Uyichonga njani i-cystic fibrosis emntwaneni kwaye unyango lumele lube njani

Umxholo

• Iimpawu ze-cystic fibrosis
• Indlela yokuqinisekisa ukuxilongwa
• Unyango lwe-cystic fibrosis
• Iingxaki ezinokwenzeka
• Izinto ozilindile emhlabane

Enye yeendlela zokukrokrela ukuba umntwana une-cystic fibrosis kukujonga ukuba ukubila kwakhe kunetyiwa ngakumbi kunesiqhelo, kungenxa yokuba olu phawu luqhelekile kwesi sifo. Nangona ukubila okunetyuwa kubonisa i-cystic fibrosis, ukuxilongwa kwenziwa kuphela kuvavanyo lwesithende, ekufuneka lwenziwe kwinyanga yokuqala yobomi. Kwimeko yesiphumo esifanelekileyo, ukuxilongwa kuqinisekiswa kukuvavanywa kokubila.

ICystic fibrosis sisifo esivela kwilifa esinganyangekiyo, apho amanye amadlala avelisa imfihlelo engaqhelekanga echaphazela ikakhulu iindlela zokugaya nokuphefumla. Unyango lwayo lubandakanya amayeza, ukutya, unyango lomzimba kwaye, kwezinye iimeko, utyando. Ixesha lokuphila lezigulana liyanda ngenxa yenkqubela phambili kunyango kunye nenqanaba eliphezulu lokunamathela, kunye nomntu ophakathi ofikelela kwiminyaka engama-40 ubudala. Funda ngakumbi malunga necystic fibrosis.

Iimpawu ze-cystic fibrosis

Umqondiso wokuqala we-cystic fibrosis kuxa usana lungakwazi ukuphelisa i-meconium, ehambelana nelindle lokuqala losana, ngosuku lokuqala okanye lesibini lobomi. Ngamanye amaxesha unyango lweziyobisi luyehluleka ukunyibilika kwezi zitulo kwaye kufuneka zisuswe ngotyando. Ezinye iimpawu ezibonisa i-cystic fibrosis zezi:

• Ukubila okunetyuwa;
• Ukukhohlela okungapheliyo, ukuphazamisa ukutya kunye nokulala;
• I-phlegm ejiyileyo;
• I-bronchiolitis ephindaphindiweyo, kukudumba okungapheliyo kwebronchi;
• Usulelo lweendlela zokuphefumla eziphindaphindwayo, ezinjenge-pneumonia;
• Ubunzima bokuphefumla;
• Ukudinwa;
• Urhudo olungapheliyo okanye ukuqhina okunzima;
• Ukuphelelwa ngumdla wokutya;
• Iigesi;
• I-greasy, izitulo eziluhlaza;
• Ubunzima bokufumana ubunzima kunye nokukhula okumileyo.

Ezi mpawu ziqala ukuzibonakalisa kwiiveki zokuqala zobomi kwaye umntwana kufuneka afumane unyango olufanelekileyo ukunqanda ukuba mandundu kwemeko. Nangona kunjalo, inokwenzeka into yokuba icystic fibrosis ithambile kwaye iimpawu zibonakala kuphela kwinqanaba lokufikisa okanye ebudaleni.

Indlela yokuqinisekisa ukuxilongwa

Ukuxilongwa kwe-cystic fibrosis kwenziwa ngovavanyo lwesithende, olunyanzelekileyo kubo bonke abantwana abasandul 'ukuzalwa kwaye kufuneka lwenziwe kude kube yinyanga yokuqala yobomi. Kwimeko yeziphumo ezincumisayo, kwenziwa uvavanyo lokubila ukuze kuqinisekiswe isifo. Kolu vavanyo, ukubila okuncinci okuvela emntwaneni kuqokelelwa kwaye kuvavanywe, njengoko ezinye iinguqu kubilo zibonisa ubukho be-cystic fibrosis.

Nokuba kunesiphumo esincumisayo seemvavanyo ezi-2, uvavanyo lokubila luhlala luphindaphindiwe ukuze kuqinisekiswe ngoxilongo lokugqibela, ukongeza ekubeni kubalulekile ukugcina iimpawu ezibonakaliswa lusana. Abantwana abadala abaneempawu ze-cystic fibrosis kufuneka babe novavanyo lwe-sweat ukuqinisekisa isifo.

Ukongeza, kubalulekile ukwenza uvavanyo lwemfuzo ukujonga ukuba loluphi uguquko olunxulumene ne-cystic fibrosis olunayo usana, kuba ngokuxhomekeke ekuguqukeni, isifo sinokuba nokuqhubela phambili okungaphaya okanye okunzima kakhulu, okunokubonisa esona sicwangciso silungileyo sonyango ekufuneka kufuneka ilandelwe, esekwe ngugqirha wabantwana.

Zazi ezinye izifo ezinokuthi zichongwe kuvavanyo lwesithende.

Unyango lwe-cystic fibrosis

Unyango lwe-cystic fibrosis kufuneka luqale kwakamsinya emva kokuba kufunyaniswe isifo, nokuba akukho zimpawu, njengoko iinjongo kukuhlehlisa usulelo lwemiphunga kunye nokuthintela ukungondleki kunye nokudodobala kokukhula.Ke, ukusetyenziswa kwezibulala-ntsholongwane ukulwa nokuthintela usulelo olunokubakho kungaboniswa ngugqirha, kunye nokusetyenziswa kweziyobisi ezichasayo ukunceda ukunciphisa iimpawu ezinxulumene nokudumba kwemiphunga.

Kukwaboniswa ukuba kusetyenziswe iziyobisi ze-bronchodilator ukulungiselela ukuphefumla kunye ne-mucolytics ukunceda ukunciphisa i-phlegm kunye nokwenza lula ukupheliswa. Ugqirha wabantwana angacebisa ukuba kusetyenziswe izongezo zeevithamini A, E K kunye no-D, ukongeza kwii-enzymes zesisu zokunceda ukwetyisa ukutya.

Unyango lubandakanya iingcali ezininzi, kuba ukongeza ekusebenziseni amayeza, i-physiotherapy yokuphefumula, ukubeka esweni ukutya okunesondlo kunye nokusebenza kwengqondo, unyango lweoksijini ukuphucula ukuphefumla kwaye, kwezinye iimeko, utyando ukuphucula ukusebenza kwemiphunga okanye ukufakelwa kwemiphunga kuyafuneka. Jonga indlela ukutya okunokunceda ngayo ukunyanga i-cystic fibrosis.

Iingxaki ezinokwenzeka

ICystic fibrosis ibangela iingxaki kumalungu aliqela omzimba, anokubangela:

• I-bronchitis engapheliyo, ekunzima ukuyilawula;
• Ukunqongophala kwepancreatic, okunokuthi kukhokelele ekutyeni okungafunekiyo kokutya kunye nokungondleki;
• Isifo seswekile;
• Izifo zesibindi, ezinje ngokudumba kunye nokuqina kwesibindi;
• Inzalo;
• I-distal intestinal obstruction syndrome (i-DIOS), apho ukuvaleka kwamathumbu kwenzeka, kubangela iincampu, iintlungu kunye nokudumba esiswini;
• Amatye e-Gall;
• Isifo samathambo, esikhokelela kukhululeka ngakumbi kokuqhekeka kwethambo;
• Ukungondleki.

Ezinye iingxaki ze-cystic fibrosis kunzima ukuzilawula, kodwa unyango kwangoko yeyona ndlela yokunyusa umgangatho wobomi kunye nokuthanda ukukhula okufanelekileyo komntwana. Ngaphandle kweengxaki ezininzi, abantu abane-cystic fibrosis bahlala bekwazi ukuya esikolweni nasemsebenzini.

Izinto ozilindile emhlabane

Ukulindelwa kobomi babantu abane-cystic fibrosis kuyahluka ukusuka komnye umntu ukuya komnye ngokotshintsho, isini, ukubambelela kunyango, ubungqongqo besifo, ubudala ekufumanekeni kunye nokuphefumla kweklinikhi, ukugaya ukutya kunye nokubonakaliswa kwepancreatic. Ukuxela kudla ngokuba kubi kakhulu kubantu abanganyangwa kakuhle, abanokuchaphazeleka kade okanye abangonelanga yipancreatic.

Kubantu abafunyaniswe kuselithuba, ngakumbi kanye emva kokuzalwa, kunokwenzeka ukuba umntu afike kwiminyaka engama-40 ubudala, kodwa ngenxa yoko kubalulekile ukwenza unyango ngendlela echanekileyo. Fumanisa ukuba unyango lwe-cystic fibrosis kufuneka lwenziwe njani.

Okwangoku, malunga neepesenti ezingama-75 zabantu abalandela unyango lwe-cystic fibrosis njengoko kucetyisiwe ukufikelela esiphelweni sokufikisa kwaye malunga neepesenti ezingama-50 bafikelela kwiminyaka elishumi yobomi, eyayiyi-10% kuphela ngaphambili.

Nokuba unyango lwenziwe ngokuchanekileyo, ngelishwa kunzima ukuba umntu ofunyaniswe ene-cystic fibrosis ukufikelela kwiminyaka engama-70, umzekelo. Kungenxa yokuba ngonyango olululo, kukho ukubandakanyeka okuqhubekayo kwamalungu, okwenza ukuba abuthathaka, abuthathaka kwaye aphulukane nomsebenzi wawo kule minyaka idlulileyo, okukhokelela ekubeni, kwimeko ezininzi, ukusilela ekuphefumlweni.

Ukongeza, usulelo olwenziwe zii-microorganisms luxhaphake kakhulu kubantu abane-cystic fibrosis kunye nonyango rhoqo nge-antimicrobials kunokubangela ukuba ibhaktiriya inganyangekiyo, enokuthi iqhubeke nokuba nzima kwimeko yezonyango yesigulana.