USpina Bifida khange ayeke lo mfazi ukubaleka iiHarfathi zeHalf Half kunye neRashi yoSpartan

Umxholo

• Uphengululo lwe

UMisty Diaz wazalwa ene-myelomeningocele, olona hlobo luqatha lwespina bifida, isiphene sokuzalwa esithintela umqolo wakho ekukhuleni ngokufanelekileyo. Kodwa oko akukhange kumthintele ekuchaseni izinto ezingathandekiyo kwaye aphile ubomi obusebenzayo akukho mntu wayecinga ukuba kunokwenzeka.

Ukukhula, andizange ndikholelwe ukuba kukho izinto endingenakuzenza, nangona oogqirha bendixelele ukuba ndizokuhamba nzima ubomi bam bonke, utshilo uxela. Ubume. "Kodwa andizange ndiyivumele loo nto ukuba ifike kum. Ukuba bekukho umdyarho weemitha ezingama-50 okanye ezili-100, ndingayityikitya, nokuba oko bekuthetha ukuhamba nesihamba sam okanye ukubaleka neentonga zam." (Idibeneyo: Ndingu-Amputee kunye noMqeqeshi-Kodwa khange anyathele i-Gym ndide ndibeneminyaka engama-36)

Ngethuba wayeneminyaka engama-20 ubudala, nangona kunjalo, uDiaz wayesebenze imisebenzi engama-28, eyokugqibela eyabangela iingxaki. "Utyando lwam lwe-28 lwaphela ngumsebenzi ophela ngokupheleleyo," utshilo. "Ugqirha wayefanele ukuba asike inxalenye yesisu sam kodwa ekugqibeleni wathatha kakhulu. Ngenxa yoko, amathumbu am atyhala kakhulu esiswini sam, esingakhululekanga, kwaye kufuneka ndiphephe ukutya okuthile."

Ngelo xesha, uDiaz wayefanele agoduke ngosuku lotyando kodwa wagqiba ukuchitha iintsuku ezili-10 esibhedlele. Uthi: “Ndandineentlungu ezingathethekiyo ndaza ndanikwa imorphine ekwakufuneka ndiyisele kathathu ngemini. "Oko kukhokelele ekubeni likhoboka leepilisi, kwaye kwandithatha iinyanga ukuba ndoyise."

Ngenxa yeyeza leentlungu, uDiaz wazifumana ekwinkungu engaguqukiyo kwaye wayengakwazi ukushukuma umzimba wakhe ngendlela awayeqhele ukwenza ngayo. "Ndaziva ndibuthathaka ngendlela emangalisayo kwaye ndingaqinisekanga ukuba ubomi bam buza kuphinda bufane kwakhona," utshilo. (Inxulumene: Yonke into ekufuneka uyazi ngaphambi kokuthatha iiPilisi zoNyango)

Edinwe ziintlungu, wawela kuxinzelelo olunzulu kwaye, ngamanye amaxesha, wayecinga nokuzibulala. "Ndandisandula kuqhawula umtshato, ndandingafumani mali, ndarhaxwa yimirhumo yezonyango, kwaye ndibukele uMkhosi Wosindiso ubuyela kwindlela yam ndaza ndathatha konke okwam. Ndade kwafuneka ndinikezele ngenja yam yenkonzo kuba andikho ixesha elide bendinayo indlela yokuyihoya,” utshilo. "Kwafika kwinqanaba lokuba ndibuze umbuzo wam wokuphila."

Into eyenze ukuba izinto zibe nzima kukuba uDiaz wayengazi omnye umntu owayekade ezihlangwini zakhe okanye umntu anokumazi. "Akukho magazini okanye iphephandaba ngelo xesha elalibalaselisa abantu abane-spina bifida ababezama ukuphila ubomi obusebenzayo okanye obuqhelekileyo," utshilo."Ndandingenaye nabani na endandinokuthetha naye okanye ndifune ingcebiso kuye. Oko kungabikho kokundimela kwandenza ndangaqiniseki ngento ekumele ndikhangele phambili kuyo, indlela ekufanele ndibuphile ngayo ubomi bam, okanye into emandiyilindele kuyo."

Kwiinyanga ezintathu ezilandelayo, uDiaz couch wantywila, ethembisa ukubuyisela abahlobo bakhe ngokwenza imisebenzi yasekhaya. "Ngeli xesha ndiqale ukuhamba kakhulu kunendlela endandiqhele ngayo, utshilo. "Ekugqibeleni, ndiye ndaqonda ukuba ukuhambisa umzimba wam kundincede ndaziva ndibhetele ngokwasemzimbeni nangokweemvakalelo."

Ke uDiaz wabeka usukelo lokuhamba ngakumbi nangakumbi suku ngalunye ukuzama ukucoca ingqondo yakhe. Waqala ngeenjongo ezincinci zokusuka nje ehle ngendlela eya kwibhokisi yeposi. Uthi: “Ndandifuna ukuqalisa ndaweni ithile, yaye oko kwakubonakala kulusukelo olufikelelekayo.

Ngeli xesha, uDiaz waqala ukuya kwiintlanganiso zeAA ukumnceda ukuba ahlale phantsi njengoko wayezikhupha emzimbeni wakhe kumachiza awayewanikwe. “Emva kokuba ndigqibe kwelokuba ndiyeke ukusela amayeza am okuthomalalisa iintlungu, umzimba wam uye waphelelwa ngamandla—yinto leyo eyandenza ndazibona ukuba ndilikhoboka,” utshilo. "Ukuze ndijamelane, ndagqiba ekubeni ndiye kwi-AA ukuze ndithethe malunga nento endiyihambayo kwaye ndakhe inkqubo yenkxaso njengoko ndizama ukubuyisela ubomi bam." (Eyeleleneyo: Ngaba ulikhoboka leNgozi?)

Okwangoku, uDiaz wenyuka umgama wakhe wokuhamba kwaye waqala ukuhamba ejikeleza ibhloko. Kungekudala usukelo lwakhe yayikukufikelela kunxweme olukufuphi. Uhlekisa ukuba bendihlala elwandle ubomi bam bonke kodwa ndingazange ndithabathe uhambo olude ndiye elwandle, utshilo.

Ngenye imini, ngelixa wayephuma kuhambo lwakhe lwemihla ngemihla, uDiaz wafumana ukuqonda okutshintsha ubomi: “Ubomi bam bonke, bendisebenzisa iyeza elinye okanye elinye,” utshilo. "Kwaye emva kokuba ndiyekile ukulamba i-morphine, okokuqala ngqa, ndandingenazo iziyobisi. Ke ngenye imini xa ndandikwenye yokuhamba kwam, ndabona umbala okokuqala. Ndikhumbula ndibona intyatyambo epinki kwaye ndayiqonda indlela epinki ngayo Ndiyazi ukuba oko kuvakala kusisiyatha, kodwa andikaze ndiyixabise indlela elihle ngayo ilizwe. (Idibeneyo: Indlela enye yoMfazi eyisebenzisa ngayo enye iyeza ukoyisa ukuxhomekeka kwakhe kwi-Opioid)

Ukusukela ngaloo mzuzu ukuya phambili, uDiaz wayesazi ukuba ufuna ukuchitha ixesha lakhe engaphandle, esebenza, kwaye efumana ubomi ngokupheleleyo. “Ndafika ekhaya ngaloo mini ndaza kwangoko ndabhalisela uhambo lwesisa olwaluqhubeka kwiveki okanye engaphaya,” utshilo. "Ukuhamba kundikhokelele ekubhaliseni i-5K yam yokuqala, endiyihambileyo. Kwaye ekuqaleni kuka-2012, ndasayinela uRonald McDonald 5K, endabaleka nayo."

Indlela awayeziva ngayo uDiaz emva kokuba egqibe ologqatso yayingenakuthelekiswa nayo nantoni na awayekhe wayiva ngaphambili. Ukufika kwam kwindawo yokuqala, wonke umntu wayendixhasa kwaye endikhuthaza, utshilo. "Kwaye xa ndiqala ukubaleka, abantu abavela emacaleni babephambana bendonwabisa. Abantu babephuma ezindlwini zabo bezokundixhasa kwaye oko kwandenza ndaziva ngathi andindedwa. Eyona nto yayiqwalaselweyo kukuba nangona Ndandihamba ngeentonga zam yaye ndandingeyombaleki kwaphela, ndaqalisa ndaza ndagqiba nabantu abaninzi. Ndaqonda ukuba ukukhubazeka kwam kwakunganyanzelekanga ukuba kundibambezele. (Idibeneyo: Pro Adaptive Climber Maureen Beck Wins Ukhuphiswano ngesandla esinye)

Ukususela ngoko, uDiaz waqala ukubhalisela ii-5K ezininzi njengoko wayenako kwaye waqala ukuphuhlisa okulandelayo. “Abantu bathatyathelw’ indawo kwibali lam,” utsho. "Bafuna ukwazi ukuba yintoni endikhuthazayo ukuba ndibaleke kwaye ndenze njani, ngenxa yokukhubazeka kwam."

Kancinci kodwa ngokuqinisekileyo, imibutho yaqala ukugaya uDiaz ukuba athethe kwiminyhadala yoluntu kwaye abelane ngakumbi ngobomi bakhe. Okwangoku, uqhubeke ebaleka esiya kude kwaye esiya kude, ekugqibeleni egqiba isiqingatha semarathoni kwilizwe liphela. Emva kokuba ndinee-5Ks ezininzi phantsi kwebhanti lam, bendilambele ezinye, utshilo. "Bendifuna ukwazi ukuba ungakanani umzimba wam onokuwenza ukuba ndiyatyhala ngokwaneleyo."

Emva kweminyaka emibini egxile ekubalekeni, uDiaz wayesazi ukuba ukulungele ukuthatha izinto kwelinye icala. “Omnye wabaqeqeshi bam osuka kumdyarho wesiqingatha somdyarho eNew York wathi ukwaqeqeshe abantu kugqatso lwaseSparta, kwaye ndabonakalisa umdla wokungenela lo msitho,” utshilo. "Wayengazange aqeqeshe nabani na okhubazekileyo kwi-Spartan ngaphambili, kodwa ukuba nabani na onokuyenza, ndim."

UDiaz walugqiba ugqatso lwakhe lokuqala lweSpartan ngoDisemba ka-2014- kodwa lwalungekude kwaphela. "Kwakungekade ndigqibe ugqatso lweSpartan apho ndayiqonda kakuhle indlela umzimba wam onokuziqhelanisa ngayo nemiqobo ethile," utshilo. "Ndicinga ukuba kulapho abantu abakhubazekileyo badimazeka khona. Kodwa ndifuna ukuba bazi ukuba kuthatha ixesha elininzi kunye nokuziqhelanisa nokufunda ngeentambo. Bekufuneka ndenze umendo omninzi wendlela, ukuzilolonga umzimba ophezulu, kwaye ndifunde ukuthwala ubunzima emagxeni am ngaphambi kokuba ndifike kwindawo apho ndandingengomntu wokugqibela ekhosini. Kodwa ukuba uyazingisa, ungafika apho." (P.S.Le khosi yokufunda izithintelo iya kukunceda uqeqeshele nawuphi na umsitho.)

Namhlanje, uDiaz ugqibile ngaphezulu kwama-200 5Ks, ii-marathons ezinesiqingatha, kunye neziganeko zothintelo-kwihlabathi liphela-kwaye uhlala ephantsi ukuba acele umngeni ongaphezulu. Kutshanje, uthathe inxaxheba kugqatso lweRed Bull 400, olona gqatso lweemitha ezingama-400 ehlabathini. “Ndiye ndenyuka kangangoko ndinako ngeentonga zam, emva koko ndawunyusa umzimba wam (njengokubheqa) ndingakhange ndijonge ngasemva,” utshilo. UDiaz ugqibe ugqatso kwimizuzu engama-25.

Ukujonga phambili, uDiaz uhlala efuna iindlela ezintsha zokuzicel 'umngeni ngelixa ekhuthaza abanye kwinkqubo. Uthi: “Kwakukho ixesha apho ndandicinga ukuba andinakuze ndikwazi ukwaluphala. "Ngoku, ndikwimo entle yobomi bam kwaye ndijonge phambili ekuqhekezeni ezinye iingcinga kunye nezithintelo kubantu abane-spina bifida."

UDiaz uye wajonga ukuba nokukhubazeka njengesakhono esingaqhelekanga. “Unokwenza nantoni na oyifunayo ukuba ubeka ingqondo yakho kuyo,” utshilo. "Ukuba uyasilela, buyela phezulu. Qhubeka uqhubele phambili. Kwaye okona kubaluleke kakhulu, yonwabele into onayo ngalo mzuzu kwaye uyivumele ikunike amandla, kuba ngekhe wazi ukuba buza kuphila ntoni ubomi bakho."

Uphengululo lwe