Ukuba yimbaleki yeOlimpiki kundilungiselele njani ukulwa umhlaza we-Ovarian
Umxholo
- Ukufunyaniswa nge-Ovarian Cancer
- Izifundo endizifundileyo njengembaleki zandinceda ekubuyiseni kwam
- Ukujongana neziphumo zoMhlaza
- Indlela endinethemba lokuxhobisa ngayo abanye abasindileyo bomhlaza
- Uphengululo lwe
Kwakungonyaka ka-2011 kwaye ndandisela enye yezo ntsuku apho nekofu yam yayidinga ikofu. Phakathi koxinzelelo lomsebenzi kunye nokulawula umntwana wam ononyaka ubudala, ndaziva ngathi akukho ndlela ndinokuthi ndenze ngayo ixesha lokujonga i-ob-gyn yam yonyaka eyayicwangciselwe kamva evekini. Ukungathethi, ndaziva ndilungile. Ndandingumntu othamba umhlala-phantsi ophumelela igolide kwiOlimpiki, ndandisebenza rhoqo, kwaye ndandingacingi ukuba ikhona into eyoyikisayo eqhubekayo ngempilo yam.
Ke, ndibize i-ofisi kagqirha ndinethemba lokuphinda ndicwangcise ixesha lokuqeshwa xa ndibanjiwe. Ukuqubeka kwetyala ngesiquphe kwahlamba phezu kwam kwaye xa umamkeli zindwendwe wabuyela emnxebeni, endaweni yokutyhalela emva, ndabuza ukuba ndingathatha na ixesha lokuqala. Kwenzekile ukuba kwangolo suku lunye, ke ngethemba lokuba izakundinceda ukuba ndiphumelele kwiveki yam, ndaye ndakhwela emotweni yam ndaza ndagqiba kwelokuba ndilususe endleleni.
Ukufunyaniswa nge-Ovarian Cancer
Ngaloo mini, ugqirha wam wafumana i-cyst elingana ne-baseball kwelinye lamaqanda wam. Andizange ndikholelwe oko ndandiziva ndisempilweni ngokupheleleyo. Xa ndijonga emva, ndiye ndabona ukuba ndikhe ndehla ngesiquphe emzimbeni, kodwa ndatsho ukuba ndiyekile ukuncancisa unyana wam. Ndakhe ndanesisu esibuhlungu kunye nokuqunjelwa, kodwa akukho nto yayindikhathaza kakhulu.
Emva kokuba umothuko wokuqala uphelile, kwafuneka ndiqalise uphando. (Inxulumene: Lo mfazi wafumanisa ukuba unoMhlaza we-Ovarian ngelixa ezama ukukhulelwa)
Kwiiveki ezimbalwa ezizayo, ngequbuliso ndangena kwesi saqhwithi sovavanyo kunye nokuskena. Ngelixa kungekho luvavanyo lukhethekileyo lomhlaza we-ovarian ugqirha wam wayezama ukunciphisa umba. Kum, ibingakhathali ... bendisoyika nje. Inxalenye yokuqala "yokulinda nokujonga" yohambo lwam yayiyeyona nto inzima (nangona konke kunzima).
Apha ndandingumdlali weqonga kwinqanaba elingcono lobomi bam. Bendiwusebenzise ngokoqobo umzimba wam njengesixhobo sokuba ngoyena ubalaseleyo emhlabeni kwinto ethile, kodwa bendingayazi into enje ukuba iqhubeka? Ndingazi njani ukuba kukho undonakele? Ngephanyazo ndeva le lahleko yokulawula eyandenza ndaziva ndingento yanto kwaye ndoyisiwe
Izifundo endizifundileyo njengembaleki zandinceda ekubuyiseni kwam
Emva kweeveki ezi-4 zovavanyo, ndathunyelwa kugqirha wezomhlaza owajonga i-ultrasound yam wakhawuleza wandilungiselela utyando lokususa ithumba. Ndikhumbula kakuhle ndisiya kutyandwa ndingazi nokuba ndiza kuvuka ndithini. Ngaba yayilungile? Ububi? Ngaba unyana wam uza kuba nomama? Iphantse yaninzi kakhulu ukusetyenzwa.
Ndivuke ezindabeni ezixubekileyo. Ewe yayingumhlaza, uhlobo olunqabileyo lomhlaza we-ovari. Iindaba ezimnandi; babeyibambe kwangoko.
Nje ukuba ndichache kuqhaqho lwabo babekwinqanaba elilandelayo lesicwangciso sonyango lwam. Unyango ngamayeza. Ndicinga ukuba ngelo xesha kukho into etshintshileyo engqondweni. Ngokukhawuleza ndasuka kwingqondo yam yexhoba ukuya apho yonke into yayisenzeka kum, ukubuyela kolu khuphiswano lwengqondo endandilwazi kakuhle njengembaleki. Ngoku ndandinosukelo. Ndisenokungazi ukuba ndiza kuphelela phi kodwa bendiyazi into endinokuvuka kwaye ndigxile kuyo yonke imihla. Ubuncinci bendikwazi okulandelayo, ndazixelela. (Idibeneyo: Kutheni kungekho mntu uthetha ngoMhlaza we-Ovarian)
Ukuziphatha kwam kwavavanywa kwakhona njengoko i-chemotherapy yaqala. Ithumba lam lalibuhlungu ngaphezu kokuba babecinga njalo. Yayiza kuba luhlobo oluhle kakhulu lwechemotherapy. Ugqirha wam oncologist wayibiza ngokuba, 'yibetha yanzima, yibetha ngokukhawuleza'
Unyango uqobo lwenziwa ngeentsuku ezintlanu kwiveki yokuqala, kanye ngeveki ngaphezulu kwemibini elandelayo kwimijikelo emithathu. Lilonke, ndiye ndafumana imijikelo emithathu yonyango kwisithuba seeveki ezilithoba. Yayiyinkqubo enzima ngokwenene kuzo zonke iiakhawunti.
Yonke imihla ndavuka ndizinika intetho etyibilikayo, ndizikhumbuza ukuba ndomelele ngokwaneleyo ukuba ndiphumelele koku. Yilaa gumbi lokutshixa i-pep talk mentality. Umzimba wam uyakwazi ukwenza izinto ezinkulu” “Ungayenza le nto” “Kufuneka wenze oku”. Kwakukho inqaku ebomini bam apho ndandisebenza khona iiyure ezingama-30-40 ngeveki, uqeqesho lokumela ilizwe lam kwimidlalo yeOlimpiki. Kodwa nangona kunjalo, ndandingaziva ndikulungele umceli mngeni owawukwi chemo. Ndayifumana le veki yokuqala yonyango, kwaye yayiyeyona nto inzima kwendakha ndazenza ebomini bam. (Idibeneyo: Lo Mntwana oneminyaka emi-2 wachongwa ngeFomu engaqhelekanga yoMhlaza we-Ovarian)
Andikwazi ukugcina ukutya okanye amanzi. Ndandingenawo amandla. Kungekudala, ngenxa ye-neuropathy ezandleni zam, andikwazi nokuvula ibhotile yamanzi ndedwa. Ukuya ekubeni kwimivalo engalinganiyo kwinxalenye engcono yobomi bam, ukuya kusokola ukujija ikepusi, kwaba nefuthe elikhulu kum engqondweni kwaye kwandinyanzela ukuba ndibuqonde ubunyani bemeko yam.
Ndandisoloko ndihlola indlela endicinga ngayo. Ndabuyela kwininzi yezifundo endizifundileyo kwi-gymnastics-eyona nto ibalulekileyo yingcamango yokusebenzisana. Ndineqela lezonyango elimangalisayo, usapho kunye nabahlobo bendixhasa, ke kuye kwafuneka ndisebenzise elo qela kwaye ndiyinxalenye yalo. Oko kwakuthetha ukwenza into eyayinzima kakhulu kum kwaye inzima kubafazi abaninzi: ukwamkela nokucela uncedo. (Idibeneyo: 4 Iingxaki zeGynecological Akufanele Uzihoye)
Emva koko, kwakufuneka ndizibekele iinjongo-ezingakhange zibekho phezulu. Ayizizo zonke iinjongo ekufuneka zibe nkulu njengeeOlimpiki. Iinjongo zam ngexesha le-chemo zazahluke kakhulu, kodwa zazizinjongo eziqinisekileyo. Ngezinye iintsuku, ukuphumelela kwam ngemini yayikukuhamba nje ujikeleze itafile yegumbi lokutyela… kabini. Ngezinye iintsuku yayigcina iglasi enye yamanzi okanye ukunxiba. Ukuseta ezo njongo zilula, ziyafikeleleka zaba lilitye lembombo lokuchacha kwakhona. (Idibeneyo: Olu tshintsho lweCancer Survivor's Fitness Change kuphela koKhuthazo olufunayo)
Ekugqibeleni, kwafuneka ndiyamkele imeko yam yento eyayiyiyo. Ukunikezelwa kwayo yonke into eyayihanjwa ngumzimba wam, kwafuneka ndizikhumbuze ukuba kulungile ukuba andinalo lonke ixesha. Kwakulungile ukuziphosa kwiqela losizi ukuba ndifuna njalo. Kwakulungile ukukhala. Kodwa ke, kwafuneka ndityale iinyawo zam kwaye ndicinge ngendlela endiza kuqhubeka ngayo ndisiya phambili, nokuba oko kuthetha ukuwa izihlandlo ezimbalwa endleleni.
Ukujongana neziphumo zoMhlaza
Emva kweeveki ezisithoba zonyango lwam, kwathiwa andinawo umhlaza.
Ngaphandle kobunzima bechemo, bendisazi ukuba bendinethamsanqa lokusinda. Ingakumbi xa ucinga umhlaza we-ovari ngoyena nobangela uphambili wokufa komhlaza kwabasetyhini. Ndiyazi ukuba ndibethe ubunzima kwaye ndagoduka ndicinga ukuba ndiza kuvuka ngengomso kwaye ndiziva ndibhetele, ndomelele kwaye ndikulungele ukuqhubeka. Ugqirha wam wandilumkisa ukuba kwakuza kuthabatha iinyanga ezintandathu ukuya kunyaka ukuze ndizive njengam kwakhona. Okwangoku, ibindim lo, ndacinga, "Hayi, ndingaya ngeenyanga ezintathu." Akufuneki ukuba ndithethe, ndandingalunganga. (Related: I-Influencer Elly Mayday Dies from the Ovarian Cancer-Emva kokuba ooGqirha baqale bagxotha iimpawu zakhe)
Kukho le mbono iphosakeleyo inkulu, iziswe luluntu kunye nathi, ukuba nje ukuba uxolelwe okanye 'awunamhlaza' ubomi buya kuqhubeka ngokukhawuleza njengoko kwakunjalo ngaphambi kwesi sifo, kodwa akunjalo. Amaxesha amaninzi ugoduka emva konyango, sele uneli qela labantu, ulapho nawe njengokuba ubusilwa eli dabi lidinayo, ukuze loo nkxaso inyamalale phantse ubusuku bonke. Ndaziva ngathi bekufanele ukuba ndibayi-100%, ukuba ayindim, kwaye abanye. Baye bajijisana ecaleni kwam. Ngequbuliso ndaziva ndililolo—njengendlela endandivakalelwa ngayo xa ndandiyeka ukwenza umthambo. Ngequbuliso andizange ndiye kuqeqesho lwam olucwangcisiweyo oluqhelekileyo, andizange ndingqongwe liqela lam rhoqo-inokuba yinto yodwa ngendlela emangalisayo.
Kuthathe ngaphezulu konyaka ukuba ndigqibe usuku lonke ngaphandle kokuziva ndicaphukile okanye ndidiniwe. Ndiyichaza njengokuvuka ndiziva ngathi ilungu ngalinye linobunzima be-1000 lbs. Ulala apho uzama ukucinga ukuba uya kuba nawo njani amandla okuma. Ukuba yimbaleki kwandifundisa indlela yokunxibelelana nomzimba wam, kwaye idabi lam nomhlaza layenza nzulu loo ngqiqo. Ngoxa impilo yayisoloko ibalulekile kum, unyaka osemva konyango wenza ukuba impilo yam ibe yeyona nto ibalulekileyo ebomini bam.
Ndabona ukuba andizikhathalelanga; ukuba andiwondli umzimba wam ngazo zonke iindlela ezichanekileyo, ngekhe ndikwazi ukunamathela kusapho lwam, abantwana bam, nabo bonke abo baxhomekeke kum. Ngaphambi kokuba oko kuthetha ukuhlala ndihamba kwaye ndityhala umzimba wam ukuya kumda, kodwa ngoku, oko kwakuthetha ukuthatha ikhefu kunye nokuphumla. (Eyeleleneyo: NdinguMhlaza oSindileyo amaXesha amane kunye nembaleki yase-USA kunye nembaleki yasendle)
Ndafunda ukuba ukuba kufuneka ndiphumle ubomi bam ukuze ndilale, yile nto ndandiza kuyenza. Ukuba bendingenawo amandla okufumana i-imeyile yesigidi okanye ndihlambe iimpahlakwaye izitya, emva koko zonke zazizakulinda kude kube lusuku olulandelayo-kwaye kwakulungile oko.
Ukuba yimbaleki ekumgangatho wehlabathi akuthinteli ukuba ujongane nomzabalazo phakathi nangaphandle kwebala lokudlala. Kodwa bendisazi ukuba ngenxa yokuba bendingafundeli igolide, oko akuthethi ukuba andizilolanga. Ngapha koko, bendiziqeqeshela ubomi! Emva komhlaza, ndandisazi ukuba ndingayithathi kancinci impilo yam kwaye ukumamela umzimba wam yeyona nto ibalulekileyo. Ndiyawazi umzimba wam ngcono kunaye nabani na. Ngoko xa ndiziva ngathi kukho into engalunganga ngoko kufuneka ndiqiniseke ukuba ndiyamkele loo nyaniso ngaphandle kokuziva ndibuthathaka okanye ukuba ndiyakhalaza.
Indlela endinethemba lokuxhobisa ngayo abanye abasindileyo bomhlaza
Ukuziqhelanisa ‘nehlabathi lokwenyani’ kulandela unyango kwakungumceli mngeni endandingakulungelanga-kwaye ndaye ndaqonda ukuba yinyani eqhelekileyo nakwabanye abasindileyo bomhlaza. Yinto eyandikhuthazayo ukuba ndibe ngummeli wolwazi lomhlaza wesibeleko ngenkqubo ye-Our Way Forward, enceda abanye abantu basetyhini bafunde ngakumbi ngesifo sabo kunye nokhetho lwabo njengoko behamba kunyango, uxolelo, kwaye befumana into yabo entsha yesiqhelo.
Ndithetha nabaninzi abasindileyo kwilizwe liphela, kwaye eso sigaba sonyango emva kokuba nomhlaza sesona sizathu basokolayo kakhulu. Kufuneka sibe nolo nxibelelwano, incoko, kunye neemvakalelo zoluntu njengoko sibuyela kubomi bethu ukuze sazi ukuba asodwa. Ukwenza obu budade bamava ekwabelwana ngawo kwiNdlela yethu eya Phambili kuncede uninzi lwabasetyhini ukuba bazibandakanye kwaye bafunde omnye komnye. (Idibeneyo: Abasetyhini baJikela kwiMithambo ukuze babancede baphinde bafumane imizimba yabo emva koMhlaza)
Ngelixa umlo womhlaza ungowomzimba, amaxesha amaninzi, imvakalelo yawo iyancipha. Ngaphezulu kokufunda ukulungelelanisa kubomi basemva komhlaza, uloyiko lokuphindaphinda luxinzelelo lokwenene olungenakuxoxwa ngokuphindaphindiweyo ngokwaneleyo. Njengomntu osinde kumhlaza, bonke ubomi bakho buchithwa ubuyela e-ofisini kagqirha ukuze ulandele kwaye uhlolwe-kwaye ngalo lonke ixesha, awunakukunceda ungakhathazeki: "Ungathini ukuba ubuyile?" Ukwazi ukuthetha ngolo loyiko nabanye ababalisayo kufuneka kube yinxalenye ebalulekileyo yoluhambo lwexhoba lomhlaza.
Ngokubonakala esidlangalaleni malunga nebali lam, bendinethemba lokuba abantu basetyhini bayakubona ukuba ayinamsebenzi ukuba ungubani, uvelaphi, zingaphi iindondo zegolide oziphumeleleyo-umhlaza awukhathali. Ndiyakubongoza ukuba wenze impilo yakho ibe yinto ephambili, uye kuhlolo lwakho lwempilo, umamele umzimba wakho kwaye ungaziva unetyala ngawo. Akukho nto iphosakeleyo ngokwenza impilo yakho ibe yinto ephambili kwaye ube ngoyena mmeli wakho ubalaseleyo kuba, ekupheleni kosuku, akukho mntu uza kuyenza ngcono!
Ngaba ufuna inkuthazo engathethekiyo kunye nokuqonda kwabasetyhini abakhuthazayo? Joyina nathi ukuwa kwethu kokuqala UBUME Abasetyhini baqhuba ingqungquthela yeHlabathikwisiXeko saseNew York. Qiniseka ukuba ukhangela kwi-e-ikharityhulam apha, nayo, ukufumana amanqaku kuzo zonke iintlobo zezakhono.