Ukulawula iindleko zeHodgkin's Lymphoma Treatment

Umxholo

• Ukuhlawulwa kwezonyango 101
• Utyelelo olunye, ababoneleli abaninzi
• Izaphulelo kunye nezicwangciso zokuhlawula
• Amanyeneyo akho kuyo yonke indawo
• Iindleko zonyango ezingakumbi
• Imigqaliselo kunye nezongezo
• Ukugcinwa kokuchuma
• Unyango kunye nezixhobo zokuhlala uzolile
• Ukujongana nelahleko yeenwele
• Ubomi bemihla ngemihla
• Ukufumana iimpahla ezintsha
• Ukutya okusempilweni kunye nokuzilolonga
• Ukugcinwa kwezindlu
• Iibhili eziqhelekileyo zenyanga kunye nokuhamba
• Izinto zasimahla ezinceda ngokwenene
• Port umqamelo
• Tote ye chemo
• Iiholide
• Ukuthatha

Emva kokufumana uxilongo lweqonga le-3 yakudala iHodgkin's lymphoma, ndaziva iimvakalelo ezininzi, kubandakanya noloyiko. Kodwa enye yezona zinto ziphazamisayo kuhambo lwam lomhlaza inokukumangaza: ukulawula iindleko. Kwisihlandlo ngasinye ndibonwa ngugqirha, ndandiboniswa iphetshana elichaza iindleko zolo tyelelo, into eyayihlawulwa yi-inshurensi yam, kunye nemali endinoxanduva ngayo.

Ndikhumbula ndithandabuza ukukhupha ikhadi lam letyala kaninzi ukwenza intlawulo encinci ecetyiswayo. Ezi ntlawulo, kunye neqhayiya lam, laqhubeka lancipha de ndade ndawakhupha amagama athi, "Andinakukwazi ukwenza intlawulo namhlanje."

Ngalo mzuzu, ndiye ndayiqonda indlela endixakeke ngayo kukufumanisa isifo kwaye iindleko ezihamba kunye nazo. Ngaphezulu kokufunda malunga nokuba isicwangciso sam sonyango siza kuba njani kunye neziphumo ebezingalindelekanga ezinokubangela, ndafunda malunga noko kuya kufuneka ndihlawule. Ndikhawuleze ndabona ukuba umhlaza uzakuthatha indawo yemoto entsha endinethemba lokuyithenga kulo nyaka.

Kwaye ngokukhawuleza ndabaleka ndaya kwiindleko ezingakumbi endandingazilungiselelanga, ukusuka ekutyeni okusempilweni ukuya kwiiwigi.

Kunzima ngokwaneleyo ukujongana nokuxilongwa ngumhlaza ngaphandle kwamatyala. Ngexesha elithile, uphando, kunye neengcebiso, ndiqokelele ulwazi oluninzi malunga nokulawula iindleko zonyango lwe-Hodgkin's lymphoma- kwaye ndiyathemba ukuba endikufundileyo kuluncedo nakuwe.

Ukuhlawulwa kwezonyango 101

Masiqale ngeemali zonyango. Ndinethamsanqa ukuba ne-inshurensi yezempilo. Ukutsalwa kwam kulawuleka kwaye ukuphuma kwam epokothweni ubuninzi- nangona kunzima kuhlahlo-lwabiwo mali - khange kuyophule.

Ukuba awunayo i-inshurensi yezempilo, unokufuna ukuphonononga ukhetho lwakho ngokukhawuleza. Unokufumana isicwangciso sezempilo esinexabiso okanye iMedicaid.

Qho ngenyanga, i-inshurensi yam indithumela Uqikelelo lweeNzuzo (i-EOB). Olu xwebhu luchaza ukuba zeziphi izaphulelo okanye iintlawulo eziza kubonelelwa yi-inshurensi yakho kumaziko akuhlawulisayo nangeendleko ekufuneka ulindele ukuba uxanduva lwakho kwezi veki zilandelayo.

Ngamanye amaxesha unokubhatalwa iintsuku, iiveki, okanye iinyanga emva kotyelelo lwengcali yezonyango. Abanye babanikezeli bam baphathe ukuhlawula kwi-Intanethi kwaye abanye bathumela amatyala ngeposi.

Nazi izinto ezimbalwa endizifundileyo apha endleleni:

Utyelelo olunye, ababoneleli abaninzi

Nokuba undwendwele nje unyango olunye, unokuhlawulwa ngabanikezeli bonyango abahlukeneyo.Ukuqala kwam ukwenza utyando, ndahlawuliswa sisibonelelo, ugqirha wotyando, ugqirha wotyando, ilebhu eyayenza i-biopsy, kunye nabantu abafunda iziphumo. Kubalulekile ukwazi ukuba ubona bani, nini, kwaye yintoni. Oku kuya kunceda ekuboneni iimpazamo kwii-EOBs zakho okanye kwiibhili.

Izaphulelo kunye nezicwangciso zokuhlawula

Cela izaphulelo! Bonke ngaphandle kwabanikezeli bam bezonyango bandinike izaphulelo xa ndihlawule iindleko zam ngokupheleleyo. Oku ngamanye amaxesha kwakuthetha ukudada kwikhadi lam lekhredithi iiveki ezimbalwa, kodwa kwahlawula ekuhambeni kwexesha.

Kukwafanelekile ukubuza ukuba ungasebenzisa isicwangciso sokuhlawula impilo. Ndikwazile ukugqithisela ibhalansi yam enkulu kumntu wesithathu ngemali-mboleko yenzala yeepesenti kunye neentlawulo ezincinci ezilawulwayo.

Amanyeneyo akho kuyo yonke indawo

Cinga ngobuchule malunga nokuba ngubani onokuba liqabane lakho xa kuziwa kulawulo lweendleko. Ngokukhawuleza unokufumana uncedo kwiindawo ongazilindelanga, umzekelo:

• Ndikwazile ukunxibelelana nomququzeleli wezibonelelo ngomqeshi wam ondincedileyo ukuba ndibone izixhobo ezikhoyo kum.
• Ndandinesihlengikazi esabelwe mna nge-inshurensi yam eyaphendula imibuzo malunga ne-inshurensi yam kunye nee-EOBs. Ude wenza njengebhodi enesandi xa ndingazi ukuba ndingajonga phi ukuze ndifumane iingcebiso.
• Omnye woogxa bam wayesebenze kwicandelo lezonyango amashumi eminyaka. Undincede ndayiqonda le nkqubo kwaye ndahamba ngeengxoxo ezinzima.

Ngokwamava am, ndiye ndaqonda ukuba ukugcina amatyala ezonyango kunokuziva kungumsebenzi wesingxungxo. Yindalo ukukhathazeka. Kuqhelekile ukuba kufuneka ucele ukuthetha nabaphathi.

Kuya kufuneka wenze ukuba izicwangciso zakho zokuhlawula zikusebenzele. Musa ukunikezela! Oku akufanele kube ngumqobo omkhulu kwidabi lakho lokulwa nomhlaza.

Iindleko zonyango ezingakumbi

Iindleko zonyango ezihamba nokuxilongwa komhlaza zihamba ngaphaya kweebhili zokuqeshwa kunye nabanikezeli bezempilo. Iindleko zokumiselwa, unyango kunye nokunye kunokongeza ngokukhawuleza. Nalu ulwazi malunga nokubalawula:

Imigqaliselo kunye nezongezo

Ndifundile ukuba amaxabiso amayeza ayahluka kakhulu. Kulungile ukuthetha nodokotela wakho malunga neendleko. Yonke imigqaliselo yam inokukhetha. Oko kuthetha ukuba ndikwazile ukubafumana ngamaxabiso aphantsi eWalmart.

Ezinye iindlela zokunciphisa iindleko zibandakanya:

• Ukujonga indawo engenzi nzuzo. Umzekelo, indawo engenzi nzuzo ekuthiwa yi-Hope Cancer Resources partner kunye ne-oncologist's office yam yokubonelela ngoncedo ekuthengeni imimiselo enxulumene nonyango.
• Ukukhangela kwi-Intanethi kunokukunceda ufumane izaphulelo okanye izaphulelo. Ukuba uthatha isigqibo sokuthatha izongezo, yenza uthelekiso lwamaxabiso ngokukhawuleza: kunokuba ngexabiso eliphantsi ukuzikhetha kwi-Intanethi.

Ukugcinwa kokuchuma

Bendingalindelanga ukuba ndifunde ukuba ukulahleka kokuchuma kunokuba sisiphumo esibi kunyango. Ukuthatha inyathelo ukugcina ukuchuma kunokubiza, ngakumbi kwabasetyhini. Ndikhethe ukuyiphepha le ndleko, kuba isenokulibazisa ukuqala konyango lwam.

Ukuba unomdla wokulondolozwa kokuchuma, cela i-inshurensi yakho malunga nokugubungela. Unokujonga kunye nomnxibelelanisi wakho wezibonelelo ukubona ukuba ungalufumana uncedo nakweziphi na iinkqubo ezinikezelwa ngumqeshi wakho.

Unyango kunye nezixhobo zokuhlala uzolile

Ukuphila nomhlaza kunokuba noxinzelelo. Ngamanye amaxesha ndiye ndizive ngathi ndikumlo omkhulu wobomi bam. Kungenxa yoko le nto kubaluleke kakhulu ukuba uzive uxhaswa kwaye ufunde iindlela ezisempilweni zokumelana nazo.

Kodwa nangona i-inshurensi igubungela, unyango luhlala lubiza. Ndikhethe ukwenza olu tyalomali ndisazi ukuba eyona mali yam iphuma ngaphandle epokothweni yeinshurensi yam yezempilo izakufezekiswa kungekudala. Oku kuthetha ukuba ndingaya kunyango simahla uninzi lonyaka.

Ukuba awufuni ukuchitha imali kunyango, jonga kumqeshi wakho, amaziko onyango lwasekhaya, kunye nezinto ezingenzi nzuzo zalapha ukuze ubone ukuba ungalufumana na uncedo. Enye indlela kukuya kumaqela enkxaso okanye ubhangqwe nexhoba elinokunika iingcebiso.

Kwaye zikho ezinye iindlela zokunciphisa uxinzelelo. Okwandothusa kakhulu kukuba abongikazi bam be-chemotherapy bandikhuthaza ukuba ndifumane ukuphululwa! Kukho imibutho ebonelela ngokuthanjiswa ngokukodwa kwizigulana ezinomhlaza, ezinje nge-Angie's Spa.

Ukujongana nelahleko yeenwele

Unyango oluninzi lomhlaza lubangela ukulahleka kweenwele- kwaye iiwigi zinokuba yenye yeendlela ezibiza kakhulu zokuphila nomhlaza. Kuhle, iiwigi zeenwele zabantu zibiza amakhulu okanye amawaka eedola. Iiwigi zokwenziwa zifikeleleka ngakumbi kodwa zihlala zifuna umsebenzi ukuze zibukeke njengeenwele zendalo.

Ukuba ukhetha i-wig, jonga iYouTube okanye ubuze umntu owenza iinwele zakho iingcebiso zokwenza iwigi ingabonakali kangako. Ukusikwa, ishampu ethile eyomileyo, kunye nokufihla kungenza umahluko omkhulu.

Xa kuziwa ekuhlawuleni i-wig yakho, cela i-inshurensi yakho ukuba igqunyiwe. Qiniseka ukuba usebenzisa igama elithi "cranial prosthesis" - yinto ephambili!

Ukuba i-inshurensi yakho ayiyigqibi i-wig, zama ukunxibelelana nabathengisi be-wig ngqo. Uninzi luya kubonelela ngesaphulelo okanye simahla ngokuthenga kwakho. Kukwakho nemibutho engakholelekiyo ebonelela ngeewigi zasimahla. Ndifumene iiwigi zasimahla ezivela:

• Isiseko seVerma
• Abahlobo bakwicala lakho
• Umbutho waseMelika womhlaza kwiWig Bank, enezahluko zalapha ekhaya

Omnye umbutho, obizwa ngokuba yiminqweno elungileyo, ubonelela ngezikhafu simahla okanye isongelo sentloko.

Nanku umfanekiso wam ndinxibe i-cap wig endiyifumene kwiVerma Foundation.

Ubomi bemihla ngemihla

Ngaphandle kweendleko zonyango, iindleko zobomi bemihla ngemihla ezinomhlaza zibalulekile. Kwaye ukuba ufuna ukuthatha ixesha elithile emsebenzini ohlawulelwayo ukugxila kunyango, ukugcina amatyala kunokuba nzima. Nantsi into endiyifundileyo:

Ukufumana iimpahla ezintsha

Ukuba unyangwa umhlaza, kunokuba luncedo ukuba unento entsha yokunxiba ukulungiselela utshintsho emzimbeni wakho. Unokufumana ukudumba njengesiphumo esisecaleni sonyango. Okanye, unokuba nezibuko elimiselweyo ukuvumela ukufikelela ngokulula kumthambo.

Kuzo zombini iimeko, kukho iindlela ezinokufikeleleka zokufumana iimpahla ezintsha, kubandakanya ukubetha indawo yokuhluza okanye ukuthenga izinto ezizezesibini. Kwaye khumbula ukuba abantu baya kufuna ukukunceda. Cinga ukwenza uluhlu lweminqweno kwivenkile oyithandayo yempahla kwaye wabelane ngayo.

Ukutya okusempilweni kunye nokuzilolonga

Ukugcina ukutya okunempilo kunye nokuhlala usebenza kangangoko kunokwenzeka zizimvo ezilungileyo- kodwa ngamanye amaxesha kunzima kuhlahlo-lwabiwo mali.

Ukwenza kube lula, jolise ekuvulekeni kuncedo olunokubonelelwa ngabantu ebomini bakho. Ababini endisebenza nabo bathatha ubunini bokundilungiselela uloliwe wokutya ngalo lonke ixesha lonyango lwam. Basebenzise le webhusayithi iluncedo ukugcina wonke umntu ehlelekile.

Ndikwacebisa ukubeka okupholileyo kwiveranda yakho kunye nokongeza iipakethe zomkhenkce xa abantu bezisa ukutya kuwe. Oku kuthetha ukuba ukutya kwakho kungahanjiswa ngaphandle kwakho kunye nosapho lwakho.

Ndinikwe namakhadi amaninzi ezipho ngokuhanjiswa. Ezi ziza ziluncedo xa usepinkini. Enye indlela abahlobo abanokungena ngayo kukudala iibhasikithi zezipho zokutya okuthandayo, okuphathayo kunye neziselo.

Xa kuziwa kwimisebenzi yomzimba, cinga ukunxibelelana neofisi yakho yaseMelika yoMhlaza. Imayini ibonelela ngeenkqubo zokutya nezomzimba simahla simahla. Unokujonga kwakhona kwiziko lakho loluntu lwasekuhlaleni, kwiindawo zokuzilolonga ezikufutshane, nakwizitudiyo zokomelela komzimba ukubona ukuba ungathatha inxaxheba nini kwiiklasi zasimahla okanye ukuba ngaba banikezela ngezilingo kubathengi abatsha.

Ukugcinwa kwezindlu

Phakathi kokuphila ubomi bakho obuqhelekileyo kunye nokulwa nomhlaza, kuyindalo ukuba uzive uphelelwe ngamandla-kwaye ukucoca kunokuba yinto yokugqibela oziva ngathi ufuna ukuyenza. Iinkonzo zokucoca zixabiso, kodwa zikhona ezinye iindlela.

Ndikhethe ukufaka isicelo soncedo ngokucoca isiCwangciso. Lo mbutho ukubhangqa nenkonzo yokucoca kwindawo yakho oya kuthi ucoce ikhaya lakho mahala kangangexesha eliqingqiweyo.

Umhlobo wam-owafunyaniswa enomhlaza kwiveki enye endandikhe-wasebenzisa enye indlela. Wenza uluhlu lwemisebenzi awayefuna uncedo kuyo kwaye wavumela abahlobo ukuba babhalisele imisebenzi nganye. Iqela labantu lonke linokuloyisa olu luhlu ngesiqwengana sexesha ebelinokuthatha ukuba aluthabathe yedwa.

Iibhili eziqhelekileyo zenyanga kunye nokuhamba

Ukuba unengxaki ngemali yakho yesiqhelo yenyanga okanye iindleko zothutho ukuya kwiindawo zokuqeshwa, kunokuba luncedo ukujonga imibutho yasekuhlaleni engenzi nzuzo. Umzekelo, kwindawo yam, iHope Cancer Resources inokubonelela abanye abantu ngoncedo lwezezimali malunga nemigqaliselo, irente, izinto eziluncedo, ukuhlawulwa kwemoto, irhasi, kunye neendleko zokuhamba kunyango lwangaphandle kwedolophu. Banikezela ngokuthuthwa kwabaqeshwa ngaphakathi kwe-60-mile radius.

Izixhobo ezingenzi nzuzo ezikhoyo ziya kuxhomekeka kwindawo yakho. Kodwa nokuba uhlala phi, abantu ebomini bakho banokufuna ukunika inkxaso. Ukuba abantu osebenza nabo, abahlobo, okanye abantu obathandayo bafuna ukuququzelela i-fundraiser yakho-bayeke!

Xa ndandiqala ukuvakaliswa, ndandiziva ndingonwabanga ngalo mbono. Nangona kunjalo, ngezi ngxowa-mali, ndakwazi ukuhlawula amawaka eedola kwiimali zam zonyango.

Enye indlela eqhelekileyo yokuba abahlobo bakunyusele imali ziinkonzo ezinjengeGoFundMe, evumela unxibelelwano lwakho ukuba lungene kunxibelelwano lwasentlalweni. I-GoFundMe ineziko loncedo elinetoni yeengcebiso ngendlela yokwenza uninzi lwengxowa-mali yakho.

Abantu ebomini bam bafumene iindlela ezizodwa zokuqokelela imali yokundinceda. Iqela lam emsebenzini liqale umbono "wokupasa umnqwazi" ngokushiya ikomityi yekofu kwidesika yam, kuba andizukubuyela eofisini iiveki. Abantu banokulahla kwaye banikele ngemali njengoko bekwazi.

Olunye uluvo oluhle luvela kumhlobo othandekayo ongumcebisi weScentsy. Wahlule ikhomishini yakhe kwinyanga yonke yokuthengisa kunye nam! Ngexesha lenyanga ayikhethileyo, wabamba umbhiyozo okwi-intanethi kunye nowabantu ngokundizukisa. Abahlobo bam kunye nosapho bathande ukuthatha inxaxheba.

Izinto zasimahla ezinceda ngokwenene

Ndichithe iiyure zokunceda abantu abajamelene nomhlaza. Endleleni, ndiye ndafunda ngezinto zasimahla kunye nezipho- kwaye ezinye zazo ziluncedo olukhulu:

Port umqamelo

Ukuba unezibuko ngexesha lonyango lwakho, unokuqaphela ukuba akuyongxaki ukunxiba ibhanti lesihlalo. Umbutho iThemba kunye nokuHugs kubonelela ngemiqamelo yasimahla encamathisela kwibhanti yakho yesihlalo! Le yinto encinci eyenze umahluko omkhulu ebomini bam.

Tote ye chemo

Umakazi wam oswiti, owabetha umhlaza wamabele, wayesazi ukuba ndiza kufuna ibhegi egcwele izinto ukuze ndiyise kwi-chemotherapy eyenza unyango lube lula. Ke, undiphe isipho somntu siqu. Nangona kunjalo, unokufumana i-tote yasimahla kwiProjekthi yeLydia.

Iiholide

Enye yezinto ezothusayo endizifumeneyo kukuba izigulana ezinomhlaza, kwaye ngamanye amaxesha abanakekeli, banokuhamba (ikakhulu) iholide yasimahla. Kukho uninzi olungenzi nzuzo oluqondayo ukuba kubaluleke kangakanani ikhefu kwidabi lakho lokulwa nomhlaza kunokuba sempilweni yakho. Nazi ezinye ezimbalwa:

• Inzala yokuqala
• Iphupha lekampu
• Thatha ikhefu kuMhlaza

Ukuthatha

Kum, ngamanye amaxesha kuye kwaba nzima ukucinga ngokulawula iindleko zomhlaza. Ukuba uziva njalo, nceda wazi ukuba kusengqiqweni ngokupheleleyo. Ukwimeko ongakhange ubuze ukuba ube kuyo kwaye ngoku ngequbuliso kulindeleke ukuba uhlawule iindleko.

Thatha umoya omninzi, kwaye ukhumbule ukuba kukho abantu abafuna ukunceda. Kulungile ukuxelela abantu into oyifunayo. Zikhumbuze ukuba uza kuyigqitha le nto, umzuzu omnye ngexesha.

UDininy LaNeé Freeman uyilo elihlala eBentonville, AR. Emva kokuba efunyaniswe ene-lymphoma yeHodgkin, waqala ngokwenza uphando olunzulu ngendlela yokulawula esi sifo kunye neendleko eziza naso. Ukutshatyalaliswa likholwa ekwenzeni umhlaba ube yindawo engcono kwaye unethemba lokuba abanye bayaxhamla kumava akhe. Okwangoku uyanyangwa, ngenkqubo yenkxaso eyomeleleyo yosapho kunye nabahlobo abasemva kwakhe. Ngexesha lakhe elongezelelekileyo, uSiphelo uyonwabela i-lyra kunye neyoga yasemoyeni. Ungamlandela @iamfanlalisa Kwi-Instagram.