Buza Ingcali: Iziqwenga zengcebiso zaBantu abaPhila ngeRRMS

Umxholo

• Yeyiphi indlela ebalaseleyo yokulawula iRRMS? Ngaba ndingayicotha inkqubela phambili yayo?
• Yintoni endifanele ndiyenze xa ndihlaselwa yi-MS?
• Ngaba ikhona indlela endinokunciphisa ngayo inani lokuhlaselwa kwe-MS endikufumanayo?
• Ngaba kukho ukutya okanye ukutya okuthile okucebisa ngeRRMS?
• Ngaba kulungile ukusela utywala ngamanye amaxesha?
• Ukwenza umthambo kunceda njani ngeRRMS? Loluphi uqeqesho olucebisayo, kwaye ndinokuhlala njani ndikhuthazekile xa ndidiniwe?
• Ngaba imisebenzi yokuvuselela ingqondo inokuwuphucula umsebenzi wam wokuqonda? Yintoni esebenza kakuhle?
• Kufuneka ndenze ntoni ukuba amayeza am e-MS enza iziphumo ebezingalindelekanga?
• Ndingayifumana njani inkxaso yeemvakalelo kwiMS?
• Leliphi elakho inani leengcebiso kubantu abasandula ukufumanisa ukuba baneRRMS?

Yeyiphi indlela ebalaseleyo yokulawula iRRMS? Ngaba ndingayicotha inkqubela phambili yayo?

Indlela efanelekileyo yokulawula ukuphindaphinda-ukukhupha i-multiple sclerosis (RRMS) kunye ne-agent-modifying agent.

Amayeza amatsha asebenzayo ekunciphiseni amaxabiso ezilonda ezintsha, ukunciphisa ukubuyela umva, kunye nokucothisa ukuqhubela phambili kokukhubazeka. Idibene nendlela yokuphila esempilweni, i-MS ilawulwa ngakumbi kunangaphambili.

Yintoni endifanele ndiyenze xa ndihlaselwa yi-MS?

Ukuba ufumana iimpawu ezitsha ezihlala iiyure ezingama-24 okanye ngaphezulu, nxibelelana nodokotela wakho we-neurologist, okanye intloko kwigumbi lexakeka. Unyango kwangoko nge-steroids lunokunciphisa ubude beempawu.

Ngaba ikhona indlela endinokunciphisa ngayo inani lokuhlaselwa kwe-MS endikufumanayo?

Ukuya kunyango olusebenzayo lokuguqula isifo (i-DMT) kunceda ukunciphisa izinga lokuhlaselwa kwe-MS kunye nokuqhubela phambili kwezifo. Inani lee-DMT kwintengiso lenyuke ngokukhawuleza kule minyaka idlulileyo.

I-DMT nganye inefuthe elahlukileyo ekunciphiseni ukubuyela umva. Ezinye ii-DMTs zisebenza ngakumbi kunezinye. Thetha nogqirha wakho malunga nemingcipheko yamayeza akho kunye nokusebenza kwawo ekumiseni izilonda ezintsha kunye nokuphinda ubuye.

Ngaba kukho ukutya okanye ukutya okuthile okucebisa ngeRRMS?

Akukho kutya kuthe kwangqinwa ukuba kuyayinyanga okanye kuyinyanga i-MS. Kodwa indlela otya ngayo inokuchaphazela amanqanaba akho emandla kunye nempilo yonke.

cebisa ukuba ukutya ukutya okucociweyo okuninzi kunye nesodiyamu kunokuba negalelo ekuqhubekekeni kwezifo ngokwandisa ukudumba emathunjini.

Eyona nto ukubheja kwakho kukutya ukutya okunefayibha eninzi nesezantsi kwisodium, iswekile, kunye nokutya okuqhubekekayo. Ukutya kweMeditera okanye kwe-DASH yimizekelo elungileyo yolu hlobo lwendlela yokutya esempilweni.

Ndicebisa ukutya okutyebileyo kukutya kwendalo. Faka intabalala yemifuno enamagqabi aluhlaza kunye neprotein etyebileyo. Iintlanzi ziphezulu kwi-omega-3 fatty acids, ezinokunceda abantu abathile abane-MS.

Yitya inyama ebomvu kancinci. Kuphephe ukutya okukhawulezayo, okufana neehambhega, izinja ezishushu, kunye nokutya okuthosiweyo.

Oogqirha abaninzi bancomela ukuthatha isongezelelo se-vitamin D-3. Thetha kwi-neurologist yakho malunga nokuba ungakanani i-vitamin D-3 omele uyithathe. Ixabiso lihlala lixhomekeke kwigazi lakho lwangoku le-D-3.

Ngaba kulungile ukusela utywala ngamanye amaxesha?

Ewe, kodwa kusoloko kubalulekile ukusela ngokufanelekileyo. Abanye abantu banokufumana i-flare-up (okanye ukuwohloka kweempawu zabo ezingaphantsi kwe-MS) emva kweziselo ezimbalwa.

Ukwenza umthambo kunceda njani ngeRRMS? Loluphi uqeqesho olucebisayo, kwaye ndinokuhlala njani ndikhuthazekile xa ndidiniwe?

Ukuzilolonga kunceda ukugcina umzimba nengqondo esempilweni. Zombini zibalulekile ekulweni i-MS.

Iindlela ezahlukeneyo zokuzilolonga ziluncedo kubantu abane-MS. Ndicebisa ngakumbi ukuzivocavoca i-aerobic, ukolula, kunye noqeqesho lokulinganisela, kubandakanya i-yoga kunye ne-Pilates.

Sonke siyasokola ngenkuthazo. Ndifumana ukunamathela kwishedyuli esetiweyo kunye nokubeka iinjongo zekhonkrithi kunceda ekuphuculeni indlela efikelelekayo.

Ngaba imisebenzi yokuvuselela ingqondo inokuwuphucula umsebenzi wam wokuqonda? Yintoni esebenza kakuhle?

Ndiyazikhuthaza izigulana zam ukuba zihlale zisebenza ngokuqonda nangokwengqondo ngokuzicel 'umngeni ngemidlalo yokuzibandakanya, enje nge-sudoku, i-Luminosity, kunye neepuzzle zamagama.

Ukudibana kwezentlalo kukwaluncedo olukhulu ekusebenzeni kwengqondo. Isitshixo kukukhetha umsebenzi omnandi kunye novuselelayo.

Kufuneka ndenze ntoni ukuba amayeza am e-MS enza iziphumo ebezingalindelekanga?

Soloko uxoxa ngayo nayiphi na imiphumo emibi yonyango kunye ne-neurologist yakho. Iziphumo ebezingalindelekanga ezininzi zezokwexeshana kwaye zingancitshiswa ngokuthatha amayeza akho ngokutya.

Amayeza angaphezulu kwe-counter, anjengeBenadryl, i-aspirin, okanye ezinye ii-NSAID, anokunceda.

Nyaniseka kwi-neurologist yakho ukuba iziphumo zecala aziphucuki. Iyeza lisenokungakulungeli. Zininzi iindlela zonyango zonyango anokucebisa ukuba uzame.

Ndingayifumana njani inkxaso yeemvakalelo kwiMS?

Uninzi lwezixhobo ziyafumaneka kubantu abane-MS kwezi ntsuku. Enye yezona zinto ziluncedo kakhulu yisahluko sakho sendawo seNational MS Society.

Banikezela ngeenkonzo kunye nenkxaso, enjengamaqela, iingxoxo, izifundo, ukusebenzisana ngokuzinceda, iinkqubo zamaqabane oluntu, nokunye okuninzi.

Leliphi elakho inani leengcebiso kubantu abasandula ukufumanisa ukuba baneRRMS?

Ngoku sineendlela ezininzi ezisebenzayo nezikhuselekileyo zokunyanga abantu kwi-spectrum ye-MS. Kubalulekile ukusebenza kunye neengcali ze-MS ukunceda ukuhamba ngononophelo kunye nolawulo lwakho.

Ukuqonda kwethu i-MS kuye kwaqhubela phambili kakhulu kule minyaka ingama-2 idlulileyo. Siyathemba ukuqhubeka nenkqubela phambili ebaleni ngenjongo zokufumana unyango.

UGqr Sharon Stoll yibhodi eqinisekisiweyo ye-neurologist kwiYale Medicine. Uyingcali ye-MS kunye nonjingalwazi oncedisayo kwisebe le-neurology kwiYale School of Medicine. Ulugqibe uqeqesho lokuhlala e-neurology kwisibhedlele i-Thomas Jefferson University ePhiladelphia, kunye nobudlelwane bakhe neuroimmunology kwisibhedlele iYale New Haven. UGqr Stoll uyaqhubeka nokudlala indima ebonakalayo kuphuhliso lwezifundo kunye nokuqhubeka nemfundo yezonyango, kwaye usebenza njengomlawuli wekhosi yeYale yenkqubo yonyaka yeMS CME. Ungumphenyi kwizilingo ezininzi zeklinikhi zamazwe aphesheya, kwaye ngoku ukhonza kwiibhodi ezininzi zeengcebiso, kubandakanya iBeCare MS Link, Forepont Capital Partners, One Touch Telehealth, kunye neJOWMA. Ugqirha Stoll ufumene amabhaso amaninzi, kubandakanya neBhaso lokufundisa likaRodney Bell, kwaye ungumamkeli wesibonelelo sobudlelwane bezonyango kwi-National MS Society. Kutshanje ukhonza eqongeni lezemfundo kwisiseko sikaNancy Davis, ubuhlanga bokucima i-MS, kwaye usisithethi esidumileyo kwilizwe liphela.