Imibuzo eli-10 yokubuza ugqirha wakho malunga ne-ITP

Umxholo

• 1. Yintoni ebangele imeko yam?
• 2. Zithetha ntoni iziphumo zam zeplatelet?
• 3. Uyintoni umngcipheko wokopha ngaphakathi?
• 4. Ndingenza ntoni ukuthintela ukopha nokugruzuka?
• 5. Ngaba ikhona into ekufuneka ndiyiphephe nge-ITP?
• 6.Ukuba unyango lwam alusebenzi?
• 7. Ngaba ndiza kufuna ukuba udakada lwam lususwe?
• 8. Ngaba i-ITP yam ibuhlungu okanye ayinyangeki?
• 9. Ngaba zikhona iimpawu ezinzulu ekufuneka ndizibukele?
• 10. Injani imeko yam?

Ukuxilongwa kwe-immune thrombocytopenia (i-ITP), eyayisaziwa njenge-idiopathic thrombocytopenia, inokuzisa imibuzo emininzi. Qiniseka ukuba uzilungiselele kwingqonyelo yakho elandelayo ngokuba nale mibuzo ngesandla.

1. Yintoni ebangele imeko yam?

I-ITP ithathwa njengempendulo ezenzekelayo apho umzimba wakho uhlasela iiseli zawo. Kwi-ITP, umzimba wakho uhlasela iiplatelets, ezithoba inani lakho lolu hlobo lweseli yegazi. Njengezinye izifo ezizimele, isizathu esisisiseko sokuhlaselwa kweplatelet akwaziwa.

Ezinye iimeko ze-ITP zinxulunyaniswa neempendulo ezizimeleyo ezisuka kwintsholongwane okanye usulelo lwentsholongwane. Iintsholongwane zexesha elide, ezinjenge-HIV kunye ne-hepatitis C, zinokukhokelela kwi-ITP.

Xa uqonda oyena nobangela onokuba negalelo kwimeko yakho, kuya kukunceda wena nogqirha wakho wenze isicwangciso sonyango se-ITP. Kuya kufuneka ukuba uphathe naluphi na usulelo lwentsholongwane oludala ukubalwa kweplatelet ephantsi.

2. Zithetha ntoni iziphumo zam zeplatelet?

I-ITP ibangelwa linani eliphantsi leplatelet. Iiplatelets ziindidi zeeseli zegazi ezikunceda ukuba uhlambe igazi ukuze ungophisi kakhulu. Xa ungenazo iiplatelet ezaneleyo, usengozini yokugruzuka nokukopha okuzenzekelayo.

Ukufundwa kweplatelet kwesiqhelo kuphakathi kwe-150,000 kunye ne-450,000 yeeplatelets nge-microliter (mcL) yegazi. Abantu abane-ITP banokufundwa nge-mcL nganye. Ukufundwa kweeplatelets ezingaphantsi kwama-20 000 nge-mcL kunokuthetha ukuba usemngciphekweni omkhulu wokopha ngaphakathi.

3. Uyintoni umngcipheko wokopha ngaphakathi?

Ukopha ngaphakathi nangaphandle kunxulunyaniswa ne-ITP. Ukopha ngaphakathi kungabeka umngcipheko ophezulu weengxaki kuba awusoloko uyazi ukuba iyenzeka. Njengomthetho wesithupha, ezantsi iiplatelet count yakho, uyanda umngcipheko wokopha ngaphakathi, ngokweKliniki yaseMayo.

Kwiimeko ezinzima, i-ITP inokubangela ukopha kwingqondo. Nangona kunjalo, ngokuka, le yinto enqabileyo.

4. Ndingenza ntoni ukuthintela ukopha nokugruzuka?

Xa une-ITP, ukuphuma ngaphakathi nangaphandle kunye nokugruzuka kunokwenzeka nokuba awukhange wenzakale. Nangona kunjalo, ukwenzakala kukubeka emngciphekweni wokopha ngakumbi. Kubalulekile ukuzikhusela kwingozi xa kunokwenzeka. Oku kunokubandakanya ukunxiba izixhobo zokuzikhusela, ezinje ngesigcina-ntloko xa ukhwela ibhayisekile. Kukwabalulekile ukuba ulumke xa uhamba kwiindawo ezingalinganiyo okanye ezimtyibilizi ukunqanda ukuwa.

5. Ngaba ikhona into ekufuneka ndiyiphephe nge-ITP?

Ugqirha wakho unokucebisa ukuba uphephe indawo ezithile kunye nemisebenzi ukuzikhusela kusulelo nakwingozi. Oku kuxhomekeke kubukhali bemeko yakho. Njengomthetho wesithupha, unokufuna ukunqanda ukunxibelelana nemidlalo, njengebhola ekhatywayo, ibhola ekhatywayo kunye nebhasikithi.

Nangona kunjalo, awunyanzelekanga ukuba uyiphephe yonke imisebenzi - enyanisweni, ukuzilolonga rhoqo kubalulekile ekugcineni inkqubo yentliziyo yakho iphilile.

6.Ukuba unyango lwam alusebenzi?

Iimpawu zokukhulisa ezinje ngokutyumka okubonakalayo okanye ukopha kunokuthetha ukuba unyango lwakho lwangoku alusebenzi. Ezinye iimpawu, njengegazi kumchamo wakho okanye isitulo okanye amaxesha anzima kwabasetyhini, zonke zinokuba ziimpawu zokuba unyango lwakho lwangoku alunakwanela.

Ugqirha wakho unokucebisa ukuba uyeke amayeza anokunyusa ukopha. Oku kunokubandakanya ii-nonsteroidal anti-inflammatory drug (NSAIDs) ezinje nge-ibuprofen okanye i-aspirin.

Ukuba amayeza akho akakasebenzi, buza ugqirha wakho ngezinye iindlela zonyango ze-ITP. Basenokucebisa ngokutshintsha amayeza e-ITP okanye kubandakanya ezinye iindlela zonyango ezinje nge-immunoglobulin infusions. Ke thetha nogqirha wakho. Kubalulekile ukuba ufunde zonke iinketho zakho.

7. Ngaba ndiza kufuna ukuba udakada lwam lususwe?

Abanye abantu abane-ITP banokugqibela bafuna ukususwa kwepeni. Olu tyando, olubizwa ngokuba yi-splenectomy, lwenziwa njengendawo yokugqibela xa amayeza amaninzi ehlulekile ukunceda.

Ipeni, ebekwe kwicala lasekhohlo kwicala lesisu sakho, linoxanduva lokwenza usulelo-ukulwa nezifo. Ikwanoxanduva lokususa iiseli zegazi kunye neeplatelets kwigazi. Ngamanye amaxesha i-ITP inokubangela ngempazamo ukuba ipeni yakho ihlasele iiplatelets ezisempilweni.

I-splenectomy inokumisa olu hlaselo kwiiplatelets zakho kwaye uphucule iimpawu zakho ze-ITP. Nangona kunjalo, ngaphandle kwepeni, unokuba semngciphekweni wokosuleleka ngakumbi. Ngesi sizathu, i-splenectomy ayikhuthazwa kuwo wonke umntu one-ITP. Buza ugqirha wakho ukuba ngaba oku kunokwenzeka kuwe.

8. Ngaba i-ITP yam ibuhlungu okanye ayinyangeki?

I-ITP ihlala ichongwa njengeyona ibukhali (ixesha elifutshane) okanye engapheliyo (ixesha elide). I-ITP ye-Acute ihlala ikhula emva kosulelo olubi. Kuqheleke ngakumbi ebantwaneni, ngokwe. Iimeko ezinzima zihlala zihlala phantsi kweenyanga ezintandathu kunye okanye ngaphandle kwonyango, ngelixa i-ITP engapheliyo ihlala ixesha elide, ihlala ihlala ubomi. Nangona kunjalo, iimeko ezinganyangekiyo zisenokungafuneki unyango ngokuxhomekeke kubukhali. Kubalulekile ukuba ubuze ugqirha wakho malunga nala mahluko ekuxilongweni ukuze akuncede uthathe isigqibo kunyango.

9. Ngaba zikhona iimpawu ezinzulu ekufuneka ndizibukele?

Amabala abomvu okanye amfusa kulusu (petechiae), ukugruzuka, kunye nokudinwa ziimpawu eziqhelekileyo ze-ITP, kodwa oku akuthethi ukuba kusongela ubomi. Unokucela ugqirha wakho ukuba ukwanda kweempawu ezinjalo kunokuthetha ukuba kufuneka utshintshe isicwangciso sakho sonyango okanye ufumane uvavanyo lokulandela.

Ugqirha wakho usenokukucebisa ukuba ubabize ukuba ufumene iimpawu zosulelo okanye ukopha. Oku kunokubandakanya:

• ukugungqa ukugodola
• umkhuhlane ophezulu
• ukudinwa kakhulu
• intloko ebuhlungu
• iintlungu zesifuba
• ukuqhawukelwa ngumphefumlo

Ukuba ufumana ukopha okungayeki, tsalela umnxeba ku-911 okanye kwinkonzo yakho yongxamiseko yendawo yakho. Ukopha okungalawulekiyo kuthathwa njengonyango olungxamisekileyo.

10. Injani imeko yam?

Ngokutsho, uninzi lwabantu abane-ITP engapheliyo baphila amashumi eminyaka ngaphandle kweengxaki ezinkulu. I-ITP inokuba yeyethutyana, kwaye inokuba nobulali. Isenokuba nzima kwaye ifune unyango olungaphaya.

Ugqirha wakho unokukunika umbono ongcono wembonakalo yakho esekwe kubudala bakho, impilo yonke, kunye nempendulo kunyango. Nangona kungekho nonyango ye-ITP, unyango oluqhelekileyo oludibaniswe nendlela yokuphila enempilo lunokukunceda ukulawula imeko yakho. Kwakhona kubalulekile ukuba ulandele isicwangciso sakho sonyango ukuqinisekisa umgangatho wobomi obuhle.