Imigustat

Umxholo

• Ngaphambi kokuba uthathe i-miglustat,
• I-Miglustat inokubangela iziphumo ebezingalindelekanga. Tshela ugqirha wakho ukuba ngaba ezinye zeempawu zinzima okanye azihambi:
• Ezinye iziphumo ebezingalindelekanga zinokuba nzulu. Ezi mpawu zilandelayo aziqhelekanga, kodwa ukuba ufumana enye yazo, tsalela ugqirha ngokukhawuleza:
• Iimpawu zokudlula ngaphezulu zinokubandakanya:

I-Miglustat isetyenziselwa ukunyanga isifo sesifo i-Gaucher 1 (imeko apho into enamafutha ingaphulwanga ngokwesiqhelo emzimbeni kwaye endaweni yoko iyakheka kwamanye amalungu kwaye ibangele iingxaki zesibindi, udakada, ithambo kunye negazi). I-Miglustat ikwiklasi yamayeza abizwa ngokuba yi-enzyme inhibitors. Isebenza ngokuthintela umzimba ekuveliseni izinto ezinamanqatha ukuze kuncinci oku kuya kwakha emzimbeni kwaye kubangele iimpawu.

I-Miglustat iza njengepilisi yokuthatha ngomlomo. Ihlala ithathwa kunye okanye ngaphandle kokutya kunye namanzi amaninzi ukuya kathathu ngemini. Ukukunceda ukhumbule ukuthatha i-miglustat, yithathe malunga nexesha elifanayo (ii) mihla le. Landela izikhokelo kwileyibhile yakho yonyango ngononophelo, kwaye ubuze ugqirha wakho okanye usokhemesti ukuba achaze nayiphi na indawo ongayiqondiyo. Thatha miglustat ngokuchanekileyo njengoko kuyalelwe. Musa ukuthatha ngaphezulu okanye ngaphantsi kwayo okanye uthathe rhoqo kunokuba umiselwe ngugqirha wakho.

Ginya zonke iifomsile; ungahluleli, ungahlaleli, okanye uzityumze.

IMiglustat ilawula isifo sikaGaucher kodwa ayisinyangi. Qhubeka nokuthatha i-miglustat nokuba uziva uphilile. Sukuyeka ukuthatha i-miglustat ngaphandle kokuthetha nogqirha wakho.

Eli yeza linokumiselwa ezinye izinto; buza ugqirha wakho okanye usokhemesti ngolwazi oluthe kratya.

Ngaphambi kokuba uthathe i-miglustat,

• xelela ugqirha wakho kunye nosokhemesti ukuba ngaba uxabisa i-miglustat, nawaphi na amanye amayeza, okanye iimveliso zesoya.
• xelela ugqirha wakho kunye nosokhemesti ukuba yeyiphi na amayeza kagqirha kunye nalawo angabhalwanga, iivithamini, izongezo zesondlo, kunye neemveliso zamayeza owathathayo. Qiniseka ngokukhankanya imiglucercerase (Cerezyme). Ugqirha wakho unokufuna ukutshintsha amayeza akho okanye akubeke esweni ngononophelo kwiziphumo ebezingalindelekanga.
• xelela ugqirha wakho ukuba ukhe wangcangcazela okanye wakha wangcangcazela (ukuxhawulana kwezandla ongakwaziyo ukuzilawula); iintlungu, ukutshisa, ukubetha, okanye ukuba ndindisholo ezandleni zakho okanye ezinyaweni; nasiphi na isifo esichaphazela inkqubo yakho yeemvakalelo; okanye isifo sezintso.
• xelela ugqirha wakho ukuba ukhulelwe, cwangcisa ukukhulelwa, okanye uncancisa. Kuya kufuneka usebenzise ulwazelelo olusebenzayo lokuthintela ukukhulelwa ngelixa uthatha i-miglustat. Ukuba ukhulelwe ngelixa uthatha i-miglustat, biza ugqirha ngokukhawuleza. I-Miglustat inokwenzakalisa umntwana ongekazalwa.
• Kuya kufuneka uyazi ukuba i-miglustat inokonakalisa isidoda. Amadoda athatha i-miglustat kufuneka asebenzise ulawulo lokuzalwa olusebenzayo ngexesha lonyango kunye neenyanga ezi-3 emva koko.

Miglustat kunokubangela urhudo kunye nokwehla kobunzima. Ukuba ufumana ezi ziphumo bezingalindelekanga, ugqirha wakho uya kukuxelela ukuba ungakutshintsha njani ukutya kwakho ukuphucula iimpawu zakho. Unokuxelelwa ukuba uphephe ukutya okuphezulu kwiicarbohydrate. Landela le miyalelo ngononophelo.

Tsiba idosi ephosiweyo kwaye uqhubeke neshedyuli yakho yesiqhelo yokulinganisa Sukuthatha idosi ephindwe kabini ukwenza eyilahlekileyo.

I-Miglustat inokubangela iziphumo ebezingalindelekanga. Tshela ugqirha wakho ukuba ngaba ezinye zeempawu zinzima okanye azihambi:

• urhudo
• isisu esibuhlungu okanye ukudumba
• irhasi
• Ukuphelelwa ngumdla wokutya
• ukuhla ukusinda
• isisu esimoshakele
• ukugabha
• ukuqhina
• ukuqunjelwa
• umlomo owomileyo
• ubuthathaka
• izihlunu, ingakumbi emilenzeni
• imvakalelo yobunzima ezingalweni okanye emilenzeni
• ukungazinzi xa uhamba
• umqolo obuhlungu
• isiyezi
• uvalo
• intloko ebuhlungu
• iingxaki zememori
• ukuya exesheni okunzima okanye okungaqhelekanga

Ezinye iziphumo ebezingalindelekanga zinokuba nzulu. Ezi mpawu zilandelayo aziqhelekanga, kodwa ukuba ufumana enye yazo, tsalela ugqirha ngokukhawuleza:

• iintlungu, ukutshisa, ukuba ndindisholo okanye ukubetha ezandleni zakho, iingalo, imilenze, okanye iinyawo
• ukuxhawula izandla ongenakuzilawula
• utshintsho kumbono
• ukugruzuka okulula okanye ukopha

I-Miglustat inokubangela ezinye iziphumo ebezingalindelekanga. Biza ugqirha wakho ukuba unengxaki engaqhelekanga ngelixa uthatha eli yeza.

Ukuba uhlangabezana neziphumo ebezingalindelekanga ezimandundu, wena okanye ugqirha wakho ungathumela ingxelo kwiNkqubo yoKutya kunye nezoLawulo (i-FDA) yeMedWatch yeNkqubo yokuNgxelo ngezeMeko eziGwenxa kwi-Intanethi (http://www.fda.gov/Safety/MedWatch) okanye ngomnxeba ( 1-800-332-1088).

Gcina eli yeza kwisikhongozeli lifikile, livalekile, kwaye alifumaneki ebantwaneni. Yigcine kubushushu begumbi kwaye kude nobushushu obuninzi kunye nokufuma (hayi kwigumbi lokuhlambela).

Amayeza angafunekiyo kufuneka achithwe ngeendlela ezizodwa zokuqinisekisa ukuba izilwanyana zasekhaya, abantwana kunye nabanye abantu abanakuzisebenzisa. Nangona kunjalo, akufuneki uligungxule eli yeza kwindlu yangasese. Endaweni yoko, eyona ndlela yokulahla amayeza akho yinkqubo yokubuyisa amayeza. Thetha kumayeza wakho okanye unxibelelane nesebe lakho lenkunkuma / lokurisayikilisha ukuze ufunde malunga neenkqubo zokubuyisa kwindawo ohlala kuyo. Jonga i-FDA's Safe Disposal of Medicines website (http://goo.gl/c4Rm4p) ngolwazi oluthe kratya ukuba awunakho ukufikelela kwinkqubo yokubuyisa.

Kubalulekile ukugcina onke amayeza ngaphandle kwamehlo kunye nokufikelela kwabantwana njengezikhongozeli ezininzi (ezinje ngeeveki zeepilisi zeveki kunye nezo zamehlo, iikhrim, iipatches, kunye ne-inhalers) azinyangeki kwaye abantwana abancinci banokuzivula ngokulula. Ukukhusela abantwana abancinci kwiityhefu, soloko ukhiya iminqwazi yokhuseleko kwaye ubeke amayeza kwindawo ekhuselekileyo-leyo iphakame kwaye iphakame kwaye ingabonakali kubo kwaye ifikelele kuyo. http://www.upandaway.org

Kwimeko yokugqithisa, fowunela umnxeba wolawulo lwetyhefu kwi-1-800-222-1222. Ulwazi lukwafumaneka kwi-Intanethi kwi-https: //www.poisonhelp.org/help. Ukuba ixhoba liye lawa, laxhuzula, linengxaki yokuphefumla, okanye alikwazi ukuvuswa, ngoko nangoko lifowunele iinkonzo zongxamiseko ngo-911.

Iimpawu zokudlula ngaphezulu zinokubandakanya:

• iintlungu, ukutshisa, ukubetha, okanye ukuba ndindisholo ezandleni zakho, iingalo, imilenze, okanye iinyawo
• umqala obuhlungu, umkhuhlane, ukugodola, okanye ezinye iimpawu zosulelo
• isiyezi

Gcina lonke ixesha lokudibana nogqirha wakho.

Musa ukuvumela nabani na ukuba athathe amayeza akho. Buza usokhemesti wakho nayiphi na imibuzo onayo malunga nokuzalisa amayeza akho.

Kubalulekile ukuba ugcine uluhlu olubhaliweyo lwawo onke amayeza owasebenzisayo amayeza owasebenzisayo, kunye nezinye iimveliso ezinjengeevithamini, iiminerali, okanye ezinye izongezo zokutya. Kuya kufuneka uze nolu luhlu qho xa undwendwela ugqirha okanye ungeniswe esibhedlele. Kukwabalulekile ulwazi ukuba uphathe nawe xa kukho imeko kaxakeka.

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