Kwabo Banakekela Umntu Onesifo sikaParkinson, Yenza Izicwangciso Ngoku

Ndandinexhala kakhulu xa umyeni wam wandixelela okokuqala ukuba uyayazi into engalunganga kuye. Wayeyimvumi, kwaye ngobunye ubusuku egigini, wayengakwazi ukudlala isiginkci sakhe. Iminwe yakhe yayiyekile. Saqala ukuzama ukufumana ugqirha, kodwa ngaphakathi, sasiyazi ukuba yintoni. Unina wayenesifo sikaParkinson, kwaye sasazi nje.

Nje ukuba sifumane isifo ngo-2004, yonke into endandiyiva kukoyika. Olo loyiko lwathatha indawo kwaye aluzange luphele. Kunzima ngokwenene ukusongela intloko yakho. Lisiphathele ntoni ikamva? Ngaba ndingangumfazi otshate nomntu onesifo sikaParkinson? Ndingaba ngumongi? Ngaba ndingomelela ngokwaneleyo? Ngaba ndingazincama ngokwaneleyo? Le yayiyeyona nto ndiyoyikayo. Ngapha koko, ndinoloyiko ngoku kunakuqala.

Ngelo xesha, kwakungekho lwazi lukhulu phaya malunga namayeza kunye nonyango, kodwa ndizamile ukuzifundisa kangangoko ndinako. Saqala ukuya kumaqela enkxaso ukuze sifunde ukuba silindele ntoni, kodwa oko kwakumkhathaza kakhulu umyeni wam. Wayekwimo entle ngelo xesha, kwaye abantu abakumaqela enkxaso babengekho. Umyeni wam wathi kum, “Andisafuni ukuhamba. Andifuni ukudandatheka. Andiyonto injalo kubo. ” Sayeka ke ukuhamba.

Ndiziva ndinethamsanqa malunga nendlela umyeni wam asondele ngayo kwisifo sakhe. Wayedandathekile ixesha elifutshane kakhulu kodwa ekugqibeleni wagqiba kwelokuba athathe ubomi ngeempondo kwaye onwabele wonke umzuzu. Umsebenzi wakhe wawubaluleke kakhulu kuye, kodwa emva kokuchongwa, usapho lwakhe luza kuqala. Kwakukhulu kakhulu. Waqala ukusixabisa. Ubunono bakhe babukhuthaza.

Sisikelelwe ngeminyaka emininzi emikhulu, kodwa imbalwa yokugqibela ibinomceli mngeni. Idyskinesia yakhe imbi kakhulu ngoku. Uwa kakhulu. Ukumnceda kunokuba nzima kuba uyakucaphukela ukuncedwa. Uyakukhupha loo nto kum. Ukuba ndizama ukumnceda ndihamba ngesitulo sakhe esinamavili kwaye andifezekanga, uya kundingxolisa. Iyandicaphukisa, ke ndisebenzisa uburharha. Ndizokwenza ihlaya. Kodwa ndinexhala. Ndinovalo andizukuwenza umsebenzi olungileyo. Ndiva kakhulu.

Kuya kufuneka ndenze zonke izigqibo ngoku, kwaye inzima kakhulu loo nxalenye. Umyeni wam ebesenza izigqibo, kodwa akasenako. Wafunyaniswa enesifo sengqondo esixhalabisayo sikaParkinson ngo-2017. Enye yezinto ezinzima kakhulu kukwazi ukuba yintoni endinokumvumela ukuba ayenze kunye naleyo ndingenako ukuyenza. Ndithatha ntoni? Uthenge imoto kutsha nje ngaphandle kwemvume yam, ndiye ndithatha ikhadi lakhe letyala? Andifuni ukuthatha ikratshi lakhe okanye into emonwabisayo, kodwa kwelinye icala, ndifuna ukumkhusela.

Ndizama ukungacingi ngeemvakalelo. Bakho; Andibonakalisi nje. Ndiyazi ukuba iyandichaphazela ngokwasemzimbeni. Uxinzelelo lwegazi luphezulu kwaye ndinzima. Andizikhathaleli ngendlela endandikade ndiziphatha ngayo. Ndikwindlela yokuphelisa umlilo kwabanye abantu. Ndizikhuphe nganye nganye. Ukuba ndishiywe naliphi na ixesha lam, ndiza kuhamba okanye ndiqubhe. Ndingathanda umntu andincede ndibone indlela yokujamelana nayo, kodwa andifuni bantu bandixelele ukuba ndithathe ixesha lam. Ndiyazi ukuba kufuneka ndiyenze loo nto, ngumcimbi wokufumana elo xesha.

Ukuba ufunda oku kwaye umntu omthandayo ufumene ukuba uneParkinson's, zama ukungacingi okanye ukhathazeke ngekamva lesi sifo. Yeyona nto intle onokuzenzela yona kunye nomntu omthandayo. Yonwabela yonke imizuzwana onayo kwaye wenze izicwangciso ezininzi kangangoko unako okwangoku.

Ndibuhlungu ukuba andizukuphinda ndonwabe, kwaye ndiziva ndinetyala ngokungabinamonde wokunceda umamazala wam xa esaphila kwaye ehleli nale meko. Kuncinci okwakusaziwa ngelo xesha. Oko kukuzisola kwam kuphela, nangona ndiziva ngathi ndinokuzisola ngakumbi kwixa elizayo, njengoko imeko yomyeni wam isiba mandundu.

Ndicinga ukuba kuyamangalisa ukuba sineminyaka emininzi kwaye kufuneka senze izinto esizenzileyo. Sahamba neeholide ezimangalisayo, kwaye ngoku sineenkumbulo ezimnandi njengentsapho. Ndiyabulela ngezo nkumbulo.

Ozithobileyo,

UAbbe Aroshas

UAbebe Aroshas wazalelwa kwaye wakhulela eRockaway, eNew York. Waphumelela njengomlweli weklasi yakhe yamabanga aphakamileyo kwaye waya kwiYunivesithi yaseBrandies apho wafumana isidanga sakhe. Waqhubeka nezifundo zakhe kwiYunivesithi yaseColumbia kwaye wafumana ugqirha kugqirha wamazinyo. Uneentombi ezintathu, kwaye ngoku uhlala eBoca Raton, eFlorida nomyeni wakhe, u-Isaac kunye nedachshund yabo, uSmokey Moe.