Oogqirha abazange bazihoye iimpawu zam iminyaka emithathu ngaphambi kokuba ndifunyanwe ngeSigaba 4 seLymphoma

Umxholo

• Usoloko ufunyaniswa ngokungafanelekanga
• Indawo yokuqhekeza
• Ekugqibeleni ndifumana iimpendulo
• Ubomi emva koMhlaza
• Uphengululo lwe

Ekuqaleni kuka-2014, ndandiyintombazana yakho yaseMelika ekwiminyaka yayo engama-20 enomsebenzi osisigxina, ndiphila ubomi bam ngaphandle kokukhathazeka emhlabeni. Ndandisikelelwe ngempilo entle kwaye ndandisoloko ndikwenza ukusebenzela kunye nokutya kakuhle kube yeyona nto iphambili. Ngaphandle kokuphunga apha naphaya, ngekhe ndiye kwagqirha ubomi bam bonke. Yonke into yatshintsha xa ndandiqala ukukhwehlela okungummangaliso okungenakuphela.

Usoloko ufunyaniswa ngokungafanelekanga

Ndaqala ukumbona ugqirha xa ukhohlokhohlo lwam luqalisa ukuchacha. Andizange ndibone into enjengale ngaphambili, kwaye ukuthengisa, ukuhlala uqhekeza isaqhwithi kwakungaphantsi kokufanelekileyo. Ugqirha wam wokhathalelo lokuqala waba ngowokuqala ukundigxotha, esithi zizinto nje zokwaliwa. Ndanikwa ezinye kwiikhawuntari zokunganyangeki kwaye ndagoduswa.

Iinyanga zadlula, kwaye ukukhohlela kwam kuya kusiba mandundu. Ndabona ugqirha omnye okanye ababini ndaza ndaxelelwa ukuba akukho nto iphosakeleyo ngam, ndanikwa amayeza ongezelelekiyo, ndaza ndajika. Kwafikelela kwinqanaba apho ukukhohlela kwaba yinto yesibini kum. Oogqirha abaliqela babendixelele ukuba akukho nto ndinokukhathazeka ngayo, ke ndiye ndafunda ukungayinanzi impawu zam kwaye ndiqhubeke nobomi.

Noko ke, ngaphezu kweminyaka emibini kamva, ndaqalisa ukuba nezinye iimpawu. Ndaqalisa ukuvuka qho ebusuku ngenxa yokubila ebusuku. Ndilahle iiponti ezingama-20, ngaphandle kokwenza naluphi na utshintsho kubomi bam. Ndandinesiqhelo, isisu esibuhlungu kakhulu.Kwacaca kum ukuba kukho into engahambi kakuhle emzimbeni wam. (Related: Bendityebile shame nguGqirha wam kwaye ngoku ndonqena ukubuya)

Ndikhangele iimpendulo, ndaye ndaqhubeka nokubuyela kugqirha wam wokhathalelo, owandibhekisa kwiingcali ezohlukeneyo ezazineembono zazo malunga nento engalunganga. Omnye uthe ndinee-ovarian cysts. I-ultrasound ekhawulezayo ivale ezantsi. Abanye bathi kungenxa yokuba ndisebenze kakhulu-ukuzilolonga bekuphazamisa imetabolism yam okanye bendisandula ukutsala umsipha. Ukucaca, bendikwiPilates ngelo xesha kwaye ndisiya kwiiklasi iintsuku ezi-6-7 ngeveki. Ngelixa ngokuqinisekileyo ndandisebenza ngakumbi kunabanye abantu abandingqongileyo, andizange ndiyigqithise kwinqanaba lokugula ngokwasemzimbeni. Okwangoku, ndaye ndazithatha izihlunu eziphumlisayo, kunye nonyango lweentlungu ezinyangiweyo kum kwaye bazama ukuqhubekeka. Zithe xa zingekapheli iintlungu zam, ndaya komnye udoc, owathi yi acid reflux wandinika amayeza awohlukeneyo. Kodwa kungakhathaliseki ukuba ngubani na ondiphulaphulayo, intlungu yam ayizange iyeke. (Inxulumene: Ukonzakala kweNeck yam yayikuKhathalela ukuziKhathalela ekuziKhathaleleni ndandingazi ukuba ndiyafuna)

Ngexesha leminyaka emithathu, ndibone ubuncinci oogqirha kunye neengcali ezili-10: iingcali ngokubanzi, i-ob-gyns, i-gastroenterologists, kunye ne-ENT. Ndenziwa uvavanyo lwegazi olunye kunye ne-ultrasound enye ngelo xesha lonke. Ndicele iimvavanyo ezingaphezulu, kodwa wonke umntu wazibona zingeyomfuneko. Ndandisoloko ndixelelwa ukuba ndimncinci kakhulu kwaye ndisempilweni kakhulu ukuba ndibe nento ngokwenene gwenxa ngam. Andinakuze ndilibale xa ndibuyela kugqirha wam wokhathalelo lokuqala emva kokuchitha iminyaka emibini kunyango lokwalisa umzimba, phantse iinyembezi, ndisenokhohlokhohlo oluzingisileyo, ndicela uncedo wandijonga nje wathi: “Andazi. Ndiza kukuxelela ntoni. Uyaphila. "

Ekugqibeleni, impilo yam yaqala ukubuchaphazela ubomi bam bonke. Abahlobo bam babecinga ukuba ndingaba yi-hypochondriac okanye ndandinqwenela ukutshata nogqirha kuba bendizokuya kujongwa kakhulu ngeveki. Ndaye ndaqala ukuziva ngathi ndiyaphambana. Xa abantu abaninzi abafundileyo nabaneziqinisekiso bekuxelela ukuba akukho nto iphosakeleyo ngawe, kungokwemvelo ukuba uqalise ukungazithembi. Ndaqala ukucinga, 'Ngaba konke kusentloko yam?' 'Ngaba iimpawu zam ndizenza ngendlela engaqhelekanga?' Kwakungekho ndade ndazifumana ndikwi-ER, ndilwela ubomi bam ndabona ukuba oko umzimba wam undixelela kona kuyinyani.

Indawo yokuqhekeza

Ngosuku olungaphambi kokuba ndibhabhe ndiye eVegas kwintlanganiso yokuthengisa, ndavuka ndiziva ngathi andikwazi kuhamba. Bendimanzi te ngumbilo, isisu siqaqanjelwa ngendlela engathethekiyo, bendityhafile ndingakwazi nokusebenza. Kwakhona, ndaya kwindawo yokhathalelo engxamisekileyo apho benza khona umsebenzi wegazi kwaye bathatha isampulu yokuchama. Ngeli xesha, bagqibe ekubeni ndinamatye ezintso anokuzidlula ngokwabo. Khange ndikwazi ukuzibamba kodwa ndiziva ngathi wonke umntu okule klinikhi undifuna ndingena ndiphume, nokuba ndiziva njani. Ekugqibeleni, ndididekile, kwaye ndifuna iimpendulo, ndathumela iziphumo zam zovavanyo kumama, ongumongikazi. Kwimizuzu nje engephi, landitsalela umnxeba laza landixelela ukuba ndifike kwelona gumbi likaxakeka likufutshane ngokukhawuleza kwaye liza kukhwela inqwelo-moya evela eNew York. (Izinto eziNxulumeneyo: Iimpawu ezi-7 akufuneki uzihoye

Undixelele ukuba ubalo lwam lweeseli ezimhlophe lwaluphahla, okuthetha ukuba umzimba wam wahlaselwa kwaye wenza konke okusemandleni awo ukuzilwela. Akukho namnye eklinikhi owayibambayo loo nto. Ndikhathazekile, ndaziqhubela ndaya kwesona sibhedlele sikufutshane, ndaqhwaba iziphumo zam zovavanyo kwidesika yolwamkelo ndaza ndabacela nje ukuba bandilungise—ingaba oko kuthetha ukundinika amayeza eentlungu, amayeza okubulala iintsholongwane, nantoni na. Ndandifuna nje ukuziva ngcono kwaye eyona nto ndandiyicinga kwi-delirium yam kukuba kufuneka ndikhwele indiza ngengomso. (Idibeneyo: Imiba emi-5 yezeMpilo eFikelela kwabafazi ngokwahlukileyo)

Xa u-ER doc wabasebenzi ejonga iimvavanyo zam, wandixelela ukuba andiyi ndawo. Ndangeniswa kwangoko ndaza ndathunyelwa kuvavanyo. Ngokusebenzisa ii-X-reyi, ukuskena ii-CAT, ukusebenza kwegazi, kunye nee-ultrasound, bendihlala ndingena kwaye ndiphuma. Emva koko, ezinzulwini zobusuku, ndaxelela abongikazi bam ukuba andikwazi kuphefumla. Kwakhona, ndaxelelwa ukuba mhlawumbi ndixhalabile kwaye ndixinezelekile ngenxa yayo yonke into eyenzekayo, kwaye inkxalabo yam yachithwa. (Idibeneyo: Oogqirha ababhinqileyo bangcono kunamaxwebhu amaDoda, iMiboniso yoPhando eNtsha)

Kwimizuzu engamashumi amane anesihlanu kamva, ndaye ndasebenza ngokungaphumeleli ekuphefumlweni. Andikhumbuli nto emva koko, ngaphandle nje kokuvuka umama ecaleni kwam. Undixelele ukuba kufuneka bekhuphe ikota yelitha yamanzi emiphungeni yam kwaye benze ezinye ii-biopsies ukuthumela olunye uvavanyo. Ngelo xesha, ndacinga ukuba yayililitye lam elisezantsi. Ngoku, wonke umntu kwakufuneka andithathele nzulu. Kodwa ndichithe iintsuku ezili-10 ezilandelayo kwi-ICU ndigula ngakumbi nangakumbi ngemini. Ukuphela kwento endandiyifumana ngelo xesha yayiliyeza lonyango kunye noncedo lokuphefumla. Ndaxelelwa ukuba ndinohlobo oluthile losulelo, kwaye ndiza kuphila. Naxa i-oncologists beziswa ukuze babonisane, bandixelela ukuba andinawo umhlaza kwaye bekufanele ukuba yenye into. Ngelixa engazange athethe, ndaziva ukuba umama uyayazi eyona nto yayingalunganga, kodwa wayesoyika ukuyithetha.

Ekugqibeleni ndifumana iimpendulo

Phantse ukuphela kokuhlala kwam kwesi sibhedlele, njengoluhlobo lweSichotho sikaMariya, ndathunyelwa ukuyohlolwa iPET. Iziphumo zaqinisekisa uloyiko olukhulu lomama: Nge-11 kaFebruwari, 2016, ndaxelelwa ukuba ndineSigaba 4 seHodgkin Lymphoma, umhlaza ovela kwinkqubo ye-lymphatic. Yayinwenwele kuwo onke amalungu omzimba wam.

Imvakalelo yokukhululeka kunye noloyiko olugqithisileyo lwandigubungela xa ndafunyaniswa ngoxilongo. Ekugqibeleni, emva kwayo yonke le minyaka, ndandiyazi into eyayindiphethe kakubi. Ngoku bendisazi ngenyani ukuba umzimba wam ubuphakamisa iiflegi ezibomvu, undilumkisa, iminyaka, ukuba kukho into engalunganga ngokwenene. Kodwa kwangaxeshanye, ndandinomhlaza, wawukho kuyo yonke indawo, kwaye ndandingazi ukuba ndiza kuwubetha njani.

Indawo ebendikuyo ayinazo izixhobo zokundinyanga, kwaye andizinzi ngokwaneleyo ukuba ndingafudukela kwesinye isibhedlele. Okwangoku, bendinokukhetha ezimbini: nokuba ndingazibeka emngciphekweni kwaye ndiyathemba ukuba ndisindile kuhambo oluya kwisibhedlele esingcono okanye ndihlale apho kwaye ndife. Ngokwendalo, ndikhethe eyokuqala. Ngexesha lokungeniswa kwam eSylvester Comprehensive Cancer Centre, ndandaphuke mpela, engqondweni nasemzimbeni. Ngaphezu kwako konke, ndandisazi ukuba ndingafa kwaye kwafuneka, kwakhona, ndibeke ubomi bam ezandleni zoogqirha abangakumbi abaye basilela kum kangangezihlandlo ezininzi. Okuvuyisayo kukuba, ngesi sihlandlo andizange ndiphoxeke. (Eyeleleneyo: Abasetyhini Basenokwenzeka Kakhulu Ukusinda Kuhlaselo Lwentliziyo Ukuba UGqirha wabo Ngowasetyhini)

Ukusukela kwimizuzwana endadibana ngayo neengcali zam ze-oncologists, ndandisazi ukuba ndisezandleni ezilungileyo. Ndangeniswa ngolwesiHlanu ngokuhlwa ndaza ndafakwa kwichemotherapy ngobo busuku. Kulabo abanokuthi bangazi, ayisiyiyo inkqubo esemgangathweni. Izigulane kuye kufuneke zilinde iintsuku phambi kokuba ziqale unyango. Kodwa ndandigula kakhulu kangangokuba ukuqalisa unyango ngokukhawuleza kwakubalulekile. Kuba umhlaza wam wawusasazeke ngamandla, ndanyanzeleka ukuba ndiye kwinto oogqirha ababiza ngokuba yi-salvage chemotherapy, olusisiseko sonyango olusetyenzisiweyo xa zonke ezinye iindlela zisilele okanye imeko imbi kakhulu, njengam. Ngo-Matshi, emva kokulawula imijikelo emibini ye-chemo kwi-ICU, umzimba wam waqala ukuya kuxolelwaniso-ngaphantsi kwenyanga emva kokufunyaniswa. NgoAprili, umhlaza wabuya, ngeli xesha esifubeni sam. Ngaphezulu kweenyanga ezisibhozo ezizayo, ndafumana imijikelezo emithandathu ye-chemo kunye neeseshoni ezingama-20 zonyango lwe-radiation ngaphambi kokuba ekugqibeleni ndibhengezwe njengomhlaza-kwaye bendihleli ndinjalo ukusukela ngoko.

Ubomi emva koMhlaza

Uninzi lwabantu luya kundibona ndinethamsanqa. Inyani yokuba ndafunyaniswa ndifike kade emdlalweni kwaye ndenza ukuba iphile ayisiyonto imfutshane. Kodwa andiphumanga kuhambo ndingaphazamiseki. Ngaphezulu kwesiphithiphithi esisemzimbeni nangokweemvakalelo endikhe ndadlula kuso, ngenxa yonyango olunoburhalarhume kunye nemitha ebifakwe ngamaqanda, andizokwazi ukuba nabantwana. Andizange ndibenalo ixesha lokucinga nokukhenkceza amaqanda am ngaphambi kokuba ndikhawuleze ukuya kunyango, kwaye i-chemo kunye nemitha yemitha yayiwonakalisa umzimba wam.

Andikwazi ukuzibamba kodwa ndive ukuba umntu ebenayo ngokwenene bandimamele, kwaye bangandikhuphi ngaphandle, njengebhinqa eliselula, elibonakala lisempilweni, ngekhe bakwazi ukubeka zonke iimpawu zam kunye kunye nokubamba umhlaza kwangoko. Xa i-oncologist yam eSylvester yabona iziphumo zam zovavanyo, wayekhwaza-ngokukhwaza-ukuba kuthathe iminyaka emithathu ukufumanisa into enokuthi ibonwe kwaye inyangwe ngokulula. Kodwa ngelixa ibali lam lihlekisa kwaye libonakala, nakum, ngathi liphuma kwimuvi, ayisiyonto ingaqhelekanga. (Eyeleleneyo: Ndingumqeshwa omncinci, oFit Spin-kwaye ndiphantse ndasweleka ngenxa yokuhlaselwa yintliziyo)

Emva kokudibana nezigulana ezinomhlaza ngonyango kunye neendaba zosasazo, ndafunda ukuba uninzi lwabantu abancinci (abasetyhini, ngakumbi) bayatshitshiswa iinyanga kunye neminyaka ngoogqirha abangazithathiyo iimpawu zabo. Ukujonga emva, ukuba bendinokuphinda ndiyenze kwakhona, ngendiye kwi-ER kwangoko, kwisibhedlele esahlukileyo. Xa usiya kwi-ER, kufuneka baqhube iimvavanyo ezithile ukuba ikliniki yokhathalelo olungxamisekileyo ingakwenzi. Ke mhlawumbi, mhlawumbi, ngendiqale unyango kwangoko.

Ndijonge phambili, ndiziva ndinethemba ngempilo yam, kodwa uhambo lwam lutshintshe ngokupheleleyo umntu endinguye. Ukwabelana ngebali lam kunye nokwazisa ngokubhengeza impilo yakho, ndiqale ibhlog, ndabhala incwadi ndade ndenza neeKhemo Kits zabantu abadala abaphantsi kwe-chemo ukubanceda bazive bexhaswa kwaye babazise ukuba abodwa.

Ekupheleni kosuku, ndifuna abantu bazi ukuba ukuba ucinga ukuba kukho into engalunganga ngomzimba wakho, mhlawumbi ulungile. Kwaye ngelishwa njengoko kunjalo, siphila kwihlabathi apho kufuneka ube ngummeli wempilo yakho. Ungandivi kakubi andithi wonke ugqirha emhlabeni akathenjwa. Ngendingekho kule ndawo ndikuyo namhlanje ukuba bekungengoogqirha bam abamangalisayo baseSylvester. Kodwa uyazi eyona nto ilungele impilo yakho. Sukuvumela omnye umntu akuqinisekise ngenye indlela.

Ungafumana amabali angakumbi afana nala malunga nabasetyhini abaye basokola ukufumana iinkxalabo ezithathwe nzulu ngoogqirha kwitshaneli ye-Misdiagnosed ye-Health.com.

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