Ayisiyiyo le nto ijongeka ngayo: Ubomi bam ngePseudobulbar echaphazela (PBA)

Umxholo

• UAllison Smith, 40
• Ukuhlala ne-PBA ukusukela ngo-2015
• UJoyce Hoffman, 70
• Ukuhlala ne-PBA ukusukela ngo-2011
• UDelanie Stephenson, 39
• Ukuhlala ne-PBA ukusukela ngo-2013
• UAmy Umdala, 37
• Ukuhlala ne-PBA ukusukela ngo-2011

I-Pseudobulbar echaphazelayo (i-PBA) ibangela ngesiquphe ukungalawuleki kunye nokubaxa kokugqabhuka ngokweemvakalelo, njengokuhleka okanye ukulila. Le meko inokukhula kubantu abanokulimala kwengqondo okanye abahlala nesifo se-neurological njenge-Parkinson okanye i-multiple sclerosis (MS).

Ukuhlala ne-PBA kunokukhathaza kwaye kube yodwa. Abantu abaninzi abazi ukuba yintoni i-PBA, okanye ukuba ukuphuma kweemvakalelo kuphuma kulawulo lwakho. Ngezinye iintsuku unokufuna ukuzimela kwihlabathi, kwaye kulungile. Kodwa kukho iindlela zokulawula i-PBA yakho. Ayisiyiyo kuphela indlela yokuphila enokukunceda ubone ukwehla kweempawu, kodwa kukwakho amayeza akhoyo okugcina iimpawu zakho ze-PBA zisemngciphekweni.

Ukuba usandula ukufumanisa ukuba une-PBA, okanye uhlala nayo okwethutyana kwaye uziva ngathi awukwazi ukonwabela umgangatho wobomi, amabali amane angezantsi anokukunceda ufumane indlela yakho yokuphilisa. Aba bantu banesibindi bonke bahlala ne-PBA kwaye bafumene iindlela zokuphila obona bomi bumnandi ngaphandle kokugula kwabo.

UAllison Smith, 40

Ukuhlala ne-PBA ukusukela ngo-2015

Ndafunyaniswa ndinesi sifo esincinci sikaParkinson ngo-2010 kwaye ndaqala ukuqaphela iimpawu ze-PBA malunga neminyaka emihlanu emva koko. Into ebaluleke kakhulu ukulawula i-PBA kukuba uqaphele naziphi na izinto ezinokubangela.

Kum, iividiyo zellamas ezitshicela abantu ebusweni - {textend} indifumana lonke ixesha! Kuqala, ndiza kuhleka. Kodwa ndiye ndiqale ndilile, kube nzima nokuyeka. Ngexesha elinje, ndithatha umphefumlo kwaye ndizama ukuziphazamisa ngokubala entlokweni yam okanye ukucinga ngemisebenzi ekufuneka ndiyenzile ngalo mhla. Ngeentsuku ezimbi kakhulu, ndiza kwenza into ethile kum, njengokuthambisa okanye ukuhamba ixesha elide. Ngamanye amaxesha uya kuba neentsuku ezinzima, kwaye kulungile.

Ukuba sele uqalile ukufumana iimpawu ze-PBA, qala ukuzifundisa wena kunye nabantu obathandayo malunga nemeko. Okukhona beyiqonda le meko, kokukhona baya kuba nakho ukukunika inkxaso oyifunayo. Kwakhona, kukho unyango ngokukodwa kwi-PBA, ke thetha nogqirha wakho malunga nokukhetha.

UJoyce Hoffman, 70

Ukuhlala ne-PBA ukusukela ngo-2011

Ndabethwa yintlungu ngo-2009 kwaye ndaqala ukufumana iziqendu ze-PBA ubuncinci kabini ngenyanga. Kule minyaka isithoba idlulileyo, i-PBA yam inciphile. Ngoku ndifumana kuphela iziqendu eziphindwe kabini ngonyaka kwaye nakwiimeko zoxinzelelo oluphezulu (endizama ukuziphepha).

Ukuba phakathi kwabantu kunceda iPBA yam. Ndiyazi ukuba izandi ezoyikisayo kuba ngekhe wazi ukuba i-PBA yakho iza kuvela nini. Kodwa ukuba unxibelelana nabantu ukuba umsindo wakho awukho ngaphandle kolawulo lwakho, baya kuyivuyela inkalipho kunye nokunyaniseka kwakho.

Unxibelelwano lwasentlalweni- {textend} njengokoyikisayo njengoko banako - {textend} zibalulekile ekufundeni ukulawula i-PBA yakho, kuba ziyanceda ukukomeleza kwaye uzilungiselele ngakumbi isiqephu sakho esilandelayo. Umsebenzi onzima, kodwa uyahlawula.

UDelanie Stephenson, 39

Ukuhlala ne-PBA ukusukela ngo-2013

Ukukwazi ukunika igama kwinto endandinayo kwakuluncedo kakhulu. Bendicinga ndizophambana! Ndonwabile xa i-neurologist yam yandixelela ngePBA. Yonke yayisengqiqweni.

Ukuba uhlala ne-PBA, ungaziva unetyala xa kwenzeka isiqendu. Awuhleki okanye ulile ngenjongo. Awunakukunceda ngokoqobo! Ndizama ukugcina iintsuku zam zilula kuba ukukhathazeka yenye yezinto zam. Xa yonke into iba ninzi kakhulu, ndiye kwenye indawo ethe cwaka ukuze ndibe ndedwa. Oko kuhlala kundinceda ndizole.

UAmy Umdala, 37

Ukuhlala ne-PBA ukusukela ngo-2011

Ndiziqhelanisa nokucamngca mihla le njengenyathelo lokuthintela, kwaye loo nto yenza umahluko. Ndizamile izinto ezininzi. Ndizamile nokuhamba ndinqumle ilizwe ndiye kwindawo enelanga kwaye oko bekungancedi. Ukucamngca okungaguquguqukiyo kuthoba ingqondo yam.

I-PBA iba ngcono ngokuhamba kwexesha. Fundisa abantu ebomini bakho ngale meko. Kufuneka baqonde ukuba xa usithi ayothusi, uthetha izinto ezingalawulekiyo.