Kwabo baneCystic Fibrosis, qala ngokubeka impilo yakho kuqala

Molo bahlobo,

Ngekhe uyazi ukuba ndinayo i-cystic fibrosis ngokujonga kum. Le meko ichaphazela imiphunga nepancreas, isenza ukuba kube nzima ukuphefumla kwaye ndityebe, kodwa andikhangeleki ngathi ndinesifo esinganyangekiyo.

Ndakhuliswa ukuba ndizimele kukhathalelo lwam lwempilo, eyenye yezona zinto zibalaseleyo abazali bam ababenokundenzela zona. Ngelixesha bendilungiselela ukuya ekholejini, bendiza kuhlela iimeko zam zeepilisi zeveki ngokuzimeleyo kangangeminyaka esibhozo. Ngexesha lesikolo esiphakamileyo, ngamanye amaxesha ndandiye ndedwa kugqirha, ke nayiphi na imibuzo yayijoliswe kum, hayi kumama. Ekugqibeleni, ndiyakwazi ukuhlala ndedwa.

Kodwa xa kufika ixesha lokukhetha ikholeji, ndandisazi ukuba kufutshane nasekhaya kubalulekile kwimpilo yam. Ndikhethe iYunivesithi yaseTowson eMaryland, eyi-45 yemizuzu ukusuka endlwini yabazali bam kwaye malunga nemizuzu engama-20 kwisibhedlele saseJohn Hopkins. Kwakwanele ukuba ndinganakho ukuzimela, kodwa ndisondele ngokwaneleyo kubazali bam ukuba ndiyabafuna. Kwaye, kukho amaxesha ambalwa ndenza.

Bendihlala ndinenkani kakhulu. Xa ndisiya ndisiba kholeji, ndandingayihoyi. Ndandingumfundi othanda ukufundisisa, kwaye ndandingasivumeli isifo sam ukuba sindinciphise ekwenzeni yonke into ekufuneka ndiyenzile. Ndifuna amava apheleleyo ekholejini.

Ekupheleni konyaka wam wokugqibela, ndandisazi ukuba ndiyagula, kodwa ndandinezibophelelo ezininzi kakhulu ukubeka impilo yam phambili. Ndinezifundo zokugqibela zokufunda, isikhundla sokuba ngumhleli weendaba kwiphephandaba labafundi, kwaye kunjalo, ubomi boluntu.

Emva komdlalo wam wokugqibela walo nyaka, umama kwafuneka andikhokele ndiye kwigumbi likaxakeka likaJohn Hopkins labantwana. Andizange ndikwazi ukuyibuyisela kwigumbi lam lokulala emva kovavanyo. Umsebenzi wam wemiphunga wehle kakhulu. Khange ndikholelwe ukuba ndiqokelele amandla kunye nokuthatha okokugqibela.

Enye yezona zinto zinzima malunga nokutshintshela kwikholeji njengomntu one-cystic fibrosis uyazibophelela kwimpilo yakho. Kodwa yenye yezona zinto zibaluleke kakhulu. Kuya kufuneka uqhubeke nonyango lwakho kwaye ubone ugqirha wakho wecystic fibrosis rhoqo. Kuya kufuneka uzinike nexesha lokuphumla. Okwangoku, phantse kwiminyaka engama-30 ubudala, ndisenzima ukuyazi imida yam.

Xa ndijonga emva kwiminyaka yam eTowson, ndinqwenela ukuba ngendivule ngakumbi malunga necystic fibrosis yam. Qho xa kufuneka ndaliwe umcimbi kuba imeko yam, bendidla ngokuziva ndinetyala kuba ndicinga ukuba abahlobo bam abayiqondi. Kodwa ngoku ndiyazi ukuba impilo yam iza kuqala. Ndikhetha ukutsiba umsitho okanye emibini kunokuphosa ubomi bam obuninzi. Kubonakala njengokukhetha okungcono, akunjalo?

Ozithobileyo,

UAlissa

UAlissa Katz uneminyaka engama-29 ubudala owafunyaniswa ene-cystic fibrosis xa ezalwa. Abahlobo bakhe kunye nabantu abasebenza naye banoloyiko lokumthumela imiyalezo ebhaliweyo kuba ungumntu opela amagama kunye nomvavanyi wegrama. Uthanda iigels zaseNew York ngaphezu kwezinto ezininzi ebomini. Kule Meyi iphelileyo, wayengunozakuzaku weCystic Fibrosis Foundation's Great Strides kwi-New York City yabo yokuhamba. Ukufunda ngakumbi malunga nenkqubela phambili ye-Alissa's cystic fibrosis kunye nokunikela kwiSiseko, Cofa apha.