Imememe ezi-5 ezichaza iintlungu zam zeRA

Umxholo

• 1. ‘Intlungu ikwazisa ukuba usaphila’
• 2. Ndiyaphila
• 3. Yithathe de uyenze
• 4. Andiqinisekanga ukuba iintlungu azisebenzi…
• 5. Ngamana amacephe anganithanda
• Ukuthatha

Ndafunyaniswa ndine-lupus kunye ne-rheumatoid arthritis ngo-2008, ndineminyaka engama-22.

Ndaziva ndindedwa ndedwa kwaye ndingazi mntu ohamba kulento bendiyiyo. Ke ndiye ndaqala ibhlog ngeveki emva kokuba ndifumene isifo kwaye ndakhawuleza ndafunda ukuba andindedwa. Ndinayo i-PhD kwinzululwazi yezentlalo kunye nesidanga sokuqala kwi-advocate yezempilo, ke ndihlala ndinomdla wokufunda banzi ngendlela abanye abahlangabezana ngayo nokugula. Ibhlog yam yayi, kwaye iyaqhubeka, ulayini kum.

Ngelixa ndinethamsanqa lokufumana indibaniselwano yamayeza asebenzayo ukugcina i-lupus yam kunye ne-RA zijongile, ndingatsho ukuba ndikwindawo apho ndineentsuku ezintle ngakumbi kunezimbi. Intlungu nokudinwa kusengumzabalazo oqhubekayo. Ukuba ufunda le nto kwaye uneRA, uyaqonda ukuba umzabalazo uyinyani- uyazi into endiyenzayo!

1. ‘Intlungu ikwazisa ukuba usaphila’

Ngaba ukhe ube nentsasa apho uvuka khona kwaye ucinge, "Ndifuna ukuvuka ebhedini, kodwa andikwazi noku…"? Ndiyazi ngokupheleleyo imvakalelo. Kwaye ngelixa iintlungu zisothusa kwaye ziphazamisa, njengoko le meme ibonisa, ubuncinci iyasenza sazi ukuba siyaphila, nokuba asikwazi ukuphuma ebhedini.

2. Ndiyaphila

Xa abantu besibuza ukuba sinjani, ndiyazi ukuba uninzi lwethu luthanda ukungagqibeki "Ndiphilile," naxa singaphilanga, nelona lixesha elininzi. Naxa ndisezintlungwini, ndihlala ndixelela abantu ukuba ndilungile kuba andazi ukuba bakulungele okanye banokuphatha impendulo eyiyo okanye ubunyani bokuba ubomi bam bemihla ngemihla bunjani.

3. Yithathe de uyenze

Kunqabile ukuba iintlungu ziphele. Kwaye ngenxa yoko, ngamanye amaxesha ndinyanzelwa ukuba ndihlale ecaleni kobomi ngelixa ezinye i-30-somethings (okanye i-20-somethings, njengoko ndandinjalo xa ndandifunyaniswa okokuqala) besenza izinto endinqwenela ukuba ndingazenza. Njengokuthi "ndiyaphila," ngamanye amaxesha kuye kufuneke siyikhohlise de siyenze. Kulungile xa ndinako. Kodwa xa ndingenako, kuyadanisa ukutsho kancinci.

4. Andiqinisekanga ukuba iintlungu azisebenzi…

Ukuphila nentlungu engapheliyo kuthetha ukuba uyiqhelile. Ngamanye amaxesha kuba nzima ukwahlula phakathi kokuba siziva iintlungu zingaphantsi okanye iimeds zethu ziyasebenza. Ndikhumbula ukufumana ukumiliselwa kwe-steroid emva kokuba ndifunyenwe kwaye amayeza am ayengasebenzi okwangoku. Umama wandibuza ukuba ndisezintlungwini na. Ndandifana, "Ubuhlungu? Yintoni ebuhlungu? ” Ndicinga ukuba lelona xesha kunye neminyaka eli-10 endithe ndakwazi ukuyithetha loo nto.

5. Ngamana amacephe anganithanda

Ukuhlala neRA kuthetha ukuba silwela ubomi bethu nempilo yethu yonke imihla. Ke, ngelixa singekho kwaphela enxulumene nentlungu-nokuba silwa nentlungu, ukudinwa, okanye omnye umba onxulumene ne-RA-sonke sinokusebenzisa ezinye iipuni ngenxa yokuba sidla ngokungabi nazo ngokwaneleyo ukuqala.

Ukuthatha

Ukuba iintlungu yintonga esilinganisela ngayo ubomi bethu, ke abo kuthi abaneRA ngokuqinisekileyo banayo. Ngokwesiqhelo iintlungu zibonwa njengezingalunganga. Kodwa iyahlekisa indlela amagama nemifanekiso anokuchaza ngayo ukuba injani intlungu yeRA kwaye ayikhanyise kancinci.

U-Leslie Rott wafunyaniswa ukuba une-lupus kunye ne-rheumatoid arthritis ngo-2008 eneminyaka engama-22, kunyaka wakhe wokuqala kwisikolo esiphumeleleyo. Emva kokuchongwa, uLeslie uqhubeke nokufumana i-PhD kwezenzululwazi kwezentlalo kwiDyunivesithi yaseMichigan kunye nesidanga sobugqwetha kwezempilo kwiKholeji yaseSarah Lawrence. Ubhale ibhlog yakhe Ukusondela Kum, apho abelana ngamava akhe okuhlangabezana nokuhlala kwizifo ezininzi ezinganyangekiyo, ngokunyanisekileyo kunye nokuhlekisa. Ungummeli onesigulana oqeqeshiweyo ohlala eMichigan.