Izinto eziluncedo zokwazi emva kokufumana isifo se-Ulcerative Colitis (UC)

Umxholo

• Kwakungekho nto ndinokuba neentloni ngayo
• Kwakungekho mfuneko yokuba ndiyenze ndedwa
• Ndingazizama ezi mveliso zokulawula iimpawu
• Calmoseptine amafutha
• Ukucoca izinto ezinokutsha
• Iphepha elongezelelekileyo lephepha langasese
• Iiphedi zokufudumeza
• Iti kunye nesuphu
• Isongezo siyanyikima
• Ngendikhuthaze ngakumbi kum
• Ndingaphila ubomi obonwabileyo nobonwabisayo
• Ukuthatha

Ndaye kwinqanaba lokuqala lobomi bam xa kwafunyaniswa ukuba ndine-ulcerative colitis (UC). Ndandisandula ukuthenga indlu yokuqala, kwaye ndandisebenza umsebenzi omkhulu. Ndandibonwabela ubomi njengento encinci engama-20. Andizange ndazi mntu nge-UC, kwaye andizange ndiyiqonde kakuhle ukuba yintoni. Ukuxilongwa kwandothusa kakhulu. Liza kujongeka njani ikamva lam?

Ukufumana isifo se-UC kunokoyikisa kwaye kuyothusa. Xa ndijonga ngasemva, zikhona izinto endinqwenela ukuba ndizazile ngaphambi kokuqala uhambo lwam kunye nemeko. Ndiyathemba ukuba ungafunda kumava am kwaye usebenzise izifundo endizifundileyo njengesikhokelo njengoko uqala uhambo lwakho ne-UC.

Kwakungekho nto ndinokuba neentloni ngayo

Ndafihla ukuxilongwa kwam de ndagula kakhulu ukufihla kwakhona. Ndandixheleke kakhulu ukuxelela abantu ukuba ndine-UC - "isifo sembumba." Ndayigcina iyimfihlo kuye wonke umntu ukuzisindisa ihlazo.

Kodwa ndandingenanto ndinokuba neentloni ngayo. Ndayeka uloyiko lwabantu lokugqitywa sisifo sam lungene endleleni yokufumana unyango. Ukwenza njalo kube nomonakalo omkhulu emzimbeni wam ekuhambeni kwexesha.

Iimpawu zesifo sakho aziphikisi ubuzaza baso. Kuyaqondakala ukuba uziva ungakhululekanga ukuvula malunga nento yobuqu enjalo, kodwa ukufundisa abanye yeyona ndlela ilungileyo yokwaphula ibala. Ukuba abantu obathandayo bayazi ukuba yintoni i-UC ngokwenene, baya kuba nakho ukukunika inkxaso oyifunayo.

Ukutyhala kwiindawo ezinzima zokuthetha nge-UC kukuvumela ukuba ufumane ukhathalelo olungcono kubantu obathandayo nakugqirha wakho.

Kwakungekho mfuneko yokuba ndiyenze ndedwa

Ukufihla isifo sam ixesha elide kundithintele ekufumaneni inkxaso endiyifunayo. Kwaye nasemva kokuba ndibaxelele abantu endibathandayo malunga ne-UC yam, ndanyanzelisa ukuba ndizikhathalele kwaye ndiye ndedwa kwindibano zam. Bendingafuni kuthwalisa nabani na ngemeko yam.

Abahlobo bakho kunye nosapho bafuna ukukunceda. Banike ithuba lokuphucula ubomi bakho, nokuba kukancinci. Ukuba awukhululekanga ukuthetha nabantu obathandayo malunga nokugula kwakho, joyina iqela lenkxaso le-UC. Uluntu lwase-UC lusebenza kakhulu, kwaye unokufumana inkxaso kwi-intanethi.

Ndigcine isifo sam siyimfihlo ixesha elide. Ndaziva ndililolo, ndililolo, kwaye ndilahlekelwe yindlela yokufumana uncedo. Kodwa akufuneki uyenze loo mpazamo. Akukho mntu kufuneka aphathe i-UC yabo bodwa.

Ndingazizama ezi mveliso zokulawula iimpawu

I-UC ayikho ipikniki. Kodwa zimbalwa iimveliso ezingathengiswayo eziza kwenza ubomi bakho bube lula kwaye iimpundu zakho zonwabe.

Calmoseptine amafutha

Imfihlo egcinwe kakuhle kuluntu lwase-UC ngamafutha eCalmoseptine. Yincanca epinki enento epholileyo. Ungayisebenzisa emva kokusebenzisa indlu yangasese. Inceda ngokutshiswa kunye nokucaphuka okunokwenzeka emva kohambo lokuhlambela.

Ukucoca izinto ezinokutsha

Hamba uye kuzifumanela istokhwe esikhulu sezinto onokuzisula ezinokutsha ngoku! Ukuba usebenzisa igumbi lokuhlambela rhoqo, nelona phepha lincinci lendlu yangasese liya kuqala ukucaphukisa ulusu lwakho. Ukusula okugubungeleyo kukhululeke ngakumbi kulusu lwakho. Ngokwam, ndicinga ukuba bakushiya uziva ucocekile!

Iphepha elongezelelekileyo lephepha langasese

Uninzi lweemveliso zinokhetho olufanelekileyo kwiphepha langasese. Ufuna iphepha lendlu yangasese elithambileyo onokulifumana ukuthintela ukucaphuka. Kufanelekile imali eyongezelelweyo.

Iiphedi zokufudumeza

Iphedi yokufudumeza isebenza ngokumangalisayo xa ucofa okanye ukuba usebenzisa igumbi lokuhlambela kakhulu. Fumana enye ngesigqubuthelo esinokuhlanjwa, iisetingi ezahlukeneyo zobushushu, kunye nokuvala ngokuzenzekelayo. Musa ukulibala xa useluhambeni!

Iti kunye nesuphu

Ngeentsuku udinga iphedi yokufudumeza, unayo iti eshushu kunye nesuphu. Oku kunokubonelela ngoncedo kwaye kuncede izihlunu zakho ziphumle ngokukufudumeza ngaphakathi.

Isongezo siyanyikima

Ngezinye iintsuku ukutya ukutya okuqinileyo kuya kuba buhlungu okanye kungathandeki. Oko akuthethi ukuba kufuneka uphume ngaphandle kokutya ngokupheleleyo. Ukuba nesongezo sokugungqa esandleni kuya kukunika izakhamzimba kunye namandla xa ungenako ukutya esiswini.

Ngendikhuthaze ngakumbi kum

Emva koxilongo lwam lwe-UC, ndathembela kumazwi ogqirha wam ngokungathi ayisibhalo esingcwele kwaye andibuzanga nayiphi na imibuzo. Ndenza ngokomyalelo wam. Nangona kunjalo, ukufumana ilungelo elifanelekileyo kugqirha kunokuba yinto ekhohlisayo njengokufumana amayeza afanelekileyo. Into esebenzela omnye umntu inokungasebenzi komnye.

Akukho nto iphosakeleyo ngokubuza ugqirha wakho imibuzo okanye ukufuna uluvo lwesibini. Ukuba uziva ngathi ugqirha wakho akakumameli, fumana umntu okwenzayo. Ukuba uziva ngathi ugqirha wakho ukunyanga njengenombolo yecala, fumana umntu okuphatha kakuhle.

Thatha amanqaku ngexesha lokuqeshwa kwakho kwaye ungoyiki ukubuza imibuzo. Wena unguye kwisitulo somqhubi. Ukufumana unyango olufunayo, kuya kufuneka uqonde isigulo sakho kunye nokukhetha kwakho.

Ndingaphila ubomi obonwabileyo nobonwabisayo

Kwinqanaba eliphantsi kakhulu lohambo lwam lwe-UC, ndandimfanyekiswe yintlungu kunye nokukhathazeka. Khange ndibone ukuba ndingaphinda ndonwabe njani. Kwakubonakala ngathi ndiya ndisiba mandundu. Ndinqwenela ukuba nomntu ebendixelela ukuba kungangcono.

Akukho mntu unokuthi okanye nini okanye nini, kodwa iimpawu zakho ziya kuphucula. Uya kuphinda ubuye umgangatho wobomi bakho. Ndiyazi ukuba kunokuba nzima ukuhlala unethemba ngamanye amaxesha, kodwa uya kuba sempilweni- kwaye wonwabe- kwakhona.

Kuya kufuneka uyamkele into yokuba ezinye iimeko zingaphaya kolawulo lwakho. Akukho nanye kwezi ziziphoso zakho. Thatha usuku lube lunye ngexesha, qengqa ngamanqindi, kwaye ujonge kuphela kwikamva.

Ukuthatha

Zininzi izinto endinqwenela ukuba ngendazazile xa kwafunyaniswa ukuba ndine-UC. Izinto endingazange ndizicinge ukuba zenzeka ngesiquphe zaba yinto eqhelekileyo ebomini bam. Kwakothusa ekuqaleni, kodwa ndakwazi ukuziqhelanisa kwaye nawe uza kwazi. Yinkqubo yokufunda. Ekuhambeni kwexesha, uya kufumanisa ukuba uyilawula njani imeko yakho. Kukho izixhobo ezingapheliyo kwi-intanethi kwaye uninzi lwabameli bezigulana abanokuthanda ukukunceda.

UJackie Zimmerman ngumcebisi wentengiso yedijithali ojolise kwimibutho engenzi nzuzo kunye nemibutho enxulumene nezempilo. Kubomi bangaphambili wayesebenza njengomphathi wophawu kunye nengcali kwezonxibelelwano. Kodwa ngo-2018, ekugqibeleni wangenelela kwaye waqala ukuzisebenzela eJackieZimmerman.co. Ngomsebenzi wakhe kule ndawo, unethemba lokuqhubeka nokusebenza nemibutho emikhulu kunye nokukhuthaza abaguli. Waqala ukubhala malunga nokuhlala ne-multiple sclerosis (MS) kunye nesifo sokukrala kwamathumbu (IBD) kwakamsinya emva kokuxilongwa kwakhe njengendlela yokudibanisa abanye. Akazange aphuphe ukuba iya kuguquka ibe ngumsebenzi. UJackie usebenze iminyaka eyi-12 kwaye ubenelungelo lokumela uluntu lwe-MS kunye ne-IBD kwiinkomfa ezahlukeneyo, iintetho eziphambili kunye neengxoxo zephaneli. Ngexesha lakhe lokuphumla (leliphi ixesha lasimahla?!) Uye afunqule amantshontsho akhe amabini okuhlangula kunye nomyeni wakhe uAdam. Ubuye adlale i-roller derby.