Kutheni Ndingaxolisi Ukuba Ndifumana Ukwazi Nge-Autism Kuyakhathaza

Umxholo

• Ukuqonda kakhulu
• Iitroli eziphantsi kwebhulorho
• Ulwazi oluncinci kakhulu
• Ileyibhile ngokwayo
• Ukudinwa kwephulo
• Ukushumayela kwikwayara

Ukuba ufana nam, iNyanga yoKwazisa nge-Autism ngenene inyanga nenyanga.

Bendibhiyozela inyanga yokwazisa nge-autism ubuncinci iinyanga ezili-132 zilandelelana, kwaye ndibala. Intombi yam encinci, uLily, ine-autism. Uyabona kwimfundo yam eqhubekayo ye-autism kunye nokwazisa.

I-Autism ifuthe ubomi bam, kunye nentombi yam, kunye nehlabathi lam, kwaye ngenxa yoko, ndifuna abantu abenza umahluko kubomi bethu ukuba "bazi." Ngale nto ndicinga ukuba ndithetha ukuba ubuncinci ukuba ndibenoluvo ngokubanzi lwento ebandakanyekileyo. Ndifuna abaphenduli bokuqala ebumelwaneni bam ukuba baqonde ukuba kutheni bengangafumani mpendulo kwintombi yam ukuba bayambuza igama kunye nobudala. Ndifuna amapolisa aqonde ukuba kutheni enokubaleka kubo. Ndifuna ukuba ootitshala babe nomonde xa isimilo sakhe sinxibelelana nengxaki enzulu kunokungafuni nje ukuthobela.

Autism, njengayo yonke enye into, ngumcimbi ontsonkothileyo- kunye nezopolitiko. Kwaye njengayo yonke enye into, kuya kusiba nzima ngakumbi xa ufunda ngayo. Ukukunceda uxhase, okanye ubuncinci ungabi nabungozi, kubantu obaziyo (kwaye une-autism, amathuba okuba ubazi), ulwazi lwe-autism lubaluleke kakhulu.

Ubuncinane kwinqanaba elithile. Kungenxa yokuba, ngamanye amaxesha, ukuqonda i-autism kunokuba yinto embi.

Ukuqonda kakhulu

Ubunzima kunye nezopolitiko ze-autism kunokuba nzima kakhulu kuphando oluninzi. Ndiziva ndonganyelwe yimibandela ethile yokubhala eli nqaku. Okukhona usazi ukuba uya kuba yiyo yonke imiba, kokukhona kuya kusiba nzima kuwe ukuba uthathe inyathelo ngaphandle koloyiko lokucaphukisa umntu ozama ukuba lihlakani kuye.

Ngaba ndiyagonya, okanye andenzi njalo? Ngaba ndithi "autistic" okanye "umntwana one-autism"? "Unyango"? "Yamkela"? “Yintsikelelo”? "Isiqalekiso"? Okukhona usiba nzulu, kokukhona kuya kusiba nzima. Oku kudibana kakuhle kwindawo yam elandelayo, eyile:

Iitroli eziphantsi kwebhulorho

Uninzi lwabazali kunye ne-autistic bakhetha u-Epreli njengenyanga yokugxila ngokupheleleyo kwi-autism njengonobangela. Sithumela amanqaku anxulumene ne-autism imihla ngemihla, kwaye sinxibelelana nabanye esikufumanayo kuyonwabisa, kubalulekile, okanye kuyachukumisa.

Kodwa okukhona ubhala malunga nobunzima kunye nezopolitiko, kunye neenzuzo kunye neengozi, kokukhona uya kuvelisa ukungavisisani. Kungenxa yokuba i-autism inzima kakhulu ukuba ungakholisa wonke umntu, kwaye abanye abantu ongabathandiyo bayangakholiseki.

Okukhona uposa, kokukhona iitroll zisebenza ngakumbi. Inokutsala ngokweemvakalelo nangokwengqondo. Ufuna ukukhupha igama, kodwa abavumelani namagama akho okanye indlela oyisebenzisa ngayo.

I-Autism inokufuna umonde kunye nokuqina. Ndiyekile ukubhloga malunga ne-autism mhlawumbi unyaka ngenxa yokuba ndifumene iimpikiswano kunye nokugxekwa okunika amandla. Ndiphelise uvuyo lwam, kwaye bendidinga la mandla aqinisekileyo ukuze ndibengutata olungileyo.

Ulwazi oluncinci kakhulu

Umndilili wakho kaJoe unendawo yokujonga eyoneleyo yokugaya inye okanye amabini kumawaka amanqaku apapashiweyo malunga ne-autism. Ngenxa yoko, kusoloko kukho umngcipheko wokuba inye into azilungiselela yona yinto engalunganga. Ndikhe ndanomntu onika izimvo kwibhlog yam ethi i-autism ibangelwe "ziintaka" kwaye kufuneka nje ukuba batshiswe ngejusi yeorenji ukuze bacoce le nkqubo. Uphilisiwe!

(Ayisiyonto le.)

Akukho zininzi zezihloko zokuvumelana kwi-autism, ke ukunyanga naliphi na inqaku elinye, iposti yebhlog, okanye ibali leendaba njengevangeli ye-autism (ewe, ngaphandle kwale, ngokucacileyo) kunokuba kubi kunokungafundi kwanto kwaphela.

Ileyibhile ngokwayo

Ndakhe ndafunda umsebenzi womphandi owathi eyona ngxaki inkulu ejongene nayo yayilebhile yakhe. Autism luphawu lweemeko, kodwa zonke ziyaxutywa kunye phantsi kwelebhile enye.

Oko kuthetha ukuba abantu bajonge iMvula yoMntu kwaye bacinga ukuba banokunika iingcebiso eziluncedo. Kuthetha ukuba iinkampani zinokuvelisa amayeza aziphucula iimpawu komnye umntwana one-autism, kodwa enokwandisa iimpawu zomnye umntu. Ilebhile ye-autism idala ukudideka apho sele kukho ukudideka.

Usenokuba uvile ngelizwi elithi, "Ukuba udibene nomntwana omnye one-autism, udibene nomntwana OMNYE one-autism." Wonke umntwana wahlukile kwaye ngekhe uvelise amava omnye umntwana komnye ngenxa yokuba babelana ngelebheli.

Ukudinwa kwephulo

Yintoni uninzi lwabantu abasebenza ukukhuthaza ulwazi lwe-autism olufunwayo kukuba ngaphambili "bangazi" ukuba babe nolwazi. Kodwa into entle kakhulu inokuthetha ukuba eminye yemiyalezo ebaluleke kakhulu iyarhaxwa ngumthamo omkhulu. Emva kwenyanga epheleleyo yokuqonda i-autism, uninzi lwabantu abanobunewunewu banokukuxelela, "Andifuni ukuva enye into nge-autism ubomi bam bonke."

Ukushumayela kwikwayara

Ngaphambi kokuba kufunyanwe ukuba ndimncinanana, ndandiwafundile amanqaku anguziro ngesihloko se-autism. Uninzi lwabantu olufunda izithuba zokwazisa nge-autism ayijoliswanga ngabaphulaphuli. Baphila ubomi. Bangabantu abane-autism okanye abanonopheli babo. Ngelixa kuthuthuzela ukwazi ukuba umntu ufunda izinto zakho, kunzima ukwenza umdla malunga nemiba engachaphazeli ubomi babaphulaphuli ekujongwe kubo (ngokokwazi kwabo, ubuncinci).

Kwabo bafuna ukuba uqaphele - ukuze abantwana bethu baphile bonwabile, ubomi obunempilo - ukusasaza "ukuqonda i-autism" kuya kuhlala kuyinto. Kwaye kuyinto entle. Kakhulu.

Ndinyanisekile ngaphezu kokuba ndonwabile ngokunyamezela imibuzo eneenjongo ezintle okanye iingcebiso, kuba oko kuthetha ukuba uyakhathala ngokwaneleyo malunga nentombi yam okanye yam ukuba ubuncinci ufunde inqaku, ubukele ividiyo, okanye wabelane nge-infographic. Ulwazi alunakudibanisa ngokugqibeleleyo namava am, kodwa lubetha isihogo ngenxa yokujonga ngomsindo kunye nokuhlwaya okugwebayo kwindawo yemidlalo exineneyo njengoko umntwana wakho enyibilika (ewe, bendikho).

Ke, sasaza ulwazi nge-autism kule nyanga. Kodwa yenza usazi ukuba ungatsha. Kwenze ukwazi ukuba ungafikeleli kubantu ekujoliswe kubo. Yenze usazi ukuba uyakuyibambela esihogweni esincinci komnye umntu ngelinye ixesha. Kwenze ukwazi ukuba ayisiyiyo yonke into oyiposayo eya kusebenza kumava omnye umntu. Kwenze ngentembeko.

UJim Walter ngumbhali we Ibhlog nje yeLil, Apho ebalisa ngeziganeko zakhe njengotata ongatshatanga weentombi ezimbini, enye yazo ine-autism. Ungamlandela kwi-Twitter apha @iamfanlalisa.