Ukuhamba neHemophilia A: Yintoni ekufuneka uyazi ngaphambi kokuba uye

Umxholo

• Qinisekisa ukuba unayo i-inshurensi yokuhamba
• Zisa into eyaneleyo
• Pakisha amayeza akho
• Musa ukulibala ileta yakho yokuhamba
• Jonga ngaphambi kokuba utsibe
• Fikelele
• Musa ukoyika ukucela uncedo
• Nxiba into yokulumkisa ngonyango
• Gcina umkhondo we-infusions
• Kwaye ke, wonwabe!

Igama lam ndinguRyanne, kwaye kwafunyaniswa ukuba ndine-hemophilia A xa ndineenyanga ezisixhenxe ubudala. Ndihambe kakhulu eCanada, ukuya kwinqanaba elincinci, eUnited States. Nazi ezinye zeengcebiso zam zokuhamba nge-hemophilia A.

Qinisekisa ukuba unayo i-inshurensi yokuhamba

Kuxhomekeka apho uya khona, kubalulekile ukuba ube neinshurensi yokuhamba egubungela iimeko zangaphambili. Abanye abantu bane-inshurensi esikolweni okanye kubaqeshi babo; ngamanye amaxesha amakhadi etyala anika i-inshurensi yokuhamba. Into ephambili kukuqinisekisa ukuba bayazigquma iimeko esele zikho, njenge-hemophilia A. Uhambo oluya esibhedlele kwilizwe langaphandle ngaphandle kwe-inshurensi kungabiza.

Zisa into eyaneleyo

Qiniseka ukuba uzisa into eyaneleyo kunye nohambo lwakho. Nokuba loluphi uhlobo lwezinto ozithathayo, kubalulekile ukuba ube unayo into oyifunayo ngelixa ungekho (kwaye ezinye zongezekile kwimeko kaxakeka). Oku kuthetha ukuba ukupakisha iinaliti ezaneleyo, ii-bandage kunye ne-swabs yotywala. Sonke siyazi ukuba imithwalo ngamanye amaxesha iyalahleka, ke kulungile ukuphatha le nto uhamba nayo ekuqhubekeni kwakho. Uninzi lweenqwelo moya zibiza imali eyongezelelweyo ngengxowa yokuphatha.

Pakisha amayeza akho

Qiniseka ukuba upakisha nawaphi na amayeza kagqirha owafunayo kwibhotile yonyango yasekuqaleni (nakwibhegi yakho yokuphatha!). Qiniseka ukuba upakisha ngokwaneleyo kulo lonke uhambo lwakho. Mna nomyeni wam siqhula ukuba ufuna ipaspoti yakho kunye namayeza akho okuhamba; unokutshintsha enye into xa kufuneka!

Musa ukulibala ileta yakho yokuhamba

Xa useluhambeni, kuhlala kulungile ukuzisa incwadi yokuhamba ebhalwe ngugqirha wakho. Ileta inokubandakanya ulwazi malunga nezinto ezixineneyo oziphetheyo, nawaphi na amayeza kagqirha owafunayo, kunye nesicwangciso sonyango kwimeko apho kuya kufuneka uye esibhedlele.

Jonga ngaphambi kokuba utsibe

Umgaqo olungileyo wesithupha kukujonga ukuba indawo oya kuyo ineziko lonyango lwe-hemophilia kwindawo leyo. Ukuba kunjalo, ungaqhagamshelana neklinikhi kwaye ubanike iintloko ukuba uceba uhambo oluya esixekweni (okanye kwisixeko esikufutshane). Unokufumana uluhlu lwamaziko onyango lwe-hemophilia kwi-intanethi.

Fikelele

Uluntu lwe-hemophilia, kumava am, ludla ngokusondelana kakhulu kwaye luncedo. Ngokwesiqhelo, kukho amaqela enkxaso kwizixeko ezikhulu onokufikelela kuzo kwaye uqhagamshele kunye nohambo lwakho. Banokukunceda uhambe kwindawo yakho entsha. Banokude bacebise nangomtsalane wendawo!

Musa ukoyika ukucela uncedo

Enoba uhamba wedwa okanye nomntu omthandayo, ungoyiki ukucela uncedo. Ukucela uncedo ngemithwalo enzima kunokuba ngumahluko phakathi kokonwabela iholide yakho, okanye ukuchitha ebhedini wopha. Uninzi lweenqwelo moya zibonelela ngezihlalo ezinamavili kunye noncedo lwesango. Unokucela indawo eyongezelelweyo yomlenze okanye ucele indawo yokuhlala ekhethekileyo ukuba ubiza inqwelo moya ngaphambi kwexesha.

Nxiba into yokulumkisa ngonyango

Nabani na onesifo esinganyangekiyo kufuneka anxibe isacholo sonyango okanye isacholo somqala ngalo lonke ixesha (le yingcebiso eluncedo naxa ungahambi). Kule minyaka idlulileyo, iinkampani ezininzi ziphume kunye nokukhetha okunesitayile ukutshatisa ubuntu bakho kunye nendlela ophila ngayo.

Gcina umkhondo we-infusions

Qiniseka ukuba ugcina irekhodi elungileyo lokumiliselwa kwakho xa useluhambeni. Ngale ndlela uyokwazi ukuba ungakanani na into oyithathileyo. Unokuxoxa ngazo naziphi na iinkxalabo nge-hematologist yakho xa ubuyela ekhaya.

Kwaye ke, wonwabe!

Ukuba uzilungiselele ngokwaneleyo, ukuhamba kuya kuba mnandi kwaye kuyonwabisa (nokuba unesifo segazi). Zama ukungavumeli uxinzelelo lwezinto ezingaziwayo ukuba lukuyekise ukonwaba nohambo lwakho.

URyanne usebenza njengombhali ozimeleyo eCalgary, Alberta, Canada. Unebhlog yakhe ezinikele ekwaziseni abantu ababhinqileyo abanengxaki yokopha ebizwa ngokuba yiHemophilia yeyabaNtombazana. Ukwayivolontiya elikhutheleyo kakhulu kuluntu lwehemophilia.