I-7 Lupus Life Hacks Ezindinceda Ndiphumelele

Umxholo

• 1. Ndivuna umvuzo wamaphephandaba
• 2. Ndijolise kuluhlu lwam "onokukwenza"
• 3. Ndakha iokhestra yam
• 4. Ndizama ukuphelisa ukuthetha kakubi
• 5. Ndiyasamkela isidingo sokwenza uhlengahlengiso
• 6. Ndamkele indlela ebanzi ngakumbi
• 7. Ndifumana unyango ekuncedeni abanye
• Yise kude

Sibandakanya iimveliso esicinga ukuba ziluncedo kubafundi bethu. Ukuba uthenga amakhonkco kweli phepha, sinokufumana ikhomishini encinci. Nantsi inkqubo yethu.

Xa kwafunyaniswa ukuba ndine-lupus kwiminyaka eli-16 eyadlulayo, ndandingazi ukuba esi sifo siza kuyichaphazela njani indawo nganye ebomini bam. Nangona bendinokusebenzisa incwadana yokusinda okanye umlingo ngexesha lokuphendula yonke imibuzo yam, ndanikwa amava obomi obudala badala. Namhlanje, ndibona i-lupus njengeyona nto indenze yangumfazi onamandla, onemfesane ngakumbi, ngoku oxabisayo ulonwabo oluncinci ebomini. Kundifundise into okanye ezimbini - okanye ikhulu- malunga nendlela yokuphila ngcono xa ujongene nesifo esinganyangekiyo. Ngelixa akusoloko kulula, ngamanye amaxesha kuthatha ubuqili obuncinci kunye nokucinga ngaphandle kwebhokisi ukufumana into ekusebenzelayo.

Nazi izinto ezisixhenxe zobomi ezindincedayo ukuba ndiphumelele nge-lupus.

1. Ndivuna umvuzo wamaphephandaba

Kwiminyaka eyadlulayo, umyeni wam wacebisa ukuba ndibhale ubomi bam bemihla ngemihla. Ndixhathisile ekuqaleni. Kwakunzima ngokwaneleyo ukuhlala ne-lupus, makungabhalwa malunga nayo. Ukuze ndixolise kuye, ndaqalisa ukwenza oko. Kwiminyaka elishumi elinesibini kamva, andikaze ndibheke ngasemva.

Idatha ehlanganisiweyo ivule amehlo. Ndineminyaka yolwazi malunga nokusetyenziswa kwamayeza, iimpawu, uxinzelelo, ezinye iindlela zonyango endizizamile, kunye namaxesha oxolelo.

Ngenxa yala manqaku, ndiyazi ukuba yintoni ebangela ii-flares zam kwaye zeziphi iimpawu endinazo ngaphambi kokuba kuvele i-flare. Amagqabantshintshi eendaba abona inkqubela phambili endiyenzileyo ukusukela oko ndafunyaniswa kuvavanyo. Le nkqubela phambili inokubonakala inqabile xa ukwisithuba se-flare, kodwa ijenali iyizisa ngaphambili.

2. Ndijolise kuluhlu lwam "onokukwenza"

Abazali bam bandibiza ngokuba "ngumhambisi nozulazula" ndisemncinci. Ndandinamaphupha amakhulu kwaye ndasebenza nzima ukuwafeza. Ke ilupus yatshintsha ikhondo lobomi bam kunye nekhosi yeenjongo zam ezininzi. Ukuba oku bekungakhathazi ngokwaneleyo, ndongeze umlilo kumgxeki wam ngaphakathi ngokuzithelekisa noontanga abasempilweni. Imizuzu elishumi ndichithe ndiskroba nge-Instagram iyakundishiya ngequbuliso ndiziva ndoyisiwe.

Emva kweminyaka yokuzingcungcuthekisa ukulinganisa abantu abangenaso isifo esinganyangekiyo, ndaye ndazimisela ngakumbi ekugxileni kwinto unakho yenza. Namhlanje, ndigcina u "ndinokukwenza" uluhlu-endiqhubeka ndiluhlaziya-oluqaqambisa impumelelo yam. Ndijolise kwinjongo yam eyahlukileyo kwaye ndizame ukungathelekisi uhambo lwam nabanye. Ngaba ndiyiphumelele imfazwe yokuthelekisa? Hayi ngokupheleleyo. Kodwa ukugxila kubuchule bam kundiphucule kakhulu ekuzixabiseni kwam.

3. Ndakha iokhestra yam

Ukuhlala ne-lupus iminyaka eyi-16, ndifundisise ngokubanzi ukubaluleka kokuba nesangqa esihle senkxaso. Umxholo unomdla kum kuba ndinamava emveni kokuba nenkxaso encinci kumalungu osapho asondeleyo.

Kule minyaka, isangqa sam senkxaso sakhula. Namhlanje, kubandakanya abahlobo, amalungu osapho akhethiweyo, kunye nosapho lwam lwecawe. Ndihlala ndibiza inethiwekhi yam njenge "orchestra," kuba elowo kuthi uneempawu ezahlukileyo kwaye siyaxhasana ngokupheleleyo. Ngothando lwethu, inkuthazo kunye nenkxaso, ndiyakholelwa ukuba senza umculo omnandi kunye oxhasa nantoni na engalunganga ebomini.

4. Ndizama ukuphelisa ukuthetha kakubi

Ndikhumbula kunzima kakhulu kum emva kokuchongwa kwe-lupus. Ngokuzigxeka, bendizibekek 'ityala ngokugcina isantya sam sangaphambi kokuxilongwa, apho benditshisa khona amakhandlela kumacala omabini. Ngokwasemzimbeni, oku kungakhokelela ekudinweni kwaye, ngokwengqondo, kwiimvakalelo zentloni.

Ngomthandazo-kwaye ngokusisiseko yonke incwadi ka-Brene Brown kwintengiso-ndafumanisa inqanaba lokuphilisa ngokwasemzimbeni nangokwengqondo ngokuthanda kwam. Namhlanje, nangona kufuna umgudu, ndijolise “ekuthetheni ubomi.” Nokuba "Wenze umsebenzi omkhulu namhlanje" okanye "Ukhangeleka umhle," ukuthetha iziqinisekiso ezilungileyo ngokuqinisekileyo kuyitshintshile indlela endizibona ngayo.

5. Ndiyasamkela isidingo sokwenza uhlengahlengiso

Isifo esinganyangekiyo sidume ngokubeka isikrufu kwizicwangciso ezininzi. Emva kwamathuba amaninzi aphosiweyo kunye neziganeko zobomi ezicwangcisiweyo, ndiye ndaqala kancinci ukuyeka umkhwa wokuzama ukulawula yonke into. Xa umzimba wam ungakwazanga ukujongana neemfuno zeveki yokusebenza yeeyure ezingama-50 njengentatheli, ndatshintshela kubuntatheli obuzimele. Xa ndilahlekelwe zininzi iinwele zam ukuze ndi chemo, ndadlala ngeenxa zonke ngeewigi kunye nezandiso (kwaye ndiyayithanda!). Kwaye xa ndijika ikona ngama-40 ngaphandle komntwana wam, ndiye ndaqala ukuhamba ngendlela eya ekwamkelweni komntwana.

Uhlengahlengiso lusinceda senze uninzi ebomini bethu, endaweni yokuziva sikhathazekile kwaye sibanjiswe zizinto ezingahambi ngokwesicwangciso.

6. Ndamkele indlela ebanzi ngakumbi

Ukupheka bekuyinxalenye enkulu yobomi bam ukusukela ndisengumntwana (ndingathini, ndingumTaliyane), kodwa andizange ndenze ukutya / ukunxibelelana komzimba ekuqaleni. Emva kokulwa neempawu ezinamandla, ndaqala uhambo ndenza uphando ngezinye iindlela zonyango ezinokusebenza kunye namayeza am. Ndiva ngathi ndizamile konke: ukwenza i-juicing, i-yoga, ukwenza i-acupuncture, iyeza elisebenzayo, i-IV hydration, njl.

Kuba ndijongane ne-overactive, i-aleji yeempendulo kukutya, kwiikhemikhali, njl. Ngolu lwazi, ndasebenza nesazi sokutya kwaye ndahlaziya indlela enditya ngayo. Kwiminyaka esibhozo kamva, ndisakholelwa ukuba ukutya okucocekileyo, okunezakha mzimba kunika umzimba wam ukomeleza imihla ngemihla xa ujongene ne-lupus. Ngaba utshintsho kwindlela yokutya lundiphilisile? Hayi, kodwa bawuphucule kakhulu umgangatho wobomi bam. Ubudlelwane bam obutsha kunye nokutya buwutshintshe umzimba wam wabangcono.

7. Ndifumana unyango ekuncedeni abanye

Kukho amaxesha kule minyaka ili-16 idlulileyo apho i-lupus ibisengqondweni yam imini yonke. Kwakunditya, kwaye ngakumbi ndaye ndagxila kuyo-ngakumbi "kuthekani ukuba" - ndandiziva ndimbi ngakumbi. Emva kwexesha, ndanele. Ndandihlala ndikonwabela ukukhonza abanye, kodwa iqhinga yayikukufunda Njani. Ngelo xesha ndandilele umandlalo esibhedlele.

Uthando lwam lokunceda abanye baqhakaza ngebhlog endandiyiqale kwiminyaka esibhozo eyadlulayo ebizwa ngokuba yiLupusChick. Namhlanje, ixhasa kwaye ikhuthaza ngaphezulu kwama-600,000 abantu ngenyanga abane-lupus kunye nezifo ezigqithileyo. Ngamanye amaxesha ndibelana ngamabali obuqu; ngamanye amaxesha, inkxaso inikwa ngokumamela umntu oziva elilolo okanye ukuxelela umntu ukuba uyathandwa. Andazi ukuba sisiphi isipho esikhethekileyo onaso esinokunceda abanye, kodwa ndiyakholelwa ukuba ukwaba kuya kuchaphazela kakhulu umamkeli kunye nawe. Akukho luvuyo lukhulu ngaphezu kokwazi ukuba ube nefuthe elihle kubomi bomntu ngesenzo senkonzo.

Yise kude

Ndizifumene ezi hacks zobomi ngokuhamba indlela ende, enamajikojiko ezele ziindawo ezininzi ezingenakulibaleka kunye nezinye iintlambo ezimnyama, ezizodwa. Ndiyaqhubeka nokufunda ngakumbi suku ngalunye ngam, kubalulekile ntoni kum, kwaye liliphi ilifa endifuna ukulishiya ngasemva. Nangona ndihlala ndikhangela iindlela zokoyisa umzabalazo wemihla ngemihla nge-lupus, ukumiliselwa kwezi zinto zingentla kuguqukile kwimbono yam, kwaye ngeendlela ezithile, kwenza ubomi babalula.

Namhlanje, andisaziva ngathi i-lupus isesihlalweni somqhubi kwaye ndingumkhweli ongenamandla. Endaweni yokuba ndibenezandla zozibini kwivili kwaye kukho umhlaba omkhulu, omkhulu apha phandle ndicwangcisa ukuwuphonononga! Zeziphi iihacks zobomi ezisebenzayo ukukunceda uphumelele nge-lupus? Nceda wabelane nabo kum kwizimvo ezingezantsi!

UMarisa Zeppieri yintatheli yezempilo kunye nokutya, umpheki, umbhali, kunye nomseki weLupusChick.com kunye neLupusChick 501c3. Uhlala eNew York nomyeni wakhe kwaye wahlangula umlinganiso weempuku. Mfumane kuFacebook kwaye umlandele kwi-Instagram (@LupusChickOfficial).