Nantsi indlela iBlogging endinike ngayo iLizwi emva koxilongo lwam lwe-Ulcerative Colitis

Umxholo

• Ukwenza iqonga lokukhuthaza abanye
• Ukufunda ukukhuthaza impilo yakho
• Ukutshintsha kwemibono nokusasaza ithemba

Ngokwenza njalo, banikwa amandla abanye abantu basetyhini abane-IBD ukuba bathethe malunga noxilongo lwabo.

Izisu zaziyinxalenye yesiqhelo yobuntwana bukaNatalie Kelley.

Uthi: "Sisoloko siyikhuphela kum ukuba ndinesisu esibuthathaka," utshilo.

Nangona kunjalo, ngelixa wayesekholejini, uKelley waqala ukuqaphela ukunganyamezeli ukutya kwaye waqala ukuphelisa i-gluten, ubisi, kunye noshukela ngethemba lokufumana isiqabu.

"Kodwa ndandihlala ndibona lonke ixesha ukubamba okubuhlungu kunye neentlungu zesisu emva kokuba nditye nantoni na," utshilo. "Malunga nonyaka, bendingena ndiphuma kwii-ofisi zoogqirha ndixelele ukuba ndine-IBS [isifo samathumbu esinganyanzelekanga, imeko yamathumbu engadumbisiyo] kwaye ndifuna ukuqonda ukuba kukuphi ukutya okungandisebenzelanga."

Inqaku lakhe lokuncama lafika ehlotyeni ngaphambi konyaka wakhe wokugqibela ekholejini e-2015. Wayehamba eLuxembourg kunye nabazali bakhe xa wabona igazi kwisitulo sakhe.

“Kulapho ndandisazi ukuba kukho into enzima kakhulu eyenzekayo. Umama wafunyaniswa ukuba unesifo sikaCrohn njengomntu ofikisayo, ke siye sahlanganisa ezimbini nangona sasinethemba lokuba yayisisibetho okanye ukutya eYurophu kwakwenza okuthile kum, "ukhumbula uKelley.

Xa ebuyela ekhaya, wacwangcisa i-colonoscopy, eyakhokelela ekubeni afunyaniswe kakubi nesifo sikaCrohn.

"Ndaye ndenziwa uvavanyo lwegazi kwiinyanga ezimbalwa kamva, kwaye kulapho bagqiba kwelokuba ndine-ulcerative colitis, utshilo uKelley.

Kodwa endaweni yokuziva uphantsi malunga noxilongo, uKelley uthi esazi ukuba unesifo sokukrala kwezilonda kumzisele uxolo lwengqondo.

"Ndandihambahamba iminyaka emininzi kule ntlungu ingapheliyo kunye nokudinwa okungagungqiyo, ke isifo saphantse saba ngathi kukuqinisekiswa emva kweminyaka emininzi ndizibuza ukuba kuqhubeka ntoni," utshilo. “Ndiyazi ke ngoko ukuba ndingathatha amanyathelo okuphucula kunokuba ndithethe ndingaboni kakuhle ndinethemba lokuba into endingayityiyo inganceda. Ngoku, ndingadala isicwangciso sokwenyani kunye nomgaqo olandelwayo kwaye ndisiya phambili. ”

Ukwenza iqonga lokukhuthaza abanye

Ngelixa uKelley wayefunda ukukhangela isifo sakhe esitsha, wayephethe nebhlog yakhe Intle kwaye ilungile, awayeyiqale kwiminyaka emibini ngaphambili. Ukanti ngaphandle kokuba eneli qonga, imeko yakhe yayingengombandela awayenomdla wokubhala ngawo.

"Xa ndafunyaniswa okokuqala, andizange ndithethe nge-IBD kangako kwibhlog yam. Ndicinga ukuba inxalenye yam isafuna ukuyihoya. Ndandikunyaka wam wokugqibela ekholejini, kwaye kunokuba nzima ukuthetha malunga nabahlobo okanye nosapho, ”utshilo.

Nangona kunjalo, waziva ebizelwa ukuba athethe ngaphandle kwebhlog yakhe kunye neakhawunti ye-Instagram emva kokuba ne-flare-up eyamfaka esibhedlele ngoJuni 2018.

“Esibhedlele, ndiye ndabona indlela ekukhuthaza ngayo ukubona abanye abantu basetyhini bethetha nge-IBD kwaye bencedisa. Ukubhloga malunga ne-IBD kunye nokuba neqonga lokuthetha ngokukhululekileyo ngokuhlala kwesi sifo singanyangekiyo kundincede ndaphilisa ngeendlela ezininzi. Kuyandinceda ndizive ndiqondwa, kuba xa ndithetha nge-IBD ndifumana amanqaku avela kwabanye abafumana le nto ndihamba kuyo. Ndiziva ndindodwa kulo mlo, kwaye leyo yeyona ntsikelelo inkulu. ”

Ujolise kubukho bakhe kwi-Intanethi malunga nokukhuthaza abanye abantu basetyhini abane-IBD.

Ukusukela oko waqala ukuthumela malunga ne-ulcerative colitis kwi-Instagram, uthi ufumene imiyalezo elungileyo evela kwabasetyhini malunga nendlela ezikhuthaze ngayo iiposti zakhe.

"Ndifumana imiyalezo evela kubafazi bendixelela ukuba baziva bexhotyisiwe kwaye bezithembile ukuthetha nge [IBD yabo] nabahlobo, usapho kunye nabantu ababathandayo," utshilo uKelley.

Ngenxa yempendulo, waqala ukubamba uthotho lwe-Instagram olubizwa ngokuba yi-IBD Warrior Women rhoqo ngoLwesithathu, xa ethetha nabasetyhini abahlukeneyo abane-IBD.

"Sithetha ngeengcebiso zokuba nethemba, indlela yokuthetha nabantu obathandayo, okanye indlela yokujonga ikholeji okanye imisebenzi ye-9-to-5, utshilo uKelley. "Ndiqala ezi ncoko kwaye ndabelana namanye amabali wabasetyhini kwiqonga lam, into ebangela umdla kakhulu, kuba okukhona sibonisa ukuba ayisiyo into yokuzifihla okanye ukuba neentloni ngayo kwaye kokukhona sibonisa ukuba amaxhala ethu, unxunguphalo kunye nempilo yengqondo. [iinkxalabo] eziza ne-IBD ziqinisekisiwe, kokukhona siya kuqhubeka sixhobisa abantu basetyhini. ”

Ukufunda ukukhuthaza impilo yakho

Ngamaqonga akhe ekuhlaleni, uKelley unethemba lokukhuthaza abantu abancinci abanesifo esinganyangekiyo. Kwiminyaka engama-23 kuphela ubudala, uKelley wafunda ukubhengeza impilo yakhe. Inyathelo lokuqala yayikukufumana ukuzithemba kuchazela abantu ukuba ukutya abakukhethayo kwakukukuphila kwakhe.

"Ukudibanisa ukutya kwiivenkile zokutyela okanye ukuzisa ukutya kweTupperware kwitheko kungafuna inkcazo, kodwa okukhona ungazenzi lula ngalo nto, kokukhona abantu abakungqongileyo baya kuba nzima," utshilo. "Ukuba abantu abafanelekileyo bakho ebomini bakho, bayakuhlonipha ukuba kufuneka wenze ezi zigqibo nokuba zahlukile kancinane kunabanye."

Okwangoku, uKelley uyavuma ukuba kunokuba nzima ebantwini ukudibana nabo bakwishumi elivisayo okanye ama-20 aphila nesifo esinganyangekiyo.

“Kunzima esemncinci, kuba uziva ngathi akukho mntu uyiqondayo, ke kunzima kakhulu ukuzimela okanye uthethe ngako ngokuphandle. Ngokukodwa kuba kwi-20s yakho, ufuna kakhulu ukwanela, utshilo.

Ukujonga umncinci kwaye usempilweni kongeza kumceli mngeni.

Into engabonakaliyo ye-IBD yenye yezona zinto zinzima ngayo, kuba indlela oziva ngayo ngaphakathi ayisiyiyo le iqikelelweyo kwihlabathi ngaphandle, kwaye ke abantu abaninzi bacinga ukuba uyayibaxa okanye uyayenza, kwaye loo nto Idlala kwimicimbi eyahlukeneyo yempilo yakho yengqondo, utshilo uKelley.

Ukutshintsha kwemibono nokusasaza ithemba

Ukongeza ekusasazeni ulwazi kunye nethemba kumaqonga akhe, uKelley ukwadibana neHealthline ukumela usetyenziso lwasimahla lwe-IBD Healthline, oludibanisa abo bahlala ne-IBD.

Abasebenzisi banokukhangela iiprofayili zelungu kwaye bacele ukuthelekisa naliphi na ilungu eluntwini. Banokujoyina ingxoxo yeqela ebanjwa mihla le ekhokelwa sisikhokelo se-IBD. Imixholo yokuxoxa ibandakanya unyango kunye neziphumo ebezingalindelekanga, ukutya kunye nolunye unyango, impilo yengqondo kunye neemvakalelo, ukuhamba ngononophelo lwempilo kunye nomsebenzi okanye isikolo, kunye nokulungiswa kwesifo esitsha.

Ukongeza, usetyenziso lubonelela ngempilo entle kunye nomxholo weendaba oqwalaselwe ziingcali zonyango zeHealthline ezibandakanya ulwazi kunyango, uvavanyo lweklinikhi, kunye nophando lwamva nje lwe-IBD, kunye nokuzikhathalela kunye nolwazi lwempilo yengqondo kunye namabali abo avela kwabanye abaphila ne-IBD.

U-Kelley uza kubamba izingxoxo ezibukhoma ezimbini kumacandelo ahlukeneyo e-app, apho aya kuthi abeke imibuzo kubathathi-nxaxheba ukuba baphendule kwaye baphendule imibuzo yabasebenzisi.

UKelley uthi: "Kulula kakhulu ukuba nengqondo eyoyisiweyo xa sifunyaniswa sinesifo esinganyangekiyo." "Elona themba lam likhulu kukubonisa abantu ukuba ubomi busengamangalisa kwaye banokufikelela kuwo onke amaphupha abo nangaphezulu, nokuba baphila nesifo esinganyangekiyo njenge-IBD."

UCathy Cassata ngumbhali ozimeleyo ojolise kumabali ajikeleze impilo, impilo yengqondo kunye nokuziphatha komntu. Unobuchule bokubhala ngeemvakalelo kunye nokunxibelelana nabafundi ngendlela enengqiqo nenomdla. Funda ngakumbi ngomsebenzi wakhe Apha.