Ukufumana iNkxaso ukuba unayo i-CLL: Amaqela, izixhobo kunye nokunye

Umxholo

• Iingcali zegazi
• Ulwazi oluqondakala lula
• Inkxaso yeemvakalelo nezentlalo
• Inkxaso yemali
• Ukuthatha

I-lymphocytic leukemia (CLL) engapheliyo ithanda ukuqhubela phambili kancinci, kwaye uninzi lonyango luyafumaneka ukunceda ukulawula imeko.

Ukuba uhlala ne-CLL, iingcali zezempilo ezifanelekileyo zinokukunceda uqonde kwaye ulinganise ukhetho lwakho lonyango. Eminye imithombo yenkxaso ikwakhona ukukunceda ujongane neziphumo zale meko ebomini bakho.

Funda ukuze ufunde ngakumbi ngezixhobo ezithile ezifumanekayo zabantu abane-CLL.

Iingcali zegazi

Ukuba unayo i-CLL, kungcono ukubona ingcali ye-leukemia enamava okunyanga le meko. Banokukunceda ufunde malunga nokhetho lwamva nje lonyango kunye nesicwangciso sonyango.

Ugqirha wakho wokunyamekela oyintloko okanye isikhungo somhlaza woluntu unokukwazi ukukuthumela kwingcali ye-leukemia kwingingqi yakho. Unokukhangela neengcali ezikufutshane nawe usebenzisa iziseko zedatha ezikwi-Intanethi ezigcinwe yiAmerican Society of Clinical Oncology kunye neAmerican Society of Hematology.

Ulwazi oluqondakala lula

Ukufunda ngakumbi nge-CLL kunokukunceda uqonde imeko yakho kunye nokhetho lonyango, olunokukunceda ukuba ufumane amandla olawulo kunye nokuzithemba.

Unokufumana ulwazi oluninzi malunga nale meko kwi-intanethi, kodwa eminye imithombo ekwi-Intanethi inokuthenjwa ngakumbi kunabanye.

Ngolwazi oluthembekileyo, cinga ngokujonga izibonelelo ezikwi-Intanethi eziphuhliswe yile mibutho ilandelayo:

• Umbutho woMhlaza waseMelika
• Umbutho waseMelika woNyango lweZonyango
• Umbutho we-CLL
• Umhlaza wegazi kunye neLymphoma Society

Iingcali zolwazi ezivela kwiLeukemia & Lymphoma Society ziyafumaneka ukunceda ukujongana nemibuzo malunga nesi sifo. Unokunxibelelana nengcali ngolwazi usebenzisa i-intanethi yokuncokola, ugcwalise ifom ye-imeyile ekwi-intanethi, okanye utsalele umnxeba ku-800-955-4572.

Inkxaso yeemvakalelo nezentlalo

Ukuba ukufumanisa kunzima ukulawula iimpembelelo zeemvakalelo okanye zentlalo zokuphila nomhlaza, yazisa iqela lakho lonyango. Banokukuthumela kwingcali yezempilo yengqondo okanye eminye imithombo yenkxaso.

Unokuthetha nomcebisi oqeqeshiweyo ngeCancer's Hopeline. Abacebisi babo banokubonelela ngenkxaso yeemvakalelo kwaye bakuncede ufumane izixhobo ezifanelekileyo zokulawula imeko yakho. Ukunxibelelana nale nkonzo, tsalela umnxeba ku-800-813-4673 okanye kwi-imeyile [email protected].

Abanye abantu bakufumanisa kuluncedo ukunxibelelana nabanye abantu abahlala ne-CLL.

Ukufumana abanye abantu abachaphazelekayo yile meko:

• Buza iqela lakho lonyango okanye isikhungo somhlaza woluntu ukuba bayazi malunga nawaphi na amaqela enkxaso yendawo ahlangana kwindawo yakho.
• Jonga iqela lenkxaso ye-CLL yezigulana, bhalisa kwiforum yemfundo yesigulana, okanye uye kumnyhadala obonakalayo nge-CLL Society.
• Jonga amaqela enkxaso yendawo, bhalisa kwincoko yeqela elikwi-intanethi, okanye uqhagamshele kunye nevolontiya loontanga ngeLeukemia kunye neLymphoma Society.
• Khangela kwiziko ledatha laseMelika loMhlaza lamaqela enkxaso.
• Bhalisela iqela lenkxaso kwi-Intanethi ngoKhathalelo loMhlaza.

Inkxaso yemali

Ukuba ukufumanisa kunzima ukulawula iindleko zonyango lwe-CLL, kunokunceda:

• Yazisa amalungu eqela lakho lonyango ukuba iindleko zixhalabisa. Bangakwazi ukulungelelanisa isicwangciso sakho sonyango okanye bakuthumele kwizibonelelo zenkxaso yemali.
• Nxibelelana nomboneleli wakho weinshurensi yezempilo ukuze ufunde ukuba ngawaphi na amaziko ononophelo lwempilo, unyango kunye neemvavanyo ezigutyungelwe sisicwangciso sakho. Unokwazi ukugcina imali ngokutshintsha umboneleli wakho weinshurensi, isicwangciso seinshurensi, okanye isicwangciso sonyango.
• Buza iziko lakho lomhlaza ukuba banikela nayiphi na inkqubo yenkxaso yemali. Banokukwazi ukukuthumela kumcebisi wezezimali, iinkqubo zoncedo lwezigulana, okanye ezinye izixhobo zokunceda ukulawula iindleko zokhathalelo.
• Jonga iwebhusayithi yomvelisi ukuba ngaba nawaphi na amayeza owathathayo xa ufunda ukuba banikezela ngesaphulelo okanye ukuhlawula iinkqubo zesaphulelo.

Le mibutho ilandelayo ikwabonelela ngeengcebiso kunye nezixhobo zokulawula iindleko zokhathalelo lomhlaza:

• Umbutho woMhlaza waseMelika
• Umbutho waseMelika woNyango lweZonyango
• Unonophelo loMhlaza
• Umdibaniso woNcedo lwezeMali kwiCancer
• Umhlaza wegazi kunye neLymphoma Society
• IZiko leSizwe loMhlaza

Ukuthatha

Ukulawula ukuxilongwa kwe-CLL kunokuba ngumceli mngeni, kodwa uninzi lwezixhobo ziyafumaneka ukukunceda ujongane nemiceli mngeni yomzimba, yeemvakalelo kunye neyezemali enokuthi izise.

Iqela lakho lonyango okanye iziko lomhlaza eluntwini linokukunceda ufumane izixhobo zoncedo kwi-intanethi okanye kwindawo ohlala kuyo. Yazisa ababoneleli bakho bonyango ukuba unayo nayiphi na imibuzo okanye inkxalabo malunga nemeko yakho okanye iimfuno zonyango.