Akukho nto enje ngokutya kunye nokuShiya xa uneGluten Allergy

Umxholo

• Ukubona ukutya kwam komzimba kwiingcambu zexhala lam
• Uloyiko lwam lokugcwala lwenza ukutya kudinise
• Ukulungiselela kugcina uxinzelelo lwam lubekho

Impilo kunye nokuphila kakuhle kuchaphazela ngamnye wethu ngokwahlukileyo. Eli libali lomntu omnye.

Mna nomyeni wam kutshanje siye kwindawo yokutyela yamaGrike kwisidlo sangokuhlwa sokubhiyozela. Ngenxa yokuba ndinesifo se-celiac, andikwazi ukutya i-gluten, ke sabuza iserver ukuba ijonge ukuba ingaba itshizi evuthayo yesagaki yayigutyungelwe ngumgubo, njengoko ngamanye amaxesha kunjalo.

Sijonge ngononophelo njengoko umncedisi engena ekhitshini kwaye wabuza umpheki. Ubuyile kwaye, encumile, wathi kukhuselekile ukutya.

Kwakungekho. Ndaziva ndigula malunga nemizuzu engama-30 kwisidlo sethu.

Andicaphuki ngenxa yokuba ndinesifo se-celiac okanye kufuneka nditye ukutya okungenagluten. Ndiyenzile ixesha elide andikhumbuli nokuba kukuthini ukutya okunencasa ye-gluten. Kodwa andikuthandi ukuba nesifo esidla ngokundithintela ekubeni ndingatyi ngokungakhathali kunye nabantu endibathandayo.

Ukutya akunakuze kundikhathaze. Endaweni yoko, ngumsebenzi oxinzelelekileyo odla amandla engqondo kunokuba kufanelekile. Ngokunyanisekileyo, kuyadinisa.

Ukuphumla xa ndizama iindawo zokutyela ezintsha phantse akunakwenzeka, njengoko umngcipheko wokufumana ukutya okunegliten - ukhonza ngengozi - ukwanda ngokuxhaphaka kwabantu abangenayo iceliac abatya i-gluten-free njengokhetho.

Ndinexhala lokuba abantu abayiqondi imikhwa yokuba nesifo se-celiac, njengomngcipheko wokungcoliseka komnqamlezo xa ukutya okungenagluten kulungiswa kwindawo efanayo ne-gluten.

Kwitheko, ndadibana nomntu ongazange eve ngesi sifo. Umhlathi wakhe wehla. "Nawe rhoqo kufuneka ucinge malunga nento oza kuyitya? "

Umbuzo wakhe undikhumbuze ngento uGqirha Alessio Fasano, ugqirha wezifo zesisu kwabantwana kwisibhedlele iMassachusetts General Hospital kunye nenye yeengcali eziphambili ze-celiac emhlabeni, kutshanje uthe kwi "Freakonomics" podcast. Ucacisile ukuba kubantu abanesifo se-celiac, "ukutya iba ngumceli mngeni wengqondo endaweni yokwenza izinto ezizenzekelayo."

Ukubona ukutya kwam komzimba kwiingcambu zexhala lam

Xa ndandineminyaka eli-15 ubudala ndaya eGuanajuato, eMexico, kangangeeveki ezintandathu. Ukubuya kwam, ndandigula ngokumasikizi, ndinoluhlu lweempawu: i-anemia kakhulu, urhudo oluqhubekayo, kunye nokozela okungapheliyo.

Oogqirha bam ekuqaleni babecinga ukuba ndichole intsholongwane okanye i-parasite eMexico. Kwiinyanga ezintandathu kunye nothotho lweemvavanyo kamva, bafumanisa ukuba ndinesifo se-celiac, isifo esizenzekelayo apho umzimba wakho uyala i-gluten, iprotein efumaneka kwingqolowa, irhasi, imithombo nerye.

Oyena mntu unobangela wokugula kwam yayingeyiyo i-parasite, kodwa endaweni yokutya i-tortilla ezili-10 zomgubo ngosuku.

Isifo seCeliac sichaphazela i-1 kuma-141 aseMelika, okanye malunga nezigidi ezi-3 zabantu. Kodwa uninzi lwaba bantu-mna kunye newele lam elibandakanyiweyo- baya kungafunyaniswa iminyaka emininzi. Ngapha koko, kuthabatha iminyaka emine ukuze umntu afunyaniswe ene-celiac.

Ukuxilongwa kwam akuzange kwenzeke kuphela ngexesha lokufunda ebomini bam (ngubani ofuna ukuphuma ebantwini xa ena-15?), Kodwa kwanakwixesha apho kungekho mntu wayelivile ixesha ayinagluten.

Khange ndikwazi ukubamba i-burger kunye nabahlobo bam okanye ndibelane ngekhekhe lokuzalwa letshokholethi elisela amanzi ngomntu oza esikolweni. Okukhona ndaye ndala ukutya ngentlonelo kwaye ndabuza malunga nezithako, kokukhona ndandinexhala lokuma ngaphandle.

Olu loyiko ngaxeshanye lokungahambelani, ukusoloko ndikhangela into endiyityileyo, kunye nokukhathazeka okungapheliyo malunga nokugcwala ngengozi kubangele uhlobo lwexhala oluye lwanamathela kum ebudaleni.

Uloyiko lwam lokugcwala lwenza ukutya kudinise

Ngethuba nje udla ngokungahambisani ne-gluten-free, i-celiac ilula ukulawula. Yinto elula: Ukuba ugcina ukutya okutyayo, ngekhe ube nazimpawu.

Inokuba mbi kakhulu, Ndihlala ndizixelela ngamaxesha onxunguphalo.

Kutshanje ndiye ndaqala ukulandelela uxinzelelo oluqhubekayo, olukumgangatho ophantsi endihlala nalo ukubuyela kwi-celiac.

Ndinengxaki yokuxhalaba ngokubanzi (i-GAD), into endiye ndadibana nayo ukusukela kwiminyaka yam yokufikisa.

Kude kube kutshanje, andikaze ndenze unxibelelwano phakathi kwe-celiac kunye noxinzelelo. Kodwa ndakuba ndenzile, yavakala kakuhle. Nangona uninzi loxinzelelo lwam luvela kweminye imithombo, ndiyakholelwa ukuba isabelo esincinci kodwa esibalulekileyo sivela kwi-celiac.

Abaphandi bafumanise ukuba kukho ukwanda kakhulu koxinzelelo kubantwana abanesifo sokutya.

Ngaphandle kwento yokuba mna, ngethamsanqa, ndineempawu ezincinci xa ndinotywe ngengozi - urhudo, ukuqunjelwa, inkungu yengqondo, kunye nokozela-iziphumo zokutya i-gluten zisonakalisa.

Ukuba umntu onesifo se-celiac utya i-gluten kube kanye, udonga lwamathumbu lunokuthatha iinyanga ukuphola. Kwaye ukuphindaphinda okuphindaphindiweyo kunokukhokelela kwiimeko ezinzima njenge-osteoporosis, ukungabikho komntwana kunye nomhlaza.

Uxinzelelo lwam lubangelwa kukoyika ukukhula kwezi meko zexesha elide, kwaye kubonakala kwizenzo zam zemihla ngemihla. Ukubuza imibuzo ezizigidi xa u-odola isidlo- Ngaba inkukhu yenziwe nge-grill efanayo nesonka? Ngaba i-steak marinade inayo isosi yesoya? -ndishiya ndineentloni ukuba ndisitya phandle nabantu abangasondelelananga nosapho kunye nabahlobo.

Kwaye nasemva kokuba ndixelelwe into ukuba ayinayo i-gluten, ngamanye amaxesha ndisakhathazeka ayisiyiyo. Ndihlala ndijonga kabini ukuba le nto indizisele yona ayinam-gluten, kwaye ndicela nomyeni wam ukuba alume ngaphambi kokuba ndenze.

Olu xinzelelo, ngelixa ngamanye amaxesha lungekho ngqiqweni, alunasiseko ngokupheleleyo. Ndixelelwe ukuba ukutya kwakune-gluten-xa kwakungekho amaxesha amaninzi.

Ndihlala ndiziva ngathi oku kuphaphama kakhulu kwenza kube nzima kum ukuba ndifumane uvuyo ekutyeni njengabantu abaninzi. Andifane ndonwabe ngokuzonwabisa ngokuphatha okhethekileyo kuba ndihlala ndicinga, oku kuhle kakhulu ukuba kuyinyani. Ngaba le yinyani-ayinasifo?

Enye indlela yokuziphatha egqugqisileyo evela ekubeni ne-celiac yimfuneko yokucinga rhoqo nini Ndingatya. Ngaba kuya kubakho into endinokuyitya kwisikhululo senqwelomoya kamva? Ngaba umtshato ndiza kuba neenketho ezingenanto ye-gluten? Ngaba kufuneka ndize nokutya kwam kwindawo yokusebenza, okanye nditye nje isaladi?

Ukulungiselela kugcina uxinzelelo lwam lubekho

Eyona ndlela yokuthintela uxinzelelo lwam olunxulumene ne-celiac kukulungiselela nje. Andizange ndize kumnyhadala okanye itheko ndilambile. Ndigcina imivalo yeeprotein kwisipaji sam. Zininzi izinto endizityayo ekhaya. Kwaye ngaphandle kokuba ndihambahamba, nditya kuphela kwiivenkile zokutyela endiziva ndizithembile ukuba bandinika ukutya okungenagluten.

Ngethuba nje ndizilungiselele, ndiyakwazi ukugcina ukuxhalabisa kwam.

Ndikwamkela nengqondo ethi ukuba ne-celiac ayisiyiyo konke imbi.

Kutyelelo lwakutsha nje eCosta Rica, mna nomyeni wam sangena kwisitya esirhangqayo serayisi, iimbotyi ezimnyama, amaqanda othosiweyo, isaladi, isteki, kunye neepastain, zonke ezo zazingena-gluten ngokwendalo.

Sancuma sodwa sancamathelisa iiglasi zethu ngovuyo lokufumana ukutya okumnandi okunje okungenagluten. Elona candelo lililo? Kwakungenakukhathazeka, nako.

UJamie Friedlander ngumbhali ozimeleyo kunye nomhleli onomdla othile kumxholo onxulumene nempilo. Umsebenzi wakhe uvele kwiNew York Magazine's The Cut, Chicago Tribune, Racked, Business Insider, kunye neMPUMELELO Magazine. Wafumana isidanga sakhe se-bachelor kwi-NYU nakwisidanga senkosi yakhe eMedill School of Journalism kwiYunivesithi yaseNyakatho-ntshona. Xa engabhali, unokuhlala efumaneka ehamba, esela izixa ezikhulu zeti eluhlaza, okanye ejonga i-Etsy. Ungabona ezinye iisampulu zomsebenzi wakhe iwebhusayithi yakhe kwaye ulandele kuye Imidiya yokuncokola.