Emva kokuhlala neMigraine engapheliyo iminyaka emininzi, uEileen Zollinger Ukwabelana ngeBali lakhe ngeNkxaso kunye nokuKhuthaza abanye

Umxholo

• Ifowuni yokunceda abanye
• Ukuqhagamshela kwi-app ye-Migraine Healthline

Umzekeliso nguBrittany England

Migraine Healthline iapp yasimahla kubantu abajongane ne-migraine engapheliyo. Insiza iyafumaneka kwiAppStore nakwiGoogle Play. Khuphela apha.

Ebuntwaneni bakhe bonke, u-Eileen Zollinger wahlaselwa yimigraine. Nangona kunjalo, kwathatha iminyaka ukuba aqonde oko wayenako.

"Xa ndijonga emva, umama wayeza kuthi xa ndineminyaka emi-2 ubudala ndigabhe kuye, [kodwa ndingakhange ndibonakalise ezinye iimpawu zokugula], kwaye isenokuba sisiqalo eso," utshilo uZollinger kuHealthline.

"Ndandiqhubeka ndinemigraines eyoyikekayo ekukhuleni kwam, kodwa baphathwa njengeentloko," utshilo. "Kwakungekho nto ingako yaziwayo malunga ne-migraines kwaye kwakungekho zixhobo zininzi zikhoyo."

Ngenxa yokuba uZollinger wayenengxaki ngamazinyo akhe, awayefuna ukuba enze utyando lomhlathi xa wayeneminyaka eyi-17, wathi wayeqhubeka nokuqaqanjelwa yintloko ngumlomo.

Emva kokulwa ngeminyaka yakhe yokufikisa kunye nokuba mdala ebudaleni engonwabanga, ekugqibeleni wafumana isifo sokuqaqanjelwa yimigraine eneminyaka engama-27.

Ndakhe ndanexesha elinzima emsebenzini ndayeka umsebenzi wezezimali ndaya kwindima yemveliso. Ngelo xesha, ndandinentloko ebuhlungu yoxinzelelo, endandiqala ukuqonda ukuba izakwenzeka kum ngemigraines, ”utshilo uZollinger.

Ekuqaleni, ugqirha wakhe ophambili waxilonga kwaye wamnyanga ngesifo sesono kwiinyanga ezi-6.

“Ndineentlungu ezininzi ebusweni bam, ngoko ke oko kungakhokelela kwisifo esingalunganga. Ekugqibeleni, ngenye imini udadewethu wandisa kwagqirha kuba ndandingaboni okanye ndisebenza, sathi sakufika apho, sacima izibane. Xa ugqirha wangena kwaye waqonda ubuntununtunu bam ekukhanyeni, wayesazi ukuba yimigraine, ”utshilo uZollinger.

Wamisela i-sumatriptan (Imitrex), eyanyanga uhlaselo emva kokuba lwenzekile, kodwa ngeli xesha, uZollinger wayehlala ne-migraine engapheliyo.

"Ndiqhubekile iminyaka ndizama ukufumanisa, kwaye ngelishwa imigraines yam khange ihambe okanye iphendule kumayeza nokuba. Kangangeminyaka eli-18, bendihlala ndihlaselwa y migraine mihla le, ”utshilo.

Ngo-2014, emva kokundwendwela oogqirha abaliqela, wanxibelelana nengcali yentloko eyacebisa ukuba azame ukutya okokuphelisa ukongeza kunyango.

"Ukutya kunye namayeza ngokuhlangeneyo ekugqibeleni kuko okwaphule loo mjikelo kum kwaye wandinika ikhefu leentsuku ezingama-22 ukusuka kwiintlungu - ixesha lokuqala endandinalo (ngaphandle kokukhulelwa) kwiminyaka eli-18," utshilo uZollinger.

Ukonga ukutya kunye namayeza okugcina i-migraine frequency episodic ukusukela ngo-2015.

Ifowuni yokunceda abanye

Emva kokufumana isiqabu kwimigraine, uZollinger wafuna ukwabelana ngebali lakhe kunye nolwazi alufumene nabanye.

Usekele ibhlog yakhe iMigraine Strong ukuba abelane ngolwazi kunye nezixhobo kunye nabo baphila nge-migraine. Wadibana nabanye abantu abahlala ne-migraine kunye ne-dietitian ebhalisiweyo ukunceda ukuhambisa umyalezo wakhe kwiblogi.

"Kukho ulwazi oluninzi olungelulo malunga ne-migraines phaya kwaye oogqirha banalo ixesha elincinci lokuchitha nawe kwigumbi ngalo lonke ixesha ungena kwidinga. Ndifuna ukudibanisa nabanye abantu kwaye ndikhuphe igama lokuba kukho ithemba. Ndifuna ukwabelana ngendlela yokufumana oogqirha abafanelekileyo kunye [nokufunda] malunga nokutya okupheliswayo okudityaniswe nokuzilolonga kunye namayeza angenza umahluko kwindlela oziva ngayo, utshilo.

Ukunceda abantu abakwindawo awayekuyo ixesha elide kunomvuzo omkhulu.

“Baninzi abantu abaphila neempawu abanazo kwaye abazi ukuba mabayaphi ukusuka apho. Sifuna ukuba kukukhanya okuqaqambileyo ekupheleni kwetonela, ”utshilo uZollinger.

Ukuyigcina ikhuthaza ngelixa inyani yinjongo yebhlog yakhe.

"Maninzi amaqela [akwi-intanethi], kodwa anokuba lusizi… bendifuna iqela apho bekukhona malunga nokuba sempilweni kunokuba kunjalo ngokugula, apho abantu beza bezama ukufumana indlela yokulwa nemigraine," utshilo. .

"Ziya kuhlala zikhona iintsuku apho siphantsi nje kwaye sizama ukungabinabo abo bantu banetyhefu, kodwa abo bantu bakhoyo xa ufuna iimpendulo. Sijongene nempilo entle, iqela elizakwenza ngcono izinto, ”wongeze watsho.

Ukuqhagamshela kwi-app ye-Migraine Healthline

UZollinger uthi indlela yakhe ilungile kwindima yakhe yakutshanje yokuxhasa nge-app yasimahla yeHealthline, iMigraine Healthline, ejolise ekuxhobiseni abantu ukuba baphile ngaphaya kwesifo sabo ngemfesane, inkxaso kunye nolwazi.

Insiza idibanisa abo baphila kunye ne-migraine. Abasebenzisi banokukhangela iiprofayili zelungu kwaye bacele ukuthelekisa naliphi na ilungu eluntwini. Banokujoyina ingxoxo yeqela ebibanjwa mihla le, ekhokelwa yimodareyitha yoluntu yase-migraine njengoZollinger.

Imixholo yokuxoxa ibandakanya izinto ezakhayo, unyango, indlela yokuphila, ikhondo lomsebenzi, ubudlelwane, ukulawula uhlaselo lwe-migraine emsebenzini nasezikolweni, impilo yengqondo, ukuhamba ngononophelo lwempilo, ukukhuthazeka kunye nokunye.

Njengemodareyitha, ukusondela kukaZollinger eluntwini kuqinisekisa ngokuthe ngqo kulwazi oluxabisekileyo kunye nengxelo kwiimfuno kunye neemfuno zamalungu, ukunceda ukugcina uluntu olonwabileyo nolonwabisayo.

Ngokwabelana ngamava akhe kunye namalungu akhokelayo ngeengxoxo ezifanelekileyo kunye nokubandakanya, uya kuzisa uluntu kunye ngobuhlobo, ithemba kunye nenkxaso.

“Ndinovuyo ngeli thuba. Yonke into eyenziwa sisikhokelo yiyo yonke into ebendiyenza kunye neMigraine Strong kule minyaka ili-4 idlulileyo. Imalunga nokukhokela indawo ekuhlaleni kunye nokunceda abantu kwindlela yabo nohambo lwabo ngemigraine, nokubanceda baqonde ukuba ngezixhobo ezifanelekileyo kunye nolwazi, imigraine iyalawuleka, utshilo uZollinger.

Ngokusebenzisa iapp, ujonge ekwenzeni unxibelelwano ngakumbi nabantu ngaphandle kwamajelo eendaba ezentlalo kwaye ujonge ukukhulula ukubekwa bucala okunokuhamba nokuhlala kunye ne-migraine engapheliyo.

"Njengokuba iintsapho zethu kunye nabahlobo bethu bexhasa kwaye benothando, ukuba abafumani migraine ngokwabo, kunzima kubo ukuba bavelane nathi, ke ngoko ukuba nabanye abantu ukuba bathethe nabo kwaye bathethe nabo kule app kuluncedo kakhulu," utshilo uZollinger .

Uthi inxenye yemiyalezo yeapp ivumela oku ngaphandle komthungo, kunye nethuba lokuba afumane nakwabanye kwaye anike.

Akukho suku ludlulayo ndingafundi nto emntwini, nokuba kungokuhlala kwabantu baseMigraine Strong, kwimidiya yoluntu, okanye kwiapp. Nokuba ndicinga ukuba ndinolwazi olungakanani ngemigraine, ndihlala ndifunda into entsha, utshilo.

Ukongeza kunxibelelwano, uthi icandelo lokuFumanisa leapp, elibandakanya impilo kunye namabali eendaba aphononongwe liqela labasebenzi bezonyango likaHealthline, limnceda ukuba ahlale esesikhathini kunyango, yintoni eqhubekayo, kunye nolutsha kwizilingo zeklinikhi.

"Ndihlala ndinomdla wokufumana ulwazi, ke kulungile ukuba nokufikelela kumanqaku amatsha," utshilo uZollinger.

Ngabantu abaphantse babe zizigidi ezingama-40 e-United States kunye neebhiliyoni kwihlabathi liphela abahlala ne-migraine, unethemba lokuba abanye baya kusebenzisa kwaye baxhamle kwi-Migraine Healthline app, nayo.

“Yazi ukuba baninzi abantu abafana nawe abane-migraine. Kuya kulungela ukuza kuthi ungene kwi-app. Singavuya ukudibana nawe kwaye senze unxibelelwano nawe, utshilo.

UCathy Cassata ngumbhali ozimeleyo ojolise kumabali ajikeleze impilo, impilo yengqondo kunye nokuziphatha komntu. Unobuchule bokubhala ngeemvakalelo kunye nokunxibelelana nabafundi ngendlela enengqiqo nenomdla. Funda ngakumbi ngomsebenzi wakhe Apha.