Multiple sclerosis - ukukhutshwa

Ugqirha wakho ukuxelele ukuba une-multiple sclerosis (MS). Esi sifo sichaphazela ingqondo kunye umnqonqo (luvo).

Ekhaya landela imiyalelo yomboneleli wakho wezempilo ngokuzikhathalela. Sebenzisa olu lwazi lungezantsi njengesikhumbuzo.

Iimpawu ziyahluka kuye ngomntu. Ngexesha, umntu ngamnye unokuba neempawu ezahlukeneyo. Abanye abantu, iimpawu zokugqibela kwiintsuku ukuya kwiinyanga, emva koko zinciphise okanye zihambe. Kwabanye, iimpawu aziphucuki okanye zincinci kakhulu.

Ngokuhamba kwexesha, iimpawu zinokuya zisiba mbi (ukuqhubela phambili), kwaye kuye kube nzima ukuzikhathalela. Abanye abantu banenkqubela encinci. Abanye banenkqubela phambili eqatha kwaye ekhawulezayo.

Zama ukuhlala usebenza kangangoko unakho. Buza umboneleli wakho ukuba loluphi uhlobo lomsebenzi kunye nokuzilolonga okulungele wena. Zama ukuhamba okanye ukubaleka. Ukukhwela ibhayisekile kumile nako kukwenza umthambo okuhle.

Izibonelelo zomthambo zibandakanya:

• Inceda izihlunu zakho zihlale zikhululekile
• Inceda ugcine ibhalansi yakho
• Ilungele intliziyo yakho
• Kukunceda ulale ngcono
• Inceda ukuba uhambe rhoqo emathunjini

Ukuba unengxaki yokuphanga, funda malunga nento eyenza mandundu. Wena okanye umntu omkhathalelayo unokufunda imithambo ukuze ugcine izihlunu zikhululekile.

Ukwanda kobushushu bomzimba kunokwenza ukuba iimpawu zakho zibe mandundu. Nazi ezinye iingcebiso zokuthintela ubushushu:

• Zilolonge kusasa nangokuhlwa. Lumka unganxibi iimpahla ezininzi.
• Xa uhlamba kunye neeshawari, thintela amanzi ashushu kakhulu.
• Lumka kwiibhafu ezishushu okanye kwiisauna. Qinisekisa ukuba ukhona umntu oza kukunceda ukuba ugqithise kakhulu.
• Gcina indlu yakho ipholile ehlotyeni nomoya opholileyo.
• Gwema iziphuzo ezishushu xa ubona iingxaki ngokugwinya, okanye ezinye iimpawu ziba zibi.

Qiniseka ukuba ikhaya lakho likhuselekile. Fumana into onokuyenza ukuthintela ukuwa kwaye ugcine igumbi lakho lokuhlambela likhuselekile ukuba ulisebenzise.

Ukuba unengxaki yokuhamba endlwini yakho ngokulula, thetha nomboneleli wakho malunga nokufumana uncedo.

Umboneleli wakho unokukuthumela kunyango olusebenzayo ukunceda:

• Ukuzivocavoca amandla kunye nokuhambahamba
• Uyisebenzisa kanjani i-walker yakho, induku, isitulo esinamavili, okanye ezinye izixhobo
• Indlela yokuseka ikhaya lakho ukuze uhambe ngokukhuselekileyo

Unokuba neengxaki zokuqala ukuchama okanye ukukhupha i-bladder yakho yonke indlela. Isinyi sakho sinokungabinanto rhoqo okanye ngexesha elingalunganga. Isinyi sakho sinokugcwala kakhulu kwaye unokuvuza umchamo.

Ukunceda kwiingxaki zesinyi, umboneleli wakho unokumisela amayeza. Abanye abantu abane-MS kufuneka basebenzise i-catheter ye-urinary. Le ityhubhu ebhityileyo efakwe kwisinyi sakho ukukhupha umchamo.

Umboneleli wakho unokukufundisa ezinye zeemithambo ukukunceda ukomeleza izihlunu zomgangatho we-pelvic.

Usulelo lwe-Urinary luqhelekile kubantu abane-MS. Funda ukuqaphela iimpawu, njengokutshisa xa uchama, umkhuhlane, iintlungu ezisezantsi kwicala elinye, kunye nemfuno yokuchama rhoqo.

Musa ukubamba umchamo wakho. Xa uziva unomdla wokuchama, yiya kwigumbi lokuhlambela. Xa ungekho ekhaya, qaphela indawo yokuhlala yangasese ekufutshane.

Ukuba une-MS, unokuba nengxaki yokulawula amathumbu akho. Yiba nesiqhelo. Nje ukuba ufumane indlela yesiqhelo esebenzayo, yima nayo:

• Khetha ixesha eliqhelekileyo, elinjengemva kwesidlo okanye ibhafu efudumeleyo, ukuzama ukuba nokuhamba kwamathumbu.
• Linda. Ingathabatha imizuzu eli-15 ukuya kwengama-45 ukuba nokuhamba kwamathumbu.
• Zama ngobunono uhlikihla isisu sakho ukunceda ilindle ukuba lihambe kwikholoni yakho.

Kuphephe ukuqhina:

• Sela iziselo ezingaphezulu.
• Hlala usebenza okanye usebenze ngakumbi.
• Yitya ukutya okunemisonto emininzi.

Buza umboneleli wakho malunga namayeza owasebenzisayo anokubangela ukuqhina. Oku kubandakanya amayeza oxinzelelo, iintlungu, ulawulo lwesinyi, kunye nokudumba kwemisipha.

Ukuba uhlala kwisitulo esinamavili okanye ebhedini imini yonke, kuya kufuneka ujonge ulusu lwakho yonke imihla ukufumana iimpawu zezilonda zoxinzelelo. Jonga ngokusondeleyo:

• Izithende
• Amaqatha
• Amadolo
• Isinqe
• Umsila
• Ingqiniba
• Amagxa namagxa egxalaba
• Umva wentloko yakho

Funda ngendlela yokuthintela izilonda zoxinzelelo.

Gcina usesikhathini kunye nokugonywa kwakho. Fumana umkhuhlane unyaka nonyaka. Buza umboneleli wakho ukuba ufuna inyumoniya.

Buza umboneleli wakho malunga nolunye uvavanyo onokulufuna, njengokuvavanya inqanaba le-cholesterol, inqanaba leswekile yegazi, kunye nokuvavanywa kwethambo kwi-osteoporosis.

Yitya ukutya okusempilweni kwaye uzigcine ekutyebeni kakhulu.

Funda ukulawula uxinzelelo. Uninzi lwabantu abane-MS luziva lusizi okanye luxinezelekile ngamanye amaxesha. Thetha nabahlobo okanye usapho malunga noku. Buza umboneleli wakho malunga nokubona ingcali ukukunceda ngezi mvakalelo.

Unokuzifumana udinwa ngokulula kunangaphambili. Zibeke xa usenza imisebenzi enokudinisa okanye efuna ingqwalaselo eninzi.

Umboneleli wakho unokuba nawe kumayeza ahlukeneyo ukunyanga i-MS yakho kunye neengxaki ezininzi ezinokuza nayo:

• Qiniseka ukuba ulandela imiyalelo. Sukuyeka ukuthatha amayeza ungakhange uqale uthethe nomboneleli wakho.
• Yazi ukuba wenzeni ukuba uphoswa yidosi.
• Gcina amayeza akho kwindawo epholileyo, eyomileyo, kwaye kude nabantwana.

Fowunela umnikezeli wakho ukuba unayo:

• Iingxaki zokuthatha iziyobisi ngezihlunu zemisipha
• Iingxaki zokuhambisa amalungu akho (isivumelwano esidibeneyo)
• Iingxaki zokuhamba okanye ukuphuma ebhedini okanye kwisitulo sakho
• Izilonda zolusu okanye bomvu
• Intlungu eya isiba mandundu
• Ukuwa kwangoku
• Ukutswina okanye ukukhohlela xa usitya
• Iimpawu zosulelo lwesinyi (umkhuhlane, ukutshisa xa uchama, umchamo ongcolileyo, umchamo wamafu, okanye ukuchama rhoqo)

Ukukhutshwa kweMS

ICalabresi PA. I-Multiple sclerosis kunye neemeko zokupheliswa kwenkqubo ye-nervous system. Ku: IGoldman L, iSchafer AI, ii-eds. Amayeza eGoldman-Cecil. Ngomhla wama-26. IPhiladelphia, PA: Elsevier; 2020: isahluko 383.

UFabian MT, uKrieger SC, uLublin FD. I-Multiple sclerosis kunye nezinye izifo ezikhuselayo zenkqubo ye-nervous system. Ku: Daroff RB, Jankovic J, Mazziotta JC, Pomeroy SL, ii-eds. I-Neurology kaBradley kwiKlinikhi yokuziqhelanisa. Umhla wesi-7. IPhiladelphia, PA: Elsevier; 2016: isahluko 80.

Iwebsite yeSizwe yeMultiple Sclerosis Society. Ukuhlala kakuhle ne-MS. Umbutho weli lizwe/.org/Ukuphila-Well-With-MS. Kufunyenwe ngoNovemba 5, 2020.

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