Izinto Ezimangalisayo Ndicinga NgePsoriasis Phambi kokuba Ndifumane Iinyani

Umxholo

• Ndacinga ukuba yinto nje yolusu
• Ndacinga ukuba iza kuhamba
• Ndacinga ukuba kukho uhlobo olunye kuphela lwe-psoriasis
• Ndacinga ukuba kukho iyeza elinye kubo bonke
• Ukuthatha

Nangona umakhulu wam wayenayo i-psoriasis, ndakhula ndinokuqonda okuncinci malunga nokuba yayiyintoni kanye kanye. Andikhumbuli ukuba wayenomdla xa ndandisengumntwana. Ngapha koko, wayekhe wathi emva kohambo oluya eAlaska kwiminyaka yakhe yama-50, ukhwekhwe lwakhe aluzange luphinde luphume.

Ukwazi endikwaziyo ngoku malunga ne-psoriasis, kuyimfihlakalo engakholelekiyo. Kwaye ngenye imini ndiyathemba ukutyelela iAlaska ukuze ndiyityhilele!

Ukuxilongwa kwam kwafika entwasahlobo ka-1998 xa ndandineminyaka elishumi elinesihlanu ubudala. Emva phayaa, i-intanethi yayithetha ukudayela ukuya kwi-AOL kunye nokuthumela imiyalezo kwangoko nabahlobo bam njengo "JBuBBLeS13." Yayingeyondawo yokuhlangana nabanye abantu abahlala ne-psoriasis. Kwaye ngokuqinisekileyo ndandingavunyelwe ukudibana nabantu endingabaziyo kwi-intanethi.

Bendingasebenzisi i-intanethi ukwenza uphando oluzimeleyo kwaye ndifunde ngemeko yam. Ulwazi lwam kwi-psoriasis lwalunqunyelwe kutyelelo olufutshane logqirha kunye neencwadana kumagumbi okulinda. Ukunqongophala kolwazi kundishiye neengcinga ezinomdla malunga ne-psoriasis kunye "nendlela esebenza ngayo."

Ndacinga ukuba yinto nje yolusu

Ekuqaleni, khange ndiyicinge into yokuba ukhwekhwe njengayo nayiphi na into ngaphezu kwesikhumba esibomvu, esirhawuzelelayo esindinika amabala kuwo wonke umzimba wam. Ukhetho lwamayeza endandilunikiwe lwaluphatha kuphela inkangeleko yangaphandle, ke yayiyiminyaka embalwa ngaphambi kokuba ndive igama elithi "isifo sokuzimela" ngokunxulumene ne-psoriasis.

Ukuqonda ukuba i-psoriasis iqale ngaphakathi yatshintsha indlela endiza ngayo kunyango lwam kwaye ndicinga ngesi sifo.

Ngoku ndinomdla wokunyanga i-psoriasis ngendlela epheleleyo ehlasela imeko kuzo zonke ii-angles: ngaphakathi nangaphandle, nangoncedo olongezelelekileyo lwenkxaso yeemvakalelo. Ayisiyonto nje yokuthambisa. Kukho into eyenzekayo ngaphakathi komzimba wakho kwaye amabala abomvu yenye yeempawu zepsoriasis.

Ndacinga ukuba iza kuhamba

Mhlawumbi ngenxa yokubonakala kwayo, bendicinga ukuba ukhwekhwe lufana nerhashalala. Andizukukhathazeka kangangeeveki ezimbalwa, ndinxibe ibhulukhwe kunye nemikhono emide, kwaye ke amayeza anokukhaba kwaye ndigqibile. Ngonaphakade.

Igama elithi flare lalingathethi kwanto okwangoku, ke kwathatha ixesha ukwamkela ukuba ukuqhambuka kwe-psoriasis kunganamathela ixesha elide kwaye kuya kuqhubeka ukwenzeka iminyaka.

Nangona ndigcina umkhondo wezinto zam ezivuthayo kwaye ndijolise kuzo, kwaye ndenza konke okusemandleni am ukunqanda uxinzelelo, ngamanye amaxesha ukutsha kusenzeka. I-flare inokubangelwa zizinto ezingaphandle kolawulo lwam, njengamahomoni am atshintsha emva kokuzalwa kweentombi zam. Ndingaphinda ndifumane i-flare ukuba ndiyagula ngumkhuhlane.

Ndacinga ukuba kukho uhlobo olunye kuphela lwe-psoriasis

Kwakuyiminyaka embalwa ngaphambi kokuba ndifunde ukuba kukho ngaphezu kolunye uhlobo lwe-psoriasis.

Ndifumanise xa ndandiye kumnyhadala weSizwe wePsoriasis kwaye umntu othile wandibuza ukuba loluphi uhlobo endinalo. Kuqala ndandixakiwe ukuba umntu endingamaziyo wayefuna uhlobo lwegazi lam. Impendulo yam yokuqala kufuneka ibonakalise ebusweni bam kuba ucacise kamnandi kakhulu ukuba kukho iintlobo ezintlanu ezahlukeneyo ze psoriasis kwaye ayifani kumntu wonke. Kuyavela ukuba, ndinepleyiti kunye ne-guttate.

Ndacinga ukuba kukho iyeza elinye kubo bonke

Phambi kokuba ndixilongwe, ndandisetyenziselwa iindlela ezintle ezisisiseko zonyango-zihlala zifumaneka kulwelo okanye kwifomathi yepilisi. Ingabonakala ngathi iyabheda, kodwa bendinempilo entle kude kube lelo xesha. Emva phayaa, uhambo lwam oluqhelekileyo lokuya kugqirha lwalukhawulelwe kuvavanyo lonyaka kunye nezifo zemihla ngemihla zobuntwana. Ukufumana izibhamu kwakugcinelwe ukugonywa.

Ukusukela ekuchongeni kwam, ndiye ndanyanga i-psoriasis yam ngeekhrim, iigels, foam, lotions, sprays, UV light, kunye ne-biologic shots. Ezo ziintlobo nje, kodwa ndizamile iimveliso ezininzi ngaphakathi kuhlobo ngalunye. Ndifundile ukuba ayisiyiyo yonke into esebenzela wonke umntu kwaye esi sifo sihlukile kumntu ngamnye kuthi. Kungathatha iinyanga kunye neminyaka ukufumana isicwangciso sonyango esisebenzayo kuwe. Nokuba iyakusebenzela, inokusebenza kangangexesha elithile kwaye kuyakufuneka ufumane olunye unyango.

Ukuthatha

Ukuthatha ixesha lokuphanda ngale meko kunye nokufumana iinyani malunga ne-psoriasis yenze umahluko omkhulu kum. Icacisile iingcinga zam zakuqala kwaye yandinceda ukuba ndiqonde okwenzekayo emzimbeni wam. Nangona bendihlala ne-psoriasis ngaphezulu kweminyaka engama-20, kuyamangalisa ukuba kuninzi kangakanani endikufundileyo kwaye ndisafunda ngesi sifo.

UJoni Kazantzis ngumyili kunye nebhlog ye-Justagirlwithspots.com, ibhlogi ephumelele ibhaso ye-psoriasis ezinikele ekwenzeni ulwazi, ukufundisa ngesi sifo, kunye nokwabelana ngamabali ohambo lwakhe lwe-19 + lonyaka kunye ne-psoriasis. Umsebenzi wakhe kukudala imeko yoluntu kunye nokwabelana ngolwazi olunokunceda abafundi bakhe bahlangabezane nemiceli mngeni yemihla ngemihla yokuphila ne-psoriasis. Ukholelwa ekubeni ngolwazi oluninzi ngangokunokwenzeka, abantu abane-psoriasis banokuxhotyiswa ukuze baphile obona bomi babo bulungileyo kwaye benze ukhetho olufanelekileyo lonyango ebomini babo.