Ukuchongwa ngokutsha nge-MS: Yintoni Ongayilindela

Umxholo

• Isifo sokugubhuka
• Iimpawu ze-MS
• Ukubaluleka kwesicwangciso sonyango
• Impembelelo kubomi bakho ekhaya nasemsebenzini

Isifo sokugubhuka

I-Multiple sclerosis (MS) sisifo esingalindelekanga esichaphazela umntu ngamnye ngokwahlukileyo. Ukuziqhelanisa nemeko yakho entsha nehlala itshintsha kunokuba lula ukuba unoluvo lokuba ulindele ntoni.

Iimpawu ze-MS

Kubalulekile ukuba ujongane ngqo nokuchonga isifo kwaye ufunde okuninzi malunga nesifo kunye neempawu.

Into engaziwayo inokoyikisa, ke ukuba unoluvo lokuba zeziphi iimpawu onokufumana kuzo kunokukunceda ukuba uzilungiselele ngcono.

Asinguye wonke umntu oya kuba neempawu ezifanayo, kodwa ezinye iimpawu zixhaphakile kunezinye, kubandakanya:

• ukuphazamiseka okanye ubuthathaka, ngokuqhelekileyo kuthintela elinye icala lomzimba wakho ngexesha
• intlungu xa uhambisa amehlo akho
• ukulahleka okanye ukuphazamiseka kombono, ihlala iliso elinye ngexesha
• ukurhawuzelela
• intlungu
• ukungcangcazela
• iingxaki zokulinganisela
• ukudinwa
• isiyezi okanye i-vertigo
• imiba yesinyi kunye neyamathumbu

Lindela ukuphinda ubuye kwiimpawu. Phantse iipesenti ezingama-85 zamaMelika ane-MS afunyaniswa ene-MS ebuyayo ebuyisela kwakhona (i-RRMS), ebonakaliswa kukuhlaselwa okupheleleyo okanye okupheleleyo.

Phantse iipesenti ezili-15 zabantu baseMelika abane-MS abanalo uhlaselo. Endaweni yoko, bafumana ukuqhubela phambili kancinci kwesi sifo. Oku kubizwa ngokuba yi-MS-progressive MS (PPMS).

Amachiza anokunceda ukunciphisa isantya kunye nokuba qatha kohlaselo. Amanye amachiza kunye nonyango lunokunceda ukunciphisa iimpawu. Unyango lunokunceda ukutshintsha ikhondo lesifo sakho kunye nokucothisa ukuqhubela phambili.

Ukubaluleka kwesicwangciso sonyango

Ukuchongwa ukuba une-MS kusenokwenzeka ukuba bekungaphandle kolawulo lwakho, kodwa oko akuthethi ukuba awukwazi ukulawula unyango lwakho.

Ukuba nesicwangciso endaweni yakho kukunceda ukuba ulawule isifo sakho kwaye unciphise uvakalelo lokuba esi sifo siyakuchaphazela ubomi bakho.

I-Multiple Sclerosis Society icebisa ukuthatha indlela ebanzi. Ithetha ukuba:

• ukuguqula ikhosi yesifo ngokuthatha amayeza avunyiweyo yi-FDA ukunciphisa amaza kunye nobukhali bohlaselo
• ukunyanga ukuhlaselwa, okuhlala kubandakanya ukusebenzisa i-corticosteroids ukunciphisa ukudumba kunye nokunciphisa umda kwinkqubo yovalo
• ukulawula iimpawu usebenzisa amayeza ahlukeneyo kunye nonyango
• ukuthatha inxaxheba kwiinkqubo zokubuyisela kwimeko yesiqhelo ukuze ukwazi ukugcina ukuzimela kwakho kwaye uqhubeke nemisebenzi yakho ekhaya kwaye usebenze ngendlela ekhuselekileyo nefanelekileyo kwiimfuno zakho eziguqukayo.
• Ukufuna inkxaso yobungcali kwezemvakalelo ukukunceda ujongane nesifo sakho esitsha kunye naluphi na utshintsho lweemvakalelo onokulufumana, njengoxinzelelo okanye uxinzelelo

Sebenza nogqirha wakho ukuza nesicwangciso. Esi sicwangciso kufuneka sibandakanye ukuthunyelwa kwiingcali ezinokukunceda kuyo yonke imiba yesi sifo kunye nonyango olukhoyo.

Ukuba nokuzithemba kwiqela lakho lokhathalelo lwempilo kunokuba nefuthe elihle kwindlela ojongana ngayo nokutshintsha kobomi bakho.

Ukugcina umkhondo wesifo sakho-ngokubhala phantsi ukuqeshwa kunye namayeza kunye nokugcina ingxelo yeempawu zakho- kunokuba luncedo kuwe nakugqirha.

Le ikwayindlela entle yokugcina umkhondo kwiinkxalabo zakho kunye nemibuzo ukuze uzilungiselele kakuhle ukuqeshwa kwakho.

Impembelelo kubomi bakho ekhaya nasemsebenzini

Nangona iimpawu ze-MS zinokuba luxanduva, kubalulekile ukuba uqaphele ukuba abantu abaninzi abane-MS bayaqhubeka nokuphila ubomi obusebenzayo nobunemveliso.

Kuxhomekeka kwiimpawu zakho, kungafuneka wenze uhlengahlengiso kwindlela ohamba ngayo malunga nemisebenzi yakho yemihla ngemihla.

Ngokufanelekileyo, ufuna ukuqhubeka nokuphila ubomi bakho njengesiqhelo. Ke, kuphephe ukuzahlula kwabanye okanye ukuyeka ukwenza izinto ozithandayo.

Ukusebenza kungadlala indima enkulu ekulawuleni i-MS. Inokukunceda ukunciphisa iimpawu zakho kwaye ikuncede ugcine umbono oqinisekileyo.

Umgqirha osebenza ngokomzimba okanye osebenzayo unokukunika iingcebiso malunga nendlela onokuyihlengahlengisa ngayo imisebenzi yakho ekhaya kwaye usebenze ukuze uhambelane neemfuno zakho.

Ukwazi ukuqhubeka nokwenza izinto ozithandayo ngendlela ekhuselekileyo kunye nentofontofo kunokwenza kube lula kakhulu kuwe ukuba uhlengahlengise kwimo yesiqhelo yakho entsha.