Ukuchongwa okuNcinci: Mhla ndadibana noMhlobo wam wobomi bonke, MS
Kwenzeka ntoni xa unyanzelwa ukuba uchithe ubomi bakho ngento ongayicelanga?
Impilo kunye nokuphila kakuhle kuchaphazela ngamnye wethu ngokwahlukileyo. Eli libali lomntu omnye.
Xa usiva amagama athi "umhlobo wobomi bonke," into efika ithi qatha engqondweni ngumphefumlo, iqabane, umhlobo osenyongweni, okanye iqabane. Kodwa loo magama andikhumbuza uSuku lweValentine, kulapho ndadibana khona nomhlobo wam omtsha wobomi: multiple sclerosis (MS).
Njengalo naluphi na ulwalamano, ubudlelwane bam ne-MS abenzekanga ngosuku, kodwa baqala ukuqhubela phambili kwinyanga ephelileyo.
KwakungoJanuary ndabuyela ekholejini emva kwekhefu leholide. Ndiyakhumbula ukuba ndonwabile ukuqala isemester entsha kodwa ndisoyika neeveki ezimbalwa ezizayo zoqeqesho lwangaphambi kwexesha lacrosse. Ngexesha leveki yokuqala ebuyile, iqela lalinendlela yokusebenza kukapteni, ebandakanya ixesha elincinci kunye noxinzelelo kunokwenza kwabaqeqeshi. Inika abafundi ixesha lokuziqhelanisa nokubuyela esikolweni nakwiiklasi eziqala.
Ngaphandle kokuba kufuneka ugqibe isohlwayo jonsie run (aka a 'isohlwayo sokubaleka' okanye ukuqhuba kakubi), iveki yeendlela zomphathi zazonwabile- {textend} ukukhanya, akukho xinzelelo indlela yokuzivocavoca nokudlala i-lacrosse nabahlobo bam. Kodwa kwisikrweqe sangoLwesihlanu, ndazithoba ngenxa yokuba ingalo yam yasekhohlo yayitswina ngamandla. Ndiye ndaya kuthetha nabaqeqeshi bezemidlalo abavavanya ingalo yam kwaye baqhuba uvavanyo lweentshukumo. Baye bandibeka ngonyango lokuvuselela ubushushu (okwaziwa ngokuba yi-TENS) kwaye bandithumela ekhaya. Ndixelelwe ukuba ndibuye ngosuku olulandelayo ndizokufumana unyango olufanayo kwaye ndalandela le ndlela yesiqhelo kwiintsuku ezintlanu ezizayo.
Ngalo lonke eli xesha, ukurhawuzelela kuya kusiba mandundu kwaye amandla am okuhambisa ingalo yam anciphe kakhulu. Kungekudala kwavela imvakalelo entsha: ixhala. Ngoku ndinoluvo lukhulu lokuba iCandelo I-lacrosse lalininzi kakhulu, ikholeji ngokubanzi yayininzi kakhulu, kwaye yonke into endiyifunayo yayikukuhlala ekhaya nabazali bam.
Ukongeza kuxinzelelo lwam olutsha, ingalo yam yayikhubazekile. Khange ndikwazi ukusebenza, nto leyo ebangele ukuba ndiphoswe lixesha lokuqala laseburhulumenteni lonyaka ka-2017. Ngapha komnxeba, ndakhala kubazali bam ndacela ukuba ndibuyele ekhaya.
Izinto ngokucacileyo zazingangcono, ke abaqeqeshi bayalela i-X-ray yegxalaba lam nengalo. Iziphumo zabuya ngesiqhelo. Shaya enye.
Kungekudala emva koko, ndaye ndaya kubazali bam ndaya kubona idolophu yam yamathambo eyayithembekile kusapho lwam. Undixilonge wandithumela ngeXray. Kwakhona, iziphumo beziqhelekile. Shaya ezimbini.
"Amagama okuqala endiwabonileyo ngala:" Kunqabile, unyango lunokunceda kodwa alukho unyango. " PHA. NGU. HAYI. PHILA. Kulapho yandibetha kakhulu. ” - UGrace Tierney, umfundi kunye nexhoba le-MSKodwa, emva koko wacebisa nge-MRI yomqolo wam, kwaye iziphumo zabonisa ukungaqheleki. Ekugqibeleni ndinolwazi olutsha, kodwa imibuzo emininzi ishiyekile ingaphendulwanga. Into endiyaziyo ngelo xesha kukuba kukho into engaqhelekanga kwi-C-spine MRI yam kwaye ndifuna enye iMRI. Ndixolile kancinci ukuba bendiqala ukufumana iimpendulo, ndibuyele esikolweni ndaza ndazihambisa iindaba kubaqeqeshi bam.
Lonke ixesha, bendicinga ukuba kwenzeka ntoni izihlunu kwaye inxulumene nokulimala kwe-lacrosse. Kodwa ukubuyela kwam kwiMRI yam elandelayo, ndafumanisa ukuba inento yokwenza nengqondo yam. Ngokukhawuleza, ndaqonda ukuba oku akunakuba yinto nje elula yokulimala kwe-lacrosse.
Emva koko, ndadibana nogqirha wam ngemithambo-luvo. Uthathe igazi, wenza iimvavanyo ezimbalwa zomzimba, kwaye wathi ufuna enye i-MRI yengqondo yam - {textend} ngeli xesha ngokuchaseneyo. Siyenzile ndaye ndaphindela eskolweni ndinesivumelwano sokubona i-neurologist kwakhona ngala Mvulo.
Kwakuyiveki eqhelekileyo esikolweni. Ndadlala ngokubanjwa kwiiklasi zam kuba bendiphose okuninzi ngenxa yotyelelo lukagqirha. Ndabona ukuziqhelanisa. Ndizenze ngathi ndingumfundi oqhelekileyo wasekholejini.
NgoMvulo, umhla we-14 kuFebruwari wafika ndaza ndaya kugqirha wam kungekho luvo luvakalayo emzimbeni wam. Ndiqonde ukuba bazakundixelela into engalunganga kwaye balungise umonzakalo wam- {textend} elula kangangoko.
Babiza igama lam. Ndingene eofisini ndahlala phantsi. Ugqirha wemithambo-luvo wandixelela ukuba ndine-MS, kodwa ndandingazi ukuba kuthetha ntoni oko. U-odole idosi ephezulu ye-IV steroids kwiveki ezayo wathi izokunceda ingalo yam. Uye walungiselela umongikazi ukuba eze eflethini lam kwaye wachaza ukuba umongikazi uzakumisa izibuko lam kwaye eli zibuko liza kuhlala kum kwiveki elandelayo. Into ekufuneka ndiyenzile yayikukuqhagamshela i-IV bubble ye-steroids kwaye ulinde iiyure ezimbini ukuba zingene emzimbeni wam.
Akukho nanye kwezi ebhalisiweyo ... de kwagqitywa ixesha lokubonana kwaye bendisemotweni ndifunda isishwankathelo esithi "Uxilongo lukaGrace: Multiple Sclerosis."
Ndaya kwi-MS. Amagama okuqala endiwabonileyo ngala: "Kunqabile, unyango lunokunceda kodwa alukho unyango." PHA. NGU. HAYI. PHILA. Kulapho yandibetha kakhulu. Kwakungalo mzuzu kanye apho ndadibana nomhlobo wam osenyongweni, i-MS. Khange ndikhethe okanye ndiyifune le, kodwa ndanamathela kuyo.
Kwiinyanga ezilandela ukuxilongwa kwe-MS, ndaziva ndisoyika ukuxelela nabani na into engalunganga ngam. Wonke umntu owayendibona esikolweni wayesazi ukuba ikhona into. Bendihleli ngaphandle kokuziqhelanisa, ndingekhoyo eklasini kakhulu ngenxa yokuqeshwa, kwaye ndifumana idosi ephezulu yedosi steroids yonke imihla ebenze ukuba ubuso bam buvuthele okwe pufferfish. Ukwenza izinto zibe mbi ngakumbi, ukutshintsha kwemood yam kunye nokutya kwakukwelinye inqanaba.
Kwakungo-Epreli ngoku kwaye ingaphelelanga nje ingalo yam, kodwa amehlo am aqala ukuyenza le nto ngokungathi bayadanisa entlokweni yam. Konke oku kwenza ukuba isikolo kunye ne-lacrosse kube nzima ngobuhlanya. Ugqirha wam wandixelela ukuba kude kube phantsi kolawulo lwempilo yam, kufuneka ndirhoxe kwiiklasi. Ndalandela ingcebiso yakhe, kodwa ngokwenza njalo ndalahlekelwa liqela lam. Andisenguye umfundi kwaye ke ngoko andinakujonga ukuziqhelanisa okanye ukusebenzisa imithambo ye-varsity yeembaleki. Ngexesha lemidlalo bekufuneka ndihlale kwiindawo zokuma. Ezi zezona nyanga zinzima, kuba ndaziva ngathi ndilahlekile yonke into.
Ngo-Meyi, izinto zaqala ukuzola kwaye ndaqala ukucinga ukuba ndicacile. Yonke into malunga nesemester edlulileyo ibonakala ngathi iphelile kwaye kwakusehlotyeni. Ndaziva ndisiqhelo "kwakhona"!
Ngelishwa, ayikhange ihlale ixesha elide. Ngokukhawuleza ndaqonda ukuba andisoze ndibekho eqhelekileyo kwakhona, kwaye ndiye ndayiqonda ukuba ayisiyonto imbi leyo. Ndiyintombazana eneminyaka engama-20 ndihlala nesifo sempilo endichaphazelayo yinke imihla. Kuthathe ixesha elide ukuziqhelanisa nobunyani, emzimbeni nasengqondweni.
Ekuqaleni, ndandileqa isifo sam. Andizukuthetha ngayo. Ndiya kuthintela nantoni na endikhumbuza ngayo. Ndade ndazenza ingathi andisagula. Ndiphuphe ndizibuyisela kwindawo apho kungekho mntu waziyo ukuba ndiyagula.
Xa ndacinga nge-MS yam, iingcinga ezoyikisayo zagijima entlokweni yam ukuba ndandingcolisa kwaye ndingcolisiwe ngenxa yayo. Kwakukho into engalunganga ngam kwaye wonke umntu wayesazi ngayo. Qho xa ndifumana ezi ngcinga, bendibalekela kude kude nesifo sam. I-MS ibonakalisile ubomi bam kwaye ngekhe ndiphinde ndiyifumane.
Ngoku, emva kweenyanga zokukhanyela nokuzisizela, ndiye ndamkela ukuba ndinomhlobo omtsha wobomi bonke. Kwaye nangona ndingamnyulanga, uhlala apha. Ndiyayamkela ukuba yonke into yahlukile ngoku kwaye ayizukuphinda ibuye ngendlela ebeyiyo - {textend} kodwa kulungile. Njengalo naluphi na ulwalamano, kukho izinto ekufuneka usebenze kuzo, kwaye awazi ukuba zithini ezo zinto de ube usebudlelwaneni okwethutyana.
Ngoku ukuba mna no-MS besingabahlobo unyaka wonke, ndiyazi ukuba kufuneka ndenze ntoni ukuze ndenze olu lwalamano lusebenze. Andiyi kuvumela i-MS okanye ubudlelwane bethu buchaze kwakhona. Endaweni yoko, ndiza kujongana nemiceli mngeni ngqo kwaye ndijongane nayo mihla le. Andizukunikezela kuyo kwaye ndivumele ixesha ukuba lidlule kum.
Usuku olumnandi lweValentina - {textend} yonke imihla - {textend} yam kunye nomhlobo wam wobomi bonke, isifo sokuqina kwemithambo.
UGrace ngumthandi oneminyaka engama-20 ubudala waselunxwemeni kunye nazo zonke izinto zasemanzini, imbaleki eyoyikekayo, kunye nomntu osoloko ekhangela amaxesha amnandi (gt) njengama-initials akhe.