Ngaphandle koLwazi: Iindlela ezi-5 zokuNceda uLuntu loMhlaza weSifuba

Umxholo

• 1. Yenza igalelo lemali ku uphando
• 2. Xhasa umqhubi wesifo somhlaza osweleyo
• 3. Imfundo nenkxaso (yengingqi okanye yesizwe)
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• Amathuba okugaya inkxaso
• 4. Yabelana ngexesha lakho kunye nobuchule kunye nomhlaza womphakathi
• 5. Livolontiya!

Le Nyanga yokuQatshelwa koMhlaza weSifuba, sijonge kubafazi abasemva kwerebhoni. Joyina incoko kwiCancer Brealt Healthline -app yasimahla yabantu abaphila nomhlaza wamabele.

Khuphela I-APP APHA

U-Okthobha yinyanga enzima kum. Uninzi lwamava omhlaza kunye nenyani luye lwaphazamiseka kwaye lwachazwa gwenxa ngamaphulo angapheliyo agxile ekwaziseni nakwimpahla epinki.

Ukuqaqanjiswa njengemishini kwakukukhulu kwiminyaka engama-20 eyadlulayo, kodwa ulwazi aluyeki ukubuyela umva kweMetastatic Breast Cancer Network (MBCN) kwaye aliboneleli ngezixhobo, imigaqo-nkqubo kunye nenkxaso yabantu ekufuneka beyenzile ngexesha nasemva konyango.

Ke, njengoko uphuphuma ngepinki ngenyanga ka-Okthobha, ndiyakubongoza ukuba ume uyeke ukuzifundisa ngaphambi kokuba uchithe imali yakho kwizinto nakwimikhankaso ejolise kuphela ekwaziseni.

Okwangoku, umhlaba uyazi ngomhlaza webele kunye neziphumo zawo ezibulalayo.

Into abangayaziyo kukuba uninzi lweephulo zePinktober azixhasi ngezimali uphando lomhlaza webele lwe-metastatic - ekuphela kohlobo lomhlaza webele obulala.

Lixesha lokuba ngaphezu kokuqonda, lixesha lokusebenza.

Njengomhlaza wamabele oselula 'ojiyayo,' ndinomdla wokufundisa nokuxhobisa elowo nalowo ngolwazi nangezixhobo ozifunayo ukwenza ifuthe elingaphaya kolwaziso kulo-Okthobha.

Qhubeka ufunda ngeendlela ezintlanu onokwenza ngazo umahluko kuluntu olunomhlaza wamabele kule nyanga nakunyaka wonke.

1. Yenza igalelo lemali ku uphando

Amaphulo amaninzi ngexesha leNyanga yoKwazisa uMhlaza weSifuba kubonakala ngathi enza umahluko- kodwa enyanisweni, nikela kuphela ngenxalenye encinci yentengiso yabo.

Amaxesha amaninzi, ezo mali zisetyenziselwa "ukusasaza ulwazi," oko kunokuthetha phantse nantoni na. Imali encinci kakhulu ixhasa ngqo uphando.

Endaweni yokuchitha i-20 yeedola kwisikhafu esipinki xa kuphela i-1 yedola izakunikelwa, thabatha loo $ 20 kwaye uyinike ngokuthe ngqo kumbutho owenza impembelelo ngqo.

I-Charity Navigator sisixhobo esihle sokunceda ukuvavanya ukungenzi nzuzo. Ndiye ndaphawula nemibutho embalwa engezantsi eyenza igalelo eliphambili kuphando lomhlaza wamabele kwaye ichaphazele ngokuthe ngqo ubomi babantu abanomhlaza wamabele.

• METAvivor. Iipesenti ezili-100 zeemali eziphakanyisiweyo ziya ngqo kuphando lomhlaza wamabele.
• ISiseko soPhando lweCancer Breast (BCRF). Imali ye-BCRF ithembisa uphando ngomhlaza wamabele kwaye ixhasa amaphulo okukhuthaza unyaka wonke.
• Umdibaniso weSizwe soMhlaza weSifuba. Olu lumanyano lwabameli, izazinzulu, kunye nabathathi-nxaxheba boluntu abajolise ekupheliseni umhlaza wamabele ngophando, izifundo zeklinikhi kunye nemizamo yokukhuthaza.
• Umdibaniselwano wokuSinda oMncinci (YSC). I-YSC ibonelela ngenkxaso, izixhobo, kunye noluntu kubafazi abancinci abafunyaniswe benomhlaza wamabele phakathi kweminyaka eyi-18 ukuya kuma-40.
• Ukuphila ngaphaya komhlaza webele. Lo mbutho ujolise ngqo kwimfundo, ukubhengeza, kunye nokuba sempilweni kwabo bahlala kunye nangaphaya komhlaza wamabele.

2. Xhasa umqhubi wesifo somhlaza osweleyo

Unokwenza ifuthe ngqo kule nyanga ngokunceda umntu ngamnye onomhlaza wamabele ngenkxaso yemali, ukutya, ukuhambisa, okanye ukubonelela.

Ukuya kunyango kunokucoca ngokwasemzimbeni, ngokwasengqondweni nangokwezimali. Unokunceda ngokubonelela ngokutya, ukukhathalela abantwana, ukucoca, ukuhambisa, okanye ukubonelela.

Kuyamangalisa ukuba unyango lomhlaza kunye nexabiso lokufumana kwakhona linokubiza njani - kwaye izinto ezininzi azigutyungelwanga yinshurensi.

3. Imfundo nenkxaso (yengingqi okanye yesizwe)

Zininzi iindlela onokuthi wenze ngazo igalelo ngaphandle kokuchitha idime. Sebenzisa ixesha lakho kunye nelizwi lakho ukukhuthaza utshintsho kukhathalelo, uphando, umgaqo-nkqubo kunye nenkxaso zenza umahluko kwilizwe lomhlaza wamabele.

Ungaqala ekuhlaleni ngokufundisa abantu kunye noochwephesha kwezononophelo malunga neemfuno zomhlaza webele njengokuzala, impilo yengqondo kunye nokuba sempilweni.

Ngaba ufuna ukuthatha imfundo yakho kunye nenkxaso ukuya kwinqanaba elilandelayo? Bhalela isenethi yakho okanye umkhankaso kwiCapitol Hill uqinisekise ilizwe lakho lamkela imigaqo-nkqubo emitsha enje ngezo zifuna iinkampani zeinshurensi ukuba zigubungele ulondolozo lokuchuma kubantu abadala abancinci abanomhlaza wamabele.

Ngaba uyazi ukuba zimbalwa kuphela iimeko ezinyanzelekileyo ukuba zigcinwe?

Nantsi imibutho emibini enokunceda:

• Umdibaniso woLondolozo lokuChuma
• Umdibaniso wokuKhusela uMzali emva koMhlaza

Sifuna uncedo lwakho ukutshintsha incoko enxulumene nabantu abayi-113 abaza kubulawa ngumhlaza wamabele yonke imihla, ngokweMETAvivor.

Uninzi lwabantu baseMelika abayazi ukuba umhlaza webele we-metastatic kuphela kohlobo lomhlaza webele obulala, kwaye kungaphantsi kweepesenti ezi-5 zenkxaso-mali yophando egxile kwi-MBC.

Ngokufundisa nokuxhobisa abantu ngezi nyaniso, sinokutshintsha incoko kunye nefuthe kwizigqibo ezenziwayo malunga nophando kunye nonyango kwilizwe liphela. Funda ngakumbi kwaye uncede ukufundisa abanye.

1. Ngaba ufuna ukudibanisa inkxaso kunye nengxowa-mali yophando? Thatha inxaxheba kwi-Novartis Kiss Le phulo le-4 MBCN. Thumela i-selfie okanye ifoto yeqela, sebenzisa i-hashtag # KissThis4MBC kwaye @Novartis uzonikela nge- $ 15 kuphando lweNetastatic Breast Cancer Network ngeMETAvivor. Kulula kakhulu kodwa yenza impembelelo enkulu!

Amathuba okugaya inkxaso

• Inqanaba IV Ukunyathela
• Iphulo le-METAvivor yowiso-mthetho
• Ulungelelwaniso loLutsha lokuThuthukisa amaThuba
• Ukuphila ngaphaya kweCancer Breast Programme yoMmeli oselula
• Umkhankaso wokuBhengeza umhlaza webele
• Ubhengezo loNyaka olujikeleze i-BCRF

4. Yabelana ngexesha lakho kunye nobuchule kunye nomhlaza womphakathi

Njengenkokheli yeqela labasetyhini abancinci abanomhlaza webele eRaleigh, North Carolina, ndihlala ndikhangela iingcali ezikulungeleyo ukwabelana ngexesha labo kunye nobuchule kunye nabaphangi bethu bomhlaza.

Ezona zihloko ziceliweyo kukutya, impilo, ukuba sempilweni ngokupheleleyo, kunye nokwabelana ngesondo okanye ukusondelelana. Ukujikeleza ubomi ngexesha nangaphaya kwonyango kunokuba ngumzabalazo xa ungenazo izixhobo ozifunayo okanye ezo zixhobo zingenakufikelelwa ngemali.

Ukuba unesakhono onokwabelana ngaso, qhagamshelana nenkokeli yeQela laBasindisi boLutsha okanye ummeli wombuso kwindawo yakho ukuze ufunde ukuba unganceda njani.

5. Livolontiya!

Esinye sezona zipho zibalaseleyo onokuthi unike lixesha lakho.

Ngaphandle kwenkxaso yakho, ukungenzi nzuzo kusebenza ukubonelela ngezixhobo, inkxaso, kunye noluntu kuluntu lomhlaza wamabele alunakubakho.

Ayizukuphela wenza ulwalamano ngqo nomhlaza webele kodwa uya kufumana ulwaneliseko kunye nemfundo njengoko uzifundela ngokwakho ngamava omhlaza wamabele.

Nawuphi na kule mibutho imangalisayo ungathanda ukuba ube livolontiya kwaye unokufumana umsebenzi olingana nezakhono zakho kunye nokufumaneka:

• Amathuba amaVolontiya aMancinci aSindayo
• Ukuphila ngaphaya kwamathuba okuzinikela kumhlaza wamabele
• Amathuba amaVolontiya eLacuna Loft
• Amathuba amaVolontiya e-METAvivor

Ndandineminyaka engama-27 ubudala xa kwafunyaniswa ukuba ndinomhlaza wamabele kwaye ndinombulelo omkhulu ngethuba endibe nalo lokusebenzisa amava am kunye nomnqweno wokunceda abanye baphumelele ngexesha-nangaphaya-komhlaza wamabele.

Yinto esinokuthi sonke sibe nesandla kuyo, ke ngo-Okthobha (nakuwo wonke unyaka), cinga ngaphaya kwepinki kwaye ujike ulwazi isenzo.

UAna uthanda isitayile, indlela yokuphila ebhloga, kunye nomhlaza webele. Wabelana ngebali lakhe kunye nomyalezo wokuzithanda kunye nokuba sempilweni ngebhlog yakhe kunye namajelo eendaba ezentlalo akhuthaza abantu basetyhini kwihlabathi liphela ukuba baphumelele ebusweni bobunzima ngamandla, ukuzithemba kunye nesitayile.