I-Multiple Sclerosis Prognosis kunye nokuLindelwa koBomi bakho

Umxholo

• Ukujongwa ngokusondeleyo kwesifo
• Ukuqhubela phambili kweempawu kunye nemingcipheko
• Ukuqikelela kunye neengxaki
• Ungalindela ntoni?

Ayibulali, kodwa akukho lunyango

Xa kuziwa kwisibhengezo se-multiple sclerosis (MS), kukho zombini iindaba ezimnandi kunye neendaba ezimbi. Nangona kungekho nyango lwaziwayo lwe-MS, kukho iindaba ezimnandi malunga nobude bobomi. Ngenxa yokuba i-MS ayisosifo esibulalayo, abantu abane-MS ngokusisiseko banethemba lokuphila elifanayo njengabantu ngokubanzi.

Ukujongwa ngokusondeleyo kwesifo

Ngokwe-National Multiple Sclerosis Society (NMSS), uninzi lwabantu abane-MS bayakufumana ubomi obuqhelekileyo. Ngokomndilili, uninzi lwabantu abane-MS baphila malunga neminyaka esixhenxe engaphantsi kunabantu ngokubanzi. Abo bane-MS bahlala besifa kwiimeko ezininzi ezifanayo, ezinje ngomhlaza kunye nesifo sentliziyo, njengabantu abangenayo le meko. Ngaphandle kweemeko ze-MS ezinzima, ezinqabileyo, isifo sexesha elide sihlala silungile.

Nangona kunjalo, abantu abane-MS nabo kufuneka balwe neminye imiba enokunciphisa umgangatho wobomi babo. Nangona uninzi lungasokuze lukhubazeke kakhulu, uninzi luba namava abangela iintlungu, ukungonwabi kunye nokuphazamiseka.

Enye indlela yokuvavanya ukuxelwa kwangaphambili kwe-MS kukujonga indlela ukukhubazeka okubangelwa ziimpawu zesimo esinokubachaphazela ngayo abantu. Ngokwe-NMSS, malunga nesibini kwisithathu sabantu abane-MS bayakwazi ukuhamba ngaphandle kwesitulo esinamavili kwisithuba seminyaka engamashumi amabini emva kokufunyaniswa kwesifo. Abanye abantu baya kufuna iintonga okanye imisimelelo ukuze bahlale behamba. Abanye basebenzisa isithuthuthu sombane okanye isitulo esinamavili ukubanceda bamelane nokudinwa okanye ubunzima bokulinganisa.

Ukuqhubela phambili kweempawu kunye nemingcipheko

Kunzima ukuqikelela ukuba i-MS iya kuqhubeka njani kuye wonke umntu. Ubungqongqo besifo buyahluka kakhulu kumntu kumntu.

• Phantse iipesenti ezingama-45 zalabo abane-MS abachaphazelekanga kakhulu kwesi sifo.
• Uninzi lwabantu abahlala ne-MS baya kudlula kwinqanaba elithile lokuqhubela phambili kwesifo.

Ukukunceda ekuchazeni isifo sakho kwangaphambili, kuyanceda ukuqonda iimeko zomngcipheko ezinokubonisa ithuba elikhulu lokuphuhliswa kobunzima besimo. Ngokwe-Mayo Clinic, abasetyhini banamathuba aphindwe kabini kunamadoda okuphuhlisa i-MS. Ukongeza, izinto ezithile zibonisa umngcipheko ophezulu weempawu ezinzima, kubandakanya oku kulandelayo:

• Ungaphezulu kweminyaka engama-40 ekuqaleni kokuqala kweempawu.
• Iimpawu zakho zokuqala zichaphazela amalungu amaninzi omzimba wakho.
• Iimpawu zakho zokuqala zichaphazela ukusebenza kwengqondo, ulawulo lomchamo, okanye ulawulo lweemoto.

Ukuqikelela kunye neengxaki

Ukuxela kwangaphambili kuchaphazeleka luhlobo lwe-MS. Inkqubela phambili ye-MS (PPMS) ibonakaliswa ngokuhla okuzinzileyo kokusebenza ngaphandle kokuphinda ubuye okanye uxolelo. Kunokubakho amaxesha okwehla kokungasebenzi njengoko iimeko zonke zahlukile. Nangona kunjalo, ukuqhubeka okuzinzileyo kuyaqhubeka.

Kwiifom ezibuyela umva ze-MS, kukho izikhokelo ezininzi ezinokukunceda ukuqikelela kwangaphambili. Abantu abane-MS badla ngokwenza ngcono ukuba banamava:

• Uhlaselo lweempawu ezimbalwa kwiminyaka embalwa yokuqala emva kokuxilongwa
• ixesha elide lidlula phakathi kohlaselo
• ukubuyela umva ngokupheleleyo kuhlaselo lwabo
• Iimpawu ezinxulumene neengxaki zoluvo, ezinje ngokutswina, ukungaboni, okanye ukuba ndindisholo
• iimviwo zemithambo-luvo ezibonakala phantse ziqhelekile kwiminyaka emihlanu emva kokuxilongwa

Ngelixa uninzi lwabantu abane-MS benolindelo lokuphila olusondeleyo kwesiqhelo, kunokuba nzima koogqirha ukuqikelela ukuba imeko yabo iya kuba mbi okanye iphucule, kuba isifo siyahluka kakhulu ebantwini nakwabanye. Kwiimeko ezininzi, nangona kunjalo, i-MS ayisiyiyo imeko yokubulala.

Ungalindela ntoni?

I-MS ngokubanzi ichaphazela umgangatho wobomi ngaphezu kokuphila ixesha elide. Ngelixa iintlobo ezithile ezinqabileyo ze-MS ezinokuthi zichaphazele ixesha lokuphila, zizinto ezizodwa ngaphandle komgaqo. Abantu abane-MS kufuneka balwe neempawu ezininzi ezinzima eziza kuchaphazela indlela abaphila ngayo, kodwa banokuqiniseka ukuba ixesha labo lokuphila ngokuyimfuneko zizipili zabantu abangenayo le meko.

Ukuba nomntu onokuthetha naye kunokuba luncedo. Fumana usetyenziso lwethu lwamahala lweMS Buddy ukuze sabelane ngengcebiso nenkxaso kwindawo evulekileyo. Khuphela i-iPhone okanye i-Android.