Inkqubela phambili kwiTekhnoloji kunye noNyango lwezixhobo zeSpinal Muscular Atrophy

Umxholo

• I-3-D exoskeletons eziprintiweyo
• Ulawulo lokusingqongileyo
• Izitulo ezinamavili
• Amacwecwe
• Isoftware yokujonga iliso
• Impahla yokunceda
• Ukuthatha

Spinal muscular atrophy (SMA) yimeko yemfuza. Ibangela imiba ngee-neurons zemoto eziqhagamshela ubuchopho kunye nentambo yomqolo. Ukuhamba, ukugijima, ukuhlala phezulu, ukuphefumla, kunye nokuginya kunokuba nzima kubantu abane-SMA. Abo bane-SMA bahlala befuna uluhlu lwezixhobo zonyango ezizodwa.

Okwangoku alukho unyango lwe-SMA. Kodwa kuye kwakho inkqubela phambili entsha kwezobuchwephesha. Oku kunokubonelela abantu abane-SMA ephuculweyo yokuhamba, unyango olungcono, kunye nomgangatho wobomi.

I-3-D exoskeletons eziprintiweyo

I-exoskeleton yokuqala yabantwana abane-SMA yaqala ukubakho ngo-2016. Ngoku kunokwenzeka ukuprinta iprototype enamacala amathathu esi sixhobo enkosi kwinkqubela phambili kumzi-mveliso we-3-D wokuprinta. Isixhobo sinokunceda abantwana bahambe okokuqala. Isebenzisa uhlengahlengiso, iinduku zenkxaso ende ezilingana nemilenze yomntwana kunye nomzimba. Ikwabandakanya uthotho lweenzwa ezinxibelelana nekhompyuter.

Ulawulo lokusingqongileyo

Abantu abane-SMA bahamba kancinci. Imisebenzi elula njengokucima izibane kunokuba nzima. Itekhnoloji yolawulo lokusingqongileyo ivumela abantu abane-SMA ukuba bathathe ulawulo olupheleleyo lwehlabathi labo. Bangakwazi ukulawula ngaphandle kwefowuni i-TV yabo, isixhobo somoya, izibane, izidlali zeDVD, izithethi, nokunye okuninzi. Into abayifunayo yithebhulethi okanye ikhompyuter.

Abanye abalawuli beza nemakrofoni ye-USB. Imiyalelo yelizwi inokuyenza isebenze inkonzo. Ingabandakanya i-alamu engxamisekileyo yokucela uncedo ngokucofa iqhosha.

Izitulo ezinamavili

Itekhnoloji yezihlalo ezinamavili ihambe indlela ende. Umsebenzi wengcali yomntwana wakho unokukwazi ukukuxelela malunga nokukhethwa kwesihlalo sabakhubazekile ezikhoyo. Omnye umzekelo yiWizzybug, isitulo esinamavili esinikwe amandla kubantwana abancinci. Isitulo esinamavili senzelwe ukusetyenziswa ngaphakathi nangaphandle. Isebenza ngolawulo olulula.

Iibhayisikile eziguqukayo lolunye ukhetho. Banika umntwana wakho amandla okunxibelelana noontanga babo kunye nokuzilolonga.

Amacwecwe

Iitafile zincinci kwaye kulula ukuzilawula kunee-laptops okanye ii-desktop ze-PC. Zenza ngokwezifiso umntwana wakho. Banokubandakanya ukuqondwa kwelizwi, abancedisi bedijithali (abanjengoSiri), kunye nezinye izinto. Ezi zinokucwangciswa kunye nokunyuka, ukutshintshwa, ii-styluses, iibhodi zokufikelela ezifikelelekayo, kunye nolawulo lweengalo eziphathwayo.

Izixhobo zezitulo ezinamavili zikuvumela ukuba ukhwele iselfowuni okanye ithebhulethi kwisitulo esinamavili.

Iitafile zinika umntwana wakho omncinci ukuba akwazi ukuphonononga, nokuba azinako ukuhamba kakhulu. Kubantwana abadala, ithebhulethi inokuthetha ukudlala isixhobo esinjengogubu kwibhendi yesikolo. Iiapps zezixhobo zomculo zinokudityaniswa ziye kwi-amp amp ukuze umntwana wakho afunde ukudlala.

Isoftware yokujonga iliso

Isoftware yokulandela iliso, njengetekhnoloji ephuhliswe e-EyeTwig, ibonelela ngolunye ukhetho ekunxibelelaneni nekhompyuter. Ichonga kwaye ilandelele intshukumo yentloko yomntwana wakho isebenzisa ikhamera ekwikhompyuter yakho okanye kwithebhulethi.

Impahla yokunceda

I-Orthoses eyakhelwe ngqo kwimpahla, njengePlayskin Lift, ayinabuninzi kunee-exoskeletons. Ukufakwa koomatshini ezingubeni kunceda abantwana abancinci ukuba baphakamise iingalo zabo. ifumene itekhnoloji ngexabiso eliphantsi, kulula ukuyisebenzisa, iyasebenza, kwaye ikhululekile. Iinguqulelo ezintsha neziphuculweyo zetekhnoloji ziya kuza kungekudala.

Ukuthatha

Izixhobo kunye namayeza amatsha anje ngala akaphuculi umgangatho wobomi wabo bane-SMA. Banikezela ukubanakho ukubanakho ukuba bhetyebhetye ekuthatheni inxaxheba kuzo zonke iinkalo zento abantu abanokuyithatha njengobomi “obuqhelekileyo”.

Uyilo lweexoskeleton, isoftware yokufikelela, kunye namayeza amatsha asisiqalo nje senkqubela phambili yetekhnoloji entsha.Lonke olu phuculo lunokunceda kunyango lwe-SMA kunye nezinye iingxaki zemisipha.

Nxibelelana neqela lokhathalelo lwe-SMA lendawo ukuze ufumane ulwazi malunga ne-inshurensi, iirenti, kunye noluhlu olungenzi nzuzo olunokuthi lukwazi ukunceda. Unokuqhagamshelana nenkampani ngokuthe ngqo ukuze ubone ukuba banikezela ngerente, ngezimali, okanye ngezaphulelo.