I-5 ye-Psoriatic Arthritis Essentials Andizange ndishiye iKhaya ngaphandle

Umxholo

• 1. Isicwangciso
• 2. Izixhobo zokulwa iintlungu
• 3. Indlela yokuvavanya iimfuno zomzimba wam
• 4. Izikhumbuzo zokuphumla
• 5. Ijenali yokufunda kumava am
• Yise kude

Khawufane ucinge ukuba i-psoriatic arthritis ibineqhosha lokuphumla. Ukuqhuba imisebenzi okanye ukuphuma uyokutya isidlo sangokuhlwa okanye ikofu kunye neqabane lakho okanye abahlobo kunokuba mnandi kakhulu ukuba le misebenzi ayizonyusanga iintlungu zomzimba.

Ndafunyaniswa ndine-psoriatic arthritis kwi-2003, kwiminyaka emibini emva kokuba ndifunyenwe ndine-psoriasis. Kodwa ukuxilongwa kwam kwafika kwiminyaka emine emva kokuba ndiqalise ukuba neempawu.

Ngelixa ndingakhange ndibhaqe indlela yokuphumla okanye yokumisa iimpawu zam, ndiye ndakwazi ukunciphisa iintlungu zemihla ngemihla. Omnye umba wesicwangciso sam sokuphelisa iintlungu kukukhumbula ukuba isigulo sam sisoloko sikunye nam, kwaye kufuneka ndisisingathe naphi na apho ndikhoyo.

Nazi izinto ezintlanu eziyimfuneko zokuvuma nokujongana nentlungu yam ngelixa usendleleni.

1. Isicwangciso

Xa ndiceba ukuphuma kwalo naluphi na uhlobo, kufuneka ndigcine i-psoriatic arthritis engqondweni. Izigulo ezinganyangekiyo ndizigqala njengabantwana. Abaziphathi kakuhle, kodwa ziibrats ezithanda ukukhahlela, ukukhaba, ukukhwaza nokuluma.

Andinathemba nje kwaye ndithandazela ukuba baziphathe kakuhle. Endaweni yoko, kufuneka ndize necebo.

Kwakukho ixesha apho ndandikholelwa ukuba esi sifo sasingenakulinganiswa ngokupheleleyo. Kodwa emva kweminyaka yokuhlala nayo, ngoku ndiyaqonda ukuba indithumela imiqondiso ngaphambi kokuba ndibone.

2. Izixhobo zokulwa iintlungu

Ndiyaziqinisa ngokwengqondo ukulindela inqanaba elonyukayo leentlungu, endinyanzela ukuba ndilungiselele iintlungu ngelixa ndiphume endlwini yam.

Kuxhomekeke apho ndiya khona kunye nokuba ukuphuma kuya kuthatha ixesha elingakanani, ndiza nokuba nengxowa eyongezelelweyo kunye nezixhobo zam ezimbalwa endizithandayo zokulwa iintlungu okanye ndiphose into endiza kuyifuna kwisipaji sam.

Ezinye zezinto endizigcinayo engxoweni yam zibandakanya:

• Iioyile ezibalulekileyo, endisetyenziselwa ukunciphisa iintlungu kunye noxinzelelo entanyeni, emqolo, emagxeni, esinqeni, okanye naphi na apho ndiziva khona iintlungu.
• Ii-icepack ezizalisekayo endigcwalisa ngumkhenkce kwaye ndisebenzise emadolweni okanye emqolo ongezantsi xa ndifumana ukudumba kumalungu am.
• Ubushushu obuphathekayo busonga yokuthomalalisa uxinzelelo lwemisipha entanyeni yam nasemqolo ongezantsi.
• Ibhandeji elilastiki ukugcina icepack yam ikwindawo xa ndihamba.

3. Indlela yokuvavanya iimfuno zomzimba wam

Ngelixa ndiphume ndihamba, ndimamela umzimba wam. Ndibe yingcali ekulungiseleleni iimfuno zomzimba wam.

Ndiye ndafunda ukuqaphela iimpawu zam zentlungu yokuqala nokuyeka ukulinda de ndingakwazi ukukunyamezela kwakhona. Ndihlala ndibaleka engqondweni, ndivavanya iintlungu kunye neempawu zam.

Ndiyazibuza: Ngaba iinyawo zam ziqala ukuba buhlungu? Ngaba umqolo wam ubetha? Ngaba intamo yam iqine? Ngaba izandla zam zidumbile?

Ukuba ndiyakwazi ukuqaphela intlungu kunye neempawu zam, ndiyazi ukuba lixesha lokuba ndithathe inyathelo.

4. Izikhumbuzo zokuphumla

Ukuthatha amanyathelo ngamanye amaxesha kulula njengokuphumla okwemizuzu embalwa.

Umzekelo, ukuba ndikwiDisneyland, ndinika iinyawo zam ikhefu emva kokuhamba okanye ukuma ixesha elide. Ngokwenza njalo, ndiyakwazi ukuhlala epakini ixesha elide. Kwaye, ndifumana iintlungu ezimbalwa ngorhatya kuba andikhange ndityhale kulo.

Ukutyhala kwintlungu kuhlala kubangela ukuba umzimba wam uphendule. Ukuba ndiziva ndixinekile entanyeni okanye emqolo xa ndihleli kwisidlo sasemini, ndiyama. Ukuba ukuma nokuzolula ayizizo iinketho, ndiyazithethelela kwigumbi langasese kwaye ndisebenzisa ioyile yokuphelisa iintlungu okanye isongelo sobushushu.

Ukungahoyi iintlungu zam kwenza nje ixesha lam elibuhlungu ekhaya.

5. Ijenali yokufunda kumava am

Ndihlala ndifuna ukufunda kumava am. Ndiphume njani? Ngaba ndive iintlungu ezingaphezulu kokuba bendilindele? Ukuba kunjalo, ibangelwe yintoni kwaye ikhona into ebendinokuyenza ukuyikhusela? Ukuba andizange ndive iintlungu ezininzi, ndenze ntoni okanye kwenzeka ntoni eyenza ukuba kungabi buhlungu kakhulu?

Ukuba ndizifumana ndinqwenela ukuba ndinento endize nayo, ndiyayiqaphela kwaye ndiyifumane indlela yokuza nayo kwixa elizayo.

Ndifumanisa ukuba ukushicilelwa yeyona ndlela isebenzayo yokufunda ukuphuma kwam. Ndibhala into endize nayo, ndiphawule into endiyisebenzisileyo, kwaye ndiphawule ukuba ndenze ntoni ngokwahlukileyo kwixesha elizayo.

Ijenali zam azindincedi nje kuphela ukuba ndibone ukuba mandizise ntoni na okanye ndenze ntoni, kodwa ziyandinceda ukuba ndiwazi ngcono umzimba wam kunye nezifo zam ezingapheliyo. Ndiye ndafunda ukuqaphela iimpawu zokulumkisa ebendingakwazi ukuzenza ngaphambili. Oku kundivumela ukuba ndijongane nentlungu kunye neempawu zam phambi kokuba baphume kulawulo.

Yise kude

Ndiphatha ukunyanga nge-psoriatic arthritis kunye nezinye izifo ezingapheliyo ezibuhlungu ngendlela efanayo nokuba ndishiya indlu kunye neentsana ezinomdla kunye nabantwana abancinci. Xa ndisenza oku, ndifumanisa ukuba izifo zam ziphosa ingqumbo encinci. Umsindo omncinci uthetha iintlungu ezincinci kum.

UCynthia Covert ngumbhali ozimeleyo kunye nebhlog yakhe kwiThe Disabled Diva. Ukwabelana ngeengcebiso zakhe zokuphila ngcono kunye nentlungu encinci nangona enezigulo ezininzi ezingapheliyo, kubandakanya i-psoriatic arthritis kunye ne-fibromyalgia. UCynthia uhlala emazantsi eCalifornia, kwaye xa engabhali, unokufunyanwa ehamba elunxwemeni okanye ukonwaba nosapho kunye nabahlobo eDisneyland.