Ukuqonda iPolycythemia Vera kunye nendlela ekuPhathwa ngayo

Umxholo

• Iimpawu eziqhelekileyo zepolycythemia vera
• Kutheni le nto i-polycythemia vera kufuneka ilawulwe?
• Unyango lwePolycythemia vera
• Ndazi njani ukuba unyango luyasebenza?
• Ukuthatha

IPolycythemia vera (PV) ngumhlaza wegazi onqabileyo apho umongo wethambo wenza iiseli ezininzi zegazi. Iiseli ezibomvu ezongezelelekileyo zenza ukuba igazi lijiye kwaye zonyuse umngcipheko weqokobhe legazi.

Akukho lunyango lwangoku lwe-PV, kodwa unyango lunokunceda ukuthintela iingxaki kunye neempawu zedilesi.

Ugqirha wakho uya kucwangcisa uvavanyo rhoqo kunye nokuqeshwa ukubeka esweni impilo yakho. Kubalulekile ukuba uhlale ujonga kwiqela lakho lokhathalelo lwempilo ukuze bazi ukuba uziva njani.

Funda ukuze ufumane okungakumbi malunga nendlela elawulwa ngayo i-PV, kunye nendlela yokwazi ukuba ingaba unyango luyasebenza na.

Iimpawu eziqhelekileyo zepolycythemia vera

I-PV ihlala ifunyanwa ngokusebenza kwegazi eliqhelekileyo kunokufumana iimpawu. Iimpawu ezininzi ze-PV zinezinye izizathu, ngenxa yoko azisoloko zibomvu iiflegi zodwa. Thetha nogqirha wakho ukuba ubona naluphi na utshintsho kwindlela oziva ngayo.

Ukuba unayo impawu, unokufumana:

• Ndiziva ndidiniwe okanye ndibuthathaka
• intloko ebuhlungu
• isiyezi
• ukukhala ezindlebeni (tinnitus)
• isikhumba esibomvu
• iingxaki zombono, kubandakanya amabala angaboniyo okanye ukungaboni kakuhle
• ukurhawuzelela ulusu, ngakumbi emva kwebhafu eshushu okanye ishawa
• iintlungu zesisu okanye imvakalelo yokugcwala (okuvela kwipeni eyandisiweyo)
• iintlungu zesifuba
• iintlungu ezidibeneyo okanye ukudumba

Kutheni le nto i-polycythemia vera kufuneka ilawulwe?

Iiseli zegazi ezongezelelekileyo kwi-PV zenza ukuba igazi lijiye kwaye kube lula ukubambeka. Oku kunokukhokelela ekuhlaselweni yintliziyo okunokubulala, ukubetha, okanye ukubola kwemiphunga okuhambelana ne-vein thrombosis.

Ngelixa i-PV inganyangeki, oko akuthethi ukuba ayinakulawulwa ngokufanelekileyo ixesha elide. Unyango lwe-PV lujolise ekunciphiseni iimpawu kunye nasekunciphiseni umngcipheko weengxaki ezinxulumene namahlwili egazi ngokunciphisa inani leeseli zegazi.

Unyango lwePolycythemia vera

Iqela lakho lokhathalelo lwempilo liza kuxoxa ngonyango olulungileyo lwe-PV yakho ngokuxhomekeke kumanqanaba egazi kunye neempawu zakho.

Ugqirha wakho unokukunika amayeza:

• igazi elincinci
• thintela iingxaki
• ukulawula iimpawu

Kubalulekile ukuthatha amayeza ngokuchanekileyo.

Ezi ndlela zonyango ziqhelekileyo zisetyenziselwa ukunyanga i-PV:

• Phlebotomy, okanye ukususa igazi emzimbeni, kunciphisa uxinzelelo lweeseli ezibomvu okwethutyana kwaye linciphise igazi lakho.
• Unyango lwe-aspirin yedosi ephantsi Unceda unciphise igazi lakho.
• Anagrelide (Agrylin) kunciphisa iiplatelets egazini lakho, nto leyo eyehlisa umngcipheko wengubo.
• AmaNtsholongwane phatha ulusu olurhawuzayo, uphawu oluqhelekileyo lwePV.
• Iziyobisi zeMyelosuppressive njengehydroxyurea inciphisa inani leeseli zegazi ezenziwe kumongo wethambo.
• URuxolitinib (uJakafi) inokukunceda ukuba i-PV yakho ayiphenduli kwi-hydroxyurea, okanye ukuba unobungozi obuphakathi okanye obuphezulu be-myelofibrosis.
• I-Interferon alfa kunciphisa ukuveliswa kweeseli zegazi kodwa kunqabile ukuba kumiselwe, kuba ihlala ibangela iziphumo ebezingalindelekanga ngakumbi kunezinye iindlela zonyango.
• Unyango olukhanyayo ukusebenzisa i-psoralen kunye nokukhanya kwe-ultraviolet kunokunceda ekunciphiseni ukungcola okunxulunyaniswe ne-PV.
• Ukunyuka komongo wethambo Ngamanye amaxesha asetyenziselwa ukunciphisa inani leeseli zegazi kumongo wethambo.

Ndazi njani ukuba unyango luyasebenza?

I-PV sisifo esinganyangekiyo esinokulawulwa ngempumelelo iminyaka emininzi. Ukusebenza ngokusondeleyo neqela lakho lokhathalelo lwempilo kuqinisekisa ukuba bayalwazi naluphi na utshintsho kwimpilo yakho ukuze bakwazi ukulungisa isicwangciso sakho sonyango njengoko kufuneka.

Ukulawula i-PV kufuna ukutyelelwa rhoqo yingcali yomhlaza (oncologist) kunye nogqirha wegazi (hematologist). Aba gqirha baya kubeka esweni rhoqo amanqanaba eseli yakho egazi ukukhokela izigqibo zonyango.

Qiniseka ukuba uvumela ababoneleli bakho bezempilo ukuba bazi ukuba unazo naziphi na iimpawu ezitsha, ezinjengeentlungu esiswini okanye ukudumba ngokudibeneyo.

Unyango lwakho lwangoku lusenokungasebenzi ukuba alulungisi iimpawu, okanye ukuba umsebenzi wegazi ubonakalisa amanqanaba angaqhelekanga eeseli zegazi.

Kule meko, ugqirha wakho unokuhlengahlengisa isicwangciso sakho sonyango lwe-PV. Oku kunokubandakanya ukutshintsha idosi yamayeza akho okanye ukuzama unyango olutsha.

Ukuthatha

IPolycythemia vera (PV) luhlobo lomhlaza wegazi onokuthi uqinise igazi kwaye wandise umngcipheko wamahlwili. Ukubeka iliso ngenyameko kunye nolawulo kunokunciphisa iimpawu kunye nomngcipheko weengxaki.

Ulawulo lwe-PV lubandakanya umsebenzi wegazi oqhelekileyo, kwaye unokubandakanya amayeza kunye ne-phlebotomy. Hlala uqhagamshelana neqela lakho lokhathalelo lwempilo kwaye ulandele isicwangciso sakho sonyango ukuze uzive ungcono.

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