Bunjani uBomi emva kokuxilongwa kwe-Down Syndrome

Umxholo

• 1. Uphila ixesha elingakanani?
• 2. Zeziphi iimviwo ezifunekayo?
• 3. Unjani unikezelo?
• 4. Zeziphi ezona ngxaki zempilo zixhaphakileyo?
• 5. Injani ukukhula komntwana?
• 6. Kufanele ukuba kanjani ukutya?
• 7. Sinjani isikolo, umsebenzi kunye nobomi babantu abadala?

Emva kokwazi ukuba umntwana une-Down Syndrome, abazali kufuneka behlise umoya kwaye bafune ulwazi oluninzi malunga nokuba yintoni i-Down Syndrome, zithini iimpawu zayo, zeziphi iingxaki zempilo anokujongana nazo umntwana kwaye zeziphi iindlela zonyango ezinokunceda ukukhuthaza ukuzimela kwaye uphucule umgangatho wobomi bomntwana wakho.

Kukho imibutho yabazali efana ne-APAE, apho kunokwenzeka ukuba ufumane umgangatho, ulwazi oluthembekileyo kunye neengcali kunye nezonyango ezinokuthi ziboniswe ukunceda ukukhula komntwana wakho. Kolu hlobo lokudibana, kunokwenzeka ukuba ufumane abanye abantwana abane-syndrome kunye nabazali babo, ezinokuba luncedo ukwazi ukusikelwa umda kunye nezinto ezinokwenzeka umntu one-Down Syndrome.

1. Uphila ixesha elingakanani?

Ubomi obulindelweyo bomntu one-Down syndrome buyahluka, kwaye unokuchaphazeleka ziziphene zokuzalwa, ezinjengentliziyo kunye neziphene zokuphefumla, umzekelo, kunye nokulandelwa okufanelekileyo kwezonyango. Kwixesha elidlulileyo, kwiimeko ezininzi ixesha lokuphila belingadluli kwiminyaka engama-40 ubudala, nangona kunjalo, kule mihla, ngenkqubela phambili kwezonyango kunye nophuculo kunyango, umntu one-Down syndrome angaphila ngaphezulu kweminyaka engama-70 ubudala.

2. Zeziphi iimviwo ezifunekayo?

Emva kokuqinisekisa ukuxilongwa komntwana one-Down Syndrome, ugqirha unokuyalela iimvavanyo ezongezelelweyo, ukuba kukho imfuneko, ezinje nge: karyotype ekufuneka yenziwe de kube ngumnyaka woku-1 wobomi, i-echocardiogram, ukubala kwegazi kunye nehomoni ye-thyroid T3, T4 kunye ne-TSH.

Le theyibhile ingezantsi ibonisa ukuba loluphi uvavanyo ekufuneka lwenziwe, kwaye kufanele ukuba lwenziwe kweliphi inqanaba ngexesha lobomi bomntu onesifo se-Down Syndrome:

I-echocardiogram kufuneka iphindwe kuphela ukuba kukho nayiphi na into engaqhelekanga yentliziyo efumanekayo, kodwa amaxesha afanelekileyo kufuneka aboniswe ngugqirha wezifo zentliziyo ohamba nomntu one-Down's Syndrome.

3. Unjani unikezelo?

Ukuhanjiswa kosana olune-Down's Syndrome kunokuba yinto eqhelekileyo okanye yendalo, nangona kunjalo, kunyanzelekile ukuba ugqirha wentliziyo kunye neonatologist kufuneka babekhona ukuba bazalwe ngaphambi komhla ocwangcisiweyo, kwaye ngenxa yesi sizathu, ngamanye amaxesha abazali bakhetha icandelo le-cearean, sele oogqirha bengasoloko befumaneka ngalo lonke ixesha ezibhedlele.

Fumanisa ukuba ungenza ntoni ukuze uphinde ubuye kwicandelo le-cesarean ngokukhawuleza.

4. Zeziphi ezona ngxaki zempilo zixhaphakileyo?

Umntu one-Down Syndrome kunokwenzeka ukuba abe neengxaki zempilo ezinje:

• Ngamehlo: I-Cataract, i-pseudo-stenosis ye-lacrimal duct, i-refractive drug, kunye neiglasi kufuneka zinxitywe esemncinci.
• Ezindlebeni: I-otitis rhoqo enokuthanda ukungeva.
• Entliziyweni: Unxibelelwano lwangaphakathi okanye lwangaphakathi, isiphene se-septal se-atrioventricular.
• Kwinkqubo ye-endocrine: IHypothyroidism.
• Egazini: Leukemia, igazi.
• Kwinkqubo yokwetyisa: Utshintsho kwi-esophagus ebangela i-reflux, duodenum stenosis, aganglionic megacolon, isifo sikaHirschsprung, isifo seCeliac.
• Kwimisipha kunye namalungu: Ubuthathaka beLigament, ukuthotywa komlomo wesibeleko, ukususwa kwenyonga, ukungazinzi ngokudibeneyo, okunokuthi kuthande ukususwa.

Ngenxa yoku, kubalulekile ukulandela ugqirha ubomi bakho bonke, ukwenza iimvavanyo kunye nonyango nanini na kukho olu tshintsho.

5. Injani ukukhula komntwana?

Ithoni yezihlunu zomntwana ibuthathaka kwaye ke ngoko umntwana angathatha ixesha elincinci ukubamba intloko eyedwa kwaye ke abazali kufuneka balumke kakhulu kwaye bahlala bexhasa intamo yosana ukunqanda ukusasazeka komlomo wesibeleko kunye nokwenzakala kwithambo lomqolo.

Ukukhula kwengqondo yomntwana one-Down Syndrome kuyacotha kancinci kwaye kungathatha ixesha ukuhlala, ukukhasa nokuhamba, kodwa unyango nge-psychomotor physiotherapy lunokumnceda ukuba afikelele kwezi zinto zibalulekileyo zophuhliso olukhawulezileyo. Le vidiyo inemithambo enokukunceda ugcine ukuzilolonga kwakho ekhaya:

Kude kube yiminyaka emi-2 ubudala, usana ludla ngokuba neziqwengana zomkhuhlane, ukubanda, isisu esine-pneumonia kwaye sinokuba nenyumoniya kunye nezinye izifo zokuphefumla ukuba azinyangwa ngokuchanekileyo. Ezi ntsana zinokufumana isitofu sokuthintela umkhuhlane minyaka le kwaye zihlala zifumana isitofu sokugonya se-Respiratory Syncytial Virus xa sizalwa ukunqanda umkhuhlane.

Umntwana one-Down Syndrome angaqala ukuthetha kamva, emva kweminyaka emi-3 ubudala, kodwa unyango olunonyango lokuthetha lunokunceda kakhulu, lunciphise eli xesha, luququzelele unxibelelwano lomntwana nosapho kunye nabahlobo.

6. Kufanele ukuba kanjani ukutya?

Usana olune-Down Syndrome lunokuncancisa kodwa ngenxa yobungakanani bolwimi, ubunzima bokulungelelanisa ukufunxa nokuphefumla kunye nezihlunu ezidiniweyo ngokukhawuleza, unokuba nobunzima ekuncanciseni, nangona enoqeqesho oluncinci kunye nomonde. ube nakho ukuncancisa kuphela.

Olu qeqesho lubalulekile kwaye lunokunceda umntwana ukuba omeleze izihlunu zobuso eziya kumnceda ukuba athethe ngokukhawuleza, kodwa kuyo nayiphi na imeko, umama unokuphinda abonakalise ubisi ngempompo yebele kwaye emva koko alunike umntwana ngebhotile .

Khangela isiKhokelo sokuNcelisa isisu sabaQalayo

Ukuncancisa ibele kukodwa kuyacetyiswa ukuya kuthi ga kwiinyanga ezi-6, xa okunye ukutya kunokwaziswa. Kuya kufuneka usoloko ukhetha ukutya okusempilweni, uphephe isoda, amafutha kunye nefry, umzekelo.

7. Sinjani isikolo, umsebenzi kunye nobomi babantu abadala?

Abantwana abane-Down Syndrome banokufunda kwisikolo esiqhelekileyo, kodwa abo banobunzima bokufunda okanye ukudodobala kwengqondo bayazuza kwesi sikolo sikhethekileyo.Izinto ezinje ngemfundo yomzimba kunye nemfundo yobugcisa zihlala zamkelekile kwaye zinceda abantu baqonde iimvakalelo zabo kwaye baziveze ngcono.

Umntu oneDown Syndrome uyathandeka, uyaphuma, unentlalontle kwaye uyakwazi nokufunda, angafunda kwaye angaya nasekholejini asebenze. Kukho amabali abafundi abenza i-ENEM, baya kwikholeji kwaye bayakwazi ukuthandana, ukulala ngesondo, kwaye nokuba batshatile kwaye esi sibini sinokuhlala sodwa, kuphela ngenkxaso yomnye nomnye.

Njengokuba umntu oneDown Syndrome enotyekelo lokuthoba ubunzima, ukwenza umthambo kuzisa izibonelelo ezininzi, njengokugcina ubunzima obulungileyo, ukonyusa amandla emisipha, ukunceda ukukhusela ukulimala ngokudibeneyo kunye nokwenza lula ubudlelwane. Kodwa ukuqinisekisa ukhuseleko ngexesha lokuziqhelanisa nemisebenzi efana nokuzivocavoca umzimba, ukuqeqesha ubunzima, ukuqubha, ukukhwela ihashe, ugqirha unokuyalela iimviwo ze-X-ray rhoqo ukuvavanya umqolo wesibeleko, onokuthi uhlupheke, umzekelo.

Inkwenkwe ene-Down's Syndrome iphantse ibe yinyumba, kodwa amantombazana ane-Down's Syndrome angakhulelwa kodwa abe nethuba eliphezulu lokuba nomntwana one-Syndrome efanayo.