Ngaba ukufakelwa kwemiphunga kunganyanga iCystic Fibrosis?

Umxholo

• Zeziphi izibonelelo ezinokubakho zokufakelwa kwemiphunga?
• Zeziphi iingozi ezinokubakho zokufakelwa kwemiphunga?
• Ngubani olungeleyo ukufakelwa umphunga?
• Yintoni ebandakanyekayo kufakelo lwemiphunga?
• Kunjani ukuchacha?
• Yintoni imbonakalo?
• Iingcebiso zokuthetha nogqirha wakho

ICystic fibrosis kunye nokufakwa kwemiphunga

ICystic fibrosis sisifo semfuza esibangela ukuba i-mucus yakheke emiphungeni yakho. Ixesha elingaphezulu, ukuphindaphinda kokudumba kunye nosulelo kunokubangela ukonakala kwemiphunga ngokusisigxina. Njengoko imeko yakho iqhubeka, kuya kuba nzima ukuphefumla kwaye uthathe inxaxheba kwimisebenzi oyithandayo.

Ukufakelwa kwemiphunga kusetyenziselwa ukunyanga i-cystic fibrosis. Ngo-2014, izigulane ezingama-202 ezine-cystic fibrosis eUnited States zafumana ukufakelwa kwemiphunga, ngokweCystic Fibrosis Foundation (CFF).

Ukufakelwa ngempumelelo kwemiphunga kungenza umahluko omkhulu kwindlela oziva ngayo imihla ngemihla. Ngelixa ingelulo unyango lwe-cystic fibrosis, inokubonelela ngeseti esempilweni yemiphunga. Oku kunokuvumela ukuba wenze imisebenzi emininzi kwaye unokwandisa ubomi bakho.

Zininzi izinto ekufuneka ziqwalaselwe ngaphambi kokuba ufakelwe imiphunga. Qhubeka ufunda ukuze ufunde okungakumbi malunga nezibonelelo ezinokubakho kunye nomngcipheko wotyando lotyando lwemiphunga.

Zeziphi izibonelelo ezinokubakho zokufakelwa kwemiphunga?

Ukuba une-cystic fibrosis kwaye imiphunga yakho ayisebenzi kakuhle, unokulungela ukufakelwa kwemiphunga. Mhlawumbi unengxaki yokuphefumla kwaye uhleli ngaphandle kwemisebenzi okhe wayonwabela.

Ukufakelwa ngempumelelo kwemiphunga kunokuphucula umgangatho wobomi bakho ngeendlela ezibonakalayo.

Iseti entsha yemiphunga esempilweni iya kwenza kubelula ukuphefumla. Oku kunokukunceda uthathe inxaxheba kwizinto ozithandayo.

Zeziphi iingozi ezinokubakho zokufakelwa kwemiphunga?

Ukufakelwa kwemiphunga yinkqubo entsonkothileyo. Eminye yemingcipheko ephambili yile:

• Ukwalelwa komzimba: Amajoni akho omzimba aya kubaphatha abo banikela ngemiphunga njengabangaphandle kwaye uzame ukubatshabalalisa, ngaphandle kokuba uthatha iziyobisi. Ngelixa ukwaliwa komzimba kusenokwenzeka ukuba kwenzeke kwiinyanga ezintandathu zokuqala emva kotyando, kuyakufuneka uthathe amachiza okuthomalalisa uxinzelelo lomzimba wakho ubomi bakho bonke.
• Usulelo: Amayeza okubulala iintsholongwane anciphisa amajoni akho omzimba, enyusa amathuba okuba nosulelo.
• Ezinye izifo: Ngenxa yokuba amayeza okuthintela intsholongwane ayacinezela amajoni akho omzimba, uya kuba semngciphekweni omkhulu womhlaza, isifo sezintso, kunye nezinye iimeko.
• Iingxaki ngokuhamba komoya wakho: Ngamanye amaxesha, ukuhamba kwegazi ukusuka kwindlela yakho yomoya ukuya kwimiphunga yabanikeli kungathintelwa. Le ngxaki inokubakho inokuziphilisa yodwa, kodwa ukuba akunjalo, inokunyangwa.

Emadodeni, amayeza antirejection anokubangela iziphene zokuzalwa ebantwaneni babo. Abasetyhini abaye bafakelwa imiphunga banokuba semngciphekweni weengxaki ezinkulu ngexesha lokukhulelwa.

Ngubani olungeleyo ukufakelwa umphunga?

Asinguye wonke umntu olungeleyo ukufakelwa umphunga. Ugqirha wakho uya kudinga ukuvavanya amathuba okuba uzokuxhamla kuyo kwaye ukwazi ukunamathela kwisicwangciso sakho sonyango. Kungathabatha iiveki ukuphonononga imeko yakho kwaye kugqitywe ukuba ungumgqatswa ofanelekileyo.

Le nkqubo inokubandakanya:

• Uvavanyo lomzimba, kubandakanya uvavanyo lokuvavanya imiphunga, intliziyo kunye nemisebenzi yezintso. Oku kunokunceda ugqirha wakho avavanye isidingo sakho sokufakelwa kwemiphunga, kunye nomngcipheko weengxaki ezinokubakho.
• Ukuvavanywa kwengqondo, kubandakanya ukubonisana nonontlalontle okanye ugqirha. Ugqirha wakho, unontlalontle, okanye ugqirha unokufuna ukudibana nabanye babahlobo bakho kunye namalungu osapho ukuze uqiniseke ukuba unenkqubo elungileyo yenkxaso kunye nokukwazi ukulawula ukhathalelo lwasemva kokuphuma.
• Uvavanyo lwezezimali ukuvavanya ukhuseleko lwakho kunye nokukunceda ubone ukuba uza kuzihlawula njani iindleko eziphuma epokothweni, zombini kwixesha elifutshane nelide.

Ukuba ugqirha wakho ugqiba ukuba ungumgqatswa olungileyo, uya kongezwa kuluhlu lokufakelwa kwemiphunga. Uya kuyalelwa ngendlela yokulungiselela utyando lwakho. Unokufumana umnxeba wokuba imiphunga yabanikeli iyafumaneka nangaliphi na ixesha.

Imiphunga yomnikeli ivela kubantu abasandula ukusweleka. Zisetyenziswa kuphela xa zifunyenwe zisempilweni.

Yintoni ebandakanyekayo kufakelo lwemiphunga?

Ukwenza ukufakelwa kwemiphunga kabini, iqela lakho lotyando liya kuthi lenze ukubonwa okuthe tyaba ngaphantsi kwamabele akho. Baza kususa imiphunga yakho eyonakeleyo kwaye endaweni yabo bafake imiphunga yabaxhasi. Baza kudibanisa imithambo yegazi kunye neendlela zomoya phakathi komzimba wakho kunye nemiphunga yomnikeli wakho. Ngamanye amaxesha, banokusebenzisa umatshini wokudlula kwentliziyo kunye nemiphunga ukugcina ioksijini iqukuqela emzimbeni wakho ngexesha lale nkqubo.

Iqela lakho lotyando liya kusivala isifuba sakho usebenzisa imithungo okanye ukutya. Baya kunxiba inxeba lakho lokusikwa, beshiya iityhubhu ezimbalwa ukuvumela ulwelo ukuba lutshise. Ezi tyhubhu zezokwexeshana. Uyakufumana ityhubhu yokuphefumla efakiweyo de ube uyakwazi ukuphefumla ngaphandle kwayo.

Ngokukhawuleza emva kotyando lwakho, uya kujongwa ngokuphefumla, ngesingqi sentliziyo, uxinzelelo lwegazi kunye namanqanaba eoksijini. Xa yonke into isebenza ngendlela eyonelisayo, uya kususwa ngaphandle kwenkathalo enzulu. Uya kuqhubeka ujongwe ngokusondeleyo njengoko uchacha. Uya kuvavanywa ngegazi ngamaxesha athile ukuze ufunde indlela esebenza kakuhle ngayo imiphunga, izintso kunye nesibindi.

Ukuhlala kwakho esibhedlele kuya kuhlala iveki okanye ezimbini, kuxhomekeke kwindlela oqhuba ngayo. Ngaphambi kokuba ukhululwe, iqela lakho lotyando kufuneka likunike umkhombandlela wendlela yokukhathalela ukusikwa kwakho kunye nokukhuthaza ukubuyela kwakho ekhaya.

Kunjani ukuchacha?

Ukufakelwa komphunga lutyando olukhulu. Kungathatha iinyanga ukuba uphinde uphinde ubuye kuyo.

Iqela lakho lotyando kufuneka linike imiyalelo epheleleyo kukhathalelo lwasekhaya. Umzekelo, kufuneka bakufundise indlela yokugcina incision yakho icocekile kwaye yomile de kususwe imithungo yakho okanye ukutya okusisiseko. Kuya kufuneka bakufundise ukuba ungazibona njani iimpawu zosulelo.

Uya kuba semngciphekweni wokosuleleka ngenxa yamachiza othomalalisayo ekufuneka uwathathile kulandela ukufakelwa kwemiphunga. Ukuba unayo enye yezi mpawu zilandelayo, biza ugqirha wakho ngoko nangoko:

• Umkhuhlane we-100.4 ° F okanye ngaphezulu
• ulwelo oluvuzayo kusikeko lwakho
• iintlungu eziba mandundu kwindawo yokuqhawula incindi
• ukuphefumla kancinci okanye unengxaki yokuphefumla

Unokwenza ukuba utyelele rhoqo ugqirha kunyaka olandelayo emva kokuhlinzwa kotyando lwemiphunga. Ugqirha wakho unokuyalela iimvavanyo zokujonga ukubuyela kwimeko yesiqhelo, ezinje:

• iimvavanyo zegazi
• Uvavanyo lomsebenzi wemiphunga
• X-reyi yesifuba
• i-bronchoscopy, uviwo lweendlela ohamba kuzo usebenzisa ityhubhu ende ebhityileyo

Ukuba ukufakelwa kwemiphunga kuphumelele, uya kuba nemiphunga emitsha esebenza ngcono kunemiphunga yakho emidala, kodwa usaya kuhlala une-cystic fibrosis. Oko kuthetha ukuba kuyakufuneka uqhubeke nesicwangciso sonyango se-cystic fibrosis kwaye undwendwele ugqirha wakho rhoqo.

Yintoni imbonakalo?

Umbono wakho uya kuxhomekeka kubudala bakho kunye nokuba umzimba wakho uhlengahlengisa njani ekufakweni kwemiphunga.

EUnited States, bangaphezu kwama-80 ekhulwini abantu abane <em> cystic fibrosis abanotyando lwemiphunga abasaphilayo emva konyaka belandela inkqubo yabo, inikela ingxelo yeCFF. Abangaphezu kwesiqingatha baphila ngaphezulu kweminyaka emihlanu.

Uphononongo lwaseCanada olupapashwe ngo-2015 kwiJenali yeNtliziyo kunye nokuFakelwa kweMiphunga kwafunyanwa iminyaka emihlanu yokusinda kwizigulana ze-cystic fibrosis kulandela ukufakelwa kwemiphunga ngama-67 eepesenti. Amashumi amahlanu eepesenti ahlala iminyaka eli-10 okanye ngaphezulu.

Ukufakelwa ngempumelelo kwemiphunga kunokutshintsha ubomi bakho ngokunciphisa iimpawu zakho kunye nokuvumela ukuba usebenze ngakumbi.

Iingcebiso zokuthetha nogqirha wakho

Xa uqwalasela ukufakelwa kwemiphunga, buza ugqirha wakho ukuba zonke ezinye iindlela ziye zahlolwa kuqala. Buza ukuba bakuncede uqonde izibonelelo ezinokubakho kunye nomngcipheko wokufakelwa. Buza ukuba ungalindela ntoni ukuba awukhethi ukufakelwa.

Nje ukuba uzive ukhululekile ngombono wokufakelwa kwemiphunga, lixesha lokuba ufunde ngakumbi malunga nokuza ngaphambili. Nje ukuba uluhlu lokufakelwa, kuya kufuneka ulungele ukufumana umnxeba wokuba imiphunga yakho yomnikeli ifikile, nokuba iza nini.

Nayi imibuzo embalwa yokuqalisa incoko nogqirha wakho:

• Yintoni endimele ndiyazi kwaye ndiyenze ngelixa ndikuludwe lokulinda?
• Ngawaphi amalungiselelo endifanele ndiwenzele xa kuza kubakho imiphunga?
• Ngubani oza kwenza iqela lokufakelwa kwemiphunga kwaye yintoni amava abo?
• Ndingalindela ukuhlala ixesha elingakanani esibhedlele emva kotyando?
• Ngawaphi amayeza endiya kuwathatha emva kotyando?
• Emva kotyando, zeziphi iimpawu ezithi ndifuna ukuya kugqirha?
• Kukangaphi ndifuna ukulandela kwaye loluphi uvavanyo oluza kubakho?
• Kuza kuba njani ukuchacha kwaye yintoni umbono wam wexesha elide?

Vumela iimpendulo zikagqirha wakho zikukhokelele kwimibuzo enzulu ngakumbi.