Nceda wenze le nto inye ukuba umntwana wakho ukhalazela iintlungu ezihlangeneyo

Umxholo

• Ndiyazi nje ukuba kukho into engahambi kakuhle…
• Nawuphi na umzali, oku kubuhlungu
• Inokuba ujongane nalento ubomi bakhe bonke…
• Nantsi into ekufuneka uyenzile xa umntwana wakho eqala ukukhalaza malunga neentlungu ezidibeneyo

Sibandakanya iimveliso esicinga ukuba ziluncedo kubafundi bethu. Ukuba uthenga amakhonkco kweli phepha, sinokufumana ikhomishini encinci. Nantsi inkqubo yethu.

Malunga neeveki ezisixhenxe ezidlulileyo, ndaxelelwa ukuba intombi yam inokuba nesifo samathambo esencinci (JIA). Yayiyimpendulo yokuqala enengqiqo - kwaye ayizange indoyikise ngokupheleleyo - emva kweenyanga zokundwendwela esibhedlele, ukuvavanywa okungafunekiyo, kunye nokuqiniseka ukuba intombi yam yayinayo yonke into ukusuka kwimeneningitis ukuya kwizicubu zobuchopho ukuya kwi-leukemia. Nali ibali lethu kwaye wenzeni ukuba umntwana wakho uneempawu ezifanayo.

Ndiyazi nje ukuba kukho into engahambi kakuhle…

Ukuba ubuza kundibuza ukuba iqale njani, bendizokubuyisela kwiveki yokugqibela kuJanuwari xa intombi yam iqala ukukhalaza ngentlungu yentamo. Kuphela, wayengakhalazi ngokwenene. Wayethetha ngento malunga nentamo yakhe ebuhlungu aze abaleke ayokudlala. Ndabona ukuba inoba ulele ngokuhlekisayo watsala into. Wayonwabile kwaye engenakuphazanyiswa yiyo nayiphi na into eyenzekayo. Ngokuqinisekileyo ndandingakhathazeki.

Kude kwaba malunga neveki emva kokuba izikhalazo zokuqala ziqale. Ndamthatha esikolweni ndamqonda kwangoko ukuba ikhona into engahambi kakuhle. Okokuqala, akazange abaleke ukuza kundibulisa njengoko wayeqhele ukwenza. Wayenalo eliqhwala lincinci liqhubekayo xa ehamba. Undixelele amadolo akhe abuhlungu. Kwakukho inqaku elivela kutitshala wakhe likhankanya ukuba ebekhalaza ngentamo yakhe.

Ndagqiba kwelokuba ndiza kubiza ugqirha ukuze ndibonane ngosuku olulandelayo. Kodwa xa sifika ekhaya ngokwasemzimbeni wayengakwazi ukuhamba ngezinyuko. Umntwana wam oneminyaka emi-4 ubudala osebenzayo kwaye usempilweni wayengumgxobhozo weenyembezi, endicela ukuba ndimthwale. Kwaye ngokuhamba kobusuku, izinto zaya zisiba mbi. Ukuza kuthi ga kwinqanaba lokuwa kwakhe phantsi elila ngendlela intamo yakhe ebuhlungu ngayo, nokuba kubuhlungu kangakanani ukuhamba.

Ngokukhawuleza ndacinga: I-meningitis. Ndamqokelela phezulu ndaya kwi-ER saya.

Kanye apho, kwacaca ukuba akakwazi ukugoba intamo yakhe konke konke ngaphandle koloyiso kwiintlungu. Wayesenayo loo nto yokuqhwalela. Kodwa emva kovavanyo lokuqala, iX-reyi, kunye nomsebenzi wegazi, ugqirha esimbonileyo wayeqinisekile ukuba le yayingeyiyo i-bacterial meningitis okanye imeko engxamisekileyo. "Landela ugqirha wakhe ngentsasa elandelayo," usixelele ukuphuma kwakhe.

Singene sayobona ugqirha wentombi yam kwangoko ngosuku olulandelayo. Emva kokuvavanya intombazana yam encinci, wayalela i-MRI yentloko yakhe, intamo kunye nomqolo. Ndifuna nje ukuqinisekisa ukuba akukho nto iqhubekayo apho, utshilo. Ndayazi ukuba kuthetha ntoni oko. Wayekhangela amathumba entlokweni yentombi yam.

Nawuphi na umzali, oku kubuhlungu

Ndandisoyika ngosuku olulandelayo njengoko sasilungiselela iMRI. Intombi yam yayifuna ukufakwa kwi-anesthesia ngenxa yobudala bayo kunye neeyure ezimbini ezaziza kufuneka zihlale zizinzile. Xa ugqirha wakhe wandibiza iyure emva kokuba inkqubo iphelile ukundixelela yonke into icacile, ndaqonda ukuba ndibambe umphefumlo wam iiyure ezingama-24. "Kusenokwenzeka ukuba unesifo esothusayo," wandixelela. "Masimnike iveki, kwaye ukuba intamo yakhe isamile, ndifuna ukumbona kwakhona."

Kwiintsuku ezimbalwa ezalandelayo, intombi yam yayibonakala isiba bhetele. Uyeke ukukhalaza ngentamo yakhe. Andizange ndenze oko kulandelwa.

Kodwa kwiiveki ezalandelayo, uqhubeke nokuba nezikhalazo ezincinci malunga nentlungu. Isandla sakhe sibuhlungu ngenye imini, waguqa ngamadolo ngokulandelayo. Kwakubonakala ngathi ziintlungu eziqhelekileyo ezikhulayo kum. Ndicinge ukuba inoba usadlula nakweyiphi na intsholongwane ebangele ukuba buhlungu entanyeni kwasekuqaleni. Kude kwaba lusuku kude kube sekupheleni kuka-Matshi xa ndamlanda esikolweni ndaza ndabona kwa oko kujongeka kobuhlungu emehlweni akhe.

Obo bobunye ubusuku iinyembezi neentlungu. Ngentsasa elandelayo bendisefowunini nogqirha wakhe ndicela ukubonwa.

Kwindibano yokwenyani, intombazana yam encinci yayibonakala ilungile. Wayonwabile kwaye edlala. Ndaziva ndiphantse ndisisidenge ngokuba ndingafuni ukumngenisa. Kodwa ke ugqirha wakhe waqala uviwo kwaye kwacaca ngokukhawuleza isihlahla sentombi yam sivalekile.

Ugqirha wakhe wachaza ukuba kukho umahluko phakathi kwe-arthralgia (iintlungu ezidibeneyo) kunye nesifo samathambo (ukudumba kwelungu.) Into eyayisenzeka esihlahleni sentombi yam yayiyinto yokugqibela.

Ndaziva ndibuhlungu. Khange ndiyazi ukuba isihlahla sakhe sasiphulukene nolunye uhlobo lokuhamba. Yayingeyiyo le nto wayekhalaza ngayo kakhulu, yayingamadolo akhe. Khange ndimqaphele ukuba uyaphepha ukusebenzisa isihlahla sakhe.

Ewe kunjalo, ngoku bendisazi, ndizibonile iindlela awayegqitha ngazo esihlahleni sakhe kuyo yonke into awayeyenza. Andikabi nalo nofifi lokuba bekude kangakanani. Le nyaniso iyodwa indizalisa ngoomama abanetyala.

Inokuba ujongane nalento ubomi bakhe bonke…

Olunye useto lwe-X-reyi kunye nomsebenzi wegazi ubuyile ngokwesiqhelo, kwaye ke sishiyiwe ukuba siqonde ukuba kuqhubeka ntoni. Njengokuba ugqirha wentombi yam endicacisela, zininzi izinto ezinokubangela isifo samathambo ebantwaneni: iimeko ezininzi ezizimeleyo (kubandakanya isifo se-lupus kunye nesifo seLyme), isifo samathambo esilutsha (apho kukho iintlobo ezininzi), kunye neleukemia.

Ndingaba ndiyaxoka ukuba bendinokuthi eyokugqibela ayisandigcini ebusuku.

Ngokukhawuleza sathunyelwa kugqirha wamathambo wabantwana. Intombi yam ibinxitywe kabini ngeentsuku zonke i-naproxen ukunceda kwintlungu njengoko sisebenzela ukufumana isifo esisemthethweni. Ndinqwenela ukuba bendinokuthi ndodwa yenze ukuba yonke into ibengcono, kodwa sineziqendu ezininzi zeentlungu kwiiveki ukusukela. Ngeendlela ezininzi, intlungu yentombi yam ibonakala ngathi iya isiba mandundu.

Sisekwisigaba sokuxilongwa. Oogqirha baqinisekile ukuba unohlobo oluthile lwe-JIA, kodwa kunokuthatha ukuya kuthi ga kwiinyanga ezintandathu ukusuka ekuqaleni kweempawu ukuyazi ngokuqinisekileyo kwaye ukwazi ukubona ukuba loluphi uhlobo. Kungenzeka ukuba oko sikubonayo kusenokuphendula kwintsholongwane. Okanye unokuba nolunye lweentlobo zeJIA uninzi lwabantwana abachacha emva kweminyaka embalwa.

Kuyenzeka ukuba le isenokuba yinto ajongana nayo ubomi bakhe bonke.

Nantsi into ekufuneka uyenzile xa umntwana wakho eqala ukukhalaza malunga neentlungu ezidibeneyo

Okwangoku, asazi ukuba yintoni elandelayo. Kodwa ngaphezulu kwenyanga ephelileyo ndenze ufundo oluninzi kwaye ndenza uphando. Ndifunda ukuba amava ethu aqhelekanga ngokupheleleyo. Xa abantwana beqala ukukhalaza ngezinto ezifana nentlungu edibeneyo, kunzima ukubathatha ngokungathí sina ekuqaleni. Bancinci kakhulu, emva kwayo yonke loo nto, kwaye xa bephosa isikhalazo kwaye bebaleka bayokudlala, kulula ukuba bacinge ukuba yinto encinci okanye ezo ntlungu zikhulayo. Kulula ngakumbi ukuthatha into encinci xa umsebenzi wegazi ubuya uqhelekile, onokwenzeka kwiinyanga zokuqala zokuqala ze-JIA.

Ke uyazi njani ukuba la ntlungu bayikhalazelayo ayisiyiyo nje into eqhelekileyo bonke abantwana abadlula kuyo? Nali icebo lam elinye: Zithembe iimvakalelo zakho.

Kithina, uninzi lwayo lwehlela kumama esiswini. Umntwana wam uphatha iintlungu kakuhle. Ndimbonile ebaleka entloko-etafileni ephezulu, esiwa umva ngenxa yamandla, kuphela ukuba atsibe phezulu ehleka kwaye elungele ukuqhubeka. Kodwa xa wehliswayo walila ngenxa yale ntlungu… ndandisazi ukuba yinto yokwenene.

Banokubakho oonobangela abaninzi beentlungu ezidibeneyo kubantwana abaneempawu ezininzi ezihamba nazo. Iklinikhi yaseCleveland ibonelela ngoluhlu lokukhokela abazali ngokwahlula iintlungu ezikhulayo kwinto enzulu ngakumbi. Iimpawu ekufuneka uzijongile zibandakanya:

• iintlungu ezingapheliyo, iintlungu kusasa okanye ukuthamba, okanye ukudumba nokubomvu kwilungu
• iintlungu ezidibeneyo ezinxulumene nokwenzakala
• Ukuqhwalela, ubuthathaka, okanye ukuthamba okungaqhelekanga

Ukuba umntwana wakho unazo naziphi na kwezi mpawu, kufuneka abonwe ngugqirha. Intlungu edibeneyo kunye nokudibanisa nokushisa okuphezulu okanye ukukhawuleza kunokuba ngumqondiso wento enzulu kakhulu, ngoko ke yiza umntwana wakho kugqirha ngokukhawuleza.

I-JIA inqabile ngandlela ithile, ichaphazela phantse i-300,000 yeentsana, abantwana kunye nolutsha e-United States. Kodwa i-JIA ayisiyiyo kuphela into enokubangela iintlungu ezidibeneyo. Xa ungathandabuzeki, kufuneka uhlale ulandela isisu sakho kwaye wenze umntwana wakho abonwe ngugqirha onokukunceda uvavanye iimpawu zabo.

ULeah Campbell ngumbhali kunye nomhleli ohlala eAnchorage, eAlaska. Umama ongatshatanga ngokuzikhethela emva kothotho lweziganeko ezikhokelela ekufumaneni intombi yakhe, uLeya ukwangumbhali wencwadi “Umntu ongatshatanga ongazaliyo” Kwaye ubhale ngokubanzi ngezihloko zokungachumi, ukukhulisa abantwana, nokuba ngumzali. Unokudibanisa noLeah nge Facebook, yena iwebhusayithi, kwaye Twitter.