Iibhloko ezininzi zeSclerosis ze-2020

Umxholo

• MultipleSclerosis.net
• Isibini sithatha i-MS
• Isiqhelo sam esitsha
• Unxibelelwano lweMS
• Intombazana ene-MS
• Iincoko zeMS
• Iindaba ezininzi ze-Sclerosis Namhlanje
• Multiple Sclerosis Ithemba
• UMbutho waseMS waseKhanada
• Ukurhintyela i-Treacle
• IiDinosaurs, iidonki kunye neMMS
• UYvonne deSousa
• Isokisi yam engaqhelekanga
• Ukukhubeka kwiiFlethi
• Iimbono zeMS kunye neendaba
• Rach efikelelekayo
• Kulungile kwaye Yomelele nge-MS
• I-MS Muse

I-Multiple sclerosis (MS) sisifo esingalindelekanga esineempawu ezininzi ezinokuza, zihambe, zihlale ixesha elide, okanye zibe mandundu.

Kwabaninzi, ukuqonda iinyani - {textend} ukusuka ekuchongeni nasekunyangeni kunyango ukuya kwimiceli mngeni yokuphila nesi sifo - {textend} linyathelo lokuqala lokufunda ukuba ungasilawula njani ngempumelelo.

Ngethamsanqa, kukho uluntu oluxhasayo ngaphandle apho lokukhokela indlela ngokuxhasa, ukwazisa kunye nokufumana inyani malunga ne-MS.

Ezi bhloko zenze uluhlu lwethu oluphambili kulo nyaka ngenxa yeembono zabo ezizodwa, uthando kunye nokuzibophelela ekuncedeni abo bahlala ne-MS.

MultipleSclerosis.net

Ukhuseleko lokuqhuba, uxinzelelo lwezezimali, ukutyeba ubunzima, unxunguphalo, kunye noloyiko lwekamva- {textend} kubantu abaninzi abaphila ne-MS, ezi ziinkxalabo ezisebenzayo, kwaye esi siza asinazintloni nakwezinye zazo. I-toni ephambili kunye ne-unvarnished yinxalenye yento eyenza umxholo kwi-blog ye-MultipleSclerosis.net ibe namandla. Ababhali abancinci kunye nabathetheli be-MS abanjengoDevin Garlit kunye noBrooke Pelczynski bayithetha ngolu hlobo. Kukho necandelo le-MS kunye neMpilo yeNgqondo, eluncedo kuye nabani na olwa nefuthe leemvakalelo zesifo okanye uxinzelelo olunokuza nesifo esinganyangekiyo.

Isibini sithatha i-MS

Embindini walo, eli libali lothando elimangalisayo malunga nabantu ababini abaphila ne-MS. Kodwa ayipheleli apho. Isibini esitshatileyo uJennifer noDan bobabini bane-MS kwaye khathalelana. Kwibhlog yabo, babelana ngeenkcukacha ngemizabalazo yemihla ngemihla kunye nempumelelo, kunye nezixhobo ezinengcinga yokunceda ukunciphisa ubomi nge-MS. Bayakugcina kubo bonke ubuchwephesha babo, umsebenzi wokukhuthaza, nendlela abaphatha ngayo nolawulo lwamatyala abo e-MS.

Isiqhelo sam esitsha

Abantu abane-MS abafumana iimpawu okanye ukuba nexesha elinzima ngakumbi baya kufumana iingcebiso eziluncedo apha. UNicole Lemelle ubengummeli kuluntu lwe-MS okoko nje uninzi lwethu lunokukhumbula, kwaye ufumene indawo emnandi phakathi kokubalisa ibali lakhe ngokunyanisekileyo nangokuqhubeka ukukhuthaza nokuphakamisa uluntu. Uhambo luka-Nicole lwe-MS belunamatye kule minyaka idlulileyo, kodwa wabelana ngesibindi sakhe ngendlela eya kukwenza ufune ukumanga kwikhompyuter.

Unxibelelwano lweMS

Abantu abane-MS kunye nabanakekeli babo abafuna inkuthazo okanye imfundo baya kuyifumana apha. Le bhlog ibonelela ngeendlela ezahlukeneyo zamabali abantu abane-MS kuwo onke amabakala obomi babo. I-MS Connection ithetha ngayo yonke into ukusuka kubudlelwane kunye nokuzilolonga ukuya kwiingcebiso ngamakhondo omsebenzi nayo yonke into ephakathi. Yisingathwe nguMbutho weSizwe we-MS, ke uya kufumana amanqaku aphambili ophando aphoswe apha, nawo.

Intombazana ene-MS

Abantu abasandula ukufumanisa ukuba bane-MS bayakufumana le bhlog iluncedo ngakumbi, nangona umntu ehlala ne-MS enokufumana ixabiso kula manqaku. UCaroline Craven wenze umsebenzi omangalisayo ekwenzeni izixhobo ezinokubakho kubantu abane-MS ezibandakanya izihloko ezinje ngeeoyile ezifanelekileyo, iingcebiso zokuncedisa kunye nokuba sempilweni ngokweemvakalelo.

Iincoko zeMS

Le bhlog iluncedo kubantu abasandula ukufumanisa ukuba bane-MS, okanye nabani na onengxaki ethile ye-MS apho bangathanda ukucetyiswa kuyo. Ibanjwe yi-Multiple Sclerosis Association of America, amanqaku abhalwe ngabantu abane-MS kuzo zonke iindlela zobomi. Esi sisiqalo esihle kubantu abafuna umfanekiso opheleleyo wobomi nge-MS.

Iindaba ezininzi ze-Sclerosis Namhlanje

Ukuba ujonga nantoni na enokuthi ithathelwe ingqalelo njengeendaba kuluntu lwe-MS, kulapho uyakufumana khona. Le kuphela kwempapasho ekwi-Intanethi ekhonza iindaba ezinxulumene ne-MS yonke imihla, Ukubonelela ngezixhobo ezingaguquguqukiyo nezihlaziyiweyo.

Multiple Sclerosis Ithemba

Abantu abane-MS abahlala phesheya baya kulonwabela olu luhlu lwamanqaku agubungela uphando lwe-MS. Kukho amabali abantu abaphila ne-MS kunye noluhlu lweziganeko ezinxulumene ne-MS kunye nabaxhasi bezemali e-United Kingdom.

UMbutho waseMS waseKhanada

Ngokusekwe ngaphandle kweToronto, lo mbutho ubonelela ngeenkonzo kwabo bahlala ne-MS kunye neentsapho zabo, kwaye uxhasa ngemali uphando lokufumana unyango. Ngobulungu obungaphezulu kwe-17,000, bazibophelele ekuxhaseni zombini uphando lwe-MS kunye neenkonzo. Bhrawuza kwiindawo zophando kunye neendaba zenkxaso-mali, kwaye uthathe inxaxheba kwii-webinars zemfundo zasimahla.

Ukurhintyela i-Treacle

Umxholo kule bhlogi ikhuthazayo kwaye inyanisekileyo "uyakhubeka kubomi be-MS." Umbono kaJen onyanisekileyo nonikwe amandla ujongana nawo wonke umxholo apha - {textend} ukusuka kwizithuba ezikwi-spoonie njengomzali kwizinto eziyinyani zokuphila "nesifo esinganyangekiyo sokugula" kuvavanyo lwemveliso. UJen ukwasebenzisana kwiDizzycast, ipodcast eneDinosaurs, iidonki kunye neMS (jonga ngezantsi).

IiDinosaurs, iidonki kunye neMMS

UHeather ngumlingisi oneminyaka engama-27 ubudala, utitshala kunye nommeli we-MS ohlala eNgilane. Wafunyaniswa ene-MS kwiminyaka eliqela eyadlulayo, kwaye waqala ukubhloga kungekudala emva koko. Ukongeza ekwabelaneni ngeengcinga kunye nemibono kwi-MS, uthumela "ukutya, ukutya kunye nezinto zokuzilolonga" ezingqineka ziluncedo. Okholelwa ngokuqinileyo kwindlela yokuphila esempilweni enceda ukuphucula ubomi nge-MS, uHeather uhlala ekwabelana ngoko kumsebenzele kakuhle.

UYvonne deSousa

U-Yvonne deSousa unjalo ehlekisayo. Bhrawuza iphepha lakhe le-bio kwaye uza kubona ukuba sithetha ntoni. Ubuye waphila ngokubuyela ekubuyeleni kwakhona kwi-MS ukusukela kwiminyaka engama-40 ubudala. Wasabela njani xa wayefunyanwa okokuqala? “Kunzima ukukholelwa kodwa ndaqala ukuhleka. Ndiye ndalila. Ndabiza udadewethu uLaurie owaye wafumanisa ukuba une-MS phantse kwiminyaka eli-10 ngaphambili. Uye wandihlekisa. Ndabona ukuba ukuhleka kumnandi ngakumbi. Emva koko ndaqala ukubhala. ” Ukukwazi kukaYvonne ukufumana uburharha ngaphandle kobunzima bakhe kuyamangalisa, kodwa unyanisile xa izinto ziba mnyama kakhulu okanye kunzima ukuhleka. "I-Multiple Sclerosis iyingozi kwaye iyothusa," ubhala. “Le mibhalo yam ayenzelwanga ukuba ijongele phantsi le meko okanye abo banayo, ngakumbi abo bakwinqanaba eliphezulu. Ukubhala kwam kwenzelwe ukuba ndenze uncumo olufutshane kwabo banokuthi baqonde iimeko ezinqabileyo ezivela kwi-MS. ”

Isokisi yam engaqhelekanga

UDoug weSock yam engaqhelekanga Ndaziva ngathi ufuna ukuhleka emva kokuchongwa kwe-MS emva ngo-1996. Kwaye wahleka. Ngebhlog yakhe, usimema sonke ukuba sihleke kunye naye. Umxube kaDoug wentsimbi kunye nolwimi-esidleleni ukuzithoba kudibene nokunyaniseka kwakhe ngokukhohlakeleyo ngokuhlala ne-MS kwenza ukuba iibhlog zakhe zive ngathi zizolile phakathi kwesiphango. Emva kokuba echithe ikhondo lakhe njengomhlekisi kunye nombhali wentengiso, uDoug uyayazi into yokuba "ukufundiswa kwabafundi" Ufuna ukufundisa abafundi bakhe malunga nezinto eziyinyani ze-MS nokuba zihlazisa, njengokufumana ubunzima bokuchama okanye ukuhambisa intshukumo engalindelekanga, okanye ulungelelwaniso olungacwangciswanga ngelixa befumana isibhamu seBotox emlenzeni kwiofisi kagqirha. Ugcina sihleka sonke kanye.

Ukukhubeka kwiiFlethi

Ukukhubeka kwiiFlethi yincwadi-eguqulwe-yibhlogi ngumphathi weprojekthi-oguqukileyo-oyingcali-ngumbhali-nge-PhD uBarbara A. Stensland.Ngokusekwe eCardiff, eWales, uBarbara kwafunyaniswa ukuba une-MS ngo-2012 kwaye akanazintloni zokuvuma ukuba i-MS ihlala isisikhubekiso ebomini bakhe. Uyekisiwe emsebenzini ngenxa ye-MS yakhe, kodwa loo nto ayimnqandanga ekubeni afumane i-MA kubhalo loyilo, ephumelele amabhaso aliqela ngokubhala kwakhe, ukuba ngumcebisi kwimiboniso bhanyabhanya ebonisa ngokuchanekileyo i-MS, evela kwi-BBC nakwi-BBC. I-Wales, kunye negalelo kwiiwebhusayithi zabathengi ezahlukahluka njengeenkampani ezixuba amayeza kunye noluntu lwe-MS. Umyalezo kaBarbara ngowokuba unokwenza nantoni na, nokuba unesifo se-MS. Usebenzisa nokwaziwa kwakhe njengombhali ukunceda ukuzisa ulwazi kwezinye iibhlog ezibhala malunga ne-MS.

Iimbono zeMS kunye neendaba

Sukuvumela itemplate yeBlogspot elula ikukhohlise. Iimbono zeMS kunye neendaba zityebile ngolwazi malunga nokuqhambuka kwenzululwazi kunye nezifundo ezinxulumene ne-MS kunye nophando olunqamlezileyo kunyango lwe-MS kunye nokunxibelelana nezixhobo eziluncedo. IFlorida esekwe eStuart Schlossman yafunyaniswa ukuba ine-MS ngo-1999 kwaye yasekwa i-MS News kunye neeMbono ukubonelela ngesixa esikhulu semixholo enxulumene nesayensi kunye nomxholo wezonyango konke oku kuhlala endaweni enye kunokuba kusasazwe kwi-Intanethi. Le yeyona venkile yokumisa inomdla wokwazi malunga nokwenzekayo ngophando lwe-MS kwaye usondele kwimithombo ephambili ngaphandle kokuhluza amawaka ezixhobo kwiwebhu.

Rach efikelelekayo

URachael Tomlinson ligama lakhe kwiwebhusayithi efikelelekayo kwiRach (umgca wethegi: “ngaphezulu kwesitulo esinamavili”). Ungumlandeli wombhoxo osekwe e-Yorkshire, eNgilani kuqala. Kwaye ukusukela ekufumanekeni kwakhe ene-MS ephambili eqhubela phambili, waguqula ubomi bakhe nge-MS ukuba babe lithuba lokuthetha ngokufumaneka kwesitulo esinamavili (okanye ukusilela kwaso) kwimidlalo emininzi yeligi yombhoxo e-United Kingdom. Umsebenzi wakhe uncede ukuzisa ulwazi kumcimbi wokufikeleleka kwebala lezemidlalo. Ukwangumfazi woKuvuselelwa. Ubaleka kwiphepha elidumileyo le-Instagram ekhuthaza ubuhle kunye neengcebiso zokuthambisa ngelixa encedisa ukusasaza ulwazi lwe-MS kunye nokutshabalalisa ibala elijikeleze isitulo esinamavili.

Kulungile kwaye Yomelele nge-MS

Kulungile kwaye kunamandla nge-MS ngumsebenzi womsunguli we-SocialChow kunye ne-CEO u-Angie Rose Randall. U-Angie wazalwa wakhulela eChicago kwaye waba yingcali kwezonxibelelwano ngaphambi kokuba afunyaniswe ukuba une-MS ebuyela emva eneminyaka engama-29. Umsebenzi wakhe kukubeka ubomi bakhe obuxakekileyo embonisweni ukubonisa ukuba kusenokwenzeka kangakanani na nasemva kokuxilongwa kwe-MS. Kwaye kunye nemisebenzi emininzi yexesha elipheleleyo, kubandakanya ukuqhuba inkampani yakhe kunye nabathengi abaphezulu abanjengoSprint kunye ne-NASCAR, bekhulisa abantwana ababini abancinci kunye noShih Tzu, kwaye bebhala rhoqo ngamava akhe, uzele izandla. Kwaye wenza umsebenzi omhle wokufumana umsebenzi.

I-MS Muse

Le bhlog ibaluleke kakhulu ebhalwe ngumfazi omnyama omnyama ofumene isifo se-multiple sclerosis kwiminyaka emi-4 eyadlulayo. Uzimisele ukuphonononga ubomi bakhe ngaphandle koloyiko kwaye angavumeli i-MS imchaze. Ibhlog inezinto zakhe zokuqala ezenzeka kwi-MS. Uyakumfumana "Abakhubazekileyo beziKronike" kunye "neJenali" egcwele amabali emihla athe ngqo ngaphandle kokufaka iswekile. Ukuba ufuna ukufunda amabali akhaliphileyo kunye avulekileyo okhubazekileyo, ukubuyela umva, kunye noxinzelelo olunokuhamba ne-MS, kunye nethemba lika-Ashley, yile bhlog yakho.

Ngaba unayo ibhlog yakho oyithandayo ongayinyula? Thumela i-imeyile kuthi [email protected].