Uphefumlelwe kwisenzo: IHepatitis C, Ibali likaPauli
Umxholo
“Akufanele kubekho sigwebo. Bonke abantu bafanele ukunyangwa kwesi sifo soyikekayo kwaye bonke abantu kufuneka baphathwe ngenkathalo nangentlonipho. ” - UPauli Ngwevu
Uhlobo lwesifo esahlukileyo
Ukuba ubalekele kuPauli Grey uhamba izinja zakhe ezimbini kwizitrato zaseSan Francisco namhlanje, ungabona ipep kwinyathelo lakhe. Imvumi edlamkileyo kunye ne-rock 'n' roll eyintshatsheli, uGrey ubonakalisa uvuyo. Into ongayi kuyiphawula kukuba usandula ukuphiliswa kusuleleko olunzulu lwentsholongwane: i-hepatitis C.
"Ligama elinomdla, 'uphilisiwe,' kuba ndiya kuhlala ndivavanya i-antibody positive, kodwa ihambile, utshilo. "Imkile."
Ngelixa usulelo lungasekho, usaziva impembelelo yakhe. Kungenxa yokuba, ngokungafaniyo nezinye iimeko ezininzi ezingapheliyo ezifana nesifo samathambo okanye umhlaza, i-hepatitis C inebala elibi kakhulu. Esi sifo sidluliselwa ligazi elosulelekileyo. Ukwabelana ngeenaliti, ukwenza umvambo okanye ukugqobhoza kwindawo engalawulekiyo, kwaye, kwiimeko ezinqabileyo, ukuzibandakanya kunxibelelwano olungakhuselekanga ngokwesondo zonke iindlela zokufumana i-hepatitis C.
"Kuninzi ukubekwa ibala ekuhlaleni kubotshelelwe kwi-hepatitis C," utshilo uGrey. “Sasiyibona ngaphambili nge-HIV ngexesha le-80s. Olu luluvo lwam nje, kodwa ndicinga ukuba kukho imbono yabantu abasebenzisa iziyobisi, kwaye babuyela kwiminyaka yama-80s ababesebenzisa iziyobisi, nabantu abathandana nesini esinye, ngokungathi banokulahlwa. ”
Ukwenza uninzi lwayo
Ngelixa ibala elijikeleze i-hepatitis C lisenokuba limbi kubomi bukaGrey, wayiguqula yayinto entle. Ujolise kuninzi lwexesha lakhe namhlanje kwimfundo yonyango, ukucebisa, kunye nokuthintela ngaphezulu.
"Ndiyaphuma ndizame ukuyenza le ndawo ibe ngcono kancinci yonke imihla," utshilo.
Ngomsebenzi wakhe wokukhuthaza, uGrey wakhubeka kwisifiso esitsha sokukhathalela abanye. Uyaqonda ukuba ngewayengazange awufumane lo mnqweno ukuba yena ngokwakhe akazange afunyaniswe enesi sifo. Oku kuyinyani ngakumbi kuba kuye kwafuneka ukuba anyanzele ukuba kuvavanywe kwasekuqaleni, ngakumbi kuba oogqirha bazikhuphile iimpawu zakhe.
"Ndazi ukuba andiziva mnandi," utshilo uGrey, amehlo akhe ethe nca kwithemba lokuphelelwa lithemba. "Bendisazi ukuba indlela endandiphila ngayo ngaphambili indibeke emngciphekweni wokuhlaselwa sisifo sikaHep C. Ndandinengxaki yokudinwa nokudakumba nenkungu yengqondo, ngenxa yoko ndanyanzela ukuba ndivavanywe."
Unyango olutsha, ithemba elitsha
Nje ukuba afumane isifo, uGrey wagqiba kwelokuba ajoyine uvavanyo lwezonyango. Kodwa kude kube yiminyaka embalwa edlulileyo, unyango lwalungenanto ngaphandle kokuhamba epakini.
"Kwakunzima kakhulu, kunzima kakhulu," utsho ngokucacileyo. "Ndandinemibono emininzi yokuzibulala kwaye andinjalo."
Ebona ukuba akanako ukuzibeka yena okanye umzimba wakhe kule nto kwakhona, wayeka le ndlela yokuqala yonyango emva kweenyanga nje ezintandathu. Sekunjalo, akazange anikezele. Xa uhlobo olutsha lonyango lwalufumaneka, uGrey wagqiba kwelokuba alufunele.
"Kwakunzima kancinci, kodwa yayingomnye umnyele ngokupheleleyo kunyango lwangaphambili, kwaye wawusebenza, kwaye ndaziva ndibhetele kungaphelanga inyanga," utshilo.
Kule mihla, enye yeenjongo zakhe kukunceda abanye baphilise ngonyango. Unika izifundo, iintetho, kunye neeseshoni zoqeqesho kunye neeworkshops kwi-hepatitis C, kunye ne-HIV, ukuthintela ukugqithisa, ukunciphisa ingozi kunye nokusetyenziswa kweziyobisi. Ngokwabelana ngebali lakhe, ukhuthaza nabanye ukuba bacinge ngekamva labo.
"'Yintoni endiza kuyenza ngokulandelayo?' Ngumbuzo omkhulu," utshilo. "Ndixelela abazali bam, 'Unokuziva ubhetele ngenyanga,' kwaye phantse bahlala bethanda. Ivula amathuba amaninzi kwikamva. ”
Kule minyaka ili-15 idlulileyo - kwa eli xesha linye kwamthatha ukuba afunyanwe - uGrey ebesebenzisa umsebenzi wakhe wokukhuthaza abanye ukuba aqinisekise ukuba likho ithemba. Uxelela abanye ukuba ukunyangwa kubhetele kakhulu kunokungafumani unyango.