IiLizwi ze-MS: Zeziphi izinto ezenza ukuba ugcino oluninzi luvelele?

Umxholo

• Ingxolo
• Ivenkile
• Izithuba ezingaqhelekanga
• Ukudinwa
• Iindawo zokutyela
• Izihlwele
• Zininzi izinto esingazibala

Abantu abaninzi abane-multiple sclerosis (MS) baneempawu ezingathethwayo kakhulu ngazo. Enye yezi zinto kukugcwala ngokweemvakalelo. Xa ujikelezwe yingxolo eninzi, utyhileka kwizinto ezininzi ezibonakalayo, okanye ubeke kwindawo entsha okanye ephezulu, abantu abaninzi abane-MS baxela ukuba banokudideka, ukudinwa kunye nentlungu.

Ngamanye amaxesha, ukugcwala kwemithambo-luvo kunxulumene ne-myoclonus, uphawu olunovuselelo olunokubangela ukuxhuzula okungafunekiyo kwezihlunu.

Sibuze kuluntu lwethu lwe-MS kuFacebook ukuba zeziphi izinto ezibangela ukogqithisa uvakalelo. Funda ukuze ubone ukuba bathini na.

Ingxolo

"Ingxolo kwiindawo ezivaliweyo, ezinjengeepati, amagumbi okufundela, iivenkile ezinkulu, iivenkile, njl.njl. Ukuba ndingashiya okusingqongileyo, ndiza kulunga." -U-Esther D., ohlala ne-MS

“Ingxolo! Ingathi intloko yam iyawa. ” -Rhonda L., ohlala ne-MS

“Ingxolo yalo naluphi na uhlobo. Ikati yam endijongileyo inokundikhulula ngamanye amaxesha. ” -U-Amy M., ohlala ne-MS

"Umntu othile uhlafuna izinto ezinqabileyo." -UDeanna L., ohlala ne-MS

Ndisindwa ngumsindo, ingakumbi xa kukho umntu ozama ukuthetha nam. Kwaye kukho abantwana ababini abancinci, kuhlala kukho ingxolo yangasemva! ” -UBrandi M., ohlala ne-MS

“Andikwazi kumelana nengxolo enkulu. Nditsho nokukhonkotha kwenja yam kuye. ” -U-Ruth W., ohlala ne-MS

Ivenkile

“Into eqhelekileyo kuxa indawo yokusebenza iphakama kwaye ixakekile, kodwa eyona intsha, kwaye eyona ibonakala imangalisa, yiyo nayiphi na indawo yokugcina izinto. Ezona zide zinde kwaye zide, nokuba sele zingenanto. ” -U-Amy L., ohlala ne-MS

“Izihlwele ezikhulu. Iivenkile ezinkulu eziqaqambileyo. Ngamanye amaxesha ndiye evenkileni, ndingene, ndithi ‘hayi,’ ndigoduke. ” -Bonnie W., ohlala ne-MS

“Ivenkile yokutya nezithuthi ezininzi. Indenza ndizive ndisasazekile kwaye ‘ndilahlekile.’ ”- UAmber A., ​​ohlala kwi-MS

Izithuba ezingaqhelekanga

"Indawo endingayiqhelanga, emzimbeni kunye / okanye ngengqondo. Okwangoku andazi ukuba ungahlangabezana njani nabo. " -U-Rona M., ohlala ne-MS

Ukuba kude nekhaya ixesha elide. Ndiba nexhala kakhulu. ” -USherri H., ohlala ne-MS

Ukudinwa

"Ukudinwa kunokubangela, izibane eziqaqambileyo zenyani, ukushukuma okuninzi, izibane, ingxolo kwangaxeshanye, ukuzama ukumamela nokuthetha kwimeko kunye nolunye ungeniso." -Kelly H., ohlala ne-MS

“Ukudinwa kusenokwenzeka ukuba kungoyena nobangela wokuzithwalisa imithwalo, kodwa ayisoloko ingunobangela. Ukuba zininzi kakhulu iingxolo ngaxeshanye, zonke zibonakala ngathi zikhuphisana ukuba zezona zinkulu, zikhokelela kulwandiso olupheleleyo. Kwelinye icala, ndiye ndaba yingozi ngokupheleleyo. Iinyikima, ukuziva ungakhululekanga kakhulu, kwaye uxhalabile. Konke oku kuyinyani xa kuthwalwa ngaphezulu kwayo nayiphi na into evuselelayo okanye indibaniselwano yeziganeko zokugcwala kulwandiso. ” -U-Gail F., ohlala ne-MS

"Umntu ohleli ecaleni kwam athethe engayeki, ngakumbi emva kwemini xa ediniwe kakhulu, okanye abantu abangxolayo abanamandla amaninzi ... ndifana netshokholethi kwipavumente eshushu ... ndinyibilike phantsi." -ULisa F., ohlala ne-MS

Iindawo zokutyela

“Kwiivenkile zokutyela, ndicela ukuba ndingahlali phantsi ngqo kwesithethi. Umculo, odityaniswe namazwi abantu kunye nengxolo yasekhitshini, uyandiqhuba. " -Connie R., ohlala ne-MS

"Isidlo sangokuhlwa eTexas Roadhouse ngayo yonke imihla yokuzalwa nokucula kunye nemibhiyozo. Uba mkhulu kakhulu! ” -UJudy C., ohlala ne-MS

“Ingxolo ivela kumacala amaninzi kunye nezandi ezivakalayo njengokukhonkxwa kwezitya kunye nezinto zesilivere kunye, okanye abantwana bekhwaza. Iindawo zokutyela ezinophahla oluphezulu kunye namakhitshi avulekileyo zezona zimbi kum kuba zonke izandi zivakala nje ukuba ziphindaphindekile. ” -U-Erin H., ohlala ne-MS

Izihlwele

Ukuba phakathi kwesihlwele okanye kwigumbi elinomsindo apho ndingakwaziyo ukwenza isandi esithile ngaphandle. Izihlwele eziphithizelayo neziphithizelayo zezona zimbi phakathi kwezandi, abantu, kunye nemeko yam yokulinganisa. ” -U-Cindi P., ohlala ne-MS

“Baninzi abantu abathetha ngexesha elinye.” - URobin G., ohlala kwi-MS

Zininzi izinto esingazibala

Izibane ezikhanyayo, ezingxola kakhulu, abantwana abakhalazayo, abatshisayo namavumba angaqhelekanga, ezinye izandi ezivela kwimizi-mveliso, ngamanye amaxesha nokufunda kunganinzi kakhulu xa izibane zingalunganga okanye imeko ingaphaya. ” -Alysin P., ohlala ne-MS

"Ukuya kwivenkile yokutya, ndidiniwe, oogqirha bendixelela into eninzi ngexesha elinye, iivenkile zokutyela, abantu abangakwaziyo ukulawula ukukhala kwabo, ukubaleka kwabantwana." -U-Stacy N., ohlala ne-MS

“Iivenkile ezinkulu ezinemibala emininzi kunye nokukhuthaza ukubonwa; izibane ezidanyazayo okanye ze strobe ingakumbi ebumnyameni; kakhulu, phezulu kakhulu, okanye iintlobo ezithile zengxolo ezinje ngokukhwaza okanye ukuhlaba umkhosi; izihlwele okanye isenzo esikhawulezayo nesiphithizelayo. ” -U-Polly P., ohlala ne-MS