I-App eNtsha yeHealthline inceda ukudibanisa abo bane-IBD

Umxholo

• Yiba yinxalenye yoluntu
• Fumana intuthuzelo kumanani nakumaqela
• Imizekelo yezihloko zeengxoxo zeqela eliphilayo
  
• Fumanisa amanqaku afundisayo kunye nodumileyo
• Indawo yokholo nethemba

I-IBD Healthline sisoftware yasimahla yabantu abaphila nesifo sikaCrohn okanye isifo sokudumba okwenziwa sisilonda sikabhobhosi. Insiza iyafumaneka kwiVenkile yeVenkile nakwiGoogle Play.

Ukufumana abahlobo kunye nosapho abayiqondayo kwaye bayayixhasa i-IBD yakho bubutyebi. Ukunxibelelana nabo bazibonela ngawakho amehlo akunakubuyiselwa.

Injongo yenkqubo entsha ye-IBD yeHealthline kukubonelela ngendawo yonxibelelwano.

Yenzelwe abantu abaphila nesifo sikaCrohn okanye isilonda esibuhlungu (i-UC), iapp yasimahla inikezela ngenkxaso kumntu ngamnye kunye neengcebiso zeqela kubantu abaziqondayo into ohamba kuyo, nokuba usandula ukufumanisa ukuba unesifo okanye ugqirha wezilwanyana onamava.

UNatalie Hayden, owafunyaniswa enesifo sikaCrohn eneminyaka engama-21 uthi: “Kuthetha ukuba kum umhlaba uza kukwazi ukunxibelelana nomntu‘ osifumanayo. ’

Uthi: "Xa kwafunyaniswa ukuba ndineCrohn's ngo-2005, ndaziva ndindedwa kwaye ndililolo," utshilo. "Ndinganikezela nantoni na ukuba ndikwazi ukufikelela ngqo kubantu abane-IBD kwaye babelane ngoloyiko lwam, iinkxalabo kunye nokuzabalaza kwam ngaphandle koloyiko lomgwebo. Zizibonelelo ezinje ngale [app] zisinika amandla njengezigulana kwaye zisibonise ukuba ubomi buqhubeka njani, nokuba unesifo esinganyangekiyo. ”

Yiba yinxalenye yoluntu

Inkqubo ye-IBD ikudibanisa namalungu asuka eluntwini yonke imihla ngo-12. Ixesha eliqhelekileyo lePacific ngokusekwe kweyakho:

• Uhlobo lwe-IBD
• unyango
• umdla wokuphila

Unokukhangela kwakhona iiprofayili zelungu kwaye ucele ukunxibelelana kwangoko nomntu. Ukuba umntu ufuna ukungqinelana nawe, waziswa kwangoko. Nje ukuba uqhagamshele, amalungu angathumela imiyalezo komnye komnye kwaye abelane ngeefoto.

"Umdlalo wemihla ngemihla uyandikhuthaza ukuba ndifikelele kubantu ebendingazukusebenzisana nabo, nokuba ndibona iiprofayili zabo kwisondlo," utshilo u-Alexa Federico, obehlala nesifo sikaCrohn ukusukela kwiminyaka eyi-12. “Ukukwazi ukuncokola nomntu ngephanyazo kulunge kuye nabani na ofuna ingcebiso ASAP. Yongeza [ukuqonda] intuthuzelo ngokwazi [kukho] uthungelwano lwabantu onokuthetha nabo. "

UNatalie Kelley, owafunyaniswa ene-UC ngo-2015, uthi kuyonwabisa ukwazi ukuba uzakufumana umdlalo omtsha yonke imihla.

"Kulula ukuziva ngathi akukho mntu uyiqondayo into ohamba kuyo, kodwa emva koko uqaphela ukuba suku ngalunye ufika 'udibane' nomntu owenza lolona lwazi lukhethekileyo, utshilo uKelley. “Okwangoku xa unencoko nomnye umlweli we-IBD kwaye unayo loo nto‘ Uyandifumana! ’Ngumlingo. Ukuba nomntu oza kumthumela umyalezo okanye umyalezo xa ulele ebusuku uxhalabile nge-IBD okanye uzive ungonwabanga ngenxa yokuphoswa lolunye uhambo ngenxa ye-IBD kuyathuthuzela. "

Xa ufumana umdlalo olungileyo, usetyenziso lwe-IBD lwaphula umkhenkce ngokuthi umntu ngamnye aphendule imibuzo ukunceda incoko iqhubeke.

UHayden uthi oku kwenze ukuba ukukhwela ngaphakathi kubenomdla kwaye kwamkelwe.

"Into endandiyithanda kakhulu yayingumbuzo ophula umkhenkce, kuba wawundenza ukuba ndime kancinci ndicinge ngohambo lwam lwesigulana kunye nendlela endinokubanceda ngayo abanye," utshilo.

Fumana intuthuzelo kumanani nakumaqela

Ukuba ungaphezulu kokuncokola nabantu abaliqela ngaxeshanye kunokunxibelelana komntu ngamnye, iapps inika iingxoxo zeqela eliphilayo yonke imihla yeveki. Ikhokelwa sisikhokelo se-IBD, intetho yeqela isekwe kwizihloko ezithile.

Imizekelo yezihloko zeengxoxo zeqela eliphilayo

• unyango kunye neziphumo ebezingalindelekanga
• Indlela yokuphila
• umsebenzi
• ubudlelwane nosapho kunye nabahlobo
• Ndisandula ukufumanisa ukuba ndinesi sifo
• ukutya
• impilo ngokweemvakalelo nangokwengqondo
• ukuhamba ngononophelo lwempilo
• impembelelo

"Inxalenye 'yamaqela' yenye yezona ndawo zixabisekileyo kwiapp. Ngokungafaniyo kwiqela likaFacebook apho nabani na angabuza umbuzo malunga nantoni na, [izikhokelo] zigcina incoko ngesihloko, kwaye izihloko zigubungela iintlobo ezahlukeneyo, ”utshilo uFederico.

UHayden uyavuma. Uyaphawula ukuba ilungelelanisa amava osetyenziso kuba unokucofa kwizihloko ezingqinelana neemfuno zakho kunye nezinto onomdla kuzo. Ufumana amaqela oLuntu "kunye noKhuthazo" ahloniphekileyo.

"Ndineminyaka emi-2 ubudala kunye neenyanga ezi-4 ubudala, ke ndihlala ndikufumanisa kuluncedo ukunxibelelana nabanye abazali be-IBD abayiqondayo imeko yam yemihla ngemihla. Ndinothungelwano olukhulu lokuxhasa usapho kunye nabahlobo, kodwa ukuba nolu luntu kundenza ndikwazi ukufikelela kubantu abakwaziyo ngokwenyani ukuba kunjani ukuphila nesi sifo singanyangekiyo, ”utshilo uHayden.

KuKelley, amaqela okutya kunye nolunye unyango, impilo yengqondo kunye neemvakalelo, kunye nenkuthazo yavuselela uninzi.

“Ukuba ngumqeqeshi wezempilo opheleleyo, ndiyawazi amandla okutya kwaye ndibone ukuba zingakanani indlela otya ngayo ukutya okunokundinceda kwiimpawu zam ze-ulcerative colitis, ke ndiyakuthanda ukukwazi ukwabelana nabanye ngolu lwazi. Ndikwacinga ukuba icala lempilo yengqondo nangokweemvakalelo ye-IBD sisihloko ekungaxoxwa ngaso ngokwaneleyo.

"Ndiyazi ukuba kwakunzima ukuba ndivule malunga nemizabalazo yempilo yam yengqondo emva kokuchongwa kwe-IBD. Kodwa ukuqonda ukuba banxibelelana njani kwaye baziva benamandla okuthetha ngayo, kwaye babonise abanye ukuba abekho bodwa ukuba baziva ngaloo ndlela yinxalenye enkulu yemishini yam, utshilo uKelley.

Wongeza ukuba njengeblogi yempilo-ntle, injongo yakhe yemihla ngemihla kukukhuthaza abanye.

“Ingakumbi abo bane-IBD. Ukuba neqela elipheleleyo [kwi-app] elizinikeleyo kwinkuthazo kuyakha kakhulu, ”utshilo.

Fumanisa amanqaku afundisayo kunye nodumileyo

Xa ukwimeko yokufunda kunye nokufunda kunokuba uxoxe kwaye uxoxe, unokufikelela kwimpilo ekhethiweyo kunye neendaba zeendaba malunga ne-IBD ehlaziywe liqela le-Healthline leengcali zonyango.

Kwithebhu ebekiweyo, ungakhangela amanqaku malunga nokuxilongwa, unyango, impilo, ukuzikhathalela, impilo yengqondo, kunye nokunye, kunye namabali abo kunye nobungqina obuvela kubantu abaphila ne-IBD. Unokuphonononga uvavanyo lweklinikhi kunye nophando lwamva nje lwe-IBD.

"Icandelo 'Lokufumanisa' lilungile kuba ziindaba ngokwenene onokuzisebenzisa. Ifana neendaba ezenzelwe i-IBD, utshilo uHayden. "Ndihlala ndizama ukuzifundisa ngesigulo sam kunye namava abanye abantu ukuze ndibengummeli wesigulana ongcono mna kunye nabanye ekuhlaleni."

UKelley uziva ngokufanayo.

"Ndihlala ndisenza uphando malunga ne-IBD kunye ne-gut yezempilo ngenxa yam nangenxa yabathengi bam kunye noluntu kwi-Instagram nakwiwebhusayithi yam," utshilo. "Ukwazi ukucofa ngokulula ku" Fumana "kwaye ufumane onke amanqaku athembekileyo anxulumene ne-IBD enza ukuba le nkqubo ibe lula kakhulu.

“Ndicinga ukuba imfundo kukuxhotyiswa, ingakumbi xa kufikwa kumba wokuhlala nesifo esinganyangekiyo. Bendiye ndingaze ndenze uphando kuba oko kundenze ndaziva ndonganyelwe, kodwa ngoku ndiyaqonda ukuba okukhona ndisazi ngesi sifo sam, kokukhona ndizibona ngcono. ”

Indawo yokholo nethemba

Umsebenzi we-IBD Healthline kukuxhobisa abantu ukuba baphile ngaphaya kwe-IBD yabo ngemfesane, inkxaso kunye nolwazi. Ngapha koko, kujongeka njengokubonelela ngendawo ekhuselekileyo yokufumana nokufumana iingcebiso, ukufuna kunye nokubonelela ngenkxaso, kunye nokufumana iindaba zamva nje ze-IBD kunye nophando olulungiselelwe wena.

“Ndiyayithanda indlela exhasa ngayo indawo esele iyiyo. Ndizamile ukujoyina amanye amaqela enkxaso okanye iibhodi zencoko ngaphambili kwaye bendisoloko ndiziva ngathi baphethukela kwindawo engeyiyo ngokukhawuleza, utshilo uKelley.

"Wonke umntu okule app uyakha kwaye uyakhathala ngokwenene malunga nento esabelana ngayo sonke. Ukwazi ukuba neengcambu omnye komnye kuhambo lwethu lwe-IBD kuyayonwabisa intliziyo yam, ”uyongeza.

UCathy Cassata ngumbhali ozimeleyo ojolise kumabali ajikeleze impilo, impilo yengqondo kunye nokuziphatha komntu. Unobuchule bokubhala ngeemvakalelo kunye nokunxibelelana nabafundi ngendlela enengqiqo nenomdla. Funda ngakumbi ngomsebenzi wakhe apha.