Imibuzo eli-10 yokubuza i-Pulmonologist yakho malunga ne-Idiopathic Pulmonary Fibrosis

Umxholo

• 1. Yintoni ebangela imeko yam ukuba ibe ye-idiopathic?
• Ixhaphake kangakanani i-IPF?
• 3. Kuza kwenzeka ntoni ekuphefumlweni kwam ngokuhamba kwexesha?
• 4. Yintoni enye eza kwenzeka emzimbeni wam ekuhambeni kwexesha?
• 5. Ngaba zikhona ezinye iimeko zemiphunga endinokuhlangabezana nazo nge-IPF?
• 6. Zithini iinjongo zokunyanga i-IPF?
• 7. Ndiyiphatha njani i-IPF?
• Amayeza
• Ukuvuselelwa kwenkqubo yemiphunga
• Unyango lweoksijini
• Ukufakelwa kwemiphunga
• 8. Ndingenza njani ukuze imeko ingabi mbi?
• 9. Loluphi uhlengahlengiso kwindlela endinokuyenza ukuphucula iimpawu zam?
• 10. Ndingayifumana phi inkxaso kwimeko yam?
• Yise kude

Ushwankathelo

Ukuba ufumene ukuba une-idiopathic pulmonary fibrosis (IPF), unokuba ugcwele imibuzo malunga nokulandelayo.

I-pulmonologist inokukunceda ufumane isicwangciso sonyango esilungileyo. Banokukucebisa malunga notshintsho kwindlela yokuphila onokuyenza ukunciphisa iimpawu zakho kunye nokufezekisa umgangatho wobomi obungcono.

Nayi imibuzo elishumi onokuyizisa kwingqesho yakho ye-pulmonologist ukukunceda uqonde ngcono kwaye ulawule ubomi bakho nge-IPF.

1. Yintoni ebangela imeko yam ukuba ibe ye-idiopathic?

Usenokuba uqhelene neligama elithi “pulmonary fibrosis.” Kuthetha ukunqunyulwa kwemiphunga. Igama elithi "idiopathic" lichaza uhlobo lwe-pulmonary fibrosis apho oogqirha bengenakukwazi ukuchonga isizathu.

I-IPF ibandakanya ipateni enqabileyo ebizwa ngokuba yinyumoniya yesiqhelo. Luhlobo lwesifo semiphunga esiphakathi. Ezi meko zibomvu izicubu zemiphunga ezifumaneka phakathi kwendlela yakho yomoya kunye nokuhamba kwegazi.

Nangona kungekho sizathu siqinisekileyo se-IPF, kukho izinto ezithile ezikrokrelwayo zomngcipheko kule meko. Enye yezinto ezinobungozi yi-genetics. Abaphandi bafumanise ukuba umahluko UMC5B I-gene ikunika umngcipheko weepesenti ezingama-30 zokuphuhlisa imeko.

Eminye imingcipheko ye-IPF ibandakanya:

• ubudala bakho, kuba i-IPF ihlala isenzeka kubantu abadala kunama-50
• isini sakho, njengamadoda kunokwenzeka ngakumbi ukuba aphuhlise i-IPF
• ukutshaya
• iimeko ezi-comorbid, ezinje ngeemeko zokuzimela
• iimeko zokusingqongileyo

Ixhaphake kangakanani i-IPF?

I-IPF ichaphazela malunga ne-100,000 yamaMelika, kwaye ke ithathwa njengesifo esinqabileyo. Unyaka ngamnye, oogqirha baxilonga abantu abayi-15,000 e-United States ngale meko.

Ehlabathini lonke, malunga ne-13 ukuya kuma-20 kubo bonke abantu abayi-100,000 banesi sifo.

3. Kuza kwenzeka ntoni ekuphefumlweni kwam ngokuhamba kwexesha?

Wonke umntu ofumana uxilongo lwe-IPF uya kuba nenqanaba lokwahluka kobunzima bokuphefumla ekuqaleni. Unokufunyanwa kwinqanaba lokuqala le-IPF xa usuphefumla nzima ngexesha lokuzilolonga kwe-aerobic. Okanye, usenokubhengeza ukuphefumla kancinci kwimisebenzi yemihla ngemihla njengokuhamba okanye ukuhlamba.

Njengoko i-IPF iqhubeka, unokufumana ubunzima bokuphefumla. Imiphunga yakho inokuqina ngakumbi kunesikrelemnqa. Oku kwenza ukuba kube nzima ukwenza ioksijini kwaye uyihambise kwigazi lakho. Njengokuba imeko isiba mandundu, uyakuqaphela ukuba uphefumla ngamandla nokuba uphumle.

Imbonakalo ye-IPF yakho yahlukile kuwe, kodwa akukho nyango ngoku. Abantu abaninzi baphila malunga nokufumanisa ukuba bane-IPF. Abanye abantu baphila ixesha elide okanye elifutshane, kuxhomekeke kwisifo esiqhubela phambili ngokukhawuleza. Iimpawu onokuzifumana ngexesha lokuqhubeka kwimeko yakho ziyahluka.

4. Yintoni enye eza kwenzeka emzimbeni wam ekuhambeni kwexesha?

Kukho ezinye iimpawu ze-IPF. Oku kubandakanya:

• ukhohlokhohlo olungenamveliso
• ukudinwa
• ukuhla ukusinda
• iintlungu kunye nokungonwabi esifubeni sakho, isisu kunye namalungu
• iminwe kunye neenzwane

Thetha nogqirha wakho xa kuvela iimpawu ezintsha okanye ukuba ziya zisiba mbi. Kukho unyango olunokunceda ukunciphisa iimpawu zakho.

5. Ngaba zikhona ezinye iimeko zemiphunga endinokuhlangabezana nazo nge-IPF?

Unokuba semngciphekweni wokuba okanye ukuphuhlisa ezinye iimeko zemiphunga xa une-IPF. Oku kubandakanya:

• amahlwili egazi
• ukuwa kwemiphunga
• isifo esinganyangekiyo semiphunga
• ukukrala kwemiphunga
• Uxinzelelo lwegazi kwimiphunga
• ukuthintela ukuphefumla xa ulala
• umhlaza wemiphunga

Unokuba semngciphekweni wokufumana okanye ukuphuhlisa ezinye iimeko ezinje ngesifo se-reflux sesifo se-gastroesophageal kunye nesifo sentliziyo. Isifo se-reflux sesifo se-Gastroesophageal sichaphazela nge-IPF.

6. Zithini iinjongo zokunyanga i-IPF?

I-IPF ayinyangeki, ke iinjongo zonyango ziya kugxila ekugcineni iimpawu phantsi kolawulo. Oogqirha bakho baya kuzama ukugcina inqanaba lakho leoksijini lizinzile ukuze ugqibezele imisebenzi yemihla ngemihla kunye nokuzilolonga.

7. Ndiyiphatha njani i-IPF?

Unyango lwe-IPF luya kugxila ekulawuleni iimpawu zakho. Unyango lwe-IPF lubandakanya:

Amayeza

Ulawulo lwezoKutya kunye noLawulo lweeDrug luvume amayeza amabini amatsha ngo-2014: nintedanib (Ofev) kunye nepirfenidone (Esbriet). La mayeza awunakubuyisa umonakalo kwimiphunga yakho, kodwa anokucothisa ukunqunyulwa kwethishu yemiphunga kunye nokuqhubela phambili kwe-IPF.

Ukuvuselelwa kwenkqubo yemiphunga

Ukuvuselelwa kwenkqubo yemiphunga kunokukunceda ulawule ukuphefumla kwakho. Iingcali ezininzi ziya kukufundisa indlela yokulawula i-IPF.

Ukubuyiselwa kwimeko yesiqhelo kwimiphunga kunokukunceda:

• funda ngakumbi ngemeko yakho
• Ukuzivocavoca ngaphandle kokunyusa ukuphefumla kwakho
• yitya ukutya okusempilweni kunye nokulinganayo
• phefumla ngokulula ngakumbi
• gcina amandla akho
• hamba kwimiba yeemvakalelo kwimeko yakho

Unyango lweoksijini

Ngonyango lweoksijini, uya kufumana ukubonelelwa ngokuthe ngqo kweoksijini ngempumlo yakho ngesigqumathelo okanye ngeempumlo zempumlo. Oku kunokunceda ukunciphisa ukuphefumla kwakho. Kuxhomekeke kubukrakra be-IPF yakho, ugqirha wakho unokucebisa ukuba uyinxibe ngamaxesha athile okanye ngalo lonke ixesha.

Ukufakelwa kwemiphunga

Kwezinye iimeko ze-IPF, unokuba ngumgqatswa wokufumana ukufakelwa kwemiphunga ukuze wandise ubomi bakho. Le nkqubo yenziwa kuphela kubantu abangaphantsi kweminyaka engama-65 ngaphandle kwezinye iimeko zonyango ezinzulu.

Inkqubo yokufumana ukufakelwa kwemiphunga inokuthatha iinyanga okanye nangaphezulu. Ukuba ufumana ukufakelwa, kuya kufuneka uthathe amayeza ukuthintela umzimba wakho ukwala ilungu elitsha.

8. Ndingenza njani ukuze imeko ingabi mbi?

Ukuthintela iimpawu zakho ukuba zingabi mbi, kuya kufuneka wenze imikhwa elungileyo yezempilo. Oku kubandakanya:

• ukuyeka ukutshaya ngoko nangoko
• uhlambe izandla zakho rhoqo
• ukuphepha ukudibana nabantu abagulayo
• ukufumana ugonyo lomkhuhlane kunye nenyumoniya
• ukuthatha amayeza kwezinye iimeko
• ukuhlala kwimimandla eneoksijini ephantsi, njengeenqwelomoya kunye neendawo ezinokuphakama okuphezulu

9. Loluphi uhlengahlengiso kwindlela endinokuyenza ukuphucula iimpawu zam?

Uhlengahlengiso kwindlela yokuphila lunokunciphisa iimpawu zakho kwaye luphucule umgangatho wobomi bakho.

Fumana iindlela zokuhlala usebenza ne-IPF. Iqela lakho lokuvuselela imiphunga linokucebisa ngeendlela ezithile zokuzilolonga. Unokufumanisa ukuba ukuhamba okanye ukusebenzisa izixhobo zomthambo kwindawo yokuzivocavoca kunciphisa uxinzelelo kwaye kukwenza uzive womelele. Olunye ukhetho kukuhamba rhoqo ukuya kuzonwabisa okanye kumaqela oluntu.

Ukutya ukutya okusempilweni kunokukunika amandla amaninzi ukugcina umzimba wakho womelele. Gwema ukutya okucutshungulwayo okunamafutha, ityuwa neswekile. Zama ukutya ukutya okusempilweni okufana neziqhamo, imifuno, ukutya okuziinkozo kunye neeproteni ezibhityileyo.

I-IPF inokuchaphazela impilo-ntle yakho, nawe. Zama ukucamngca okanye enye indlela yokuphumla ukuthomalalisa umzimba wakho. Ukulala ngokwaneleyo kunye nokuphumla kunokunceda nakwimpilo yakho yengqondo. Ukuba uziva uxinezelekile okanye uxhalabile, thetha nogqirha wakho okanye umcebisi oqeqeshiweyo.

10. Ndingayifumana phi inkxaso kwimeko yam?

Ukufumana inethiwekhi yenkxaso kubalulekile xa ufumene ukuba une-IPF. Unokucela oogqirha bakho ukuba banike iingcebiso, okanye unokufumana enye kwi-Intanethi. Fikelela kusapho nakubahlobo kwaye ubazise ngendlela abanokukunceda ngayo.

Amaqela enkxaso akwenza ukwazi ukunxibelelana noluntu lwabantu oluhlangabezana neminye imiceli mngeni efanayo neyakho. Unokwabelana ngamava akho nge-IPF kwaye ufunde ngeendlela zokuyilawula kwindawo enovelwano, eqondayo.

Yise kude

Ukuhlala ne-IPF kunokuba ngumceli mngeni, ngokwasemzimbeni nasengqondweni. Kungenxa yoko le nto kubaluleke kakhulu ukuba ubone i-pulmonologist yakho kwaye ubabuze malunga nezona ndlela zokulawula imeko yakho.

Ngelixa lungekho unyango, kukho amanyathelo aliqela onokuwathatha ukucothisa ukuqhubela phambili kwe-IPF kunye nokuphumeza umgangatho wobomi ophezulu.