Yonke into ekufuneka uyazi malunga ne-PPMS kunye neNdawo yokuSebenza

Umxholo

• Ngaba kuyafuneka ndiyeke umsebenzi emva koxilongo?
• Ndazi njani ukuba kuyakufuneka nditshintshe imisebenzi?
• Ngaba kufuneka ndichaze imeko yam kumqeshi wam?
• Ndicela njani indawo yokuhlala emsebenzini?
• Yintoni ethathwa njengendawo efanelekileyo yokuhlala?
• Ungawuchaphazela njani omnye umsebenzi wam?
• Ndizokwazi ukuhamba emsebenzini?
• Ngaba i-PPMS inokuwuchaphazela ngokukhawuleza kangakanani umsebenzi wam?
• Zeziphi ezona zikhetho zibalaseleyo onokukhetha kuzo kubantu abanePMSMS?
• Kuthekani ukuba andisakwazi ukusebenza kwakhona?

Ukuba ne-multiple sclerosis ehamba phambili (PPMS) inokuqinisekisa uhlengahlengiso kwiinkalo ezahlukeneyo zobomi bakho, kubandakanya nomsebenzi wakho. Kwiimeko ezinzima, i-PPMS inokukwenza kube nzima ukusebenza. Ngokwenqaku elikwi-, i-PPMS ibangela amathuba aphezulu okuba angakwazi ukusebenza xa kuthelekiswa nezinye iindlela ze-MS.

Nangona kunjalo, oku akuthethi ukuba kufuneka uyeke ukusebenza ngokupheleleyo. Nazi iimpendulo kweminye imibuzo exhaphake kakhulu enxulumene nomsebenzi malunga ne-PPMS.

Ngaba kuyafuneka ndiyeke umsebenzi emva koxilongo?

Hayi. Ngapha koko, uMbutho weSizwe we-MS ucebisa ukuba le yenye yezona mpazamo zixhaphakileyo ezenziwa ngabo basandula kufumana isifo. Iimpawu zinokuqhubeka zisiba mbi ngolu hlobo lwe-MS, kodwa oku akuthethi ukuba kufuneka uwushiye kwangoko umsebenzi wakho.

Ugqirha wakho uya kunika isikhokelo xa kuziwa kwikhondo lakho lomsebenzi kunye ne-PPMS. Ukuba baziva ukuba umsebenzi wakho awukhuselekanga nangasiphi na isizathu, baya kukunika iingcebiso kwangaphambi kwexesha.

Ndazi njani ukuba kuyakufuneka nditshintshe imisebenzi?

Ukuzihlola kunokuba luncedo ekwenzeni esi sigqibo. Kuqala dwelisa iimfuno zomsebenzi kunye nezinto ozisa etafileni. Emva koko yenza uluhlu lweempawu zakho. Jonga ukuba ngaba naziphi na iimpawu zakho zichaphazela ngokuthe ngqo ukukwazi kwakho ukwenza nayiphi na imisebenzi enxulumene nomsebenzi oyenzayo rhoqo. Ukuba ucinga ukuba iimpawu ze-PPMS ziqala ukuphazamisa umsebenzi wakho, unokucinga ngokuthetha nomphathi wakho malunga nokuguqula indima yakho ngaphambi kokushiya ikhondo lakho lomsebenzi ngokupheleleyo.

Ngaba kufuneka ndichaze imeko yam kumqeshi wam?

Akukho mfuneko yezomthetho yokuchaza uxilongo lwe-PPMS kumqeshi wakho. Usenokuba mathidala ukuxela, ngakumbi ukuba ufumene uxilongo.

Nangona kunjalo, unokufumanisa ukuba ukutyhila imeko yakho kuya kukhokelela kwindawo yokuhlala onokuyidinga emsebenzini. Kuchasene nomthetho ukuba umqeshi acalucalulo okanye agxothe umntu ngenxa yokukhubazeka- oku kubandakanya iPPMS.

Cingisisa kakuhle esi sigqibo, uze ucele iingcebiso kugqirha wakho.

Ndicela njani indawo yokuhlala emsebenzini?

Isihloko I somthetho waseMelika okhubazekileyo (i-ADA) awuthinteli kuphela ucalucalulo olusekwe kukukhubazeka, kodwa lukwafuna nokuba abaqeshi babonelele ngendawo yokuhlala efanelekileyo. Ukufumana indawo yokuhlala, kuya kufuneka uthethe nomqeshi wakho okanye ummeli wabasebenzi emsebenzini.

Yintoni ethathwa njengendawo efanelekileyo yokuhlala?

Eminye imizekelo yokuhlala kwindawo yokuhlala enokuba luncedo kwi-PPMS ibandakanya:

• Umsebenzi-ukusuka ekhaya ukhetho
• ithuba lokusebenza ixesha elithile
• ubuchwepheshe bokunceda
• utshintsho kwindawo yokupaka
• Ukulungiswa kweofisi ukulungiselela izitulo ezinamavili
• izongezo kumagumbi okuhlambela, njengemivalo yokubamba kunye neomisi ezizenzekelayo

Nangona kunjalo, i-ADA ayifuni ukuba umqeshi enze iinguqu ezinokubangela nabuphi na ubunzima. Imizekelo ibandakanya ukudalwa kwemisebenzi emitsha kunye nokubonelela ngesixhobo sokuhamba.

Ungawuchaphazela njani omnye umsebenzi wam?

Iimpawu ze-PPMS ezinje ngokudinwa kakhulu, uxinzelelo kunye nokuphazamiseka kwengqondo kunokubangela ukungabikho emsebenzini. Kuya kufuneka uphinde uphulukane nenxalenye yosuku lwakho lomsebenzi ngenxa yokuqeshwa ngugqirha, unyango lomzimba, kunye nonyango lomsebenzi.

Ndizokwazi ukuhamba emsebenzini?

I-PPMS ibangela izilonda ezingaphezulu emqolo kunobuchopho xa kuthelekiswa nezinye iindlela ze-MS. Oku kunokuthetha ukuba unokuba nobunzima bokuhamba ngakumbi xa isifo siqhubeka. Nangona kunjalo, ixesha elichanekileyo loku liyahluka, kwaye ayinguye wonke umntu oza kujongana nobunzima bokuhamba. Unyango lomzimba lunokukunceda ugcine amandla akho okuhamba. Ke awunakujongana nemiceli mngeni ngokuhamba okunxulumene nomsebenzi.

Ngaba i-PPMS inokuwuchaphazela ngokukhawuleza kangakanani umsebenzi wam?

Ngenxa yokuba iPPMS inokuthatha iminyaka embalwa ukuxilonga ngokuchanekileyo kwaye iyaqhubeka, kusenokwenzeka ukuba sele uzibone iimpawu ngelixa usemsebenzini. Izinga lokukhubazeka liphezulu ngale ndlela ye-MS, kodwa ungenelelo lwakwangoko lunokunceda ukunciphisa ukuqala kwangoko. Lilonke, iziphumo emsebenzini wakho ekugqibeleni zixhomekeke kuhlobo lomsebenzi owenzayo, kunye nobukhali beempawu zakho.

Izigulana ze-MS eNorway zafumanisa ukuba malunga neepesenti ezingama-45 zisasebenza kumashumi amabini eminyaka emva kokufunyanwa okokuqala. Ngenxa yokukhubazeka, ipesenti yezigulane ze-PPMS ezisebenzayo zazincinci, malunga neepesenti ezili-15.

Zeziphi ezona zikhetho zibalaseleyo onokukhetha kuzo kubantu abanePMSMS?

Akukho misebenzi ikhethekileyo ilungiselelwe abantu abane-PPMS. Umsebenzi wakho ofanelekileyo ngoyena uwuthandayo, unesakhono sokumisela, kwaye unokuqhuba kakuhle.Oku kunokubandakanya uluhlu lwemisebenzi, ukusuka kwishishini ukuya ekubukeni iindwendwe, inkonzo kunye nezifundo. Ngokobuchwephesha, akukho msebenzi uvunyelweyo. Isitshixo kukukhetha ikhondo lomsebenzi owuthandayo kwaye uziva ukhuselekile ekwenzeni.

Kuthekani ukuba andisakwazi ukusebenza kwakhona?

Ukuyeka umsebenzi ngenxa ye-PPMS sisigqibo esinzima, kwaye kuhlala kuyindlela yokugqibela emva kokuhlala kungasancedi.

Abantu abane-PPMS bahlala befuna izibonelelo zeinshurensi yokukhubazeka kwezentlalo (SSDI). I-SSDI inokunceda ekuhlawuleni iindleko zokuphila ezisisiseko ukuba awusakwazi ukusebenza.

Thetha nogqirha wakho ngezinye izixhobo onokuzifumana ukuba awusenako ukusebenza.