Amabali ayinyani: Ukuhlala kunye neUlcerative Colitis

I-Ulcerative colitis (UC) ichaphazela abantu abamalunga ne-900,000 e-United States. Kuwo nawuphi na unyaka omnye, malunga neepesenti ezingama-20 zaba bantu banesifo esilinganiselweyo kwaye iipesenti ezi-1 ukuya kwezi-2 banesifo esibi, ngokweCrohn's kunye neColitis Foundation yaseMelika.

Sisifo esingenakulinganiswa. Iimpawu zihlala zivela kwaye zihamba, kwaye ngamanye amaxesha ziyaqhubeka ngokuhamba kwexesha. Ezinye izigulana zihamba iminyaka ngaphandle kweempawu, ngelixa ezinye zinamava okuqhambuka rhoqo. Iimpawu ziyahluka ngokuxhomekeka kubungakanani bokudumba, ngokunjalo. Ngenxa yoku, kubalulekile ukuba abantu abane-UC bagcine umkhondo wokuba ubachaphazela njani ngokuqhubekayo.

Nanga amabali amava abantu abane ane-UC.

Wafunyaniswa nini?

[Malunga neminyaka esixhenxe] kwiminyaka eyadlulayo.

Ulawula njani iimpawu zakho?

Unyango lwam lokuqala lwalunee-suppositories, endandizifumana ndingonwabanga kwaphela, kunzima ukuzibeka, kwaye kunzima ukuzibamba. Kunyaka olandelayo kunye nesiqingatha okanye ndaye ndanyangwa nge-prednisone kunye ne-mesalamine (Asacol). Oku kwakubuhlungu. Ndandinamahla ndinyuka nge-prednisone, kwaye ngalo lonke ixesha ndiqala ukuziva ngcono ndiziva ndigula kwakhona. Ekugqibeleni ndaye ndatshintshela koogqirha kuGqirha uPoto Moolsintong eSt. Ndisese-azathioprine kunye ne-escitalopram (Lexapro), ebisebenza kakuhle kakhulu.

Loluphi olunye unyango olukusebenzeleyo?

Ndizamile uthotho lonyango lwe-homeopathic, kubandakanya i-gluten-free, ukutya okungenasitatshi. Akukho nanye esebenzayo kum ngaphandle kokucamngca kunye neyoga. I-UC inokunxibelelana noxinzelelo, inxulumene nokutya, okanye zombini, kwaye imeko yam inxulumene noxinzelelo.Nangona kunjalo, ukugcina ukutya okusempilweni kubalulekile. Ukuba nditya ukutya okwenziweyo, ipasta, inyama yenkomo, okanye inyama yehagu, ndiyayihlawulela.

Kubalulekile ngaso nasiphi na isifo sokuzilolonga ukuzilolonga rhoqo, kodwa ndingaphikisana nokuba kunjalo ngakumbi kwizifo zokugaya. Ukuba andiyigcini imetabolism yam ephezulu kwaye isantya sentliziyo yam siphezulu, ndikufumanisa kunzima ukuqokelela amandla okwenza nantoni na.

Ungabacebisa uthini abanye abantu abane-UC?

Zama ukungabi nazintloni okanye uxinzeleleke ziimpawu zakho. Ukuqala kwam ukugula, ndazama ukufihla zonke iimpawu zam kubahlobo bam nakusapho, nto leyo ebangele nje ukudideka, unxunguphalo kunye nentlungu. Kwakhona, ungalahli ithemba. Zininzi iindlela zonyango. Ukufumana ulungelelwaniso lwakho lokhetho kubalulekile, kwaye umonde kunye noogqirha abalungileyo baya kukufumana apho.

Kudala kangakanani ufunyanisiwe?

Ekuqaleni ndafunyaniswa ndine-UC ndineminyaka eli-18. Emva koko ndafunyaniswa ukuba ndinesifo sikaCrohn kwiminyaka emihlanu eyadlulayo.

Kunzima kangakanani ukuhlala ne-UC?

Impembelelo enkulu ibe yintlalontle. Xa ndandisemncinci, ndandineentloni kakhulu ngesi sifo. Ndinentlalontle kakhulu kodwa ngelo xesha, kude kube namhla, ndiza kuthintela izihlwele ezikhulu okanye iimeko zentlalo ngenxa ye-UC yam. Ngoku sendimdala kwaye ndenziwe utyando, kusafuneka ndilumke malunga nendawo ezixineneyo. Ndikhetha ukungazenzi izinto zeqela ngamanye amaxesha ngenxa yeziphumo ebezingalindelekanga zotyando. Kwakhona, emva kokuba ndine-UC, idosi ye-prednisone inokundichaphazela ngokwasemzimbeni nasengqondweni.

Naluphi na ukutya, amayeza, okanye iingcebiso ngendlela yokuphila?

Hlala usebenza! Yiyo kuphela kwento eyayiza kuthi ilawule i-flare-ups yam. Ngaphandle koko, ukukhetha ukutya yeyona nto ibalulekileyo kum. Hlala kude nokutya okuthosiweyo kunye noshizi ogqithisileyo.

Ngoku ndizama ukuhlala kufutshane nokutya kwePaleo, ekubonakala ngathi iyandinceda. Ngokukodwa kwizigulana ezincinci, ndingathi ungabi nazintloni, usenokuphila ubomi obusebenzayo. Ndibaleke ii-triathlons, kwaye ngoku ndinguCrossFitter osebenzayo. Akusiyo isiphelo sehlabathi.

Loluphi unyango onalo?

Ndandikwi-prednisone iminyaka ngaphambi kokuba ndenze utyando lwe-ileoanal anastomosis, okanye i-J-poch. Ngoku ndikwi-certolizumab pegol (Cimzia), egcina iCrohn yam ijonge.

Kudala kangakanani ufunyanisiwe?

Ndafunyaniswa ndine-UC ngo-1998, kwangoko emva kokuzalwa kwamawele am, umntwana wam wesithathu nowesine. Ndaye ndaphila ubomi obusebenzayo ndaza ndayeka ukushiya indlu yam.

Athathe mayeza mni?

Ugqirha wam we-GI kwangoko wandifaka kumayeza, awayengasebenzi, ke ekugqibeleni wamisela i-prednisone, eyazifihla kuphela iimpawu. Ugqirha olandelayo wandisusa kwi-prednisone kodwa wandibeka kwi-6-MP (mercaptopurine). Iziphumo ebezingalindelekanga zazisoyikeka, ngakumbi ifuthe lam lobalo lweeseli ezimhlophe. Uye wandinika into eyoyikisayo kunye nokwehla kobomi bam bonke ubomi. Ndadandatheka kakhulu kwaye ndandinexhala lokuba andizokwazi ukukhulisa abantwana bam abane.

Uncedwe yintoni?

Ndenze uphando oluninzi, kwaye ngoncedo ndaye ndatshintsha indlela enditya ngayo kwaye ekugqibeleni ndakwazi ukuzincothula kuzo zonke ii-meds. Ngoku ndingenayo i-gluten kwaye nditya ukutya okusekwe kwizityalo, nangona nditya iinkukhu kunye neentlanzi zasendle. Ndinempawu kunye nokungabikho kweziyobisi iminyaka eliqela. Ukongeza kutshintsho kwindlela yokutya, ukuphumla ngokwaneleyo nokuzilolonga kubalulekile, kunye nokugcina uxinzelelo phantsi kolawulo. Ndabuyela esikolweni ndayokufunda isondlo ukuze ndikwazi ukunceda abanye.

Wafunyaniswa nini?

Ndafunyaniswa ndineminyaka emalunga ne-18 eyadlulayo, kwaye ngamanye amaxesha bekusoloko kunzima. Ubunzima buza xa isifo sidumba kwaye siphazamisa ubomi bemihla ngemihla. Nokuba le misebenzi ilula iba yimveliso. Ukuqinisekisa ukuba kukho igumbi lokuhlambela elikhona lihlala liphambili engqondweni yam.

Uhlangabezana njani ne-UC yakho?

Ndikwidosi yesondlo yamayeza, kodwa andikhuselekanga ekuqabukeni ngamanye amaxesha. Ndifunde nje "ukujongana." Ndilandela isicwangciso sokutya esingqongqo kakhulu, esindincede kakhulu. Nangona kunjalo, nditya izinto abantu abaninzi abane-UC abathi abanakukwazi ukuzitya, ezinje ngamandongomane kunye neminquma. Ndizama ukuphelisa uxinzelelo kangangoko kwaye ndilale ngokwaneleyo suku ngalunye, ekunokwenzeka ngamanye amaxesha kwihlabathi lethu le-21 lama-21!

Ngaba unayo ingcebiso kwabanye abantu abane-UC?

Eyona ngcebiso yam inkulu yile: Bala iintsikelelo zakho! Nokuba izinto zibonakala zimfiliba njani ngamanye amaxesha, ndingasoloko ndifumana into endinokubulela ngayo. Oku kugcina ingqondo kunye nomzimba wam usempilweni.