Indlela yokuThetha nabanye malunga ne-MS Diagnosis

Umxholo

• Iinkonzo kunye neengxaki zokuxelela abantu nge-MS
• Iinkonzo
• Bendlela
• Ukuxelela usapho
• Ukuxelela abantwana bakho
• Ukuxelela abahlobo
• Ukuxelela abaqeshi kunye nabalingane
• Ukuxela umhla wakho
• Yise kude

Ushwankathelo

Kuxhomekeke kuwe ukuba kwaye xa ufuna ukuxelela abanye malunga ne-multiple sclerosis (MS) diagnostic.

Gcina ukhumbula ukuba wonke umntu unokuphendula ngendlela eyahlukileyo kwiindaba, ke thatha ixesha lokucinga ngendlela oza kuthetha ngayo nosapho lwakho, izihlobo, abantwana kunye nabantu osebenza nabo.

Esi sikhokelo siza kukunceda uqonde ukuba ngubani omele uxelele, ubaxelele njani, kwaye ungalindela ntoni kule nkqubo.

Iinkonzo kunye neengxaki zokuxelela abantu nge-MS

Kuya kufuneka ulungiselele uluhlu olubanzi lwempendulo njengoko uxelela abantu malunga nesifo sakho esitsha. Cinga ngokulungileyo kunye nokubi kokuxelela umntu ngamnye kwangaphambili.

Xa ukulungele ukubaxelela, zama ukuphepha ukukhawulezisa ingxoxo. Banokuba nemibuzo emininzi, kwaye kubalulekile ukuba bashiye incoko banolwazi ngakumbi nge-MS kwaye kuthetha ntoni kuwe.

Iinkonzo

• Unokuziva ngathi ubunzima obukhulu bususiwe, kwaye uya kuziva ungaphaya kulawulo.
• Unokucela uncedo kubahlobo bakho kunye nosapho ngoku ukuba bayazi ukuba kuqhubeka ntoni.
• Uya kuba nethuba lokufundisa abantu nge-MS.
• Usapho kunye nabahlobo banokutsalwa ngokusondeleyo kunye xa befunda malunga nokuxilongwa kwe-MS.
• Ukuxelela abantu osebenza nabo kuya kubanceda baqonde ukuba kutheni usenokudinwa okanye ungakwazi ukusebenza.
• Abantu abanokuba noluvo lokuba kukho into engalunganga akuyi kufuneka ukuba baqashele. Ukubaxelela kuthintela ukuba nabo benze iingcinga ezingalunganga.

Bendlela

• Abanye abantu banokungakholelwa kuwe okanye bacinge ukuba ufuna ingqalelo.
• Abanye abantu banokukuphepha ngenxa yokuba abazi ukuba mabathini.
• Abanye abantu baya kuyithatha njengethuba lokubonelela ngeengcebiso ezingacelwanga okanye ukunyanzela unyango olungavunyelwanga okanye olunye unyango.
• Abantu ngoku banokubona ubuthathaka okanye ubuthathaka kwaye bayeke ukumemela kwizinto.

Ukuxelela usapho

Amalungu osapho asondeleyo, kubandakanya abazali bakho, iqabane, kunye nabantakwenu, banokucinga ukuba kukho into engalunganga. Kungcono ukubaxelela ngokukhawuleza kunokuba kamva.

Gcina ukhumbula ukuba banokothuka kwaye boyike ngenxa yakho ekuqaleni. Kungathatha ixesha elithile ukuba baqhubekeke nolwazi olutsha. Musa ukuthatha cwaka ngokungakhathali. Nje ukuba bagqibe kukothuka kokuqala, usapho lwakho luya kubakho ukukuxhasa ngoxilongo lwakho olutsha.

Ukuxelela abantwana bakho

Ukuba unabantwana, kunokuba nzima ukuqikelela ukuba baya kusabela njani kuxilongo lwakho. Ngesi sizathu, abanye abazali bakhetha ukulinda de abantwana babo babe badala kwaye babe badala ukuze baxoxe ngale meko.

Ngelixa isigqibo sikuwe, kubalulekile ukuba uqaphele ukuba uphando lubonisa ukuba abantwana abanolwazi oluncinci malunga nokuxilongwa kwe-MS yabazali babo banentlalontle ephantsi kunabo banolwazi.

Kuphononongo lwakutsha nje, abaphandi bagqiba kwelokuba ukuvumela oogqirha ukuba baxoxe ngqo nge-MS nabantwana bomguli kuyanceda ekwenzeni isiseko sayo yonke intsapho ukuze ikwazi ukumelana nale meko.

Kwaye xa abazali benolwazi malunga ne-MS, inokuhlakulela imeko apho abantwana bangoyiki ukubuza imibuzo.

Emva kokuba uxelele abantwana bakho malunga ne-MS yakho, ababhali bophando bacebisa ukuba abantwana bakho baqhubeke nokufumana ulwazi oluqhelekileyo kumboneleli wezempilo malunga nokufumanisa isifo.

Kananjalo abazali bayakhuthazwa ukuba baxoxe nge-MS nabantwana babo kwaye babazise kwiindawo zokuya kugqirha.

Gcina i-S'myelin, imagazini enobuntwana evela kwi-National MS Society, sesinye isixhobo esifanelekileyo. Ibandakanya imidlalo yokunxibelelana, amabali, udliwanondlebe, kunye nemisebenzi kwizihloko ezahlukeneyo ezinxulumene ne-MS.

Ukuxelela abahlobo

Akukho sidingo sokuxelela bonke obaqhelileyo kwisicatshulwa sobunzima. Cinga ngokuqala kubahlobo bakho abasondeleyo-abo ubathembileyo.

Zilungiselele iindlela ezahlukeneyo zokuphendula.

Uninzi lwabahlobo luya kuba nenkxaso emangalisayo kwaye banike uncedo kwangoko. Abanye banokufulathela kwaye badinga ixesha lokuqhubekeka nolwazi olutsha. Zama ukuba ungayithathi le nto. Bethelela kubo ukuba usengulaa mntu wawunguye phambi kokuba uxilongwe.

Unokufuna ukwalathisa abantu kwiiwebhusayithi zemfundo ukuze bafunde okungakumbi malunga nendlela i-MS enokukuchaphazela ngayo ngokuhamba kwexesha.

Ukuxelela abaqeshi kunye nabalingane

Ukuchaza ukuxilongwa kwe-MS kwindawo yakho yokusebenza akufuneki kube sisigqibo esingxamisekileyo. Kubalulekile ukulinganisa i-pros and cons of ukuxelela umqeshi wakho ngaphambi kokuba uthathe nantoni na.

Abantu abaninzi abane-MS bayaqhubeka nokusebenza ixesha elide nangona befumene isifo, ngelixa abanye bekhetha ukushiya umsebenzi kwangoko.

Oku kuxhomekeke kwizinto ezininzi, kubandakanya iminyaka yakho, umsebenzi wakho, kunye noxanduva lwakho lomsebenzi. Umzekelo, abantu abaqhuba abakhweli okanye izithuthi zothutho banokufuna ukuxelela umqeshi wabo kwakamsinya, ngakumbi ukuba iimpawu zabo ziya kuchaphazela ukhuseleko kunye nokusebenza komsebenzi.

Ngaphambi kokuba uxelele umqeshi wakho malunga noxilongo lwakho, phanda ngamalungelo akho phantsi koMthetho waseMelika okhubazekileyo. Kukho ukukhuselwa kwengqesho ngokusemthethweni okukhoyo ukukhusela ekubeni ungavunyelwa okanye ucalulwe ngenxa yokukhubazeka.

Amanye amanyathelo ekufuneka uwathathe abandakanya:

• Ukutsalela umnxeba kulwazi lwe-ADA, oluqhutywa liSebe lezoBulungisa, elinikezela ngolwazi malunga neemfuno ze-ADA
• Ukufunda malunga nezibonelelo zokukhubazeka kuLawulo loKhuseleko loLuntu (SSA)
• ukuqonda amalungelo akho ngeKhomishini ye-US Equal Employment Commission (i-EEOC)

Nje ukuba uwaqonde amalungelo akho, kusenokungafuneki ukuba uxelele umqeshi wakho ngoko nangoko ngaphandle kokuba uyafuna. Ukuba okwangoku ufumana ukubuyela umva, unokukhetha ukuqala ukusebenzisa iintsuku zakho zokugula okanye iintsuku zeholide.

Ukuchaza ulwazi lwakho lwezonyango kumqeshi wakho kuyafuneka kwiimeko ezithile. Umzekelo, kuya kufuneka uxelele umqeshi wakho ukuze asebenzise ikhefu lezonyango okanye indawo yokuhlala phantsi koMthetho weKhefu loSapho kunye nezoNyango (FMLA) kunye nezibonelelo zoMthetho waseMelika okhubazekileyo (ADA).

Kuya kufuneka uxelele umqeshi wakho kuphela ukuba unempilo kwaye unike inqaku likagqirha elichaza njalo. Akunyanzelekanga ukuba ubaxelele ngokungqalileyo ukuba une-MS.

Ukanti, ukubhengeza ngokupheleleyo kunokuba lithuba lokufundisa umqeshi wakho malunga ne-MS kwaye unokufumana inkxaso kunye noncedo olufunayo.

Ukuxela umhla wakho

Ukuxilongwa kwe-MS akufuneki kube sisihloko sencoko ngomhla wokuqala okanye kwanesibini. Nangona kunjalo, ukugcina iimfihlo akuncedi xa kufikwa ekukhuthazeni ubudlelwane obuqinileyo.

Xa izinto ziqala ukuba nzulu, kubalulekile ukuba wazise iqabane lakho elitsha malunga nokuchongwa kwakho. Unokufumanisa ukuba oko kukusondeza kunye.

Yise kude

Ukuxela abantu ebomini bakho malunga nokuxilongwa kwe-MS kunokuba nzima. Unokuba nexhala malunga nendlela abahlobo bakho abaya kusabela ngayo okanye woyike ukuveza isifo sakho kubantu osebenza nabo. Into oyithethayo naxa uxelela abantu ixhomekeke kuwe.

Kodwa ekugqibeleni, ukuxela ukuxilongwa kwakho kunokukunceda wazise abanye malunga ne-MS kwaye ukhokelele kulwalamano olomeleleyo, oluxhasayo nabantu obathandayo.