I-Myalgic encephalomyelitis / isifo sokudinwa okungapheliyo (ME / CFS)

I-Myalgic encephalomyelitis / isifo sokudinwa okungapheliyo (ME / CFS) sisifo sexesha elide esichaphazela iinkqubo ezininzi zomzimba. Abantu abanesi sigulo abakwazi ukwenza imisebenzi yabo yesiqhelo. Ngamanye amaxesha, banokuhlala ebhedini. Le meko ikwabizwa ngokuba sisifo esinganyamezeliyo esisifo (SEID).

Olunye uphawu oluqhelekileyo kukudinwa kakhulu. Ayibi bhetele xa uphumle kwaye ayibangelwa ngqo zezinye iingxaki zonyango. Ezinye iimpawu zinokubandakanya iingxaki ngokucinga nasekugxileni, iintlungu, kunye nesiyezi.

Isizathu ngqo se-ME / CFS asaziwa. Isenokuba nesizathu esingaphaya kwesinye. Umzekelo, oonobangela ababini okanye nangaphezulu abanokubakho basebenze kunye ukuqala isifo.

Abaphandi bajonge kwezi zinto zinokubangela:

• Usulelo Malunga nabantu aba-1 kwabali-10 abaphuhlisa usulelo oluthile, njenge-Epstein-Barr virus kunye ne-Q fever, qhubeka nokuphuhlisa i-ME / CFS. Olunye usulelo luye lwafundwa, kodwa akukho namnye unobangela ofunyenweyo.
• Utshintsho kwinkqubo yomzimba yokuzikhusela -I-ME / CFS inokubangelwa lutshintsho kwindlela amajoni omzimba omntu aphendula ngayo kuxinzelelo okanye ukugula.
• Uxinzelelo lwengqondo okanye lomzimba -Abantu abaninzi abane-ME / CFS bebephantsi koxinzelelo lwengqondo okanye lomzimba ngaphambi kokuba bagule.
• Imveliso yamandla -Indlela iiseli emzimbeni ezifumana ngayo amandla zahlukile kubantu abane-ME / CFS kunabantu abangenayo le meko. Akucaci ukuba oku kunxulunyaniswa njani nokuphuhlisa ukugula.

Imfuza okanye imeko yokusingqongileyo inokudlala indima kuphuhliso lwe-ME / CFS:

• Nabani na onokufumana i-ME / CFS.
• Ngelixa lixhaphakileyo ebantwini abaphakathi kweminyaka engama-40 nama-60 ubudala, esi sifo sichaphazela abantwana, abakwishumi elivisayo kunye nabantu abadala bayo yonke iminyaka.
• Phakathi kwabantu abadala, abafazi bayachaphazeleka rhoqo kunamadoda.
• Abantu abamhlophe bafunyaniswa ngaphezulu kwezinye iintlanga kunye nobuhlanga. Kodwa abantu abaninzi abane-ME / CFS abafunyanwanga, ngakumbi phakathi kwabancinci.

Zintathu izinto eziphambili, okanye "ezingundoqo," iimpawu kubantu abane-ME / CFS:

• Ukudinwa okunzulu
• Ukwanda kweempawu emva kokusebenza komzimba okanye kwengqondo
• Iingxaki zokulala

Abantu abane-ME / CFS banokudinwa okungapheliyo kwaye okunzulu kwaye abakwazi ukwenza imisebenzi abebekwazi ukuyenza ngaphambi kokugula. Ukudinwa okugqithisileyo yile:

• Entsha
• Ihlala okungenani iinyanga ezi-6
• Ayibangelwa yimisebenzi engaqhelekanga okanye enzulu
• Andikhululekanga bubuthongo okanye ukuphumla ebhedini
• Kubaluleke ngokwaneleyo ukukugcina ungathathi nxaxheba kwimisebenzi ethile

Iimpawu ze-ME / CFS zinokuba mandundu emva kokusebenza komzimba okanye kwengqondo. Oku kubizwa ngokuba yi-post-exertional malaise (PEM), ekwabizwa ngokuba yingozi, ukubuyela umva, okanye ukuwa.

• Umzekelo, unokufumana ingozi emva kokuthenga kwivenkile kwaye kufuneka uthathe isihlwathi ngaphambi kokuqhuba ugoduke. Okanye ungadinga umntu oza kukulanda.
• Akukho ndlela yokuqikelela ukuba yintoni eya kubangela ingozi okanye wazi ukuba kuya kuthatha ixesha elingakanani ukubuyela kwimeko yesiqhelo. Kungathatha iintsuku, iiveki, okanye ixesha elide ukubuyela kwimeko yesiqhelo.

Imiba yokulala inokubandakanya iingxaki zokuwa okanye zokulala. Ukuphumla ubusuku bonke akuphelisi ukudinwa kunye nezinye iimpawu.

Abantu abane-ME / CFS bahlala befumana ubuncinci kwezi mpawu zilandelayo:

• Ukulibala, iingxaki zoxinaniso, iingxaki zokulandela iinkcukacha (zikwabizwa ngokuba "yingqondo yengqondo")
• Iimpawu eziba mandundu xa umile okanye uhleli nkqo. Oku kubizwa ngokuba kukunganyamezelani komzimba. Unokuziva unesiyezi, unentloko elula, okanye utyhafile xa umile okanye uhleli. Kananjalo unokuba notshintsho kumbono okanye ubone amabala.

Ezinye iimpawu eziqhelekileyo zibandakanya:

• Intlungu edibeneyo ngaphandle kokudumba okanye ubomvu, iintlungu zemisipha, ubuthathaka bemisipha kuyo yonke indawo, okanye iintloko zentloko ezahlukileyo kwezo wawunazo ngaphambili
• Umqala obuhlungu, ulusu nkovu entanyeni okanye phantsi kweengalo, ukugodola nokubila ebusuku
• Iingxaki zokugaya ukutya, ezinje ngesifo sengqondo samathumbu
• Umzimba
• Ubuntununtunu kwingxolo, ukutya, ivumba okanye imichiza

Amaziko oLawulo lweZifo (i-CDC) achaza i-ME / CFS njengengxaki eyahlukileyo eneempawu ezithile kunye neempawu zomzimba. Ukuxilongwa kusekelwe ekugwebeni ezinye izizathu ezinokwenzeka.

Umboneleli wakho wezempilo uya kuzama ukulawula ezinye izinto ezinokubangela ukudinwa, kubandakanya:

• Ukuxhomekeka kwiziyobisi
• Ukuphazamiseka komzimba okanye ukungasebenzi komzimba
• Usulelo
• Izifo zemisipha okanye zemithambo-luvo (ezinjenge-multiple sclerosis)
• Izifo ze-Endocrine (ezinje ngehypothyroidism)
• Ezinye izifo (njengentliziyo, izintso, okanye izifo zesibindi)
• Izifo zengqondo okanye ezengqondo, ngakumbi uxinzelelo
• Amathumba

Ukuxilongwa kwe-ME / CFS kufuneka kubandakanya:

• Ukungabikho kwezinye izinto ezibangela ukudinwa ixesha elide (okungapheliyo)
• Ubuncinci beempawu ezithile ze-ME / CFS
• Ukudinwa okugqithisileyo, ixesha elide

Akukho luvavanyo luthile lokuqinisekisa ukuxilongwa kwe-ME / CFS. Nangona kunjalo, kuye kwakho iingxelo zabantu abane-ME / CFS abaneziphumo ezingaqhelekanga kwezi mvavanyo zilandelayo:

• I-Brain MRI
• Inani leeseli ezimhlophe

Okwangoku alukho unyango lwe-ME / CFS. Injongo yonyango kukhulula iimpawu.

Unyango lubandakanya ukudityaniswa koku kulandelayo:

• Iindlela zokulawula ukulala
• Amayeza okunciphisa iintlungu, ukungonwabi kunye nomkhuhlane
• Amayeza okunyanga unxunguphalo (iziyobisi ezichasene noxinzelelo)
• Amayeza anyanga uxinzelelo (iziyobisi ezichasayo)
• Ukutya okusempilweni

Amanye amachiza anokubangela ukusabela okanye iziphumo ebezingalindelekanga ezibi kakhulu kuneempawu zesi sifo.

Abantu abane-ME / CFS bayakhuthazwa ukuba baqhubeke nobomi ekuhlaleni. Ukuzilolonga emzimbeni kunokuba luncedo. Iqela lakho lokhathalelo lwempilo luyakunceda ubone ukuba ungakanani umsebenzi onokuwenza, kunye nendlela yokuwukhulisa kancinci umsebenzi wakho. Iingcebiso zibandakanya:

• Kuphephe ukwenza kakhulu kwiintsuku xa uziva udiniwe
• Ukulinganisela ixesha lakho phakathi komsebenzi, ukuphumla nokulala
• Yahlula imisebenzi emikhulu ibe mincinci, ilawuleke ngakumbi
• Ukusasaza imisebenzi yakho enzima ngeveki

Ukuphumla kunye neendlela zokunciphisa uxinzelelo kunokunceda ukulawula iintlungu ezingapheliyo (zexesha elide) kunye nokudinwa. Azisetyenziswanga njengonyango oluphambili lwe-ME / CFS. Iindlela zokuphumla zibandakanya:

• Ukubuyela umva
• Ukuzilolonga ngokuphefumla nzulu
• Unyango
• Unyango lokuphulula
• Ukucamngca
• Iindlela zokuphumla kwezihlunu
• Yoga

Kwakhona kunokuba luncedo ekusebenzeni nonyango lokukunceda ujongane neemvakalelo zakho kunye nefuthe lokugula ebomini bakho.

Iindlela zamayeza amatsha ziyaphandwa.

Abanye abantu banokuxhamla ngokuthatha inxaxheba kwiqela lenkxaso le-ME / CFS.

Imbonakalo yexesha elide yabantu abane-ME / CFS iyahluka. Kunzima ukuqikelela ukuba iimpawu ziqala nini. Abanye abantu baphola ngokupheleleyo emva kweenyanga ezintandathu ukuya kunyaka.

Phantse umntu om-1 kwaba-4 abane-ME / CFS bakhubazeke kakhulu kangangokuba abanakuphuma ebhedini okanye bashiye amakhaya abo. Iimpawu zinokuza zihambe zijikeleze, kwaye nokuba abantu baziva bebhetele, banokuphinda babuye umva ngenxa yesithintelo okanye isizathu esingaziwayo.

Abanye abantu abaze bazive ngathi benzile ngaphambi kokuba bahlakulele i-ME / CFS. Izifundo zibonisa ukuba kunokwenzeka ukuba ube ngcono ukuba ufumana ukubuyisela kwimeko yesiqhelo.

Iingxaki zinokubandakanya:

• Uxinzelelo
• Ukungakwazi ukuthatha inxaxheba emsebenzini nakwezentlalo, ezinokukhokelela ekubeni ube wedwa
• Iziphumo ebezingalindelekanga ezivela kumayeza okanye kunyango

Tsalela umnikezeli wakho ukuba unokudinwa okukhulu, kunye okanye ngaphandle kwezinye iimpawu zesi sifo. Ezinye iingxaki ezinzulu kunokubangela iimpawu ezifanayo kwaye kufuneka zikhutshwe ngaphandle.

I-CFS; Ukukhathala - okungapheliyo; Ukungasebenzi kakuhle komzimba; I-encephalomyelitis ye-Myalgic (ME); I-Myalgic encephalopathy fatigue syndrome engapheliyo (ME-CFS); Inkqubo yesifo sokunyanzeliswa kwesifo (SEID)

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