Ndifunde njani ukuba ndamkele uNcedo lwam lokuHamba kwi-MS yam ePhambili

Umxholo

• Ukujongana noloyiko lwakho lweenkonkxa, ukuhambahamba kunye nezitulo ezinamavili
• Ukwamkela inyani yakho entsha
• Ukwamkela isitshixo sakho esitsha kwinkululeko
• Ukuthatha

I-Multiple sclerosis (MS) inokuba sisifo esizimeleyo. Ukuphulukana nobuchule bokuhamba kunokubenza abo bahlala ne-MS bazive bodwa.

Ndiyazi ngokusuka kumava obuqu ukuba kunzima kakhulu ukuyamkela xa kufuneka uqale ukusebenzisa uncedo lokuhamba njengenduku, ukuhambahamba, okanye isitulo esinamavili.

Kodwa ndakhawuleza ndafunda ukuba ukusebenzisa ezi zixhobo kubhetele kunezinye iindlela, njengokuwa phantsi nokuzenzakalisa okanye ukuziva ushiywe ngaphandle kwaye uphulukana nonxibelelwano lomntu.

Yiyo le nto kubalulekile ukuba uyeke ukucinga ngezixhobo zokuhamba njengeempawu zokukhubazeka, endaweni yoko uqale ukuzibona nokuzisebenzisa njengezitshixo kwinkululeko yakho.

Ukujongana noloyiko lwakho lweenkonkxa, ukuhambahamba kunye nezitulo ezinamavili

Ukunyaniseka, ndiyavuma ukuba bendihlala ndingoyena mntu undoyikisayo xa ndifunyaniswa ndine-MS ngaphezulu kweminyaka engama-22 eyadlulayo. Olona loyiko lwam yayikukuba ngenye imini ndiza kuba lelo “bhinqa lihamba ngesitulo esinamavili.” Ewe, yile ndinguye ngoku malunga namashumi amabini eminyaka kamva.

Kundithathe ixesha ukwamkela ukuba kulapho isifo sam besindithatha khona. Ndiyathetha, yiza! Ndandineminyaka engama-23 kuphela ubudala xa ugqirha wam ngemithambo-luvo wathetha ibinzana endandiloyike kakhulu: “une-MS.”

Akunakuba njalo lonto kubi, nangona kunjalo, akunjalo? Ndandisandula ukuphumelela isidanga sam se-bachelor kwiYunivesithi yaseMichigan-Flint kwaye bendiqala umsebenzi wam wokuqala "wentombazana enkulu" eDetroit. Ndandimncinci, ndiqhutywa, kwaye ndizele ngamabhongo. I-MS yayingazukuma endleleni yam.

Kodwa kwisithuba seminyaka emi-5 yoxilongo lwam, ndandingakwazi nokuzama ukuma endleleni ye-MS kunye neziphumo zayo kum. Ndayeka ukusebenza ndaphindela kubazali bam kuba isifo sam sasindoyisa ngokukhawuleza.

Ukwamkela inyani yakho entsha

Ndiqale ukusebenzisa induku malunga nonyaka emva kokuchongwa kwam. Imilenze yam yayixengaxenga kwaye yandenza ndaziva ndingazinzanga, kodwa yayiyinduku nje. Akukho nto inkulu, akunjalo? Bendingasoloko ndiyidinga, ke isigqibo sokuyisebenzisa khange sibuxabise ngokwenene.

Ndiyaqikelela ukuba kunokuthethwa into efanayo ngokuhamba uswazi usiya kwikhathuni uye kumhambi ohambahambayo. Ezi zixhobo zokuhamba zaziyimpendulo yam kwisifo esingapheliyo esasigcina i-myelin.

Ndihleli ndicinga, "Ndiza kuqhubeka ndihamba. Ndiza kuqhubeka nokudibana nabahlobo bam kwizidlo sangokuhlwa nakwimisitho. ” Ndandisemncinci kwaye ndizele ngamabhongo.

Kodwa onke amabhongo obomi bam ayengangqinelani nokuwa okuyingozi nokubuhlungu endandiqhubeka ndinako ngaphandle kwezixhobo zam zokuncedisa.

Khange ndikwazi ukuqhubeka nokuphila ubomi bam ndisoyika ixesha elizayo xa ndiza kuwa phantsi, ndicinga ukuba esi sifo siza kwenza ntoni na kum ngokulandelayo. Isifo sam besinditshabalalisile.

Ndandisoyika, ndabethwa ndaza ndadinwa. Indawo yokugqibela endaya kuyo yayisisithuthuthu esinamavili okanye isitulo esinamavili. Ndidinga enenjini kuba i-MS yam ibenze buthathaka amandla ezingalweni zam.

Ubomi bam bafikelela njani kule nqanaba? Ndandisandula ukuphumelela kwikholeji iminyaka emi-5 ngaphambi kwalo mzuzu.

Ukuba ndifuna ukugcina naluphi na ukhuseleko kunye nokuzimela, bendisazi ukuba kufuneka ndithenge isithuthuthu esinenjini. Esi yayisisigqibo esibuhlungu ukusithatha njengomntu oneminyaka engama-27 ubudala. Ndaziva ndineentloni kwaye ndoyisiwe, ngokungathi ndiyanikezela kwesi sifo. Ndiyamkele kancinci inyani yam entsha kwaye ndathenga isithuthuthu sam sokuqala.

Ngeli xesha ndibuyise ngokukhawuleza ubomi bam.

Ukwamkela isitshixo sakho esitsha kwinkululeko

Ndisasokola nenyani yokuba i-MS indithathile amandla am okuhamba. Nje ukuba isifo sam siqhubele phambili kwi-MS yesibini eqhubekayo, kwafuneka ndiphucule isitulo esinamavili esinamandla. Kodwa ndiyazingca ngendlela endamkele ngayo isitulo sam esinamavili njengesitshixo sokuphila obona bomi bam bumnandi.

Khange ndivumele uloyiko lundoyise. Ngaphandle kwesitulo sam esinamavili, ngekhe ndibenenkululeko yokuhlala ekhayeni lam, ndifumane isidanga sam, ndityhutyhe iUnited States, nditshate noDan, indoda yamaphupha am.

UDan ubuyela kwi-MS, kwaye sadibana kumsitho we-MS ngoSeptemba 2002. Sathandana, satshata ngo-2005, kwaye sihlala sonwabile emva koko. UDan akazange andazi ukuba ndihamba kwaye wayengoyiki ngesihlalo sam esinamavili.

Nantsi into esithethe ngayo kubalulekile ukuyikhumbula: Andiziboni iiglasi zikaDan. Zizo kanye izinto afuna ukuzinxiba ukuze abone ngcono kwaye aphile ubomi obuphezulu.

Ngokunjalo, uyandibona, hayi isitulo esinamavili. Yiloo nto kanye endiyifunayo yokuhamba ngcono kwaye ndiphile ubomi obusemgangathweni ngaphandle kwesi sifo.

Ukuthatha

Kwimiceli mngeni abajamelana nayo abantu abane-MS, ukuthatha isigqibo sokuba lixesha lokusebenzisa isixhobo sokuhambisa esincedisayo yenye yezona zinzima.

Bekungayi kuba njalo ukuba besinokutshintsha indlela esizibona ngayo izinto ezinjengeemisimelelo, ukuhambahamba, izitulo ezinamavili. Oku kuqala ngokugxila kwinto ekuvumela ukuba uyenze ukuze uphile ubomi obunomdla ngakumbi.

Ingcebiso yam evela kumntu oye wasebenzisa isitulo esinamavili kule minyaka ili-15 idlulileyo: Chaza isixhobo sakho sokuhamba! Izitulo zam ezinamavili zibizwa ngokuba yiSilver kunye neGrape Ape. Oku kukunika uluvo lobunini, kwaye kunokukunceda ukuba ubuphathe ngakumbi njengomhlobo wakho hayi utshaba lwakho.

Okokugqibela, zama ukukhumbula ukuba ukusebenzisa isixhobo sokuhamba akunakuba sisigxina. Kusoloko kukho ithemba lokuba sonke ngenye imini siza kuphinda sihambe kwakhona njengoko senzayo ngaphambi kokuxilongwa kwe-MS.

UDan noJennifer Digmann bayasebenza kuluntu lwe-MS njengezithethi zikawonke-wonke, ababhali, kunye nabameli. Banikela rhoqo kwabo ibhlog ephumelele ibhaso, kwaye bangababhali beNgaphandle kweMS, ukuya kwi-MS, ”Ingqokelela yamabali obomi babo kunye ne-multiple sclerosis. Unokubalandela kwakhona Facebook, Twitter, kunye I-Instagram.