Ukuphila kakuhle ne-Ankylosing Spondylitis: Izixhobo zam endizithandayo kunye nezixhobo

Umxholo

• 1. Ukuthomalalisa iintlungu
• 2. Umqamelo wokuhamba
• 3. Intonga yokubamba
• 4. Ityuwa ye-Epsom
• 5. Idesika emileyo
• 6. Ingubo yombane
• 7. Izibuko zelanga
• 8. Iipodcasts kunye neencwadi ezimanyelwayo
• Yise kude

Sibandakanya iimveliso esicinga ukuba ziluncedo kubafundi bethu. Ukuba uthenga amakhonkco kweli phepha, sinokufumana ikhomishini encinci. Nantsi inkqubo yethu.

Ndine-ankylosing spondylitis (AS) phantse ishumi leminyaka. Ndizifumene iimpawu ezinjengeentlungu ezingapheliyo zomqolo, ukusikelwa umda kokudinwa, ukudinwa okugqithisileyo, imiba yesisu (GI), ukudumba kwamehlo, kunye nentlungu edibeneyo. Khange ndifumane ukuxilongwa ngokusesikweni kude kube semva kweminyaka embalwa ndiphila nezi mpawu zingathandekiyo.

AS imeko engalindelekanga. Andazi ukuba ndiza kuziva njani ukusukela ngemini enye ukuya kolandelayo. Oku kungathandabuzeki kunokubangela uxinzelelo, kodwa kule minyaka idlulileyo, ndiye ndafunda iindlela zokunceda ukulawula iimpawu zam.

Kubalulekile ukuba wazi ukuba into esebenzela omnye umntu ayinakusebenza komnye. Oko kuya kuyo yonke into-ukusuka kunyango ukuya kolunye unyango.

I-AS ichaphazela wonke umntu ngokwahlukileyo. Izinto ezinje ngenqanaba lakho lokomelela komzimba, indawo yokuhlala, ukutya, kunye noxinzelelo lwamanqanaba zonke izinto zinokuthi zichaphazele njani i-AS kumzimba wakho.

Sukuba nexhala ukuba ichiza elisebenza kumhlobo wakho one-AS alincedisi kwiimpawu zakho. Inokuba nje ufuna amayeza ahlukileyo. Kuya kufuneka wenze uvavanyo kunye nephutha ukufumana isicwangciso sakho sonyango esifanelekileyo.

Kum, eyona nto isebenzayo kukulala ubuthongo obuhle, ukutya okucocekileyo, ukuzilolonga, kunye nokugcina uxinzelelo kum. Kwaye, ezi zixhobo zisibhozo zilandelayo kunye nezixhobo zikwanceda ukwenza umahluko kwihlabathi.

1. Ukuthomalalisa iintlungu

Ukusuka kwigels ukuya kwiipatches, andinakuyeka ukurhabaxa malunga nale nto.

Kule minyaka idlulileyo, bebebaninzi ubusuku bokungalali. Ndifumana iintlungu ezininzi kumqolo wam osezantsi, esinqeni nasentanyeni. Ukufaka isicelo se-over-the-counter (OTC) sokuthomalalisa iintlungu esifana neBiofreeze kundinceda ndilale ngokundiphazamisa kwintlungu eqaqambileyo kunye nokuqina.

Kwakhona, kuba ndihlala e-NYC, ndihlala ebhasini okanye kwindlela ehamba ngaphantsi komhlaba. Ndizisa ityhubhu encinci yeTiger Balm okanye imitya embalwa ye-lidocaine kunye nam xa ndihamba. Kuyandinceda ukuba ndizive ndikhululeke ngakumbi ngexesha lokuhamba kwam ukwazi ukuba ndinento kunye nam kwimeko yokuphakama.

2. Umqamelo wokuhamba

Akukho nto injengokuba phakathi kokuqina, okubuhlungu kwe-AS flare-up ngelixa ukhwele ibhasi okanye ukukhwela kwinqwelomoya. Njengenyathelo lokuthintela, bendihlala ndibeka imitya ye-lidocaine ngaphambi kokuhamba.

Olunye uhambo lwam endiluthandayo kukuzisa umqamelo wokuhamba okwimo ka-U kunye nam kuhambo olude. Ndifumanise ukuba umqamelo wokuhamba olungileyo uya kuyibeka intamo yakho kamnandi kwaye akuncede ulale.

3. Intonga yokubamba

Xa uziva uqinile, ukukhetha izinto phantsi kunokuba nzima. Nokuba amadolo akho atshixiwe, okanye awukwazi ukugoba umqolo wakho ukuze ubambe into oyifunayo. Kunqabile ukuba ndisebenzise i-stick stick, kodwa inokuba luncedo xa ndifuna ukufumana into phantsi.

Ukugcina intonga yokubambelela kunokukunceda ufumane izinto ezikufikelela nje kwingalo. Ngale ndlela, akusayi kufuneka uphakame esihlalweni sakho!

4. Ityuwa ye-Epsom

Ndinengxowa ye-lavender Epsom ityuwa ekhaya ngalo lonke ixesha. Ukuntywila kwindawo yokuhlambela ityuwa ye-Epsom kangangemizuzu eli-10 ukuya kweli-12 kunokuba nakho ukubonelela ngezibonelelo ezilungileyo. Umzekelo, unokunciphisa ukudumba kunye nokunciphisa iintlungu zemisipha kunye noxinzelelo.

Ndiyathanda ukusebenzisa ityiwa ye-lavender kuba ivumba leentyatyambo lidala imeko efana ne-spa. Kuyathuthuzela kwaye kuzolile.

Gcina ukhumbule ukuba wonke umntu wahlukile, kwaye akunakufumana zibonelelo ezifanayo.

5. Idesika emileyo

Xa ndandisebenza eofisini, ndacela idesika emileyo. Ndixelele umphathi wam malunga ne-AS yam kwaye ndacacisa ukuba kutheni ndifuna ukuba nedesika ehlengahlengiswayo. Ukuba ndihlala imini yonke, ndiza kuziva ndiqinile.

Ukuhlala kunokuba lutshaba lwabantu abane-AS. Ukuba nedesika yokuma kundinika ukuhamba ngakumbi kunye nokuguquguquka. Ndiyakwazi ukugcina intamo yam ngokuthe nkqo endaweni yokutshixa, ezantsi. Ukukwazi ukuhlala okanye ukuma edesikeni yam kundivumele ukuba ndonwabele iintsuku ezininzi ezingenazintlungu ngelixa ndikuloo msebenzi.

6. Ingubo yombane

Ubushushu bunceda ekunciphiseni iintlungu kunye nokuqina kwe-AS. Ingubo yombane sisixhobo esihle kuba sigubungela wonke umzimba wakho kwaye siyathuthuzela.

Kwakhona, ukubeka ibhotile yamanzi ashushu ngokuchasene nomqolo ongezantsi kunokwenza imimangaliso kuyo nayiphi na intlungu yendawo okanye ukuqina. Ngamanye amaxesha ndiza nebhotile yamanzi ashushu xa ndihamba, ukongeza kumqamelo wokuhamba.

7. Izibuko zelanga

Ngexesha lam lokuqala leentsuku ze-AS, ndakhula i-anterior uveitis engapheliyo (ukudumba kwe-uvea). Esi yingxaki eqhelekileyo ye-AS. Kubangela iintlungu ezoyikekayo, ukuba bomvu, ukudumba, ubuntununtunu bokukhanya, kunye neetafile kumbono wakho. Inokuphazamisa umbono wakho. Ukuba awufuni unyango ngokukhawuleza, kunokuba nefuthe lexesha elide kumandla akho okubona.

Ubuntununtunu bokukhanya yayiyeyona ndawo yayimbi ye-uveitis kum. Ndiqale ukunxiba iiglasi ezinombala ezenzelwe abantu abanobuntununtunu bokukhanya. Kwakhona, i-visor inokukunceda ukukhusela ekukhanyeni kwelanga xa ungaphandle.

8. Iipodcasts kunye neencwadi ezimanyelwayo

Ukumamela ipodcast okanye incwadi yeaudiyo yindlela elungileyo yokufunda malunga nokuzikhathalela. Isenokuba sisiphazamiso esihle. Xa ndidiniwe nyani, ndiyathanda ukubeka ipodcast kwaye ndenze ukukhanya, ukuzolula.

Isenzo esilula sokuphulaphula sinokundinceda ukuba ndenze uxinzelelo (amanqanaba oxinzelelo lwakho anokuba nefuthe lokwenyani kwiimpawu ze-AS). Zininzi iipodcast malunga ne-AS yabantu abafuna ukufunda ngakumbi ngesi sifo. Chwetheza nje "i-ankylosing spondylitis" kwibar yakho yokukhangela ye-podcast kwaye ungene kuyo!

Yise kude

Zininzi izixhobo eziluncedo kunye nezixhobo ezikhoyo kubantu abane-AS. Kuba imeko ichaphazela wonke umntu ngokwahlukileyo, kubalulekile ukuba ufumane okukusebenzelayo.

Umbutho waseSpondylitis waseMelika (i-SAA) sisixhobo esihle kuye nabani na ojonge ukufumana ulwazi oluthe kratya malunga nesi sifo okanye indawo yokufumana inkxaso.

Nokuba lithini ibali lakho le-AS, ufanele ukonwaba, ngaphandle kwentlungu. Ukuba nezixhobo ezimbalwa eziluncedo macala kungenza imisebenzi yemihla ngemihla ibe lula ukuyenza. Kum, ezi zixhobo zingasentla zenza wonke umahluko kwindlela endiziva ngayo kwaye ziyandinceda ukuphatha imeko yam.

ULisa Marie Basile yimbongi, umbhali we “UkuKhanya okuKhanyayo kwamaXesha oMnyama, ”Kunye nomhleli osekiweyo Imagazini yeLuna Luna. Ubhala malunga nokuba sempilweni, ukubuyela kwimeko yesiqhelo, usizi, isigulo esinganyangekiyo kunye nokuphila ngenjongo. Umsebenzi wakhe unokufumaneka kwiThe New York Times kunye neMagazini yeSabat, nakwiNdatshana, iHealthline, kunye nokunye. Mfumane lisamariebasile.com, njengo I-Instagram kwaye Twitter.