Indlela yokuSebenza ngokuxoxa ngezifo zikaCrohn kunye noGqirha wakho

Umxholo

• Ukutya kunye nesondlo
• Unyango kunye neziphumo ebezingalindelekanga
• Utshintsho kwindlela yokuphila
• Iingxaki ezinokwenzeka
• Iimpawu ezingxamisekileyo
• I-inshurensi
• Amaqela enkxaso kunye nolwazi
• Ukutyunjwa okulandelelweyo
• Umgca wezantsi

Ushwankathelo

Kungangakhululeki ukuthetha ngeCrohn's, kodwa ugqirha wakho kufuneka azi malunga neempawu zakho, kubandakanya nitty-gritty malunga nokuhamba kwamathumbu akho. Xa uxoxa ngesi sifo nogqirha wakho, kukulungele ukuthetha malunga noku kulandelayo:

• zingaphi iintshukumo onazo ngosuku?
• ukuba isitulo sakho sikhululekile
• ukuba kukho igazi kwisitulo sakho
• Indawo, ubungqongqo, kunye nobude beentlungu zesisu sakho
• kukangaphi ufumana ukuhla kweempawu inyanga nenyanga
• ukuba ufumana ezinye iimpawu ezingahambelani nesisu sakho, kubandakanya iintlungu ezidibeneyo, imiba yolusu, okanye iingxaki zamehlo
• ukuba uphulukana nokulala okanye ukuvuka rhoqo ebusuku ngenxa yeempawu ezingxamisekileyo
• ukuba unalo naluphi na utshintsho kwisidlo
• ukuba ubunzima bakho bunyukile okanye buhlile kwaye bubungakanani
• Kukangaphi usilela esikolweni okanye emsebenzini ngenxa yeempawu zakho

Zama ukwenza umkhwa ukugcina umkhondo weempawu zakho kunye nendlela ezibuchaphazela ngayo ubomi bakho bemihla ngemihla. Kwakhona, xela ugqirha wakho into oyenzileyo ukunceda ukulawula iimpawu-kubandakanya oko kusebenzayo noko kungazange.

Ukutya kunye nesondlo

IiCrohn's zinokuphazamisana namandla omzimba wakho okufumana izondlo, oko kuthetha ukuba unokuba semngciphekweni wokungondleki. Kubalulekile ukuba uthathe ixesha lokuthetha ngokutya kunye nesondlo kunye nogqirha wakho.

Mhlawumbi sele uyazi ukuba kukho ukutya okuchaphazela isisu sakho kwaye kufuneka kuthintelwe. Ugqirha wakho unokukunika iingcebiso malunga nokutya okunesondlo kakhulu kwaye kukhuselekile kwisifo sikaCrohn. Ngexesha lokuqeshwa kwakho, buza malunga noku kulandelayo:

• Kukuthini ukutya kunye neziselo ezinokuphetshwa kwaye ngoba
• uyenza njani idayari yokutya
• kukuphi ukutya okuluncedo kwabo banesifo sikaCrohn
• uzokutya ntoni xa isisu sakho sikhathazekile
• ukuba unokuthatha naziphi na iivithamini okanye izongezo
• ukuba ugqirha unokucebisa isazi sokutya esibhalisiweyo

Unyango kunye neziphumo ebezingalindelekanga

Akukho ndlela-nye yokunyanga isifo sikaCrohn. Uya kufuna ukuya kulo lonke unyango olufumanekayo nogqirha wakho kunye nento abayicebisayo ukuba unikwe iimpawu zakho ezizodwa kunye nembali yonyango.

Amayeza esi sifo sikaCrohn abandakanya ii-aminosalicylates, ii-corticosteroids, ii-immunomodulators, ii-antibiotics, kunye nonyango lwe-biologic. Bajolise ekucinezeleni impendulo yokuvuvukala ebangelwa ngamajoni akho omzimba kunye nokuthintela iingxaki. Umsebenzi ngamnye ngeendlela ezahlukeneyo.

Nazi izinto onokuzibuza ugqirha wakho malunga nonyango lwezifo zikaCrohn:

• Loluphi unyango olucetyiswayo ngohlobo kunye nobukhali beempawu onazo
• kutheni ugqirha wakho ekhethe iyeza elithile
• Kuthatha ixesha elingakanani ukuziva ukhululekile
• loluphi uphuculo omele ukulindele
• kukangaphi kufuneka uthathe iyeza ngalinye
• zithini iziphumo ebezingalindelekanga
• ingaba amayeza aya kudibana namanye amayeza
• zeziphi iziyobisi ezingasetyenziswa ukunceda kwiimpawu, ezinjengentlungu okanye urhudo
• xa kufuneka utyando
• zeziphi iindlela zonyango ezintsha kuphuhliso
• Kuza kwenzeka ntoni ukuba uthatha isigqibo sokulahla unyango

Utshintsho kwindlela yokuphila

Ngaphandle kokutshintsha indlela otya ngayo, utshintsho kubomi bakho bemihla ngemihla lunokunceda nasekulawuleni iimpawu zakho kunye nokuthintela ukuqhuma. Buza ugqirha wakho ukuba kukho nantoni na abayincomayo ukuba bayitshintshe, enje:

• kufuneka uzilolonge kangaphi
• zeziphi iintlobo zokuzilolonga eziluncedo
• indlela yokunciphisa uxinzelelo
• ukuba uyatshaya, ungayeka njani

Iingxaki ezinokwenzeka

Usenokuba sele uqhelene neempawu eziqhelekileyo zesifo sikaCrohn, kodwa kufuneka ujonge iingxaki ezininzi ngokunjalo. Buza ugqirha wakho malunga nezi ngxaki zilandelayo ukuze uzilungiselele ngcono ukuba zinokuvela:

• intlungu edibeneyo
• onokhwekhwe
• ukungondleki
• izilonda zamathumbu
• Ukuqina kwamathumbu
• fistula
• uqhekeko
• amathumba
• i-osteoporosis njengengxaki yonyango olungapheliyo lwe-steroid

Iimpawu ezingxamisekileyo

Iimpawu zesifo sikaCrohn zinokungaqiniseki ngamanye amaxesha. Kubalulekile ukuba ukwazi ukuqonda xa iimpawu zakho zithetha into enzulu.

Ngaba ugqirha wakho uphonononge ukuba zeziphi iimpawu okanye iziphumo ebezingalindelekanga zonyango lwakho ezinokuthi zithathelwe ingqalelo kwimeko engxamisekileyo efuna unyango kwangoko.

I-inshurensi

Ukuba umtsha kuqeqesho lukagqirha, jonga ukuba bayayamkela na i-inshurensi yakho. Ukongeza, unyango oluthile lwesifo sikaCrohn lubiza kakhulu. Ke kubalulekile ukuba uqiniseke ukuba yonke igqunyiwe ukuze kungabikho ukulibaziseka kwisicwangciso sakho sonyango.

Buza malunga neenkqubo ezivela kwiinkampani ezixuba amayeza ezinceda ukunciphisa iikopi zakho kunye neendleko zokuphuma epokothweni zamayeza akho.

Amaqela enkxaso kunye nolwazi

Cinga ngokucela ugqirha wakho okanye iqela lokhathalelo lwempilo ngeenkcukacha zonxibelelwano zeqela lenkxaso lendawo. Amaqela enkxaso angaba kumntu okanye kwi-intanethi. Ayizizo ezomntu wonke, kodwa banokubonelela ngenkxaso yeemvakalelo kunye nobutyebi bolwazi malunga nonyango, ukutya, kunye notshintsho kwindlela yokuphila.

Ugqirha wakho unokuba nazo ezinye iincwadana okanye ezinye izinto ezishicilelweyo onokuthi uhambe nazo okanye ezinye iwebhusayithi ezicetyiswayo. Kubalulekile ukuba ungashiyi ukuqeshwa kwakho uzive udidekile ngayo nantoni na.

Ukutyunjwa okulandelelweyo

Okokugqibela kodwa kungaphelelanga apho, cwangcisa ukuqeshwa kwakho okulandelayo ngaphambi kokuba ushiye iofisi kagqirha wakho. Cela olu lwazi lulandelayo ngaphambi kokuba uhambe:

• Zeziphi iimpawu ugqirha afuna ukuba uziqwalasele ngaphambi kwexesha lakho elilandelayo
• onokuyilindela kwixesha elizayo, kubandakanya naluphi na uvavanyo lokuqonda isifo
• ukuba ufuna ukwenza nantoni na ekhethekileyo ukulungiselela uvavanyo kutyelelo lwakho olulandelayo
• ungayithatha njani nayiphi na imigqaliselo kunye nemibuzo oza kuyibuza usokhemesti
• ukuba mawenze ntoni xa kukho imeko engxamisekileyo
• yeyiphi eyona ndlela ifanelekileyo yokuqhagamshelana nogqirha wakho, nokuba kunge-imeyile, umnxeba, okanye umyalezo
• ukuba ngaba unayo nayiphi na imvavanyo yovavanyo olwenziwe, buza abasebenzi baseofisini ukuba iziphumo ziya kungena nini kwaye nokuba bazakukutsalela umnxeba ngokuthe ngqo ukuze ulandele

Umgca wezantsi

Impilo yakho iphambili, ke kuya kufuneka ukhululeke ukusebenza nogqirha wakho ukuze ufumane olona nyango lusemgangathweni. Ukuba ugqirha wakho akakuniki inkathalo, ixesha, okanye ulwazi oludingayo, unokufuna ukubona ugqirha omtsha.

Kuqhelekile ngokugqibeleleyo ukufuna uluvo lwesibini okanye lwesithathu- okanye nangaphezulu-de ufumane ulungiso olufanelekileyo.