Unyango lweCritalital Multiple Arthrogryposis

Umxholo

• 1. Usetyenziso lweziqwenga
• 2. Utyando oluninzi lweArthrogryposis Surgery
• 3. I-Physiotherapy kwi-Conrital Multiple Arthrogryposis
• Izinto ozilindile emhlabane

Unyango lweConitalital Multiple Arthrogryposis lubandakanya utyando lwamathambo kunye neeseshoni ze-physiotherapy, kunye nokusetyenziswa kweethambeka lokulala, kodwa ukongeza, abazali bomntwana okanye abanonopheli kufuneka babambe ngocoselelo amalungu adibeneyo ukuphucula iintshukumo zabo.

Isifo seArthrogryposis esiKhawulezileyo sisifo esibonakaliswa kukudibana kwelungu elinye okanye nangaphezulu, elingavumeli ukuba umntwana agobe iingqiniba, iminwe okanye amadolo, umzekelo. Uphawu olubalulekileyo nolubalulekileyo kukuphulukana nomlinganiso oqhelekileyo wemilenze, enembonakalo ye-tubular. Ulusu luhlala lukhazimla kwaye ukunqongophala kweefold kuqhelekile. Ngamanye amaxesha, esi sifo sihamba kunye nokususwa esinqeni, emadolweni, okanye kwiingqiniba. Funda oonobangela kunye nokuchongwa kwesi sifo apha.

Ke, kunyango kunokucetyiswa:

1. Usetyenziso lweziqwenga

Ugqirha wabantwana unokucebisa ukuba kusetyenziswe iziqwenga zokulala, ezinokuthintela ukwanda kweekhontrakthi, ukuphucula imeko yamalungu achaphazelekayo, anokuququzelela intshukumo kunye nokuhlanganisa kwi-physiotherapy ngosuku olulandelayo.

2. Utyando oluninzi lweArthrogryposis Surgery

Utyando lwe-Orthopedic lungabonakaliswa ukulungisa iimeko zonyawo olusisilima, ukugoba amadolo ngokuqatha, igxalaba, ukushenxiswa kwenyonga okanye ezinye iimeko apho kunokubakho ukuphucula ubhetyebhetye ngokudibeneyo, njengeephilisi, imisipha kunye nezihlunu ezine-fibrosis. Ukongeza, kwimeko ye-scoliosis, inokuboniswa ukubeka isixhobo ukulungisa umqolo kwi-sacrum, xa i-angle ye-scoliosis ingaphezulu kwe-40º.

Umntwana one-arthrogryposis unokufumana utyando ngaphezulu kwe-1 ebomini bakhe, kwaye kuhlala kucetyiswa ukuba enze iiseshoni ze-physiotherapy ngaphambi nasemva kotyando, ubuncinci beeseshoni ezingama-30 zangaphambi nasemva kokusebenza.

3. I-Physiotherapy kwi-Conrital Multiple Arthrogryposis

I-Physiotherapy kufuneka yenziwe ngakumbi ngaphambi nasemva nje kotyando, kodwa ikwabonakalisiwe nakwamanye amaxesha obomi, kwaye inokwenziwa ukusukela ekuzalweni kude kuye xa umntu enqwenela.

Ngokukhethekileyo i-physiotherapy kufuneka yenziwe kabini ngeveki, kunye neeseshoni malunga neyure eli-1, kodwa ukongeza, kuyadingeka ukuba abazali okanye abanonopheli benze umthambo wokuvuselela nokwenza izinto ekhaya, okhokelwa ngugqirha womzimba ngexesha lothetha-thethwano. Usana ngalunye okanye umntwana ngamnye kufuneka avavanywe buqu, kuba akukho mgaqo uzakulungela onke amatyala e-arthrogriposis, kodwa lukhona unyango oluhlala luboniswa, olufana:

• Ukudityaniswa nje kwamalungu achaphazelekayo;
• Ukolulwa kwezihlunu zezicubu ezichaphazelekayo;
• Ukuzilolonga kunye nokwenza umthambo ukomeleza;
• Iindlela zokuthintela iikhontrakthi ezintsha ezinokubandakanya ukusetyenziswa kwamathambo, iziqwenga okanye ukubopha ngamalungu athile;
• Ukusetyenziswa kwelaser emva kokugaya ukuphilisa izicubu kwindawo efanelekileyo ngokukhawuleza;
• Ukusetyenziswa kwezixhobo kunye ne-electrostimulation ukomeleza izihlunu ezibuthathaka;
• Umsele weLymphatic ukunciphisa ukudumba kweengalo kunye nemilenze echaphazelekayo;
• Ukuzivocavoca amandla, kunye ne-isometric contraction kunye nokuphefumla ukunyusa amandla emiphunga;
• I-Hydrokinesiotherapy, kunye nokuzivocavoca emanzini, ikwayinto elungileyo kuba iyanceda ukunciphisa iintlungu kunye nokwenza lula intshukumo.

Ukwenza la manyathelo, i-physiotherapist kufuneka ibe nobuchule bokuyila, isungule imidlalo emininzi enokufezekisa ezi njongo, ukubonelela ngokuzimela okukhulu kukhathalelo lomntu, njengokufundisa ukuxubha amazinyo kunye nokukama iinwele, kunye nokuphucula ubudlelwane bomntwana nabanye. abantwana, ukuphucula ukuzithemba kwabo kunye nomgangatho wobomi.

I-Physiotherapy inokunciphisa isidingo sotyando lwamathambo olubizwa ngokuba yi-arthrodesis, oluquka ukujoyina ngokusisigxina ukudibanisa, ukuthintela ukuhamba kwayo ebomini.

Izinto ozilindile emhlabane

Ngaphandle kwemida yokuhamba anokuba nayo umntwana, uninzi lunobomi obuqhelekileyo obuqhelekileyo. Ama-75% abantwana abachaphazelekayo bayakwazi ukuhamba, nkqu nangeentonga okanye isitulo esinamavili, kwaye baphantsi kwezifo ezifanayo kuninzi lwabemi. Nangona kunjalo, njengoko benomda wokuhamba, kufuneka babe nokutya okuphantsi kwiikhalori, iswekile kunye namafutha ukunqanda ukutyeba kakhulu, okunokwenza ukuhamba kwabo kube nzima nangakumbi.

IArthrogryposis ayinalo unyango, kodwa ayisihambeli phambili, kwaye ke amalungu adibeneyo anikezelwa ngumntwana xa ezalwa ngawona malungu afanayo aza kufuna unyango lobomi bonke. Nangona kunjalo, amalungu aphilileyo nawo angabandezeleka ngenxa yembuyekezo yendalo eyenziwa ngumntwana xa egcina ilunga elinesiphene, kwaye ngenxa yesi sizathu, kunokubakho iimeko zentlungu kunye ne-tendonitis kumalungu angachaphazelekanga yi-arthrogriposis, umzekelo.