I-Ulcerative Colitis Taboos: Izinto ekungekho namnye owakha wathetha ngazo
Umxholo
Bendihleli ne-ulcerative colitis (UC) engapheliyo iminyaka elithoba. Ndafunyaniswa ngoJanuwari 2010, unyaka emva kokusweleka kukatata. Emva kokuxolelwa iminyaka emihlanu, i-UC yam yabuya nempindezelo ngo-2016.
Ukusukela ngoko, bendizilwela, kwaye ndisalwa nangoku.
Emva kokugqiba onke amayeza avunyiweyo yi-FDA, ndandingenandlela yimbi ngaphandle kotyando lwam lokuqala kwezintathu ngo-2017. Ndandinayo ileostomy, apho oogqirha bandikhupha khona amathumbu am amakhulu bandinika ibhegi ye-ostomy yethutyana. Kwiinyanga ezimbalwa kamva, ugqirha wam otyandayo wasusa i-rectum yam wenza i-J-poch apho bendinengxowa yethutyana ye-ostomy. Utyando lwam lokugqibela lwalungo-Agasti 9, 2018, apho ndaba lilungu leklabhu ye-J-pouch.
Kube luhambo olude, olunobunzima, kwaye olunzima, ukutsho nje okuncinci. Emva kotyando lokuqala, ndaqala ukukhuthaza isifo samathumbu esisifo, i-ostomate, kunye ne-J-pouch warriors.
Nditshintshile amagiya kwikhondo lam njengestylist kwaye ndibeke amandla am ekukhuthazeni, ekuphalazeni ulwazi, nasekufundiseni umhlaba malunga nesi sifo sokuzimela ngokusebenzisa i-Instagram kunye nebhlog yam. Ngowona mnqweno wam uphambili ebomini kunye nesilivere yesinxibo sesifo sam. Injongo yam kukuzisa ilizwi kule meko ithe cwaka nengabonakaliyo.
Zininzi izinto ze-UC ongaxelelwanga ngazo okanye abantu bayakuphepha ukuthetha ngazo. Ukwazi ezinye zezi nyani bekuya kundivumela ukuba ndiqonde ngcono kwaye ndilungiselele ngokwengqondo uhambo lwam oluzayo.
Ezi zii-taboos ze-UC ndinqwenela ukuba ndazi malunga neminyaka esithoba eyadlulayo.
Amayeza
Inye into ebendingayazi xa ndiqala ukufumanisa ukuba kuzothatha ixesha ukufumana esi silwanyana.
Bendingazi nokuba kungafika indawo apho umzimba wakho ungawamkeliyo onke amayeza owazama. Umzimba wam wafikelela kumda wawo, kwaye wayeka ukuphendula kuyo nayiphi na into eya kundinceda ndigcine uxolelo.
Kuthathe malunga nonyaka de ndafumana indibaniselwano efanelekileyo yamayeza emzimbeni wam.
Ugqirha
Akuzange kwisigidi seminyaka ndicinge ukuba ndifuna utyando, okanye ukuba i-UC ingabangela ukuba ndifune utyando.
Ukuqala kwam ukuva igama elithi "utyando" yayiyiminyaka esixhenxe yokuba ne-UC. Ngokwendalo, ndawangxolisa amehlo am kuba ndingakholelwa ukuba le yinyani yam. Esi yayisesinye sezigqibo ezinzima endinokuzenza.
Ndandiziva ndingaboni kakuhle ngenxa yesifo sam kunye nehlabathi lezonyango. Kwakunzima ngokwaneleyo ukuyamkela into yokuba esi sifo asinyangeki kwaye akukho sizathu sibambekayo.
Ekugqibeleni, kwafuneka ndenziwe utyando kathathu. Nganye kwezi zinto yandiphatha kakubi ngokwasemzimbeni nasengqondweni.
Impilo Yengqondo
I-UC ichaphazela ngaphezulu kokungaphakathi kwakho. Abantu abaninzi abathethi ngempilo yengqondo emva kokuxilongwa kwe-UC.Kodwa inqanaba loxinzelelo liphezulu phakathi kwabantu abaphila ne-UC xa kuthelekiswa nezinye izifo kunye noluntu ngokubanzi.
Iyavakala loo nto kuthi, ngabo sijongana nayo. Ukanti khange ndive malunga nempilo yengqondo de kwaba liqela leminyaka ndisemgceni xa kwakufuneka ndijongane notshintsho olukhulu kwisifo sam.
Ndandihlala ndinexhala, kodwa ndakwazi ukuyifihla kude kube yi-2016 xa isifo sam saphinda sabuya. Ndaba novalo kuba ndandingazi ukuba usuku lwam luya kuba njani, ukuba ndingayenza indlu yangasese, kwaye ukuba iintlungu ziya kuhlala ixesha elingakanani.
Intlungu esiyinyamezelayo imbi ngaphezu kweentlungu zokubeleka kwaye inokuhlala nokucima imini yonke, kunye nokuphulukana negazi. Intlungu engapheliyo iyodwa inokubeka nabani na kwimeko yoxinzelelo kunye noxinzelelo.
Kunzima ukujongana nesifo esingabonakaliyo kunye nemiba yempilo yengqondo ngaphezulu koko. Kodwa ukubona ugqirha kunye nokuthatha amayeza ukunceda ukumelana ne-UC kunokunceda. Akukho nto ukuba neentloni ngayo.
Utyando alunyangi
Abantu bahlala besithi kum, "Ngoku ukuba ubunolu gqirha, uphilisiwe, akunjalo?"
Impendulo ithi, hayi, andinguye.
Ngelishwa, akukho nyango lwe-UC okwangoku. Ekuphela kwendlela endakwazi ngayo ukuxolelwa yayikukuba ndenziwe utyando ukuze kususwe amathumbu am amakhulu (ikholoni) kunye nomqolo.
La malungu mabini enza okungaphezulu kunokuba abantu becinga. Amathumbu am amancinci ngoku enza wonke umsebenzi.
Ayisiyiyo loo nto kuphela, kodwa i-J-poch yam isemngciphekweni omkhulu wepouchitis, kukudumba kwe-J-poch yam. Ukufumana oku rhoqo kunokubangela ukuba ufune ingxowa ye-ostomy esisigxina.
Amagumbi angasese
Kuba esi sifo asibonakali, abantu bayothuka xa ndibaxelela ukuba ndine-UC. Ewe ndinokukhangeleka ngathi ndisempilweni, kodwa inyani kukuba abantu bayayigweba incwadi ngeqweqwe layo.
Njengabantu abahlala ne-UC, sifuna ukufikelela kwindlu yangasese rhoqo. Ndiya kwigumbi lokuhlambela amaxesha amane ukuya kwasixhenxe ngosuku. Ukuba ndiphume esidlangalaleni kwaye ndifuna igumbi lokuhlambela ASAP, ndiza kucacisa ngentlonelo ukuba ndine-UC.
Amaxesha amaninzi, umqeshwa undivumela ukuba ndisebenzise igumbi lokuhlambela, kodwa athandabuze kancinci. Ngamanye amaxesha, babuza imibuzo engakumbi kwaye abandivumeli. Oku kuhlazisa kakhulu. Sele ndibandezelekile, emva koko ndiye ndaliwa ngenxa yokuba ndingakhangeleki ngathi ndiyagula.
Kukho umba wokungafikeleli kwigumbi lokuhlambela. Kubekho amaxesha esi sifo sindibangele ukuba ndibeneengozi, njengaxa ndikwizithuthi zikawonkewonke.
Bendingazi ukuba ezi zinto ziza kwenzeka kum kwaye ndinqwenela ukuba ndinikwe iintloko phezulu, njengoko kuhlazisa kakhulu. Ndisenabantu abandibuza namhlanje kwaye ikakhulu kungenxa yokuba abantu abasazi esi sifo. Ke, ndithatha ixesha lokufundisa abantu nokuzisa esi sifo sithuleyo ngaphambili.
Ukutya
Ngaphambi kokuxilongwa, ndandidla nantoni na. Kodwa ndiye ndancipha kakhulu emveni kokuba ndifumene isifo kuba ukutya okuthile kubangelwe kukucaphuka. Ngoku, ngaphandle kwekholoni kunye ne-rectum, ukutya endikutyayo kunqunyelwe.
Esi sihloko kunzima ukuxoxa ngaso kuba wonke umntu one-UC wahlukile. Kwam, ukutya kwam kwakuneeproteni ezi-bland, ezi-lean, eziphekwe kakuhle njengenkukhu kunye ne-turkey yomhlaba, i-carbs emhlophe (njengepasta, irayisi, kunye nesonka), kunye netshokholethi Qinisekisa ukugcwala kwesondlo.
Nje ukuba ndingene kuxolelo, ndakwazi ukutya ukutya endikuthandayo kwakhona, njengeziqhamo kunye nemifuno. Kodwa emva kotyando lwam, ifayibha ephezulu, iziqholo, ukutya okuqhotsiweyo, kunye nokutya okune-asidi kuye kwaba nzima ukwahlula nokwetyisa.
Ukulungisa indlela otya ngayo lulungelelwaniso olukhulu, kwaye ngakumbi kuchaphazela ubomi bakho ekuhlaleni. Uninzi lwezi ndlela zokutya zazilingo kunye neempazamo endazifunda ngokwam. Ewe kunjalo, unokubona ingcali yesondlo egxile ekuncedeni abantu abane-UC.
Yise kude
Ifomula enkulu yokufikelela kwi-taboos ezininzi kunye nobunzima obuza nesi sifo yile:
- Fumana ugqirha omkhulu kunye neqela lesisu kwaye wakhe ubudlelwane obomeleleyo kunye nabo.
- Yiba ngummeli wakho.
- Fumana inkxaso kosapho kunye nabahlobo.
- Nxibelelana namanye amajoni e-UC.
Ndine-J-poch yam iinyanga ezintandathu ngoku, kwaye ndisenamahla ndinyuka amaninzi. Ngelishwa, esi sifo iintloko ezininzi. Xa ujongana nomba omnye, enye iyavela. Ayipheli, kodwa lonke uhambo luneendlela ezigudileyo.
Kubo bonke abalingane bam base-UC, nceda wazi ukuba awuwedwa kwaye kukho umhlaba wethu apha olapha ulapha. Unamandla, kwaye unayo le!
UMoniqua Demetrious ngumfazi oneminyaka engama-32 ubudala ozalelwe kwaye wakhulela eNew Jersey, otshatile iminyaka engaphezulwana kweminyaka emine. Iminqweno yakhe yifashoni, ucwangciso lomsitho, ukonwabela zonke iintlobo zomculo, kunye nokukhuthaza isifo sakhe somzimba. Akayonto ngaphandle kokholo lwakhe, utata wakhe ngoku oyingelosi, umyeni wakhe, usapho kunye nabahlobo. Unokufunda ngakumbi ngohambo lwakhe kuye blog naye I-Instagram.
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