Uyijika phi iNkxaso ngeHidradenitis Suppurativa

Umxholo

• Fumana iqela lenkxaso
• Yenza isangqa sabahlobo
• Fumana ugqirha
• Yise kude

I-Hidradenitis suppurativa (HS) ibangela ukuqhekeka okubonakala ngathi ngamaqhakuva okanye amathumba amakhulu. Ngenxa yokuba imeko ichaphazela ulusu lwakho kwaye ukuqhambuka ngamanye amaxesha kubangela ivumba elibi, i-HS inokwenza abanye abantu bazive behlazekile, bexinezelekile, okanye baneentloni.

I-HS ihlala ikhula ngexesha lokufikisa, elinokuba kwinqanaba lokuphila elisemngciphekweni ngokweemvakalelo. Ukuba nale meko kunokuba nefuthe elibi kwindlela ocinga ngayo ngawe nangomzimba wakho. Abantu abangama-46 abane-HS bayifumene imeko echaphazela kakhulu umzimba womntu.

Imiba yomfanekiso womzimba ingakhokelela kuxinzelelo kunye noxinzelelo, ezo zixhaphakileyo kubantu abane-HS. Kufunyenwe ukuba iipesenti ezili-17 zabantu abanale meko banokudakumba, kwaye phantse iipesenti ezintlanu zinamaxhala.

Ukubona ugqirha wesikhumba kunye nokuqala unyango yenye yeendlela zokuziva ungcono. Ngelixa unyanga iimpawu zomzimba ze-HS, kubalulekile ukuqwalasela impilo yakho yeemvakalelo. Nazi iindawo ezimbalwa zokujika ukuze ufumane inkxaso, kunye nokukunceda ujongane nezona meko zinzima zokuphila nesifo esinganyangekiyo esibonakalayo.

Fumana iqela lenkxaso

I-HS ixhaphake kakhulu kunokuba ungacinga. Phantse umntu omnye kwabali-100 bane-HS, kodwa kusenokuba nzima ukufumana umntu onesi sifo ohlala kufutshane nawe. Ukungamazi omnye umntu one-HS kunokukwenza uzive ulilolo kwaye ulilolo.

Iqela lenkxaso yindawo elungileyo yokunxibelelana nabanye abantu abane-HS. Kule ndawo ikhuselekileyo, ungabelana ngamabali akho ngaphandle kokuziva uneentloni. Unokufumana iingcebiso eziluncedo kubantu abaphila ne-HS ngendlela yokulawula le meko.

Ukufumana iqela lenkxaso ukuze ujoyine, qala ngokubuza ugqirha onyanga i-HS yakho. Ezinye izibhedlele ezinkulu zinokubamba elinye lala maqela. Ukuba eyakho ayifuni, fikelela kumbutho we-HS.

Ithemba nge-HS ngomnye wemibutho ephambili ye-HS. Iqale ngo-2013 njengeqela elinye lenkxaso yendawo. Namhlanje, umbutho unamaqela enkxaso kwizixeko ezinjengeAtlanta, iNew York, iDetroit, iMiami, neMinneapolis, kunye nakwi-Intanethi.

Ukuba awunalo iqela lenkxaso ye-HS kwindawo yakho, joyina enye kwi-Facebook. Indawo yokunxibelelana nabantu inamaqela asebenzayo, kubandakanya:

• Iqela leNkxaso ye-HS
• Iqela leNkxaso yeHlabathi ye-HS
• IHidradenitis Suppurativa Ukuhla ukusinda, inkuthazo, inkxaso kunye nokukhuthaza
• HS Yima Isiseko

Yenza isangqa sabahlobo

Ngamanye amaxesha eyona nkxaso ibalaseleyo ivela kubantu abakwazi kakuhle. Abahlobo, amalungu osapho, kunye nabamelwane obathembileyo banokuba ziibhodi ezilungileyo zokukhala xa ukhathazekile okanye ukhathazekile.

Omnye wabantu abahlala ne-HS uxele inkxaso yezentlalo yabahlobo njengeyona ndlela ithandwayo yokujongana nezihlobo. Qiniseka nje ukuba uzijikeleze nabantu abanethemba. Nabani na ongabonakali xa uzifuna, okanye owenza ukuba uzive ungalunganga ngesiqu sakho, akafanelekanga ukuba ubenabo.

Fumana ugqirha

Iziphumo ze-HS zinokuchaphazela phantse zonke iinxalenye zobomi bakho, kubandakanya ukuzithemba kwakho, ubudlelwane, ubomi bezesondo kunye nomsebenzi. Xa uxinzelelo luba lukhulu kakhulu ukuba lungalusingatha, fikelela kwingcali, enje ngengqondo, umcebisi, okanye ugqirha.

Iingcali zempilo yengqondo zibonelela ngeenkonzo ezinje ngokunyanga ngokuthetha kunye nonyango lokuziphatha okuchaphazelayo (i-CBT) ukukunceda ukuba uphinde wenze naziphi na iingcinga ezimbi onazo malunga nemeko yakho. Unokufuna ukukhetha umntu onamava okunyanga izifo ezinganyangekiyo. Abanye abanyangi bajolise kwiindawo ezinje ngobudlelwane okanye impilo yezesondo.

Ukuba ukrokrela ukuba unokuba noxinzelelo, jonga ugqirha wezengqondo okanye ugqirha wezifo zengqondo kuvavanyo. Ingcali yezengqondo inokubonelela ngeendlela ezahlukeneyo zonyango ukunyanga, kodwa kwezinye iindawo ngugqirha wezifo zengqondo kuphela onokuyalela ukuba uthomalalise uxinzelelo xa ufuna njalo.

Yise kude

I-HS inokuba nefuthe lokwenyani kwimpilo yakho yeemvakalelo. Njengoko unyanga iimpawu zangaphandle, qiniseka ukuba ufumana uncedo kuyo nayiphi na imiba yezengqondo evela, kubandakanya uxinzelelo kunye noxinzelelo.