsho kweZiko eliLungileyo lezeNzululwazi e-UC Berkeley, ukunceda abanye kunokunceda ukonyusa ulonwabo lwakho, ukwakha unxibelelwano lwasentlalweni, kunye nokuphucula impilo yakho. Ukuzibandakanya kwindawo ohlala kuyo yindlela entle yokudibana nabanye abantu ngelixa ubuyisa.

Nazi iindlela ezintlanu onokuthi uthathe inxaxheba ngazo.

Amavolontiya kumbutho ongenzi nzuzo okanye iqela loluntu

Kukho imibutho namaqela kwilizwe liphela abonelela ngolwazi kunye nezinye iindlela zenkxaso kubantu abane-MS. Uninzi lwabo luxhomekeke kumavolontiya ukunceda ukufezekisa umsebenzi wabo kunye nokugcina imisebenzi yabo yemihla ngemihla.

Cinga ukunxibelelana nombutho wasekhaya, wombuso, okanye wesizwe ukuze ufunde ngamathuba okuvolontiya. Bazise ngezakhono zakho kunye nomdla wakho. Kuxhomekeka kubuchule bakho, ukubakho kwakho, kunye neemfuno zabo, unokukwazi ukunceda:

• ukuqhuba umcimbi okhethekileyo okanye ukuxhaswa kwengxowa-mali
• sebenzisa inkqubo yeveki okanye yenyanga
• lungiselela izixhobo zokufunda okanye zokufikelela ebantwini
• hlaziya iwebhusayithi yabo okanye amaqonga eendaba ezentlalo
• balungisa okanye benza imisebenzi yokucoca neyolondolozo kwii-ofisi zabo
• ukubonelela ngobudlelwane noluntu, ukuthengisa, ukubalwa kwemali, okanye iingcebiso zomthetho
• hlaziya iinkqubo zekhompyuter okanye iziseko sedatha
• Faka iimvulophu okanye unikezele amaphetshana
• asebenze njengesithethi sesigulana

Zininzi ezinye iindlela onokukwazi ukunceda ngazo. Ukufunda ukuba ungazisebenzisa njani izakhono zakho, qhagamshelana nombutho onomdla wokuzithandela nawo.

Nceda ukuqhuba iqela lenkxaso

Ukuba unomdla ekwenzeni ukuzibophelela rhoqo kunye nokuqhubekayo, amaqela amaninzi enkxaso axhomekeke kwiinkokheli zamavolontiya ukuba zihlale zihamba. Amanye amaqela enkxaso ajolise kubantu abane-MS, ngelixa amanye evulekile kumalungu osapho.

Ukuba sele kukho iqela lenkxaso kwindawo yakho, cinga ukunxibelelana neenkokheli ukuze ufunde ukuba kukho amathuba okuzibandakanya. Ukuba akukho maqela enkxaso akhoyo kufutshane nawe, eli ingalixesha elifanelekileyo lokuqala. Unokujoyina okanye uqalise iqela lenkxaso kwi-intanethi. Umzekelo, iNational Multiple Sclerosis Society ibamba amaqela enkxaso kwi-intanethi.

Yenza njengomcebisi woontanga

Ukuba ukhetha ukunxibelelana nabantu ubuso ngobuso, unokwenza umcebisi olungileyo woontanga. Abacebisi ngezontanga bathatha amava abo nge-MS, ukunceda abanye bafunde ukumelana nale meko. Banikela ngendlebe enovelwano kunye nenkxaso yeemvakalelo kubantu abanokuziva bekhathazekile, bebodwa okanye belahlekile.

Ukuba unomdla wokuba ngumcebisi woontanga, cinga ukunxibelelana neklinikhi yezonyango okanye umbutho ongenzi nzuzo ukuze ufunde ukuba baqhuba na iinkonzo zokucebisa oontanga kubantu abane-MS. Umzekelo, iNational Multiple Sclerosis Society izikrini kwaye ziqeqesha amavolontiya ukubonelela ngenkxaso yoontanga ngefowuni kunye ne-imeyile.

Nyusa imali ngesizathu esihle

Ukuba awukakulungeli ukuzibophelela ixesha elide, zininzi iindlela onokunceda ngazo kwixesha elifutshane. Umzekelo, imikhankaso yokunyusa ingxowa mali ihlala ifuna iiyure ezimbalwa kuphela zexesha lakho.

Ukuhamba ngesisa kunye neminye iminyhadala yezemidlalo yenye yeendlela ezithandwayo zokunyusa imali yezizathu zonyango kunye nemibutho engenzi nzuzo. Yonke intwasahlobo, uMbutho weSizwe oMninzi weSysosis uqhuba ii-MS Walks ezininzi. Ikwajongane neminye imicimbi eyahlukeneyo yokunyusa ingxowa mali.

Iiklinikhi zasekuhlaleni, izibhedlele, kunye namaqela oluntu anokuqhuba abaxhasi bezimali, nabo. Ngamanye amaxesha, banokuphakamisa imali yeenkonzo ezinxulumene ne-MS. Ngamanye amaxesha, banokuphakamisa imali yeenkqubo ezinceda abantu abaneemeko ezahlukeneyo zempilo. Nokuba uyanceda ukuqhuba umsitho okanye ingxowa mali, okanye uqokelele izithembiso njengomthathi-nxaxheba, kunokuba yindlela emnandi yokungena.

Bandakanyeka kuphando

Abaphandi abaninzi baqhuba amaqela ekugxilwe kuwo, udliwanondlebe kunye nezinye iintlobo zezifundo phakathi kwabantu abaphila ne-MS. Oku kunokubanceda bafunde ukuba le meko ibachaphazela njani abantu. Inokubanceda babone utshintsho kumava oluntu kunye neemfuno.

Ukuba unomdla ekuncedeni ukuqhubela phambili isayensi ye-MS, unokufumana ukwaneliseka ukuthatha inxaxheba kwisifundo sophando. Ukufunda ngezifundo zophando kwindawo yakho, cinga ukunxibelelana neklinikhi yengingqi okanye iziko lophando. Ngamanye amaxesha, unokuthatha inxaxheba kuphando okanye kolunye uphononongo kwi-intanethi.

Ukuthatha

Nokuba ungaseta ntoni na ngamava okanye amava akho, unento exabisekileyo onokuyinika uluntu lwakho. Ngokunikela ngexesha lakho, amandla, kunye nokuqonda, unokunceda ukwenza umahluko.